2020-11-02T13:03:46-06:00 2019-12-31 420714325 RSM US LLP 2021 L STREET NW 400 WASHINGTON DC 20036 990 2019-01-01 811030889 PULMONARY HYPERTENSION CARE CENTERS INC PULM 3015653004 801 ROEDER RD STE 1000 SILVER SPRING MD 20910 BRAD A WONG PRESIDENT & CEO 3015653004 2020-11-02 1 MIKE SORRELLS P00001737 2022932200 66.98.98.6 2020-11-02 12:47:19 ES P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 1FE53BDFCB5A9E7ADF2C1FAEFD07FCB2349EA307 2019 2021-01-29 14:40:06Z BRAD A WONG 801 ROEDER RD STE 1000 SILVER SPRING MD 20910 454671 0 X WWW.PHASSOCIATION.ORG/PHCARECENTERS/ X 2015 MD THE CORPORATION IS ORGANIZED AND SHALL BE OPERATED EXCLUSIVELY FOR THE BENEFIT OF, TO PERFORM THE FUNCTIONS OF, OR TO CARRY OUT THE PURPOSES OF PULMONARY HYPERTENSION ASSOCIATION, INC. ("PHA"). 9 9 0 46 75000 -289573 329483 14171 254000 440500 0 0 0 0 583483 454671 0 0 0 0 184717 145418 0 0 0 370924 492120 555641 637538 27842 -182867 420435 239528 45774 47734 374661 191794 X THE CORPORATION IS ORGANIZED AND SHALL BE OPERATED EXCLUSIVELY FOR THE BENEFIT OF, TO PERFORM THE FUNCTIONS OF, OR TO CARRY OUT THE PURPOSES OF PULMONARY HYPERTENSION ASSOCIATION, INC. ("PHA"). 0 0 317032 75000 PULMONARY HYPERTENSION ASSOCIATION REGISTRY (PHAR): ACCREDITED PHCC'S HAVE AN OPPORTUNITY TO PARTICIPATE IN PHAR AS BOTH A QUALITY IMPROVEMENT PROCESS AND A RESEARCH ACTIVITY. A PATIENT REGISTRY IS AN ORGANIZED SYSTEM THAT COLLECTS DATA TO EVALUATE CERTAIN OUTCOMES FOR A POPULATION OF PEOPLE WITH A MEDICAL CONDITION AND IS A USEFUL TOOL FOR LEARNING MORE ABOUT RARE DISEASES SUCH AS PH. PHAR COLLECTS DATA FROM WHO GROUP 1 PH (PULMONARY ARTERIAL HYPERTENSIONPAH) AND WHO GROUP 4 PH (CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSIONCTEPH) WHO ARE STARTING EVALUATION AND/OR TREATMENT AT AN ACCREDITED PHCC. OVER TIME, PHAR WILL HELP RESEARCHERS EVALUATE TRENDS AND PRACTICE PATTERNS TO DETERMINE WHICH TREATMENTS WORK BEST. AT THE END OF 2019, THERE WERE 48 CENTERS PARTICIPATING AND 1,178 PATIENTS ENROLLED IN PHAR. 225426 365500 PULMONARY HYPERTENSION CARE CENTERS (PHCC ACCREDITATION): THE PULMONARY HYPERTENSION ASSOCIATION (PHA) ESTABLISHED ITS PH CARE CENTERS (PHCC) PROGRAM TO ACCREDIT CENTERS NATIONWIDE WITH SPECIAL EXPERTISE IN TREATING PULMONARY HYPERTENSION (PH), PARTICULARLY PULMONARY ARTERIAL HYPERTENSION (PAH), TO RAISE THE OVERALL QUALITY OF CARE AND OUTCOMES IN PATIENTS WITH THIS INCURABLE, PROGRESSIVE, LIFE-THREATENING RARE DISEASE. ESTABLISHED IN 2011, THE PHCC PROGRAM HAS ACCREDITED TWO TYPES OF CENTERS. CENTERS OF COMPREHENSIVE CARE (CCC) AND REGIONAL CLINICAL PROGRAMS (RCP). BOTH PHCC-ACCREDITED CCC'S AND RCP'S HAVE DEMONSTRATED A COMMITMENT TO PROVIDING EXPERT-LEVEL CARE BASED ON THE PULMONARY HYPERTENSION DIAGNOSIS AND TREATMENT CONSENSUS GUIDELINES. AT THE END OF 2019, THERE WERE 77 ACCREDITED CENTERS THAT COVERED AN ESTIMATED 17,000 PATIENTS NATIONWIDE. 542458 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MD X X THE ORGANIZATION 3015653004 801 ROEDER RD STE 1000 SILVER SPRING MD 20910 ANTON LAHNSTON CHAIR 3.00 0.00 X X 0 0 0 JOEL WIRTH MD CHAIR-ELECT 3.00 0.00 X X 0 0 0 WILLIAM HOFF TREASURER 3.00 0.00 X X 0 0 0 ELIZABETH MIKLOS SECRETARY 3.00 0.00 X X 0 0 0 COLLEEN BRUNETTI DIRECTOR 3.00 0.00 X 0 0 0 KAREN FAGAN DIRECTOR 3.00 0.00 X 0 0 0 DIANE RAMIREZ DIRECTOR 3.00 0.00 X 0 0 0 ROGER TOWLE DIRECTOR 3.00 0.00 X 0 0 0 DELPHINE YUNG DIRECTOR 3.00 0.00 X 0 0 0 BRAD A WONG PRESIDENT & CEO 3.00 34.50 X 0 253635 16504 AZALEA CANDELARIA VP OF DEVELOPMENT 3.00 34.50 X 0 151375 12389 TORGRIM FORBERG VICE PRESIDENT OF FINANCE 3.00 34.50 X 0 136622 4122 MICHAEL GRAY SENIOR DIRECTOR, MEDICAL SERVICES 13.00 24.50 X 0 134090 7312 0 675722 40327 0 0 1 0 UNIVERSITY OF WASHINGTON 12455 COLLECTIONS DRIVE CHICAGO IL 60693 PROGRAM MANAGEMENT SERVICES 234592 1 14171 14171 ACCREDITATION INCOME 900099 440500 365500 75000 440500 454671 365500 75000 0 X 117832 117832 2728 2728 15484 15484 9374 9374 95080 95080 354555 354555 2568 2568 31575 31575 8342 8342 637538 542458 95080 0 40435 157817 380000 70034 0 11677 420435 239528 45774 47734 45774 47734 X 62161 191794 312500 0 374661 191794 420435 239528 -182867 0 X X 0 1 X 1 0 X X 1 PULMONARY HYPERTENSION ASSOCIATION INC 650880021 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 454671 0 454671 0 454671 637538 0 637538 0 637538 0 0 0 0 0 0 0 0 0 BRAD A WONG PRESIDENT & CEO 0 252442 0 0 0 1193 0 8075 0 11557 0 273267 0 0 AZALEA CANDELARIA VP OF DEVELOPMENT 0 150806 0 0 0 569 0 6543 0 7674 0 165592 0 0 FORM 990, PART VI, SECTION B, LINE 11B WE SET A SPECIAL MEETING (VIA CONFERENCE CALL) FOR OUR AUDIT COMMITTEE TO REVIEW IT WITH THE CPA FIRM THAT CONDUCTS OUR ANNUAL AUDIT AND PREPARES FORM 990. FORM 990, PART VI, SECTION B, LINE 12C DIRECTORS ARE REQUIRED TO SUBMIT A CONFLICT OF INTEREST DISCLOSURE STATEMENT ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION POLICIES ARE SUBJECT TO THE PROCEDURES OF PHA, THE SUPPORTED ORGANIZATION, AS DESCRIBED IN ITS FORM 990. FORM 990, PART VI, SECTION C, LINE 19 OUR FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC ON OUR WEBSITE, THROUGH CHARITY NAVIGATOR, AND BY REQUEST. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 354,555. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 354,555. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. PULMONARY HYPERTENSION ASSOCIATION INC 801 ROEDER ROAD SUITE 1000 SILVER SPRING MD 20910 650880021 NON-PROFT ORGANIZATION FL 501(C)(3) LINE 10 0 0 0 0 0 0 0 0 0 0 0 1 0 1 1 1 0 0 0 0