2020-07-15T15:59:39-05:00 2019-12-31 990 2019-01-01 462829156 A Cure for Ellie % Elizabeth McGinn ACUR 2024874235 3520 S Wakefield St Arlington VA 22206 ELIZABETH MCGINN Director 2024874235 2020-07-15 71.191.79.171 21010520201970466932 2020-07-15 O 019935EE6480CA7401E820D81F978556EAB92B19 019935EE6480CA7401E820D81F978556EAB92B19 2019 2020-09-23 17:36:50Z ELIZABETH A MCGINN 3520 S Wakefield St Arlington VA 22206 308282 false X www.acureforellie.org X 2013 VA Fund research on mitochondrial disease and LeukodystrophyLBSL and support affected families 0 0 0 0 308282 0 0 0 308282 80000 255000 0 0 0 0 29261 24767 109261 279767 -109261 28515 43192 71272 0 43192 71272 Provide funding to rare disease research & support affected families false false 255000 255000 We provided $255,000 to a research program at the Kennedy Krieger Institute in Baltimore, Maryland. The research seeks to create a treatment for the rare disease, Leukodystrophy - LBSL. This year's research included building cells with disease attributes, testing therapeutics, and a natrual history study with a sample of known patients. May never be read by a human but IT IS EXCITING!!! We are still small and are only funding the one research effort noted. We are still small and are only funding the one research effort noted. 255000 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 true 0 false false false false false true true false false false X 0 0 true false false false false false false true true false false true true true true false false false true false VA ELIZABETH A MCGINN 2024874235 3520 S Wakefield St Arlington VA 22206 X ELIABETH MCGINN Director 15.00 X X 0 0 0 MICHAEL MCGINN Director 5.000 X X 0 0 0 ELIZABETH GULUGIAN Director 1.000 X 0 0 0 CHRIS GULUGIAN Director 1.000 X 0 0 0 MEGAN MITCHELL Director 1.000 X 0 0 0 LANCE STERN Director 1.000 X 0 0 0 MORGAN STERN Director 1.000 X 0 0 0 false false false 308282 308282 0 308282 X 255000 255000 70 70 357 357 2304 2304 1451 1451 1169 1169 19416 19416 279767 255000 24767 0 43192 71272 43192 71272 0 0 X 43192 71272 43192 71272 43192 71272 28515 X false false false X 44989 58837 100598 107860 308281 620565 44989 58837 100598 107860 308281 620565 620565 44989 58837 100598 107860 308281 620565 1.00000 1.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false Kennedy Krieger Institute 707 North Broadway Baltimore MD 21205 521524965 255000 0 Rare Disease Research 0 0 Part VI Line 11b The form will be emailed to the board once it is complete and Part VI Line 11b available for print. Part VI Line 19 We do not make our policies public but they are available upon request