2020-03-24T11:14:02-07:00 2019-12-31 990EZ 2019-01-01 475555752 CHAMP FOUNDATION CHAM 7278712667 2712 LITTLE ROGERS ROAD DURHAM NC 27704 Jeffrey Reynolds President 7278712667 2020-03-16 107.13.146.135 2019 2020-11-19 02:30:22Z X www.thechampfoundation.org X X 147137 X 147023 0 0 114 0 0 0 0 0 0 0 0 0 0 0 147137 237500 0 0 0 0 0 840 238340 -91203 173032 0 81829 173032 81829 0 0 0 0 173032 81829 0 0 173032 81829 The Champ Foundation supports research toward better treatment and a cure for diseases caused by mitochondrial DNA deletions, with an emphasis on Pearson syndrome. These diseases are very rare; for example, there have only been around 100 cases of Pearson syndrome described in the literature since its discovery in 1979. Current "treatments" only address symptoms as they present themselves. Therefore, The Champ Foundation seeks to fund research that speeds the development of treatment and a cure. In 2019, The Champ Foundation continued to fund research projects at the University of Cambridge, the University of Miami, the Sheba Medical Center, and Boston Children's Hospital. The proposed Phase I/II trial at Sheba Medical Center came to fruition. According to the sponsor, The Champ Foundation's effort to connect researchers and facilitate collaboration was instrumental to the success of the IND application. The projects at Cambridge, Miami, and Boston all continue to make important progress toward novel avenues for treatment and a cure. The Champ Foundation also dedicated a significant amount of time and effort to pursuing new funding sources. We applied for and received, a large grant to allow our organization to build capacity and continue its mission. This funding began in FY2020. 237500 X 0 0 Jeffrey Reynolds President 20 0 0 0 Elizabeth Reynolds Vice President 10.00 0 0 0 Elizabeth Malkin Secretary 1 0 0 0 Tyler Albright Treasurer 1 0 0 0 Walker Cole Arledge Director 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 NC NY Jeffrey Reynolds 2712 LITTLE ROGERS ROAD DURHAM NC 27704 7278712667 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 107586 110214 161972 103849 147023 630644 0 0 0 0 0 0 0 0 0 0 0 0 107586 110214 161972 103849 147023 630644 195961 434683 0 0 102 295 114 511 0 0 0 0 0 0 0 0 0 0 0 0 631155 0 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 16 PayPal fees and bank fees, including wire fees.