2025-08-26T10:56:48+00:00 2025-03-31 440160260 Forvis Mazars LLP 135 West 50th Street New York NY 10020 990 2025-01-01 362883000 American Liver Foundation AMER 2126681000 PO BOX 229 WEST ORANGE NJ 07052 LORRAINE STIEHL CEO 2126681000 2025-08-26 true Aaron Shapiro P01333816 2128127000 2025-08-26 2024 2025-03-06 01:10:19Z LORRAINE STIEHL PO BOX 229 WEST ORANGE NJ 07052 2929507 false X WWW.LIVERFOUNDATION.ORG X 1976 IL ALF's mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease. 22 22 40 100 0 5097517 2042897 0 0 709973 67109 -146569 8598 5660921 2118604 943750 0 0 3845693 1038327 131857 0 163287 1600612 502422 6521912 1540749 -860991 577855 8854388 9476651 1974787 2029085 6879601 7447566 X ALF's mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease. false false 354319 SEE SCHEDULE O 346606 SEE SCHEDULE O 299679 SEE SCHEDULE O 1226072 true true false false false false false false true true true false false false true false true false false false false false false false false false false false false true false false false false false false false false false false true false false false false false false false false false true 54 0 40 true false false false false false true true false false false false X 22 22 false false false false false false false true true false false false true true true true true true true true false false CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME AK MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA AZ RI SC SD TN TX UT VT VA AR WA WV WI WY X X Abby Amankwaa 2126681000 PO BOX 229 WEST ORANGE NJ 07052 CARLO FRAPPOLLI SECRETARY 0.3 X X 0 0 0 EMMANUEL THOMAS MD PHD BOARD CHAIR 0.3 X X 0 0 0 GENE CAUTILLO TREASURER 0.3 X X 0 0 0 ALISHA MAVIS MD BOARD MEMBER 0.3 X 0 0 0 ALLAN DOERR BOARD MEMBER 0.3 X 0 0 0 ANNE DOYEN BOARD MEMBER 0.3 X 0 0 0 ARI COHEN MD FACS BOARD MEMBER 0.3 X 0 0 0 CONNIE DENEWETH BOARD MEMBER 0.3 X 0 0 0 DAVID COHEN MD PHD BOARD MEMBER 0.3 X 0 0 0 DAVID FRANK BOARD MEMBER 0.3 X 0 0 0 ELLEN RUCKER-SELLERS BOARD MEMBER 0.3 X 0 0 0 FRED KOSTECKI BOARD MEMBER 0.3 X 0 0 0 HAILEY PULEO BOARD MEMBER 0.3 X 0 0 0 JOHN BAYEUX III BOARD MEMBER 0.3 X 0 0 0 KEVIN LEE BOARD MEMBER 0.3 X 0 0 0 LIZ LEESMAN BOARD MEMBER 0.3 X 0 0 0 MATTHEW KOONZ BOARD MEMBER 0.3 X 0 0 0 MIKE BRAUNSTEIN BOARD MEMBER 0.3 X 0 0 0 PETER CULLEN BOARD MEMBER 0.3 X 0 0 0 PHIL SHIN BOARD MEMBER 0.3 X 0 0 0 RICHARD MILLER BOARD MEMBER 0.3 X 0 0 0 UDEME EKONG BOARD MEMBER 0.3 X 0 0 0 DAVID TICKER CFO 35.0 X 200815 0 23179 LORRAINE STIEHL CEO 35.0 X 231385 0 24525 JULIANN KIMBROUGH CHIEF MKTG, COMMS, PUBLIC AFF. 35.0 X 184465 0 7989 HEIDI DANIELS VP OF DEVELOPMENT 35.0 X 171637 0 29697 HELENE JORDAN NATL SR. DIRECTOR, Research Program MGMT 35.0 X 154599 0 16022 JACQUELINE DOMINGUEZ NATIONAL SENIOR DIRECTOR, ENGAGEMENT 35.0 X 136221 0 5829 KELLY SMITH VP OF EVENTS 35.0 X 155806 0 35093 SHERI SINGER NATL DIRECTOR, DEV./ENGAGEMENT 35.0 X 158578 0 708 1393506 0 143042 0 false true false Amplotech LLC PO Box 16422 San Juan PR 00908 Web Master & Marketing Support 187619 Bright Dot LLC 7424 Chapel Hill Rd Suite 107 Raleigh NC 27607 Major Gifts Cultivation 131857 2 757 11764 2030376 108000 2042897 0 0 0 0 0 61208 61208 0 0 813034 807133 5901 0 5901 5901 11764 3770 -3770 -3770 OTHER 900099 12368 12368 0 0 0 0 12368 2118604 0 0 75707 X 154658 124780 15759 14119 702735 566945 71602 64188 20241 16341 2064 1836 88816 71704 9056 8056 71877 58029 7329 6519 30131 23175 1426 5530 4177 4177 236357 181796 11184 43377 27438 26035 1403 52747 31747 16632 4368 15337 12373 1563 1401 11459 9244 1168 1047 59734 49608 4823 5303 5 5 8289 7035 661 593 8264 6713 818 733 Other expenses 44506 38099 2996 3411 Hotel, catering, and other event expenses 3978 2448 127 1403 0 0 0 0 1540749 1226072 151390 163287 1458264 2656457 853150 377885 450060 366674 0 0 173787 356666 208110 50087 50777 158023 5757022 5457291 0 0 111328 103655 8854388 9476651 287858 441985 850000 612500 62500 209167 658902 657509 0 115527 107924 1974787 2029085 X 4473058 3880304 2406543 3567262 6879601 7447566 8854388 9476651 577855 -9890 0 X false true true false X 6782864 5799860 4896417 5097517 2042897 24619555 0 0 6782864 5799860 4896417 5097517 2042897 24619555 1312585 23306970 54832 92900 249077 357056 61208 815073 0 113635 49115 28655 64535 12368 268308 25702936 0 0.90678 0.9124 X Schedule A, Part II, Line 10 Other Income DESCRIPTION - OTHER INCOME, COLUMN A - 113635.0, COLUMN B - 49115.0, COLUMN C - 28655.0, COLUMN D - 64535.0, COLUMN E - 12368.0, COLUMN F - 268308.0; RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false true X 1070847 -2235 1068612 983052 149295 61500 1070847 943717 189335 150000 983052 1152635 -208918 943717 988115 164520 1152635 0.0 0.6944 0.3056 false false 165512 39045 126467 42598 11042 31556 158023 Federal Income Taxes OPERATING LEASE LIABILITIES 107924 107924 2138437 -9890 33900 0 24010 2114427 4177 0 4177 2118604 1570472 33900 0 33900 1536572 4177 0 4177 1540749 Schedule D, Part X, Line 2 ASC 740 Footnote MANAGEMENT HAS EVALUATED THEIR INCOME TAX POSITIONS UNDER THE GUIDANCE INCLUDED IN ASC 740. BASED ON THEIR REVIEW, MANAGEMENT HAS NOT IDENTIFIED ANY MATERIAL UNCERTAIN TAX POSITIONS TO BE RECORDED OR DISCLOSED IN THE FINANCIAL STATEMENTS. Schedule D, Part IV, Line 2b Explanation of escrow agreement FUNDS HELD ON BEHALF OF OTHERS - ALF ACTS AS AN ADMINISTRATOR FOR FUNDS COLLECTED ON BEHALF OF LIVER TRANSPLANT PATIENTS. ALF DISBURSES FUNDS TO COVER THE COST OF PROPERLY DOCUMENTED POST-SURGERY EXPENSES. Schedule D, Part V, Line 4 Intended uses of endowment funds THE INTENDED USE OF ENDOWMENT FUNDS HAS BEEN SPECIFIED BY THE DONOR. ALL FUNDS ON HAND ARE USED TO GENERATE INTEREST/DIVIDEND INCOME AND CAPITAL GAINS TO SUPPORT VARIOUS RESEARCH INITIATIVES. X X false false false false false false false false false LORRAINE STIEHL CEO 221385 0 10000 0 0 0 8981 0 15544 0 255910 0 0 0 DAVID TICKER CFO 200815 0 0 0 0 0 8137 0 15042 0 223994 0 0 0 JULIANN KIMBROUGH CHIEF MKTG, COMMS, PUBLIC AFF. 184465 0 0 0 0 0 6736 0 1253 0 192454 0 0 0 HEIDI DANIELS VP OF DEVELOPMENT 166637 0 5000 0 0 0 6597 0 23100 0 201334 0 0 0 KELLY SMITH VP OF EVENTS 155806 0 0 0 0 0 6485 0 28608 0 190899 0 0 0 HELENE JORDAN NATL SR. DIRECTOR, Research Program MGMT 154599 0 0 0 0 0 0 0 16022 0 170621 0 0 0 SHERI SINGER NATL DIRECTOR, DEV./ENGAGEMENT 158578 0 0 0 0 0 0 0 708 0 159286 0 0 0 1 108000 Cost 0 false false false Schedule M, Part I Explanations of reporting method for number of contributions Drugs and medical supplies - THE ORGANIZATION IS REPORTING THE NUMBER OF CONTRIBUTIONS Form 990, Part III, Line 4a COMMUNITY SERVICE COMMUNITY SERVICE: ALF conducts important advocacy work on behalf of the patient community, actively raising awareness of legislation affecting the liver community. Began introductory outreach to the 119th Congress. Created a Health Policy Round-Up blog which highlights health policy news. Sent a Medicaid Action Alert to ensure no cuts to Medicaid liver patients. Planned Liver Life Advocacy Summit scheduled for late April. Sent letters to the Centers for Medicare and Medicaid Services regarding their proposed rule on anti-obesity medication coverage. Participated in a Rare Disease Day panel discussion. Form 990, Part III, Line 4b PATIENT SUPPORT PATIENT SUPPORT: ALF provides much needed support through numerous programs geared to liver patients and their caregivers. Administered Caring Connections, ALF's Peer-to-Peer support program. Held national support group meetings facilitated by trained social workers. Provided support for biliary atresia families through the Bili the Brave program involving 25 national children's hospitals. Planned the launch of ALF's national non-directed living liver donor transplant registry. Launched a liver website microsite to host clinical trial-related content including educational information for patients and caregivers, and a clinical trials finder tool to help match patients with available clinical trials. Encouraged patient engagement with the American Liver Foundation Patient Registry that has attracted 804 participants to date and is being translated into Spanish. Form 990, Part III, Line 4c PUBLIC AND PATIENT EDUCATION PUBLIC AND PATIENT EDUCATION: Through ALF's signature public health campaign, Think Liver Think Life, made great progress in raising awareness of fatty liver disease. Expanded to 30 states; signed 65 MOUs with free and charitable clinics, FQHCs, and health departments. Screened at 29 community events nationwide. Distributed 2,775 Hep C tests through clinics. Executed 14,000 Think Liver Think Life online quizzes since program inception, with more than 1.75 million people learning about their liver health. ALF focuses on creating impactful national partnerships to provide public and patient education. Executed national agreement with the Veterans Administration to provide liver education and support to veterans including liver videos, liver website microsite, liver webinars and YouTube channel. Launched a national partnership with Walgreens to educate the community on fatty liver disease through the creation of multiple webinars. Published an ALF blog for the National Health Council's Black History Month series. Worked with UPMC to create, produce and promote a new three-part educational webinar series on liver transplant. Raising national public awareness of liver disease is a priority for ALF. Appeared on the nationally televised Tamron Hall Show, featuring a prominent ALF family. Launched the Educated Patient series featuring Q&A and Recipes, working with MJH Life Sciences. Secured media stories in MedPage Today, Everyday Health, and SRN News. Executed public education campaigns including diseases of the liver, hepatitis, liver disease diets, MASLD/MASH. Released 11 videos including presentations about liver cancer, pediatric liver disease, COVID liver update, and several patient testimonials for ALF patient registry. Form 990, Part III, Line 4a-4c Description of program services (Expenses $ 133,862 including grants of $) PROFESSIONAL EDUCATION Issued monthly liver newsletter, Healthcare Connections, to over 3,000 medical professionals. Launched first comprehensive educational program for the primary care community on MASH, utilizing a national platform Project Echo. Conducted 2025 Liver Health Poster Competition with liver medical professionals and liver fellows. Engaged medical experts to execute the following tasks: fact sheet content development and/or review; Spanish translation; connections with expert topic medical presenters; support group leadership; recruitment of early career professionals; medical expert champions for events; medical expert KOLs for committees; medical expert recruitment for Corporate Council meetings; and HCP recruitment for media opportunities. Engaged National Medical Visionary Team, an advisory group that meets on a regular basis to explore publication content and avenues to promote ALF's public health work. Engaged medical professionals in ALF's liver disease initiative, palliative care initiative, Veterans partnership, and so much more. Launched second Student Liver Club at an academic medical center. Form 990, Part III, Line 4a-4c Description of program services (Expenses $ 91,606 including grants of $) RESEARCH American Liver Foundation (ALF) has a history of commitment to research funding dating back to 1979. In 2023 with the approval of ALF's National Board of Directors, ALF established a dedicated Research Department led by an experienced PhD. Growth has been exponential in terms of meaningful pilot research grant opportunities for experienced researchers and grant awards to support the pipeline of early career researchers. The ALF Research Program was promoted at the annual AASLD (American Association for the Study of Liver Diseases) Liver Meeting through interactions with a variety of stakeholders, including academic researchers, industry partners, patients, and other non-profit organizations. Form 990, Part VI, Line 11b Review of form 990 by governing body A DRAFT OF THE FORM 990 IS SENT TO THE FINANCE COMMITTEE FOR REVIEW AND COMMENTS IN THE MONTHLY MEETING PRIOR TO FILING. IN ADDITION, A DRAFT OF THE FORM 990 IS ALSO SENT TO EACH BOARD MEMBER FOR DISCUSSION. AFTER QUESTIONS AND COMMENTS ARE ADDRESSED AND THE FORM 990 IS APPROVED, IT IS READY FOR FILING. Form 990, Part VI, Line 12c Conflict of interest policy ANNUALLY, OUR CONFLICT OF INTEREST FORM IS COMPLETED BY OFFICERS AND DIRECTORS. THE FORM MUST INDICATE ANY POSSIBLE CONFLICTS OF INTEREST AND IS SIGNED BY ALL OFFICERS AND DIRECTORS. WHEN ANY SUCH CONFLICT OF INTEREST IS RELEVANT TO A MATTER REQUIRING ACTION BY THE BOARD, THE INTERESTED PERSON SHALL CALL IT TO THE ATTENTION OF THE BOARD AND SUCH PERSON SHALL NOT VOTE ON THE MATTER. MOREOVER, THE PERSON HAVING A CONFLICT SHALL RETIRE FROM THE ROOM IN WHICH THE BOARD IS MEETING AND SHALL NOT PARTICIPATE IN THE FINAL DELIBERATION OR DECISION REGARDING THE MATTER UNDER CONSIDERATION. HOWEVER, THAT PERSON SHALL PROVIDE THE BOARD WITH ANY AND ALL RELEVANT INFORMATION. THE MINUTES OF THE MEETING OF THE BOARD, SHALL REFLECT THAT THE CONFLICT OF INTEREST WAS DISCLOSED AND THAT THE INTERESTED PERSON WAS NOT PRESENT DURING THE FINAL DISCUSSION OR VOTE AND DID NOT VOTE. WHEN THERE IS A DOUBT AS TO WHETHER A CONFLICT OF INTEREST EXISTS, THE MATTER SHALL BE RESOLVED BY A VOTE OF THE BOARD. Form 990, Part VI, Line 15a Process to establish compensation of top management official CEO COMPENSATION IS DETERMINED BY THE NATIONAL BOARD OF DIRECTOR'S EXECUTIVE COMMITTEE AND APPROVED BY THE BOARD MEMBERS. IN DETERMINING SALARY LEVELS, THE EXECUTIVE COMMITTEE REVIEWS AN ANNUAL SALARY SURVEY OF NATIONAL VOLUNTARY HEALTH ORGANIZATIONS PREPARED FOR THE NATIONAL HEALTH COUNCIL AND REVIEWS PRIOR YEAR PERFORMANCE. CURRENT MARKET CONDITIONS AND THE FINANCIAL CONDITION OF THE AMERICAN LIVER FOUNDATION ARE ALSO CONSIDERED IN SETTING COMPENSATION. THIS REVIEW WAS LAST CONDUCTED IN 2024. Form 990, Part VI, Line 15b Process to establish compensation of other employees THE SALARY OF OFFICERS AND KEY EMPLOYEES ARE DETERMINIED BY THE CEO AND CFO BASED ON PERFORMANCE, MARKET CONDITIONS AND THE FINANCIAL CONDITION OF THE AMERICN LIVER FOUNDATION. Form 990, Part VI, Line 19 Required documents available to the public THE ANNUAL AUDIT REPORT AND FORM 990 ARE AVAILABLE VIA WWW.LIVERFOUNDATION.ORG AND FORM 1023 AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST Form 990, Part IX, Line 11g Other Fees OTHER PROFESSIONAL FEES - Total Expense: 236357, Program Service Expense: 181796, Management and General Expenses: 11184, Fundraising Expenses: 43377;