2020-07-13T09:09:00-07:00 2019-12-31 FRITZ DEGUGLIELMO LLC 8 ESSEX STREET NEWBURYPORT MA 01950 990 2019-01-01 043222167 FRAXA Research Foundation Inc FRAX 9784621866 10 Prince Place Newburyport MA 01950 Katherine Clapp President 9784621866 2020-05-14 true Daniel E Schaffner CPA P00796903 9784622161 2020-07-13 173.13.123.81 2020-07-13 09:01:15 PD P 9325813F8D33C623A5B4A5043004254F148EC2F7 9325813F8D33C623A5B4A5043004254F148EC2F7 2019 2020-09-22 18:59:49Z Katherine N Clapp 10 Prince Place Suite 203 Newburyport MA 01950 1430320 false X www.fraxa.org X 1994 MA FRAXA's mission is to find effective treatments and ultimately a cure for Fragile X syndrome. 14 12 5 150 0 0 1813697 1326429 0 38889 44542 -7931 -19044 1844655 1351927 1075004 852418 0 361477 364288 0 120105 80224 72815 1516705 1289521 327950 62406 2422802 2468935 176236 7844 2246566 2461091 FRAXA's mission is to find effective treatments and ultimately a cure for Fragile X syndrome. false false 991806 852418 0 To raise funds for the direct funding of grant research for the purpose of finding treatment and cure for Fragile X. 109322 0 0 To fund programs for the purpose of educating the general public about Fragile X. 1101128 true true false false false false false false false false false false false false false true true false false false false true false false true false false true false false false false false false false false false false false false false false false false false false false true 3 0 true 5 true false false false false false false false false false false false false X 14 12 true false false false false false false true true false false true true true true true true true true false MA AZ CA GA IL MI NH NJ NY OH PA TX CT WA VA X X X Katherine N Clapp 9784621866 10 Prince Place Suite 203 Newburyport MA 01950 Katherine Clapp President 40.00 X X 94751 0 4704 Deborah Stevenson Board Chair 10.00 X X 0 0 0 Michael Tranfaglia Medical Director/Treasurer/Secretary 40.00 X X 107671 0 4703 Dean Clark Director 10.00 X 0 0 0 Theodore Coutilish Director 10.00 X 0 0 0 Leslie Eddy Director 10.00 X 0 0 0 Andres Centellas Director 10.00 X 0 0 0 Franziska Klebe Director 10.00 X 0 0 0 Jessica Haugen Director 10.00 X 0 0 0 James Vershbow Director 10.00 X 0 0 0 Ronald M Watkins Jr Director 10.00 X 0 0 0 Sasa Zorovic Director 10.00 X 0 0 0 Gregory Miller Director 10.00 X 0 0 0 Michael Pierce Director 10.00 X 0 0 0 David Bjork Development Director 40.00 X 100000 0 0 302422 0 9407 1 false false false 439365 887064 5954 1326429 46311 0 46311 27659 29428 -1769 -1769 0 0 -1769 21100 439365 48965 -27865 0 -27865 Product Sales & Other 900099 8821 8821 0 0 8821 1351927 8821 0 16677 674918 674918 177500 177500 211829 178857 19891 13081 127112 47005 1160 78947 25347 13094 2534 9719 5315 0 5315 0 30486 0 30486 0 3018 1153 1813 52 9120 4712 912 3496 1413 662 55 696 3748 0 3748 0 Bank and credit fees 12955 350 18 12587 Printing 846 405 0 441 Postage 1147 557 99 491 Registration Fees 1980 0 1980 0 2787 1915 277 595 1289521 1101128 68288 120105 11487 11826 1346718 1087479 100365 163558 1400 500 962832 1205572 2422802 2468935 7815 7844 168421 176236 7844 X 2116195 2361091 130371 100000 2246566 2461091 2422802 2468935 62406 152119 X false true X true false X 0 1176131 1234854 1552729 1813697 1326429 7103840 0 0 1176131 1234854 1552729 1813697 1326429 7103840 595518 6508322 72768 49588 41224 48342 46311 258233 0 0 7362073 17918 0.88400 0.86330 X 0 0 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1565696 152119 18000 48965 219084 1346612 5315 5315 1351927 1351171 18000 48965 66965 1284206 5315 5315 1289521 Pt II, Line 3 The Foundation has adopted the application of the provisions of FASB ASC 740-10 (formerly FASB Interpretation No. 48, "Accounting For Uncertainty in Income Taxes"). The primary tax positions made by the Foundation are the existence of Unrelated Business Income Tax and the Foundation's status as an exempt organization under Section 501(c)(3) of the Internal Revenue Code. The Foundation currently evaluates all tax positions, and makes determinations regarding the likelihood of those positions being upheld under review. For the year presented, and as a result of adoption, the Foundation has not recognized any tax benefits or loss contingencies for uncertain tax positions based on its evaluations. The Foundation's Form 990, Return of Organization Exempt from Income Tax, for the years ending December 31, 2016 through 2019 are subject to examination by the IRS, generally for 3 years after it is filed. Pt XI, Line 2d Fundraising event expense netted with revenue on Form 990 Pt XII, Line 2d Fundraising event expense netted with revenue on Form 990 North America Research 22500 Wire South America Research 60000 Wire Europe Research 20000 Wire North America Research 30000 Wire Europe Research 45000 Wire 5 false false false false false false Pt I Line 2 The Foundation makes their foreign grantees adhere to the same contract and write the same reports as their grantees in the US. The Foundation offers grants and fellowships designed to encourage research aimed at finding a specific treatment for fragile X syndrome. Institutions receiving grants must be exempt from federal income taxes under Section 501(c)(3) of the US Internal Revenue Code, if in the US. Institutions outside the US must be nonprofit educational institutions. Fellowships and grants are awarded for one year. A financial report and progress report are required within 90 days following the end of the project. If a project is not initiated within nine months of the date the award is made, the award must be reauthorized by the Foundation's Board of Directors. Patricks Pals 139230 139230 0 2826 Watkins Event 50000 50000 0 6 153178 132078 21100 26092 4927 342408 321308 21100 26092 7753 33845 -12745 true University of Washington Roosevelt Way NE Seattle WA 98115 916001537 45000 Research Cincinnati Children's Hospital 3333 Burnet Ave Cincinnati OH 45229 310833936 90000 Research University of Texas Southwestern PO Box 841765 Dallas TX 75284 756002868 45000 Research Massachusetts General Hospital 55 Fruit Street Boston MA 02211 041564655 45000 Research University of California Los Angeles 405 Hilgard Avenue Los Angeles CA 90095 956006143 45000 Research Mass Inst of Technology 77 Mass Avenue Cambridge MA 02139 042103594 45000 Research Rush University Medical Center 1653 W Congress Parkway Chicago IL 60612 362174823 100000 Research University of California 900 University Avenue Riverside CA 92521 956006142 13000 Research University of California - Berkeley 120 Sproul Hall Berkeley CA 94720 946002123 45000 Research Emory University 201 Dowman Drive Atlanta GA 30322 580566256 45000 Research Rowan University 201 Mullica Hill Road Glassboro NJ 08028 222764819 20800 Research Umass medical 55 N Lake Avenue Worcester MA 01655 043358566 45000 Research Boston Childrens Hospital PO Box 414413 Boston MA 02241 042774441 45000 Research University fo Wisconsin-Madison Drawer 538 Milwaukee WI 53278 396006492 45000 Research 1 13 Pt I Line 2 The Foundation offers grants and fellowships designed to encourage research aimed at finding a specific treatment for fragile X syndrome. Institutions receiving grants must be exempt from federal income taxes under Section 501(c)(3) of the US Internal Revenue Code, if in the US. Institutions outside the US must be nonprofit educational institutions. Fellowships and grants are awarded for one year. A financial report and progress report are required within 90 days following the end of the project. If a project is not initiated within nine months of the date the award is made, the award must be reauthorized by the Foundation's Board of Directors. Pt VI, Line 2 The President, Katherine Clapp and the Treasurer, Michael Tranfaglia are married. Pt VI, Line 11b The Form 990 is prepared by an outside independent auditor and is then reviewed by the Board of Directors at a meeting before being filed with the Internal Revenue Service. Pt VI, Line 12c If an issue is to be decided by the Board that involves potential conflict of interest for a board member, it is the responsibility of the board member to identify the potential conflict of interest, not participate in the discussion of the issue and not vote on the issue. Pt VI, Line 15a The Board of Director members exclusive of the officers being discussed meet independently to discuss salary increases. Pt VI, Line 15b The Board of Director members exclusive of the officers being discussed meet independently to discuss salary increases. Pt VI, Line 19 The Foundation has written governing documents, conflict of interest policy and financial statements and they are available for public inspection upon request. The audited financial statements an the Foundation's 501(c)(3) exempt status are available to the public on the Foundation's website (www.fraxa.org). The Foundation's financial information and tax forms are also available on guidestar.org. The process has not changed from the prior year.