2020-11-13T14:05:03-06:00 2019-12-31 221430039 SOBEL & CO LLC CPA'S 293 EISENHOWER PARKWAY LIVINGSTON NJ 070391711 990 2019-01-01 820547746 LIFE RAFT GROUP INC LIFE 9738379092 155 US HIGHWAY 46 WEST NO 202 WAYNE NJ 07470 NORMAN J SCHERZER EXEC. DIRECTOR 9738379092 2020-11-13 1 BRIDGET HARTNETT P01429163 9739949494 2020-11-12 24.228.67.88 2020-11-13 13:34:55 ES P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 98888EDBB8EBB626050F3F7EA893C7E45352FB16 2019 2021-01-29 14:40:06Z NORMAN J SCHERZER 155 US HIGHWAY 46 WEST NO 202 WAYNE NJ 07470 1665398 0 X WWW.LIFERAFTGROUP.ORG X 2002 NJ ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS. THE VISION IS TO CHAMPION PATIENT-POWERED SCIENCE AND DRASTICALLY INCREASE LONG-TERM SURVIVORSHIP FOR GIST CANCER PATIENTS. 9 9 26 45 0 0 1140356 1456100 0 0 36548 60887 24420 27325 1201324 1544312 15688 0 0 0 1312169 1357841 0 0 98521 627753 607094 1955610 1964935 -754286 -420623 3671932 3281991 93759 124441 3578173 3157550 X ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS. 0 0 1194988 RESEARCH: WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF GIST PATIENTS FOREMOST. THE LIFE RAFT GROUP (LRG) CONTINUES TO LEAD A COLLABORATIVE TEAM OF WORLD-RENOWNED SCIENTISTS AND CLINICIANS IN GIST. LRG HAS THE LARGEST GIST PATIENT REGISTRY IN THE WORLD. OUR RESEARCH PARADIGM IS PATIENT-POWERED SCIENCE FOR LIFE, A COMPREHENSIVE APPROACH THAT COMPLEMENTS TRADITIONAL RESEARCH WITH REAL-WORLD EVIDENCE SUPPORTED BY DATA FROM OUR PROPRIETARY PLATFORMS, OUR GIST PATIENT REGISTRY, GIST/PRIME, PROJECT SURVEILLANCE AND SIDEEQ, OUR SIDE EFFECTS MANAGEMENT TOOL. 603828 INFORMATION, EDUCATION, ADVOCACY, OUTREACH & ENGAGEMENT: THE LRG PROVIDES SUPPORT, INTERVENTION, EDUCATION AND CLINICAL EXPERTISE TO GIST PATIENTS, THEIR FAMILIES AND CAREGIVERS. LOCAL SUPPORT IS AVAILABLE TO THE GIST COMMUNITY THROUGH A NETWORK OF LRG STATE LEADERS AND VOLUNTEERS. OUR EDUCATION PROGRAMS ARE OFFERED WORLDWIDE. OUR GIST DAYS OF LEARNING AND OUR BIENNIAL LIFE FEST EVENT GATHER EXPERTS FROM ACROSS THE GLOBE TO BRING THE MOST UP TO DATE INFORMATION ON GIST RESEARCH, EMERGING THERAPIES AND UPDATES ON THE WORLD OF GIST. OUR OUTREACH AND ENGAGEMENT EFFORTS ALSO INCLUDE PATIENT SUPPORT GROUPS, FOCUS GROUPS, MONTHLY WEBCASTS, OUR NEWLY REVISED WEBSITE, ACCESS TO OUR CLINICAL TRIALS DATA BASE AND OUR WORLDWIDE GIST SPECIALIST DATABASE. EXPERT PATIENT TRAINING IS OFFERED TO ALL MEMBERS. OUR ADVOCACY EFFORTS ARE ON BOTH A LOCAL AND NATIONAL LEVEL. PARTNERING WITH OTHER ADVOCACY GROUPS IN THE RARE DISEASE SPACE, WE ADVOCATE FOR MANY ISSUES OF BENEFIT TO OUR PATIENT COMMUNITY. 1798816 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 1 26 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 0 0 NJ X X X THE ORGANIZATION 9738379092 155 US HIGHWAY 46 WEST NO 202 WAYNE NJ 07470 JERRY CUDZIL PRESIDENT 1.00 X X 0 0 0 STAN BUNN PAST PRESIDENT 1.00 X X 0 0 0 JIM HUGHES TRUSTEE 1.00 X 0 0 0 RODRIGO SALAS TRUSTEE 1.00 X 0 0 0 JOHN POSS TRUSTEE 1.00 X 0 0 0 TEENA PETERSOHN TRUSTEE 1.00 X 0 0 0 GARY GLASSER SECRETARY/TREASURER 1.00 X X 0 0 0 ERIC BIEGANSKY TRUSTEE 1.00 X 0 0 0 STEVE PONTELL TRUSTEE 1.00 X 0 0 0 NORMAN J SCHERZER EXECUTIVE DIRECTOR 35.00 X 125819 0 10688 125819 0 10688 1 0 0 0 VDIEXPRESS LLC 350 PASSAIC AVE SUITE 204 FAIRFIELD NJ 07004 GENERAL IT SUPPORT 108762 1 109770 1346330 1456100 60887 60887 143298 109770 121086 22212 22212 OTHER 900099 5113 5113 5113 1544312 0 0 88212 136507 124222 5459 6826 1040229 946609 41609 52011 18065 16439 723 903 70025 63722 2802 3501 93015 84644 3720 4651 9990 9598 174 218 176270 169350 3076 3844 190 173 7 10 40563 27863 1105 11595 30125 28334 615 1176 141938 129163 5678 7097 1182 1075 48 59 12495 11371 499 625 MEETINGS/EDUCATIONAL SE 146893 143148 467 3278 COMMUNICATIONS 27328 25035 1019 1274 PRINTING & PUBLICATIONS 16686 15032 507 1147 POSTAGE 3434 3038 90 306 1964935 1798816 67598 98521 3637828 3251494 11100 1555 6821 11499 149720 147228 1232 2492 14951 14951 3671932 3281991 93759 124441 93759 124441 X 3568173 3131851 10000 25699 3578173 3157550 3671932 3281991 -420623 0 X X 0 1 X 1 0 X 4129106 898690 1003367 1140356 1456100 8627619 4129106 898690 1003367 1140356 1456100 8627619 4860280 3767339 10472 17339 13838 36548 60887 139084 355 6320 11888 2827 5113 26503 8793206 654242 0.42840 0.41750 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 127794 125433 2361 21926 21795 131 2492 X 1665398 0 1665398 -121086 -121086 1544312 2086021 121086 121086 1964935 0 1964935 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIATION FOLLOWS ACCOUNTING STANDARDS THAT PROVIDE CLARIFICATION ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN THE ORGANIZATION'S FINANCIAL STATEMENTS. THE GUIDANCE PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, AND ALSO PROVIDES GUIDANCE ON DE-RECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, DISCLOSURE AND TRANSITION. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ON UNRECOGNIZED TAX BENEFITS IN INCOME TAX EXPENSE. NO INTEREST AND PENALTIES WERE RECORDED DURING THE YEAR ENDED DECEMBER 31, 2019. AT DECEMBER 31, 2019, THERE ARE NO SIGNIFICANT INCOME TAX UNCERTAINTIES. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE -121,086. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSES 121,086. NIGHT TO FIGHT CANCER 172214 105679 66535 910 6289 16420 4070 7043 WATER OF LIFE 76407 0 76407 14545 24195 6640 1 4447 4091 356 10000 19051 11032 891 253068 109770 143298 10910 39885 51647 4070 14574 121086 22212 FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS FIRST REVIEWED BY THE DIRECTOR OF FINANCE, THEN BY THE EXECUTIVE DIRECTOR AFTER DISCUSSION WITH THE DIRECTOR OF FINANCE. IT IS ALSO SENT TO THE BOARD TREASURER AND THE BOARD PRESIDENT AND ANY QUESTIONS OR COMMENTS ARE DISCUSSED WITH THE EXECUTIVE DIRECTOR AND DIRECTOR OF FINANCE. FORM 990, PART VI, SECTION B, LINE 12C POTENTIAL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 15A AT LEAST ONCE A YEAR THE EXECUTIVE DIRECTOR MEETS TO REVIEW AND DISCUSS REPORTS OF COMPARABLE NON-PROFIT SALARIES PREPARED BY INDEPENDENT ORGANIZATIONS. THIS REVIEW PROVIDES THE GUIDELINES FOR REVIEWING AND APPROVING ANY SALARY RECOMMENDATIONS PROPOSED BY THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION MAKES ITS FORM 1023 AND 990 AVAILABLE FOR PUBLIC INSPECTION THROUGH THE ORGANIZATION'S WEBSITE, UPON REQUEST AND VIA WWW.GUIDESTAR.ORG. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS, INCLUDING A CONFLICT OF INTEREST POLICY (PART OF BY-LAWS), AND FINANCIAL STATEMENTS ARE POSTED TO THE ORGANIZATION'S WEBSITE AND ARE ALSO MADE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: NO CHANGE IN THE OVERSIGHT OR SELECTION PROCESS FROM THE PRIOR YEAR.