2020-06-18T14:40:58-05:00 2019-09-30 Grant Thornton LLP 100 E Wisconsin Ave Milwaukee WI 53202 990 2018-10-01 411704734 BE THE MATCH FOUNDATION % AMY RONNEBERG BETH 7634068700 500 N 5th St Minneapolis MN 554011206 AMY RONNEBERG CFO 7634068694 2020-06-18 true Michelle L Weber P00556798 4142898200 66.26.193.188 39529020201705000001 2020-06-18 P A1D10582EE1F32FCEA7992C6C8578AB9CE481BC2 F95E4C64CEDD513F034CF4AC6595F41E547E15A3 2018 2021-01-29 14:40:06Z Joy King 500 N 5th St Minneapolis MN 554011206 16017439 false X www.bethematch.org X 1991 MN FUNDRAISING TO SUPPORT THE MISSION OF THE NATIONAL MARROW DONOR PROGRAM (NMDP)/ BE THE MATCH: TO SAVE LIVES THROUGH CELLULAR THERAPY. 18 17 36 1131 0 0 11051487 10751245 0 0 1016155 868271 -381475 -540428 11686167 11079088 8668907 9991185 0 0 3096383 3987185 445975 786942 1856564 1729580 2152680 13940845 16917992 -2254678 -5838904 15117948 16248451 2536211 9689455 12581737 6558996 X FOR PATIENTS WITH BLOOD CANCERS LIKE LEUKEMIA, LYMPHOMA, OR OTHER LIFE-THREATENING BLOOD DISORDERS, THERE IS HOPE FOR A CURE THROUGH MARROW TRANSPLANTATION. THE FIRST STEP IS TO FIND A MATCHED DONOR, BUT 70% PERCENT OF PATIENTS DO NOT HAVE A SUITABLY MATCHED DONOR IN THEIR FAMILY, AND DEPEND ON OUR BE THE MATCH REGISTRY TO FIND A MARROW DONOR. WITH THE SUPPORT OF OUR CONTRIBUTORS, EACH YEAR, WE: - FACILITATE MORE MARROW AND CORD BLOOD TRANSPLANTS - GROW AND DIVERSIFY THE WORLD'S LARGEST AND MOST DIVERSE DONOR REGISTRY - SUPPORT PATIENTS AND THEIR FAMILIES BEFORE, DURING AND AFTER TRANSPLANT - CONDUCT RESEARCH AND EDUCATION TO EXPAND TREATMENT AND IMPROVE OUTCOMES - ENGAGE THE PUBLIC IN OUR LIFE-SAVING MISSION. AS THE WORLD'S LEADING NONPROFIT ORGANIZATION FOCUSED ON SAVING LIVES THROUGH CELLULAR THERAPY, BE THE MATCH CONTINUES TO IMPROVE ACCESS TO TRANSPLANT BY LEADING EFFORTS TO REMOVE BARRIERS TO TREATMENT AND STRENGTHEN OUR ABILITY TO MEET THE GROWING NEED. THANKS TO OUR COMMUNITY O false false 4904740 4904740 0 PATIENT ASSISTANCE BE THE MATCH FOUNDATION (BTMF) PROVIDES FINANCIAL ASSISTANCE TO PATIENTS THROUGHOUT EACH STAGE OF THE TRANSPLANT PROCESS. MORE THAN $4 MILLION WAS PROVIDED TO PATIENTS IN NEED THIS YEAR. TWO GRANT PROGRAMS SUPPORT PATIENTS PRE-TRANSPLANT AND ARE DESIGNED TO HELP PATIENTS, WHO HAVE INSURANCE AND FINANCIAL BARRIERS THAT DELAY OR PREVENT THEM FROM FINDING A DONOR. THE FAMILY TYPING GRANT (FTG) PAYS LABS, ON BEHALF OF THE PATIENTS, FOR THE TYPING OF FIRST DEGREE RELATIVES NEEDED TO IDENTIFY IF THERE IS A DONOR IN THE FAMILY. THE FTG HELPED 241 PATIENTS THIS FISCAL YEAR. FOR THOSE WITHOUT A DONOR IN THEIR FAMILY, SEARCH ASSISTANCE FUNDS (SAF) HELPS PATIENTS START THE UNRELATED DONOR SEARCH PROCESS BY GIVING TRANSPLANT CENTERS A GUARANTEE OF PAYMENT FOR SPECIFIC SEARCH AND/OR PROCUREMENT COSTS. THERE WERE 627 PATIENTS APPROVED FOR SAF THIS FISCAL YEAR. BTMF ALSO PROVIDES TWO POST-TRANSPLANT GRANTS TO HELP WITH THE MANY UNCOVERED EXTRA EXPENSES PATIENTS EXPERIENCE FOLLOWING A TRANSPLANT. THE TRANSPLANT SUPPORT ASSISTANCE (TSA) GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED FAMILIES WITHIN THE FIRST YEAR AFTER TRANSPLANT. TSA HELPS WITH EXTRA EXPENSES, SUCH AS TRANSPORTATION, TEMPORARY RELOCATION, CO-PAYS, AND INSURANCE PREMIUMS. THIS YEAR 1,337 PATIENT AWARDS WERE GRANTED TSA - WITH THE AVERAGE GRANT AWARD BEING $2,000. THE JOHN AND CARYN CAMIOLO SURVIVORSHIP GRANT (CAM) PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED PATIENTS, WHO ARE BEYOND ONE YEAR POST TRANSPLANT AND WHO HAVE BEEN DIAGNOSED WITH CHRONIC GRAFT-VERSUS-HOST DISEASE. CAM HELPS WITH UNCOVERED COSTS OF TREATMENT AND PRESCRIPTIONS. THIS FISCAL YEAR, 88 PATIENTS WERE HELPED THROUGH THE CAM PROGRAM WITH THE AVERAGE GRANT BEING $750. 1951125 1951125 0 RESEARCH - RESEARCH INNOVATIONS ARE CRITICAL TO EXPANDING TREATMENT TO MORE PATIENTS AND IMPROVING OUTCOMES. EACH YEAR, BTMF IS PROUD TO INVEST IN RESEARCH THROUGH: THE CENTER FOR INTERNATIONAL BLOOD AND MARROW TRANSPLANT RESEARCH (CIBMTR): THE CIBMTR IS A JOINT COLLABORATION BETWEEN BE THE MATCH AND THE MEDICAL COLLEGE OF WISCONSIN, FACILITATING CRITICAL, CUTTING-EDGE RESEARCH THAT HAS LED TO INCREASED SURVIVAL AND AN ENRICHED QUALITY OF LIFE FOR THOUSANDS OF PATIENTS WORLDWIDE. THIS WORK INCLUDES ESTABLISHING AND MAINTAINING AN EXTENSIVE DATABASE FOR RESEARCHERS, CONDUCTING OBSERVATIONAL STUDIES, AND PLANNING AND FACILITATING CLINICAL TRIALS THAT ASSESS TRENDS AND THERAPIES. LAST YEAR, MORE THAN 200 RESEARCH STUDIES WERE UNDERWAY THROUGH THE CIBMTR. THE AMY STRELZER MANASEVIT RESEARCH PROGRAM (AMY PROGRAM): OUR FLAGSHIP RESEARCH FELLOWSHIP, THE AMY PROGRAM FUNDS EARLY CAREER INVESTIGATORS FOCUSED ON ADVANCES IN THE PREVENTION AND TREATMENT OF POST-TRANSPLANT COMPLICATIONS (E.G., GRAFT-VERSUS-HOST-DISEASE AND INFECTION). IN 2019, WE FUNDED THE WORK OF 14 AMY SCHOLARS. AMY SCHOLARS HAVE GONE ON TO BECOME LEADERS IN THE FIELD, PURSUING SCIENTIFIC ADVANCES THAT HELP BE THE MATCH PATIENTS LIVE LONGER, HEALTHIER LIVES. SINCE 1998, BTMF HAS INVESTED NEARLY $9 MILLION TO HELP LAUNCH THE CAREERS OF 41 YOUNG PHYSICIAN-SCIENTISTS. AFTER RECEIVING THEIR AMY SCHOLAR AWARDS, THIS GROUP HAS GONE ON TO WIN MORE THAN $110 MILLION IN SUBSEQUENT FUNDING TO PURSUE THE DISCOVERIES THAT WILL HELP PATIENTS LIVE LONGER, HEALTHIER LIVES AFTER TRANSPLANT. TODAY, THE AMY STRELZER MANASEVIT RESEARCH PROGRAM FOR THE STUDY OF POST-TRANSPLANT COMPLICATIONS IS ONE OF THE LARGEST AND MOST COVETED FELLOWSHIPS IN THE FIELD OF TRANSPLANTATION. ANTHONY NOLAN TRUST: PROVIDE SUPPORT TO THE ANTHONY NOLAN RESEARCH INSTITUTE TO CONTINUE DEVELOPMENT AND MAINTENANCE OF AN HLA CLASS I AND II SEQUENCE DATABASE AND PROVISION OF HLA CLASS I AND II SEQUENCE INFORMATION. 1657856 1657856 0 RECRUITMENT - THE BE THE MATCH REGISTRY PROVIDES THE MOST DIVERSE LISTING OF POTENTIAL DONORS AND CORD BLOOD UNITS IN THE WORLD. BTMF PROVIDES FINANCIAL SUPPORT AND AID IN ADDING MEMBERS TO THE REGISTRY. WITH 22 MILLION POTENTIAL DONORS AND MORE THAN 300,000 UMBILICAL CORD BLOOD UNITS, OUR GROWING REGISTRY IS HELPING PATIENTS GET THE TRANSPLANT THEY NEED. IN FISCAL YEAR 2019, OVER 1.4M NEW POTENTIAL DONORS WERE ADDED TO THE BE THE MATCH REGISTRY, OF WHICH MORE THAN 305,000 WERE RECRUITED IN THE U.S. ALTHOUGH THERE ARE MILLIONS ON THE REGISTRY, PATIENTS SOMETIMES STILL CANNOT FIND A MATCH. THIS IS DUE IN PART TO THE PATIENTS ETHNIC BACKGROUND. ON AVERAGE, A PATIENT'S LIKELIHOOD OF FINDING A MATCH ON THE BE THE MATCH REGISTRY RANGES FROM 19% TO 80% DEPENDING ON THE ETHNIC BACKGROUND. SOME ETHNIC GROUPS HAVE MORE COMPLEX TISSUE TYPES THAN OTHERS, SO A PERSON'S BEST CHANCE OF FINDING A DONOR IS WITH SOMEONE OF THE SAME ETHNIC BACKGROUND. THE IMPORTANCE OF INCREASING DIVERSITY ON THE REGISTRY IS AN ORGANIZATION GOAL AND PRIORITY AT BE THE MATCH. BE THE MATCH MEXICO WAS A NEW INITIATIVE IN FISCAL YEAR 2017. WITH THE GOAL OF REACHING MORE PATIENTS AND INCREASING DIVERSITY ON THE REGISTRY, WORK CONTINUES TO HAPPEN TO CREATE A NETWORK OF DONOR CENTERS AND FUNDRAISING PARTNERS IN MEXICO. IN FISCAL YEAR 2019, OVER 28,000 RECRUITS WERE ADDED IN MEXICO WITH MANY UNIQUE HLA TYPES TO HELP WITH OUR VISION OF DEMOCRATIZING CELL THERAPY. 5627220 1477464 14140941 true true false false false false false false false true true true false true false true false true false false true true false true true true false true true true false false false false false false false false true false false false false true false false false true 141 0 true 36 true false true MX false false false true true false false false false false false X 18 17 false false false false true true true true true false false true true true true true true true true false AL AR CA FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X X AMY RONNEBERG 7634068694 500 N 5TH ST MINNEAPOLIS MN 554011206 X Joseph Loughran Chair 1.0 0.0 X 0 0 0 Anne McGeorge Vice Chair 1.0 0.0 X 0 0 0 Roger Paschke Secretary 1.0 0.0 X 0 0 0 Robert Sit Treasurer 1.0 0.0 X 0 0 0 Jason Ahlgren Director 1.0 0.0 X 0 0 0 Andrew Block Director 1.0 0.0 X 0 0 0 Diana Carter Director 1.0 0.0 X 0 0 0 Scot Housh Director 1.0 0.0 X 0 0 0 Bruce Manasevit Director 1.0 0.0 X 0 0 0 C Randal Mills Director & CEO 2.0 48.0 X X 0 1150413 55440 Nicole Moore Director 1.0 0.0 X 0 0 0 Jacqueline Patterson Director - Thru 5/19 1.0 0.0 X 0 0 0 David Pearce Director 1.0 0.0 X 0 0 0 William Pomeroy Director 1.0 0.0 X 0 0 0 Antonio Prioletti Director 1.0 0.0 X 0 0 0 Richard Rieger Director 1.0 0.0 X 0 0 0 Michael Rose Director 1.0 0.0 X 0 0 0 Michael Stewart Director 1.0 0.0 X 0 0 0 Thomas Teach Director 1.0 0.0 X 0 0 0 Amy Ronneberg Chief Financial Officer 1.0 49.0 X 0 634097 29284 Joy King Exec. Dir. BTMF/SVP PHILAN. 20.0 30.0 X 140288 210431 55446 Stephen Stout Sr. Dir, Major & Planned Gifts 50.0 0.0 X 175746 0 43307 Todd Peterson Sr. Dir, Corp. & Dist. Ptnrs 50.0 0.0 X 165400 0 42706 Mary Beth Heffernan Sr. Dir, Public Engag & Oper 50.0 0.0 X 154617 0 39196 Daniel Lee Manager, ADO & Major Gifts Dir 50.0 0.0 X 113632 0 15539 Jonathan Carter Manager, Operations 50.0 0.0 X 109603 0 36051 859286 1994941 316969 6 false true false Learfield Communications PO Box 843038 KANSAS CITY MO 64184 Advertising 925000 MAL WARWICK ASSOCIATES 2550 NINTH STREET - STE 103 BERKELEY CA 94710 PROGRAM SUPPORT 270375 ON THE LOT EVENTS 1150 WEST 48TH STREET LOS ANGELS CA 90037 EVENT SUPPORT 263292 BLACKBAUD PO BOX 930256 ATLANTA GA 31193 SOFTWARE SUPPORT 179411 4 1237092 1931058 7583095 160803 10751245 0 247043 247043 0 0 0 0 0 4820747 4199519 621228 621228 621228 176304 1237092 734083 -557779 -557779 22100 4749 17351 17351 0 0 0 0 11079088 327843 3722194 3722194 4607772 4607772 1661219 1661219 0 154124 100181 23119 30824 0 3150159 2047603 472524 630032 102054 66335 15308 20411 324007 210605 48601 64801 256841 166947 38526 51368 0 0 31632 31632 0 786942 786942 5770 5770 197581 82984 7903 106694 672965 672965 161670 103469 58201 249779 104907 9991 134881 0 153053 99484 22958 30611 592917 474334 118583 0 0 0 0 0 15974 10223 5751 REGISTRATIONS AND MEMBERSHIP 50172 0 50172 0 RECOGNITION 15185 9719 5466 0 UBI TAX EXPENSE 5982 5982 0 16917992 14140941 920487 1856564 0 0 1255875 2764568 3634034 3929877 2011 0 0 0 0 0 0 0 0 0 193875 328144 6823 6823 8751933 5081507 0 4144355 0 0 0 0 1280220 0 15117948 16248451 1359910 8119745 1176301 1569710 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2536211 9689455 X 5055614 -3228655 6822123 8069770 704000 1717881 12581737 6558996 15117948 16248451 -5838904 -183837 X false true X true false X X 12002986 8943953 11148511 11051487 10751245 53898182 0 0 12002986 8943953 11148511 11051487 10751245 53898182 12040795 41857387 292503 265875 274817 229695 247043 1309933 0 635903 318593 552210 345444 198404 2050554 57258669 0.73102 0.69851 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1407960 2963973 240500 4612433 1407960 1407960 0.62310 0.37690 0.00000 false false 1828 1828 4995 4995 VANGUARD ENDOWMENT FUNDS 4144355 F 4144355 0 0 X Intended Uses of Endowment Funds Schedule D, Part V, Line 4 The intended uses of the endowment funds are to support research and patient assistance. Organization's Liability for uncertain tax positions under ASC 740 SCHEDULE D, PART X, LINE 2 THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT THE PROGRAM AND BTMF ARE TAX EXEMPT ORGANIZATIONS UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE NOT-FOR-PROFIT STATUS OF THE PROGRAM AND BTMF ARE CONSIDERED TAX POSITIONS UNDER FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) ACCOUNTING STANDARDS CODIFICATION (ASC) 740, INCOME TAXES. THE ORGANIZATION FOLLOWS THE ACCOUNTING STANDARDS FOR CONTINGENCIES IN EVALUATING UNCERTAIN TAX POSITIONS. THIS GUIDANCE PRESCRIBES RECOGNITION THRESHOLD PRINCIPLES FOR THE FINANCIAL STATEMENT RECOGNITION OF TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN ON A TAX RETURN THAT ARE NOT CERTAIN TO BE REALIZED. NO LIABILITY HAS BEEN RECOGNIZED BY THE ORGANIZATION FOR UNCERTAIN TAX POSITIONS AS OF SEPTEMBER 30, 2019 OR 2018. THE ORGANIZATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. true North America 1 0 Grantmaking 1610219 Europe (Including Iceland and Greenland) 0 0 Grantmaking 51000 1 0 1 0 1661219 1661219 North America Mexico Recruitment Support 1609481 WIRE Europe (Including Iceland and Greenland) Research/Scholar 51000 CHECK/WIRE 0 2 0 false false true false false false Procedures for Monitoring the Use of Grants Outside the U.S. Schedule F, Part I, Line 2 The grants provided to Mexico are mostly to Be The Match Mexico A.C., which is a related organization. These funds are used for fundraising and recruitment of Mexico donors to the Be the Match Registry and are monitored through regular financial updates and oversight of the Be The Match Mexico A.C. board of directors. The grant provided to Italy is part of a bone marrow transplant research scholar program that was started many years ago. The grantees are required on a bi-annual basis to submit detailed progress reports to Be The Match that outline the use of funds. The payments are made to the institution that the scholar is conducting research at as an additional precaution that the funds are used for their intended purpose. X X X X X X true COMMUNITY COUNSELING SERVICE 527 MADISON AVENUE FIFTH FLOOR NEW YORK NY 10022 FUNDRAISING CONSULTANT false 333503 ONE ALL INC 2 NORTH LAKE AVENUE SUITE 600 PASADENA CA 911011868 FUNDRAISING CONSULTANT false 453439 786942 AL AK AR CA CO CT FL GA HI IL KS KY ME MD MA MI MN MS MO NV NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI MPLS GALA/BASH 811584 697285 114299 10536 57098 63109 158381 22466 NY AWARDS GALA 151610 136130 15480 86061 60000 39689 16708 6 450202 403677 46525 47030 94644 47726 30635 1413396 1237092 176304 10536 190189 217753 245796 69809 734083 -557779 22100 3819 930 true 1.00000 22100 3819 930 4749 17351 MN true false true false 0.27000 0.63000 JOY KING 500 N 5th Street MINNEAPOLIS MN 554011206 false MICKYLA CONSTANCE GAMING COORDINATOR X false Gross Receipts from Fundraisers SCHEDULE G, PART I, LINE 2B, COLUMN (IV) THE GROSS RECEIPTS FROM THE ACTIVITIES THAT ONE & ALL INC AND COMMUNITY COUNSELING SERVICE ASSIST OUR ORGANIZATION ON ARE NOT ABLE TO BE SEPARATELY REPORTED. ONE & ALL INC WORKS ON OUR DIRECT MAIL AND ONLINE GIVING APPEALS. COMMUNITY COUNSELING SERVICE WORKS ON GENERAL FUNDRAISING STRATEGY AND FUNDRAISING CAMPAIGN CONSULTING. THE WORK OF THESE ORGANIZATION AIDS IN MANY OF OUR FUNDRAISING INITIATIVES THROUGHOUT OUR FISCAL YEAR THUS CANNOT BE SEPARATELY REPORTED. Gaming Manager SCHEDULE G, PART III, LINE 16 OTHER GAMING MANAGERS INCLUDE FINANCE INDIVIDUALS WHO COUNT THE CASH AND DEPOSIT IT AT THE BANK. true National Marrow Donor Program 500 N 5th St Minneapolis MN 55401 840865803 501(c)(3) 48375 0 Donor Recruitment National Marrow Donor Program 500 N 5th St Minneapolis MN 55401 840865803 501(c)(3) 1196125 0 Research Support National Marrow Donor Program 500 N 5th St Minneapolis MN 55401 840865803 501(c)(3) 485277 0 Clinical Trials Support National Marrow Donor Program 500 N 5th St Minneapolis MN 55401 840865803 501(c)(3) 261000 0 Various NMDP Program Gift Of Life 5901 Broken Sound Pkwy NW 600 Boca Raton FL 33487 223131232 501(c)(3) 500000 0 Collection Center Uni of Texas MD Anderson Cancer Center 1515 Holcombe Boulevard Houston TX 77030 746001118 501(C)(3) 34000 0 Research/Scholar H Lee Moffitt Cancer Center & Research Institute PO Box 74801 Atlanta GA 30374 592451713 501(c)(3) 34000 0 Research/Scholar Children's National Medical Center 801 Roeder Rd Ste 500 Silver Spring MD 20910 521640403 501(c)(3) 68000 0 Research/Scholar Washington University of St Louis 600 South Euclid Avenue St Louis MO 63110 430654872 501(c)(3) 108000 0 Research/Scholar Memorial Sloan Kettering Cancer Center 633 3rd Ave 4th Floor New York NY 10017 131924236 501(C)(3) 68000 0 Research/Scholar University of California San Francisco PO BOX 748872 Los Angeles CA 90074 946036493 501(C)(3) 68000 0 Research/Scholar Fred Hutchinson Cancer Research Center PO Box 19024 Seattle WA 98109 237156071 501(C)(3) 68000 0 Research/Scholar Baylor School of Medicine in Houston PO Box 4803 Houston TX 77210 741613878 501(C)(3) 68000 0 Research/Scholar University of Pittsburgh PO Box 371220 Pittsburgh PA 15251 250965591 501(C)(3) 68000 0 Research/Scholar University North Carolina at Chapel Hill PO Box 402420 Atlanta GA 30384 566001393 501(C)(3) 40000 0 Research/Scholar Dana-Faber Cancer Institute PO Box 414744 Boston MA 02241 042263040 501(C)(3) 40000 0 Research/Scholar University of Alabama 701 20th Street South Birmingham AL 35294 630649108 501(C)(3) 40000 0 Research/Scholar National Marrow Donor Program 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(C)(3) 291100 BTMM TAM GRANT National Marrow Donor Program 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(C)(3) 5130 Donor Assistance National Marrow Donor Program 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(C)(3) 231187 BOOK SALARY PROGRAM SUPPORT 14 0 Patient Post Transplant Support 1456 2850182 0 Donor Assistance 168 118522 0 Typing Costs for Family Members of Patients 323 54380 0 Travel Assistance 54 100268 0 Patient Search Assistance Grants 1071 1484420 Procedure for Monitoring the Use of Grant Funds Inside U.S. SCHEDULE I, PART I, LINE 2 THE NATIONAL MARROW DONOR PROGRAM (NMDP) MAKES PAYMENTS TO AND HAS CONTRACTUAL AGREEMENTS WITH THE RECRUITMENT TYPING LABS AND RESEARCH ORGANIZATIONS THAT BTMF HELPS SUPPORT. NMDP MONITORS THESE AGREEMENTS AND PAYMENTS. NMDP FOSTERS AND MAINTAINS THE LONG-STANDING RELATIONSHIPS WITH THE VARIOUS LABS TASKED WITH TYPING OUR NEW RECRUITS. NMDP WORKS CLOSELY WITH THE RESEARCH SCHOLARS FROM THE GRANT AWARD APPLICATION TO THE END OF THE PROJECT. PATIENT GRANTS ARE TRACKED IN OUR CUSTOM BUILT SYSTEM. PATIENT SEARCH ASSISTANCE GRANTS ARE AWARDED THROUGH BTMF. PATIENTS APPLY FOR PRE- AND POST-TRANSPLANT SUPPORT GRANTS THROUGH PATIENT AND HEALTH PROFESSIONAL SERVICES, A DEPARTMENT WITHIN NMDP, WHO REVIEWS APPLICATIONS WEEKLY, DETERMINES THE GRANT NEEDS BASED ON THE PRELIMINARY REGISTRY SEARCH AND TRANSPLANT CENTER CRITERIA. THE PRE-TRANSPLANT GRANTS ARE AWARDED TO COVER POTENTIALLY UNINSURED DONOR SEARCH ASSISTANCE FUNDS, AND CHECKS ARE WRITTEN DIRECTLY TO TRANSPLANT CENTERS (ORGANIZATIONS). THE PATIENT POST-TRANSPLANT GRANTS ARE AWARDED TO THE APPLICANT BASED ON FINANCIAL NEED AND ARE USED TO COVER SUCH ITEMS AS UNINSURED COSTS, CO-PAYS, FOOD, LODGING, AND GROUND TRANSPORTATION. PAYMENTS ARE MADE DIRECTLY TO THE PATIENT/APPLICANT (INDIVIDUAL). DONOR ASSISTANCE CHECKS ARE ALSO AWARDED TO THE APPLICANT BASED ON FINANCIAL NEEDS AND ARE USED TO OFFSET HAVING TO TAKE UNPAID TIME OFF FROM WORK IN ORDER TO DONATE. PAYMENTS ARE MADE DIRECTLY TO THE DONOR (INDIVIDUAL). PURPOSE OF GRANT SCHEDULE I, PART II, LINE 1(H) DONOR RECRUITMENT REFERS TO ADDING NEW DONORS TO THE BE THE MATCH REGISTRY. Typing Costs for Family Members of Patients Schedule I, Part III, Line 3 OUR FAMILY TYPING GRANT (FORMERLY RELATED SEARCH ASSISTANCE GRANT) HELPS PATIENTS PAY FOR THE TYPING COST OF THEIR FAMILY MEMBERS TO DETERMINE IF THEY ARE A MATCH FOR A TRANSPLANT. THE NUMBER OF RECIPIENTS LISTED ON SCHEDULE I INCLUDES THE NUMBER OF INDIVIDUALS THAT WERE TESTED FOR OUR RELATED SEARCH ASSISTANCE PROGRAM. EACH PATIENT CAN HAVE MORE THAN ONE FAMILY MEMBER TYPED. false true false false false false false true false C Randal Mills Director & CEO 0 658822 0 372400 0 119191 0 24340 0 31100 0 1205853 0 Amy Ronneberg Chief Financial Officer 0 429799 0 159880 0 44418 0 24340 0 4944 0 663381 0 Joy King Exec. Dir. BTMF/SVP PHILAN. 87800 131700 41631 62445 10857 16286 9736 14604 12442 18664 162466 243699 0 Stephen Stout Sr. Dir, Major & Planned Gifts 142745 0 31563 0 1438 0 12596 0 30711 0 219053 0 0 Todd Peterson Sr. Dir, Corp. & Dist. Ptnrs 147369 0 16907 0 1124 0 12243 0 30463 0 208106 0 0 Mary Beth Heffernan Sr. Dir, Public Engag & Oper 133726 0 19222 0 1669 0 10041 0 29155 0 193813 0 0 Top Management's Compensation Schedule J, Part I, Line 3 BTMF USES NMDP'S COMPENSATION COMMITTEE WHICH IS CHARGED WITH SETTING THE COMPENSATION OF NMDP'S CEO. AS REPORTED ON NMDP'S FORM 990, SCHEDULE J, A COMPENSATION COMMITTEE, INDEPENDENT COMPENSATION CONSULTANT, WRITTEN EMPLOYMENT CONTRACT, COMPENSATION SURVEY OR STUDY, AND APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE ARE ALL UTILIZED WHEN DETERMINING COMPENSATION. The NMDP Bylaws state: "The Compensation Committee shall be comprised only of Voting Directors and shall include the Chair of the Board and at least one (1) non-officer Board member as voting committee members. The Compensation Committee shall review and evaluate the overall compensation and benefit structure of the Corporation and shall have such other authority and responsibilities as set forth in the Compensation Committee Charter." The Compensation Committee Charter states: "The Committee shall review and evaluate the overall compensation and benefit structure of the Corporation, and approve and adopt a compensation philosophy and principles consistent with the Corporations non-for-profit status (the Compensation Philosophy and Principles). The Committee shall conduct the Chief Executive Officer (CEO) performance evaluation. The Committee shall make CEO total compensation and benefit recommendations to the Executive Committee, consistent with the Compensation Philosophy and Principles. In making compensation and benefit recommendations for the CEO, the Committee shall utilize, among other things, comparability data for compliance with IRS Intermediate Sanction provisions so as to allow the Corporation to take advantage of the rebuttable presumption of reasonableness. On a periodic basis, the Committee shall obtain comparability data from an independent compensation consultant. In addition, the Committee shall advise the CEO in his/her evaluation of and decisions regarding the compensation of and benefits for senior Corporation employees, as well as the President (or equivalent leader) of any subsidiary of the Corporation reporting to the CEO (together, Senior Leadership). In advising the CEO in making his/her compensation and benefit decisions for Senior Leadership, the Committee shall ensure that such decisions are consistent with the Compensation Philosophy and Principles, and utilize, among other things, comparability data for compliance with IRS Intermediate Sanction provisions. If decisions proposed by the CEO are outside the parameters of the Compensation Philosophy and Principles, the CEO must obtain the Committee's approval prior to implementation." Supplemental Nonqualified Retirement Plan Schedule J, Part I, Line 4b THE ORGANIZATION OFFERS ITS OFFICERS, SENIOR VICE PRESIDENTS, VICE PRESIDENTS, AND DIRECTORS A 457(B) DEFERRED COMPENSATION PLAN (THE "PLAN") CREATED IN ACCORDANCE WITH APPLICABLE PROVISIONS OF THE INTERNAL REVENUE CODE. THE PLAN PERMITS EMPLOYEES TO DEFER A PORTION OF THEIR SALARY UNTIL FUTURE YEARS. THE ACCUMULATED DEFERRED COMPENSATION BALANCE IS NOT AVAILABLE TO EMPLOYEES UNTIL TERMINATION, RETIREMENT, DEATH, OR UNFORESEEABLE EMERGENCY. ALL AMOUNTS OF COMPENSATION DEFERRED UNDER THE PLAN, AND ALL INCOME ATTRIBUTABLE TO THOSE AMOUNTS, ARE (UNTIL PAID OR MADE AVAILABLE TO THE EMPLOYEE OR OTHER BENEFICIARY) SOLELY THE PROPERTY OF THE ORGANIZATION, AND THE ORGANIZATION HAS ALL THE RELATED RIGHTS OF OWNERSHIP (NOT RESTRICTED TO THE PAYMENT OF BENEFITS UNDER THE PLAN), SUBJECT ONLY TO THE CLAIM OF THE ORGANIZATIONS GENERAL CREDITORS. PARTICIPANTS RIGHTS UNDER THE PLAN ARE EQUAL TO THOSE OF GENERAL CREDITORS OF THE ORGANIZATION IN AN AMOUNT EQUAL TO THE FAIR MARKET VALUE OF THE DEFERRED ACCOUNT FOR EACH PARTICIPANT. THE RELATED ASSETS AND LIABILITIES ARE REPORTED AT FAIR MARKET VALUE BASED ON QUOTED MARKET PRICES AND ARE INCLUDED WITHIN DEFERRED COMPENSATION FUNDS AND DEFERRED COMPENSATION PAYABLE IN THE CONSOLIDATED STATEMENTS OF FINANCIAL POSITION. THE ORGANIZATION OFFERS A SUPPLEMENTAL BENEFITS PLAN (THE "SUPPLEMENTAL PLAN") FOR ITS OFFICERS, SENIOR VICE PRESIDENTS, AND VICE PRESIDENTS. EACH YEAR, THE SUPPLEMENTAL PLAN CONTRIBUTES 14% OF SALARY FOR THE CHIEF EXECUTIVE OFFICER, 12% FOR CHIEF FINANCIAL OFFICER, 9% FOR OTHER OFFICERS AND SENIOR VICE PRESIDENTS, AND 4% FOR VICE PRESIDENTS. THE SUPPLEMENTAL PLAN IS A FLEXIBLE BENEFIT PLAN ALLOWING THE SUPPLEMENTAL PLAN PARTICIPANTS TO SELECT FROM LIMITED OPTIONS, WHICH INCLUDE PAYMENT FOR SPOUSAL LONG-TERM CARE, AND THE BALANCE AS A CONTRIBUTION INTO THE 457(B) DEFERRED COMPENSATION PLAN (ABOVE) AND/OR AN EXECUTIVE SAVINGS PLAN TO SUPPLEMENT CURRENT BASIC AND SUPPLEMENTAL BENEFITS. THE EXECUTIVE SAVINGS PLAN REPLACED THE CAPITAL ACCUMULATION PLAN EFFECTIVE JANUARY 1, 2013. ALL SUPPLEMENTAL PLAN PARTICIPANTS RECEIVE LIFE INSURANCE, DISABILITY SALARY CONTINUATION, LONG-TERM DISABILITY AND LONG-TERM CARE INSURANCE. THE EXECUTIVE SAVINGS PLAN WAS CREATED IN ACCORDANCE WITH APPLICABLE PROVISIONS OF THE INTERNAL REVENUE CODE (IRC SEC 7702) WHEREBY AFTER-TAX CONTRIBUTIONS INTO THE PLAN ACCUMULATE WITHOUT TAXATION AND MAY BE DISTRIBUTED WITHOUT TAXATION USING A COMBINATION OF TAX-FREE WITHDRAWALS AND LOANS. CONTRIBUTIONS WILL RESULT IN CURRENT INCOME TAXATION. PLAN BALANCES ARE PERSONALLY OWNED BY THE PLAN PARTICIPANTS IMMEDIATELY AND ARE NOT SUBJECT TO A RISK OF FORFEITURE; AS SUCH, THE PLAN ASSETS ARE NOT RECORDED ON THE ORGANIZATIONS FINANCIAL STATEMENTS. THE SUPPLEMENTAL PLAN ALSO PROVIDES FOR ADDITIONAL LIFE INSURANCE UP TO $750,000. Non-Fixed Payments Schedule J, Part I, Line 7 EMPLOYEE INCENTIVE PLAN PAYMENTS ARE DETERMINED EACH YEAR AS PART OF THE PERFORMANCE EVALUATION COMPLETED BY HUMAN RESOURCES IN COLLABORATION WITH THE INDIVIDUALS MANAGER. THE ANNUAL INCENTIVE PLAN IS DETERMINED BY TAKING INTO ACCOUNT THE RESULTS OF THE ORGANIZATIONS OPERATING METRICS AND EACH DEPARTMENTS GOALS. X 4 64588 FMV X 3 3500 FMV X Auction Items 362 86105 FMV X Advertisement 1 6610 FMV false true false OTHER PROGRAM SERVICES Form 990, Part III, Line 4d BTMF PARTNERS WITH NMDP ON VARIOUS INITIATIVES TIED TO THE SHARED MISSION. THESE PROGRAMS INCLUDE: THE JASON CARTER CLINICAL TRIALS PROGRAM HELPS PATIENTS WITH LIFE-THREATENING BLOOD DISORDERS FIND CLINICAL TRIALS. THIS PROGRAM USES A WEBSITE TO CONNECT PATIENTS AND THEIR FAMILIES WITH INFORMATION THAT THEY NEED TO FIND A CLINICAL TRIAL AND RECEIVE ONE-ON-ONE SUPPORT AND EDUCATION FROM A NMDP EDUCATION SPECIALIST. NMDP IS A LEADER IN PROVIDING HEALTH CARE PROFESSIONALS WITH THE EDUCATION, RESOURCES AND SERVICES THEY NEED TO PROVIDE THE BEST CARE FOR TRANSPLANT PATIENTS. BTMF HELPS TO FUND THE CREATION AND DISTRIBUTION OF A NEWSLETTER FOCUSED ON THE ADVANCEMENTS IN TRANSPLANTATION AS WELL AS QUICK REFERENCE GUIDES, WITH AN ACCOMPANYING APP VERSION, THAT PROVIDES RESOURCES FOR HEALTH CARE PROFESSIONALS WHO CARE FOR PATIENTS BEFORE, DURING, AND/OR AFTER A TRANSPLANT. SPONSORSHIPS FOR THE ANNUAL ONE FORUM, FORMERLY CALLED COUNCIL MEETING, ARE RECEIVED BY BTMF AND THEN GIFTED TO NMDP. THIS MEETING CONNECTS ALL THE NMDP NETWORK PARTNERS AND FOCUSES ON EDUCATION AND SHARING PROGRESS AND CHALLENGES RELATING TO TRANSPLANTS. BTMF ALLOCATES COMPENSATION AND BENEFITS, OCCUPANCY AND OTHER OPERATING EXPENESE COSTS TO PROGRAM BASED ON EMPLOYEE RESPONSIBILITIES. Members or Stockholders Form 990, Part VI, Line 6 NMDP is the sole corporate member of BTMF. Members or Stockholders Who May Elect And Approve Decisions Form 990, Part VI, Lines 7A & 7B The NMDP board elects the board of directors of BTMF and approves the actions of BTMF. Form 990 Review Process Form 990, Part VI, Line 11b THE ORGANIZATION CONTRACTED WITH THE OUTSIDE PUBLIC ACCOUNTING FIRM, GRANT THORNTON LLP, TO PREPARE THE FORM 990. PREPARING THE DETAILS AND SUPPORTING REPORTS FOR THE RETURN IS A COLLABORATIVE EFFORT AMONG A SMALL GROUP OF INDIVIDUALS IN THE FINANCIAL REPORTING & COMPLIANCE AREA OF FINANCE, INTERNAL AUDIT AND HUMAN RESOURCES. THAT WORK IS THEN REVIEWED BY THE MANAGER OF FINANCIAL REPORTING PRIOR TO SENDING TO GRANT THORNTON LLP; THE CHIEF LEGAL OFFICER ALSO REVIEWS THE GOVERNANCE SECTIONS PRIOR TO SENDING TO GRANT THORNTON LLP. ONCE A DRAFT IS RECEIVED BACK FROM GRANT THORNTON LLP, IT IS REVIEWED BY THE STAFF THAT PULLED THE DETAILS TOGETHER, NMDP ACTING CHIEF FINANCIAL OFFICER AND CHIEF INFORMATION OFFICER, AND EXECUTIVE DIRECTOR OF BTMF. A COPY OF THE RETURN IS PROVIDED TO THE NMDP AUDIT AND FINANCE COMMITTEE AND BTMF BOARD OF DIRECTORS PRIOR TO FILING. Conflict of Interest Policy Monitoring & Enforcement Form 990, Part VI, Line 12c THE CONFLICT OF INTEREST POLICY STATES THE FOLLOWING: "The existence of an actual or potential conflict of interest turns on the specific facts and circumstances in each case. If a Member has an interest which may conflict with those of the Organizations, he or she must immediately disclose the matters and discuss them fully and frankly with the applicable Organizations full Board or its Executive Committee, as set forth in detail below. A Member must not participate in any matter in which that Member may have an actual or potential conflict of interest without the express approval of the applicable Organizations Board of Directors or Executive Committee of the Board of Directors (Executive Committee). All Members must disclose to the applicable Organizations Board of Directors or Executive Committee all conflicts of interest and reportable relationships, and must annually complete and submit the Conflict of Interest Questionnaire which is required by this Policy. Whenever in the course of events a Members circumstances change such that the Member knows or has reason to believe that the Member may have an actual or perceived conflict of interest, such Member shall promptly disclose the potential conflict to the applicable Organizations Board of Directors or Executive Committee. For the purposes of this Article, a Member may formally disclose a conflict or reportable relationship to the Chief Executive Officer (CEO) of NMDP, the BTMF Executive Director and Senior Vice President (SVP) of Philanthropy, or the NMDP Chief Legal Officer (CLO), as applicable, who shall inform the applicable Organizations Board of Directors or Executive Committee for resolution. As noted herein, if the potential conflict involves a Director or Committee Member, that Director or Committee Member shall not participate in or vote upon such matters until the question of the existence of the conflict of interest has been resolved in accordance with this Policy. Likewise, an officer or key employee may not become substantially involved in decision-making involving any covered litigation, contract or transaction until the resolution of the matter in accordance with this Policy." Process for Determining Compensation Form 990, Part VI, Lines 15a & 15b The BTMF Chief Advancement Officer reports directly to the NMDP CEO and is considered a key employee per IRS definition during fiscal year 2019. The compensation of the BTMF Chief Advancement Officer is reviewed, evaluated, and set in accordance with the NMDP Bylaws and Compensation Committee Charter. The NMDP Bylaws state: "The Compensation Committee shall be comprised only of Voting Directors and shall include the Chair of the Board and at least one (1) non-officer Board member as voting committee members. The Compensation Committee shall review and evaluate the overall compensation and benefit structure of the Corporation and shall have such other authority and responsibilities as set forth in the Compensation Committee Charter." The Compensation Committee Charter states: "The Committee shall review and evaluate the overall compensation and benefit structure of the Corporation, and approve and adopt a compensation philosophy and principles consistent with the Corporations non-for-profit status (the Compensation Philosophy and Principles). The Committee shall conduct the Chief Executive Officer (CEO) performance evaluation. The Committee shall make CEO total compensation and benefit recommendations to the Executive Committee, consistent with the Compensation Philosophy and Principles. In making compensation and benefit recommendations for the CEO, the Committee shall utilize, among other things, comparability data for compliance with IRS Intermediate Sanction provisions so as to allow the Corporation to take advantage of the rebuttable presumption of reasonableness. On a periodic basis, the Committee shall obtain comparability data from an independent compensation consultant. In addition, the Committee shall advise the CEO in his/her evaluation of and decisions regarding the compensation of and benefits for senior Corporation employees, as well as the President (or equivalent leader) of any subsidiary of the Corporation reporting to the CEO (together, Senior Leadership). In advising the CEO in making his/her compensation and benefit decisions for Senior Leadership, the Committee shall ensure that such decisions are consistent with the Compensation Philosophy and Principles, and utilize, among other things, comparability data for compliance with IRS Intermediate Sanction provisions. If decisions proposed by the CEO are outside the parameters of the Compensation Philosophy and Principles, the CEO must obtain the Committee's approval prior to implementation." How Documents are Made Available to The Public Form 990, Part VI, Line 19 THE CONFLICT OF INTEREST POLICY, ARTICLES OF INCORPORATION AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS AND ADDITIONAL CONSOLIDATING INFORMATION ARE ALL MADE AVAILABLE TO THE PUBLIC UPON REQUEST. THE CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE ALSO AVAILABLE ON OUR WEBSITE. SUMMARY FINANCIAL STATEMENTS ARE ALSO INCLUDED IN OUR ANNUAL REPORT, WHICH IS MAILED TO KEY STAKEHOLDERS AND POSTED ON OUR WEBSITE. ADDITIONALLY, ARTICLES OF INCORPORATION ARE AVAILABLE AT THE MN OFFICE OF THE SECRETARY OF STATE, AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS MAY BE OBTAINED AT THE MN OFFICE OF THE ATTORNEY GENERAL. Hours for related organization Form 990, Part VII, Section A, Line 1A, Column B THE HOURS LISTED ON THE 990 PART VII ARE BASED ON A 50 HOUR WEEK THAT THESE INDIVIDUALS DEVOTED TO NMDP AND BTMF IN TOTAL DURING THE YEAR. National Marrow Donor Program 500 N 5th St Minneapolis MN 554011206 840865803 TRANSPLANTS CO 501(c)(3) 10 NA false Be the Match Mx AC Veracruz Av 93 101 piso Ciudad de Mexico condesa cuauhtemo MX 06140 RECRUITMENT MX N/A N/A NMDP false BE THE MATCH BIOTHERAPIES SERVICES LLC 500 N 5th St Minneapolis MN 554011206 811248190 CELLULAR THERAPY MN NMDP C Corp 0 0 false CLEAR INSURANCE LTD (formerly CLR) 62 Forum Ln 3rd Fl KY1-1203 PO Box Grand Cayman CJ KY1-1203 840865803 CAPTIVE INSURANCE CJ NMDP C Corp 0 0 false false true true false false false false false false false false false false true true false true false false