2020-11-12T09:25:40-06:00 2020-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX STREET SUITE 400 ALEXANDRIA VA 22314 990 2019-07-01 112779073 SJOGREN'S SYNDROME FOUNDATION INC SJOG 3015304420 10701 PARKRIDGE BLVD NO 170 RESTON VA 20191 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 3015304420 2020-11-11 1 ANDREW E YOUNG CPA P01203950 7035351200 75.145.91.221 2020-11-11 07:33:23 ES P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 D1496E7539AEA771B0110689920647207C7BA73E 2019 2021-01-29 14:40:06Z STEVEN TAYLOR 10701 PARKRIDGE BLVD NO 170 RESTON VA 20191 3477980 0 X WWW.SJOGRENS.ORG X 1983 NY SEE SCHEDULE O FOR DESCRIPTION OF ORGANIZATION'S PRIMARY MISSION. 18 18 14 550 13250 0 3035820 2004952 385495 391049 34262 67055 -39188 5717 3416389 2468773 175500 175000 0 0 1399913 1520332 0 0 235337 766870 732307 2342283 2427639 1074106 41134 2009972 2458865 569117 1017693 1440855 1441172 X THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH PROJECTS. 0 0 520609 175000 RESEARCH INITIATIVES PROMOTE CONTINUED MEDICAL, SCIENTIFIC AND CLINICAL RESEARCH IN THE AREA OF SJOGREN'S. SSF AWARDED THREE RESEARCH GRANTS TO UNIVERSITY AFFILIATED RESEARCHERS DURING 2020. 173140 NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 568693 AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO HEALTHCARE PROFESSIONALS. IN ADDITION, THE FOUNDATION LAUNCHED A BRAND NEW WEBSITE OFFERING ADDITIONAL AWARENESS FOR SJOGREN'S. 817392 350541 OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS, CONFERENCES AND MEETINGS RELATED TO TOPICS RELEVANT TO THOSE WITH SJOGREN'S, AS WELL AS VARIOUS INDUSTRY AND MEMBERSHIP PROJECTS AND SERVICES FOR THOSE WITH SJOGREN'S OR ENTITIES PROVIDING SUPPORT TO THOSE INDIVIDUALS. 817392 350541 2079834 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 14 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CO FL IL MD MN MS NH NY OH OR PA SC TN UT VA WA WV X X SJOGREN'S SYNDROME FOUNDATION 3015304420 10701 PARKRIDGE BLVD SUITE 170 RESTON VA 20191 JANET E CHURCH CHAIRMAN 2.00 X X 0 0 0 DONALD E THOMAS MD CHAIR-ELECT 2.00 X X 0 0 0 TRICIA GOODING SECRETARY 2.00 X X 0 0 0 MONICA MCGILL ED D TREASURER 2.00 X X 0 0 0 ESEN K AKPEK MD DIRECTOR 2.00 X 0 0 0 SUSAN BARAJAS DIRECTOR 2.00 X 0 0 0 PATRICIA HURLEY MSC DIRECTOR 2.00 X 0 0 0 CHADWICK JOHR MD DIRECTOR 2.00 X 0 0 0 THERESA LAWRENCE FORD MD DIRECTOR 2.00 X 0 0 0 SCOTT LIEBERMAN MD DIRECTOR 2.00 X 0 0 0 CYNTHIA LOPYNSKI DIRECTOR 2.00 X 0 0 0 JONATHAN MORSE MSC DIRECTOR 2.00 X 0 0 0 JASON NICHOLS OD PHD DIRECTOR 2.00 X 0 0 0 TIMOTHY NIEWOLD MD FACR DIRECTOR 2.00 X 0 0 0 DAVID SCHRADER DIRECTOR 2.00 X 0 0 0 THOMAS D SUTTON DIRECTOR 2.00 X 0 0 0 MICHELLE WALLACE DIRECTOR 2.00 X 0 0 0 AVA WU DDS DIRECTOR 2.00 X 0 0 0 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 40.00 X 317193 0 36925 KATHERINE HAMMITT VICE PRESIDENT OF MEDICAL AND SCIENTIFIC RESEARCH 40.00 X 136629 0 5066 SHERIESE DEFRUSCIO VICE PRESIDENT OF MARKETING 40.00 X 121135 0 24511 BEN BASLOE VICE PRESIDENT OF PHILANTHROPY 40.00 X 112592 0 16111 687549 0 82613 4 0 1 0 0 227336 1777616 62651 2004952 MEMBERSHIP DUES 541900 238912 238912 CONFERENCE 541900 135304 93554 41750 ADVERTISING 541800 13250 13250 NEWSLETTER 541900 3583 3583 391049 26549 26549 4187 4187 1027811 986579 726 41232 -726 40506 40506 0 227336 12962 -12962 -12962 21634 8940 12694 12694 MISCELLANEOUS INCOME 541900 1798 1798 1798 2468773 350541 13250 100030 175000 175000 375901 329936 16505 29460 927855 802632 39748 85475 17791 15559 842 1390 118040 103281 5537 9222 80745 70894 3521 6330 28699 28699 4940 4940 44006 42015 319 1672 26296 23086 1148 2062 88918 78069 3878 6971 49363 49363 24846 24846 120 120 33736 29620 1471 2645 8075 7090 352 633 PRINTING, DUPLICATING, 99403 62655 845 35903 POSTAGE AND DELIVERY 80658 64223 1577 14858 AWARENESS ACTIVITIES 69818 69231 587 MAINTENANCE AND REPAIRS 43273 37991 1889 3393 130156 94343 1077 34736 2427639 2079834 112468 235337 180793 342524 505268 669735 69094 119474 4203 5985 28676 32882 274638 142071 161714 132567 1051275 1083977 62772 8949 8949 2009972 2458865 53640 30997 208750 258750 106848 345155 211800 199879 170991 569117 1017693 X 367959 440276 1072896 1000896 1440855 1441172 2009972 2458865 41134 -40817 0 X X 0 1 X 1 0 X 1795342 1848890 1844508 3035820 2004952 10529512 471117 339777 383928 331972 357683 1884477 2266459 2188667 2228436 3367792 2362635 12413989 1158942 1170405 1172598 2318228 1361236 7181409 0 1158942 1170405 1172598 2318228 1361236 7181409 5232580 19865 16012 22481 24943 30736 114037 19865 16012 22481 24943 30736 114037 3328 7701 2000 632 1798 15459 2289652 2212380 2252917 3393367 2395169 12543485 0.41720 0.44310 0.00910 0.00870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1072896 72000 1000896 1122896 50000 1072896 1.00000 0 0 166103 55970 110133 108535 86101 22434 132567 DEFERRED RENT 52552 CAPITAL LEASE PAYABLE 8326 DEFERRED TENANT ALLOWANCE 110113 170991 X 2456918 -40817 24236 -16581 2473499 4940 -9666 -4726 2468773 2456601 24236 9666 33902 2422699 4940 4940 2427639 PART V, LINE 4: THE FOUNDATION'S ENDOWMENT FUNDS CONSIST OF A BEQUEST THAT WAS RESTRICTED FOR THE PURPOSES OF RESEARCH. PART X, LINE 2: IN ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, ACCOUNTING STANDARDS REQUIRE AN ENTITY TO RECOGNIZE THE FINANCIAL STATEMENT IMPACT OF A TAX POSITION WHEN IT IS MORE-LIKELY-THAN-NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION. MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. PART XI, LINE 4B - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD -8,940. LOSS ON DISPOSAL OF ASSET -726. PART XII, LINE 2D - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD 8,940. LOSS ON DISPOSAL OF ASSET 726. WALKABOUTS AND SIPS EVENTS 214774 214774 12962 PARTNER PROGRAMS 12562 12562 227336 227336 12962 12962 -12962 1 UNIVERSITY OF FLORIDA 207 GRINTER HALL PO BOX 115500 GAINESVILLE FL 32611 596002052 SECTION 501(C)(3) 75000 FMV N/A RESEARCH GRANT UCLA SCHOOL OF DENTISTRY 10833 LE CONTE AVENUE 73-038 CHS LOS ANGELES CA 90095 956006143 SECTION 501(C)(3) 75000 FMV N/A RESEARCH GRANT BOSTON UNIVERSITY 569 CHESTNUT STREET BOSTON MA 02118 042103547 SECTION 501(C)(3) 25000 FMV N/A RESEARCH GRANT 3 0 PART I, LINE 2: THE SJOGREN'S SYNDROME FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S BY OFFERING ANNUAL RESEARCH GRANTS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 243800 0 73393 0 0 0 7350 0 29575 0 354118 0 0 0 X 4 62651 FMV 0 1 0 FORM 990, PART I, LINE 1 ORGANIZATION MISSION: THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH PROJECTS. FORM 990, PART VI, SECTION B, LINE 11B BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BY CONTACTING THE MAIN OFFICE. FORM 990, PART XII, LINE 2C THE FOUNDATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR. THE BOARD OF DIRECTORS IS RESPONSIBLE FOR OVERSIGHT OVER THE INDEPENDENT AUDIT AND SELECTION OF THE INDEPENDENT AUDITORS.