2025-09-19T15:42:41-04:00 2025-06-30 431122456 NOVAK BIRKS PC 4435 MAIN ST STE 500 KANSAS CITY MO 641111858 990 2024-07-01 431492959 VASCULITIS FOUNDATION VASC 8164368211 PO BOX 28660 KANSAS CITY MO 64188 JOYCE A KULLMAN EXECUTIVE DIRECTOR 8164368211 2025-08-22 true false WILLIAM J MILLER CPA P01604284 8169316111 2025-09-19 2024 2025-03-06 01:10:19Z KEVIN BYRAM MD 2508810 false X WWW.VASCULITISFOUNDATION.ORG X 1988 MO BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. 12 12 11 150 0 2740183 2299448 75230 64436 141293 144926 0 2956706 2508810 502502 246907 0 638217 911909 0 248744 949606 1224290 2090325 2383106 866381 125704 5594826 6087497 53633 146118 5541193 5941379 X BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. false false 900946 64436 BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION (VF) SUPPORTS, INSPIRES, AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, FELLOWSHIP, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIAGNOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. THE VF PROVIDES SUPPORT THROUGH ITS EXTENSIVE WEBSITE, MONTLHY E-NEWSLETTERS, ELECTRONIC AND PRINTED EDUCATIONAL MATERIALS, PHONE AND EMAIL OUTREACH. WEBSITE VISITORS: 35,000 ANNUALLY; YOUTUBE SUBSCRIBERS: 10,000+ ANNUALLY; MONTHLY E-NEWSLETTER DISTRIBUTION: MORE THAN 14,000 SUBSCRIBERS; AND 3,500 PHONE AND EMAIL REQUESTS FOR ASSISTANCE THIS YEAR. THE VF OFFERS 9 VIRTUAL SUPPORT GROUP MEETINGS MONTHLY FOR PATIENTS OF ALL AGES AND THEIR PARENTS AND CAREGIVERS, ATTRACTING AS MANY AS 275 PARTICIPANTS A MONTH. THE VF OFFERS WIDE-RANGING LIVE AND ON-DEMAND WEBINARS WHICH ADDRESS DISEASE SPOTLIGHTS, MENTAL HEALTH/WELLNESS, RESEARCH, THERAPIES AND TREATMENTS. THE VF HAD 100+ WEBINARS WITH 7,020 HOURS WATCHED, AND 150,000+ VIEWS ON VF'S YOUTUBE EDUCATION CHANNEL. THE VF TEAM HAS BEEN ON THE ROAD THIS YEAR EDUCATING OUR PATIENT COMMUNITY AT REGIONAL CONFERENCES IN AUSTIN, CLEVELAND, NASHVILLE, SANTA MONICA, SCOTTSDALE, SEATTLE, AND WASHINGTON, DC. THE VF TEAM ALSO RAISED AWARENESS IN THE MEDICAL COMMUNITY BY EXHIBITING AT INTERNATIONAL MEDICAL CONFERENCES INCLUDING THE AMERICAN COLLEGE OF RHEUMATOLOGY, AMERICAN SOCIETY OF NEPHROLOGY, AMERICAN THORACIC SOCIETY, CARRA, AND RH APP. 621816 246907 VASCULITIS - BUILDING OUTCOMES, LEADING DISCOVERIES (V-BOLD) PROGRAM COMBINES RESEARCH, FELLOWSHIPS, VASCULITIS CENTERS, AND THE VPPRN WITH THE GOAL TO IMPROVE THE QUALITY OF LIFE FOR PATIENTS WITH VASCULITIS, AND ULTIMATELY FIND THE CAUSE(S) AND CURE FOR VASCULITIS. RESEARCH: THE VF YOUNG INVESTIGATOR AWARD PROVIDES ONE OR TWO-YEAR GRANTS OF UP TO 50,000 TO SUPPORT RESEARCHERS WITHIN FIVE YEARS OF THE COMPLETION OF THEIR FELLOWSHIPS. THE FUNDING SUPPORTS PILOT STUDIES IN RESEARCHING DIAGNOSIS, ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, AND TREATMENT/MANAGEMENT. FELLOWSHIPS: THE VF PARTNERS WITH ACADEMIC INSTITUTIONS AND THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) TO PROVIDE FELLOWSHIPS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS. THIS MENTORED TRAINING PROGRAM EMPHASIZES CLINICAL, PATIENT-ORIENTED INVESTIGATION. VASCULITIS CENTERS ARE ESSENTIAL IN THE PATIENT JOURNEY - FROM DIAGNOSIS TO TREATMENT TO REMISSION, WITH THE POTENTIAL FOR CURES. VASCULITIS CENTERS PROVIDE COMPREHENSIVE, HIGH-QUALITY, AND COMPASSIONATE CARE TO PATIENTS WITH VASCULITIS. IN ADDITION, THEY HAVE THE CAPACITY TO ADVANCE OUR UNDERSTANDING OF VASCULITIS THROUGH RESEARCH. WITH EXPERTS IN THE MANAGEMENT AND STUDY OF THE DISEASE, VASCULITIS CENTERS ARE AT THE FOREFRONT OF SPECIALTY CARE AND CLINICAL RESEARCH, WHILE TREATING ALL TYPES OF VASCULITIS. IN 2024-25, VF FUNDED 10 GRANTS TOTALLING 246,907. VASCULITIS PATIENT-POWERED RESEARCH NETWORK (VPPRN) IS THE INTERNATIONAL RESEARCH NETWORK OF PATIENTS, SCIENTISTS, CLINICIANS, ADVOCATES AND FAMILY MEMBERS WHO WORK TO IMPROVE THE HEALTH CARE AND QUALITY OF LIFE FOR PEOPLE WITH VASCULITIS THROUGH HIGH-LEVEL CLINICAL RESEARCH. 1522762 true true false false false false false false false true true false false false true true true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 15 0 11 true false false false false false false false false false false false false X 12 12 false false false false false false false true true false false true true true true true true true false false X JOYCE A KULLMAN 8164368211 PO BOX 28660 KANSAS CITY MO 64188 JOYCE A KULLMAN EXECUTIVE DI 40.00 0.00 X 126647 0 22821 KEVIN BYRAM MD PRESIDENT 4.00 0.00 X X 0 0 0 SARA BAIRD AMODIO MSW EDD PAST PRESIDE 4.00 0.00 X X 0 0 0 ELIZABETH BRANDT MD SECRETARY 4.00 0.00 X X 0 0 0 DON NAGLE TREAS - ENDI 4.00 0.00 X X 0 0 0 WILLIAM ANDREWS TREAS - BEG 4.00 0.00 X X 0 0 0 BRIAN GOLDMAN VP OF RESOUR 4.00 0.00 X X 0 0 0 JOCELYN ASHFORD DIRECTOR 4.00 0.00 X 0 0 0 CAZ CAZANOV DIRECTOR 4.00 0.00 X 0 0 0 NOELLE CREAMER DIRECTOR 4.00 0.00 X 0 0 0 VIMAL DEREBAIL MD DIRECTOR 4.00 0.00 X 0 0 0 ANISHA B DUA MD MPH DIRECTOR 4.00 0.00 X 0 0 0 DAHLIA MAK DIRECTOR 4.00 0.00 X 0 0 0 SEBASTIAN SATTUI MD DIRECTOR 4.00 0.00 X 0 0 0 126647 22821 1 false false false 2510 70000 2226938 2000 2299448 FEES FOR SERVICE 50546 50546 SYMPOSIUM/CONF REGISTRATIONS 13890 13890 64436 144926 144926 2508810 64436 144926 178870 178870 68037 68037 149468 85198 17936 46334 641639 408164 104645 128830 23316 14673 3242 5401 36323 31325 689 4309 61163 36082 11894 13187 4074 4074 109677 4000 105677 20228 20228 103139 10360 92779 46523 35539 680 10304 43389 11827 28479 3083 279472 116655 162817 115117 98357 7617 9143 157052 127100 27035 2917 78816 71631 2086 5099 55158 41368 13790 6117 6117 DIRECT PROGRAM SERVICES 197468 175516 1815 20137 SCHOLARSHIP EXPENSE 8060 8060 2383106 1522762 611600 248744 103368 91708 2177360 1472079 532500 1005500 23500 50162 5582 213084 82898 142426 130186 2589010 3358942 5594826 6087497 23592 18530 1045 83000 28996 44588 53633 146118 X 2188892 2566441 3352301 3374938 5541193 5941379 5594826 6087497 125704 274482 X false true X true false X 1269441 1501389 2888211 2740183 2299448 10698672 1269441 1501389 2888211 2740183 2299448 10698672 3225341 7473331 14246 13888 84580 141293 144926 398933 11097605 454057 0.67340 0.70290 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2589010 485186 350066 45092 20228 3358942 2113397 235298 278922 22500 16107 2589010 274635 1759065 84686 4989 2113397 313242 -36815 1792 274635 253378 61689 1825 313242 0.64000 0.36000 true false 213084 82898 130186 130186 ACCRUED PAYROLL 44376 PAYROLL TAXES 212 44588 X 2763064 274482 274482 2488582 20228 20228 2508810 2362878 2362878 20228 20228 2383106 SCHEDULE D, PAGE 2, PART V, LINE 4 THERE ARE TWO FUNDS TREATED AS ENDOWMENT FUNDS. THE SUZANNE LYSANDROU- DEPAOLIS VASCULITIS EDUCATIONAL OUTREACH ENDOWMENT WAS ESTABLISHED TO SUPPORT EDUCATIONAL PROGRAMS, RESOURCES, AND TRAINING FOR VASCULITIS PATIENTS AND MEDICAL PROFESSIONALS. THE ENDOWMENT WILL CEASE ON DECEMBER 13, 2055, AFTER WHICH THE BALANCE WILL BE SPENT DOWN IN SUBSEQUENT YEARS. THE VASCULITIS FOUNDATION BOARD HAS DESIGNATED CERTAIN FUNDS, TO BE TREATED SIMILARLY TO AN ENDOWMENT, TO GENERATE A LONG-TERM TOTAL RATE OF RETURN THAT WILL INCREASE THE VALUE OF THE ASSETS AND PROVIDE A LONG TERM RESERVE FUND FOR THE ORGANIZATION. SCHEDULE D, PAGE 3, PART X THE FOUNDATION QUALIFIES AS TAX EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE FOUNDATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF A TAX POSITION ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE-LIKELY-THAN-NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. FOR TAX POSITIONS MEETING THE MORE-LIKELY- THAN-NOT THRESHOLD, THE AMOUNT RECOGNIZED IN THE FINANCIAL STATEMENTS IS THE LARGEST BENEFIT THAT HAS A GREATER THAN 50% LIKELIHOOD OF BEING REALIZED UPON ULTIMATE SETTLEMENT WITH THE RELEVANT TAX AUTHORITY. THE FOUNDATION IS SUBJECT TO INCOME TAX REGULATIONS IN THE U.S. FEDERAL JURISDICTION AND CERTAIN STATE JURISDICTIONS. TAX REGULATIONS WITHIN EACH JURISDICTION ARE SUBJECT TO THE INTERPRETATION OF THE RELATED TAX LAWS AND REGULATIONS AND REQUIRE SIGNIFICANT JUDGMENT TO APPLY. WITH FEW EXCEPTIONS, THE FOUNDATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS BY THE APPLICABLE TAX AUTHORITIES FOR THE YEARS BEFORE 2021. IF ANY WERE TO BE INCURRED, THE FOUNDATION'S POLICY IS TO RECORD PENALTIES AND INTEREST ASSESSED BY INCOME TAX AUTHORITIES AS OPERATING EXPENSES. NORTH AMERICA FELLOWSHIP GRANT 25000 WIRE EUROPE VASCULITIS RESEARCH 12500 WIRE NORTH AMERICA VASCULITIS RESEARCH 5537 WIRE EUROPE VASCULITIS RESEARCH 25000 WIRE 4 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 GRANT RECIPIENTS ARE REQUIRED TO SUBMIT PERIODIC REPORTS ON THE STATUS OF THEIR RESEARCH AND USE OF GRANT FUNDS. true CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVE A50 CLEVELAND OH 44195 340714585 501C3 25000 FELLOWSHIP GRANT OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316025986 GOV 11250 VASCULITIS RESEARCH TRUSTEES OF THE UNIVERSITY OF PA OFFICE OF RESEARCH STUDIES 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501C3 12620 VASCULITIS RESEARCH TRUSTEES OF THE UNIVERSITY OF PA DIVISION OF RHEUMATOLOGY 3400 SPRUCE STREET 5057 WHITE BUILDING PHILADELPHIA PA 19104 231352685 501C3 80000 VPPRN PROGRAM YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 065081873 060646973 501C3 25000 VASCULITIS RESEARCH UNIVERSITY OF COLORADO DEPARTMENT OF PEDIATRICS 13123 E 16TH AVE AURORA CO 800457106 846000555 501C3 25000 VASCULITIS RESEARCH 4 1 SCHEDULE I, PAGE 1, PART I, LINE 2 GRANT RECIPIENTS ARE REQUIRED TO SUBMIT PERIODIC REPORTS ON THE STATUS OF THEIR RESEARCH AND USE OF GRANT FUNDS. FORM 990 - ORGANIZATION'S MISSION BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. FORM 990, PAGE 2, PART III, LINE 4A BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION (VF) SUPPORTS, INSPIRES, AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, FELLOWSHIP, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIAGNOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. THE VF PROVIDES SUPPORT THROUGH ITS EXTENSIVE WEBSITE, MONTLHY E-NEWSLETTERS, ELECTRONIC AND PRINTED EDUCATIONAL MATERIALS, PHONE AND EMAIL OUTREACH. WEBSITE VISITORS: 35,000 ANNUALLY; YOUTUBE SUBSCRIBERS: 10,000+ ANNUALLY; MONTHLY E-NEWSLETTER DISTRIBUTION: MORE THAN 14,000 SUBSCRIBERS; AND 3,500 PHONE AND EMAIL REQUESTS FOR ASSISTANCE THIS YEAR. THE VF OFFERS 9 VIRTUAL SUPPORT GROUP MEETINGS MONTHLY FOR PATIENTS OF ALL AGES AND THEIR PARENTS AND CAREGIVERS, ATTRACTING AS MANY AS 275 PARTICIPANTS A MONTH. THE VF OFFERS WIDE-RANGING LIVE AND ON-DEMAND WEBINARS WHICH ADDRESS DISEASE SPOTLIGHTS, MENTAL HEALTH/WELLNESS, RESEARCH, THERAPIES AND TREATMENTS. THE VF HAD 100+ WEBINARS WITH 7,020 HOURS WATCHED, AND 150,000+ VIEWS ON VF'S YOUTUBE EDUCATION CHANNEL. THE VF TEAM HAS BEEN ON THE ROAD THIS YEAR EDUCATING OUR PATIENT COMMUNITY AT REGIONAL CONFERENCES IN AUSTIN, CLEVELAND, NASHVILLE, SANTA MONICA, SCOTTSDALE, SEATTLE, AND WASHINGTON, DC. THE VF TEAM ALSO RAISED AWARENESS IN THE MEDICAL COMMUNITY BY EXHIBITING AT INTERNATIONAL MEDICAL CONFERENCES INCLUDING THE AMERICAN COLLEGE OF RHEUMATOLOGY, AMERICAN SOCIETY OF NEPHROLOGY, AMERICAN THORACIC SOCIETY, CARRA, AND RH APP. FORM 990, PAGE 2, PART III, LINE 4B VASCULITIS - BUILDING OUTCOMES, LEADING DISCOVERIES (V-BOLD) PROGRAM COMBINES RESEARCH, FELLOWSHIPS, VASCULITIS CENTERS, AND THE VPPRN WITH THE GOAL TO IMPROVE THE QUALITY OF LIFE FOR PATIENTS WITH VASCULITIS, AND ULTIMATELY FIND THE CAUSE(S) AND CURE FOR VASCULITIS. RESEARCH: THE VF YOUNG INVESTIGATOR AWARD PROVIDES ONE OR TWO-YEAR GRANTS OF UP TO 50,000 TO SUPPORT RESEARCHERS WITHIN FIVE YEARS OF THE COMPLETION OF THEIR FELLOWSHIPS. THE FUNDING SUPPORTS PILOT STUDIES IN RESEARCHING DIAGNOSIS, ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, AND TREATMENT/MANAGEMENT. FELLOWSHIPS: THE VF PARTNERS WITH ACADEMIC INSTITUTIONS AND THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) TO PROVIDE FELLOWSHIPS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS. THIS MENTORED TRAINING PROGRAM EMPHASIZES CLINICAL, PATIENT-ORIENTED INVESTIGATION. VASCULITIS CENTERS ARE ESSENTIAL IN THE PATIENT JOURNEY - FROM DIAGNOSIS TO TREATMENT TO REMISSION, WITH THE POTENTIAL FOR CURES. VASCULITIS CENTERS PROVIDE COMPREHENSIVE, HIGH-QUALITY, AND COMPASSIONATE CARE TO PATIENTS WITH VASCULITIS. IN ADDITION, THEY HAVE THE CAPACITY TO ADVANCE OUR UNDERSTANDING OF VASCULITIS THROUGH RESEARCH. WITH EXPERTS IN THE MANAGEMENT AND STUDY OF THE DISEASE, VASCULITIS CENTERS ARE AT THE FOREFRONT OF SPECIALTY CARE AND CLINICAL RESEARCH, WHILE TREATING ALL TYPES OF VASCULITIS. IN 2024-25, VF FUNDED 10 GRANTS TOTALLING 246,907. VASCULITIS PATIENT-POWERED RESEARCH NETWORK (VPPRN) IS THE INTERNATIONAL RESEARCH NETWORK OF PATIENTS, SCIENTISTS, CLINICIANS, ADVOCATES AND FAMILY MEMBERS WHO WORK TO IMPROVE THE HEALTH CARE AND QUALITY OF LIFE FOR PEOPLE WITH VASCULITIS THROUGH HIGH-LEVEL CLINICAL RESEARCH. FORM 990, PAGE 6, PART VI, LINE 11B THE 990 IS REVIEWED AND APPROVED BY THE ORGANIZATION'S FINANCE COMMITTEE AND THEN SHARED WITH THE BOARD OF DIRECTORS BEFORE FILING WITH THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C BOARD OF DIRECTOR MEMBERS ARE REQUIRED TO COMPLETE A CONFLICT OF INTEREST STATEMENT ANNUALLY WHICH IS REVIEWED AT THE FALL RETREAT. FORM 990, PAGE 6, PART VI, LINE 15A ANNUAL PERFORMANCE REVIEW AND COMPARISON TO INDUSTRY. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON WRITTEN REQUEST.