2025-09-02T18:47:56-05:00 2024-12-31 341897225 HILL BARTH & KING LLC 101 CRAWFORDS CORNER ROAD SUITE 2216 HOLMDEL NJ 07733 990 2024-01-01 201155709 THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC IGAN 7327707377 PO BOX 1322 WALL NJ 07719 LEONARD ERLANGER PRESIDENT 7327707377 2025-08-20 1 1 KATHLEEN M CLAYTON CPA P01448135 7323818887 2025-08-20 2024 2025-03-06 01:10:19Z LEONARD ERLANGER PO BOX 1322 WALL NJ 07719 2588671 0 X WWW.IGANEPHROPATHY.ORG X 2004 NJ THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT. 12 12 10 100 0 0 3012372 2516994 43679 1852 35166 69825 0 0 3091217 2588671 93672 108000 0 0 306727 482088 0 0 74529 1508955 1648612 1909354 2238700 1181863 349971 1853170 2684687 50510 532056 1802660 2152631 X THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT. 0 0 488775 CONFERENCES AND MEETINGSSPARK IS A TWO-DAY IN-PERSON ANNUAL PATIENT CONFERENCE ATTENDED BY PATIENTS AND THEIR FAMILY MEMBERS. THE EVENT EDUCATES PATIENTS AND CREATES A NETWORK. 1149557 8000 1852 EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY, INCLUDING PATIENT AID.PROFRAMS INCLUDE : AAPI INITATIVES, IGAN AWARENESS DAY, PATIENT ENGAGEMENT PROGRAMS, MONTHLY SUPPORT PROGRAMS, PODCASTS AND WEBINARS. 100000 100000 RESEARCH GRANTS ARE PROVIDED TO COLUMBIA UNIVERSITY. 1738332 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 15 0 10 1 0 0 0 0 0 0 0 0 0 0 0 0 X 12 12 1 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 AK AL AR CA CO CT DC DE FL GA IA IL KS KY LA MA MD ME MI MN MO MS NC ND NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WA WI WV X EXECUTIVE DIRECTOR 7327707377 1608 MAXWELL DRIVE WALL NJ 07719 LEONARD ERLANGER PRESIDENT 5.00 X X 0 0 0 BRIAN PARLATO VICE PRESIDENT 5.00 X X 0 0 0 MARY KATE SCHNEIDER SECRETARY 5.00 X X 0 0 0 JULIE SCROGGINS TREASURER 5.00 X X 0 0 0 JODY MORSE DIRECTOR 2.00 X 0 0 0 MICHAEL WARNER DIRECTOR 2.00 X 0 0 0 EDWARD SCHNEIDER DIRECTOR 2.00 X 0 0 0 HAROLD COTLER DIRECTOR 2.00 X 0 0 0 AMI GOPALAN DIRECTOR 2.00 X 0 0 0 JOHN WOJTAL ESQ DIRECTOR 2.00 X 0 0 0 MARGARET WARNER DIRECTOR 2.00 X 0 0 0 SUSAN SMITH DIRECTOR 2.00 X 0 0 0 BONNIE SCHNEIDER EXECUTIVE DIRECTOR 35.00 X 162063 0 6483 162063 0 6483 1 0 1 0 CURA STRATEGIES 2011 CRYSTAL DRIVE SUITE 1005 ARLINGTON VA 20301 MARKETING 145670 IMPACT HEALTH COMMUNICATIONS LLC 5 BROOK STREET DARIEN CT 06820 MEDICAL WRITING, MARKETING, PLANNING 120899 2 2516994 2516994 PROGRAM REVENUE 900099 1852 1852 1852 69825 69825 2588671 1852 0 69825 X 100000 100000 8000 8000 162063 145857 16206 267062 190877 58576 17609 14946 12765 882 1299 38017 29832 5189 2996 2372 2372 49017 49017 328745 169738 159007 628 628 71800 15569 49085 7146 81871 30931 50940 225 225 716798 671002 21243 24553 3538 3538 EVENT PRODUCTION 217411 217411 PATIENT EDUCATION 75941 75941 COOKBOOKS 46518 46518 TRAINING COSTS 23891 23891 29857 25137 4720 2238700 1738332 425839 74529 535193 432575 1317977 2041219 210893 1853170 2684687 40040 67056 465000 10470 0 50510 532056 X 1802660 2102631 50000 1802660 2152631 1853170 2684687 349971 0 X 0 1 X 1 0 X 248977 631853 1483121 3012372 2516994 7893317 248977 631853 1483121 3012372 2516994 7893317 4442342 3450975 35166 69825 104991 7998308 45849 0.43150 0.49170 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 2588671 0 2588671 0 2588671 2238700 0 2238700 0 2238700 0 COLUMBIA UNIVERSITY 116TH STREET ADN BROADWAY NEW YORK NY 10027 135598093 501C3 100000 0 RESEARCH PATIENT ASSISTANCE 8 8000 CASH VALUE 0 0 0 0 0 0 0 0 0 BONNIE SCHNEIDER EXECUTIVE DIRECTOR 162063 0 0 0 0 0 6483 0 0 0 168546 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 TWO OTHER BOARD MEMBERS, MARGARET AND MICHAEL WARNER ARE RELATED BY MARRIAGE. MARY KATE SCHNEIDER AND EDWARD SCHNEIDER ARE THE DAUGHTER AND SON OF THE EXECUTIVE DIRECTOR. EDWARD SCHNEIDER IS MARRIED TO THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD PROVIDES THE FULL 990 TO THE BOARD PRIOR TO FILING FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES INFORMATION AVAILABLE FOR PUBLIC INSPECTION UPON WRITTEN REQUEST. FORM 990, PART IX, LINE 11G OTHER CONSULTANTS: PROGRAM SERVICE EXPENSES 124,238. MANAGEMENT AND GENERAL EXPENSES 85,041. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 209,279. WELLNESS CONSULTANTS: PROGRAM SERVICE EXPENSES 45,500. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 45,500. MARKETING: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 71,803. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 71,803. RETIREMENT PLAN CONSULT: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 2,163. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,163.