2020-11-13T09:39:53-08:00 2019-12-31 390919055 Ritz Holman LLP 330 E Kilbourn Ste 550 Milwaukee WI 532023144 990 2019-01-01 464152355 CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE CHIL 4149189822 555 E WELLS ST STE 1100 MILWAUKEE WI 53202 ROBERT COLBERT MD PHD Treasurer 2020-11-13 true KATY L SOMMER P00273273 4142711451 2019 2021-01-29 14:40:06Z EMILY VON SCHEVEN 11029270 false X https://www.carragroup.org/ X 2014 CA CARRA members work together to capitalize on opportunities, actively develop a structure and a scientific agenda, and collaborate with potential funding sources to create a research alliance that benefits our patients. CARRA Conducts collaborative research to prevent, treat and cure pediatric rheumatic diseases. 9 5 0 0 6025669 7209074 3884923 3642918 19852 167009 46030 10269 9976474 11029270 560529 360272 0 249771 290214 0 0 7066469 7765217 7876769 8415703 2099705 2613567 18423173 20873541 1250140 1086941 17173033 19786600 X CARRA members work together to capitalize on opportunities, actively develop a structure and a scientific agenda, and collaborate with potential funding sources to create a research alliance that benefits our patients. CARRA Conducts collaborative research to prevent, treat and cure pediatric rheumatic diseases. false false 5172463 3580893 CARRA Registry: CARRA and the Duke Clinical Research Institute (DCRI) are collaborating to launch the second phase of the CARRA Registry, a registry of children and young adults with pediatric-onset rheumatic conditions such as juvenile idiopathic arthritis (JIA). The Registry is a cornerstone of CARRA and provides disease and treatment data on children with a variety of rheumatic diseases. 1429713 52025 Other program services: Informatics/Programing, Leadership service associated with furthering the mission and ACR meeting expenses. 613142 10000 Annual Meeting: provides many opportunities to develop and refine scientific approaches to questions in clinical and translational research, while networking with colleagues. The meeting offers a unique, interactive format with sessions that encourage active participation, including brainstorming and contributing to new research initiatives and ideas. 360272 360272 7575590 true true false false false false false false false false false false false false false true true false false false false true false false false false false true true false false false false false false false false false false false false false false false false false false true 13 0 true 0 false false false false false false false 0 false false false false false false false X 9 5 false true false false true false false true true false false true true true true false true true true false CA X EXECUTIVE DIRECTOR INC 4142766445 555 E WELLS STREET SUITE 110 MILWAUKEE WI 53202 YUKIKO KIMURA MD PAST PRESIDENT 3.00 0.00 X 107654 0 0 EMILY VON SCHEVEN MD MAS Vice President 3.00 0.00 X 88128 0 0 ROBERT FUHLBRIGGE MD PHD PRESIDENT 3.00 0.00 X X 54432 0 0 ROBERT COLBERT MD PHD Treasurer 3.00 0.00 X 40000 0 0 CAROL WALLACE MD Director 1.00 0.00 X 0 0 0 HARRY SAAL PHD Director 1.00 0.00 X 0 0 0 BRIAN KOTZIN MD Director 1.00 0.00 X 0 0 0 LEIGH WHITE JD Director 1.00 0.00 X 0 0 0 CHRISTY SANDBORG MD CHAIR 3.00 0.00 X 0 0 0 290214 1 false false false DUKE CLINICAL RESEARCH INSTITUTE 2400 PRATT ST DURHAM NC 27705 REGISTRY MANAGEMENT 4393599 BOSTON CHILDRENS HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 INFORMATICS SUPPORT 260000 EXECUTIVE DIRECTOR INC 555 E WELLS ST STE 1100 MILWAUKEE WI 53202 MANAGEMENT 748116 3 7209074 7209074 annual meeting 541900 10000 10000 Membership Dues & Assessments 900099 52025 52025 RESEARCH STUDIES & COLLAB 541900 3580893 3580893 3642918 167009 167009 0 0 0 0 0 0 0 GRANT SUPPORT REFUNDS 900099 4693 4693 REBATES/COMMISSIONS 900099 5576 5576 10269 11029270 3653187 167009 X 345363 345363 11959 11959 2950 2950 0 290214 290214 0 0 0 0 0 1702254 1029912 672342 1571 1571 7650 7650 0 0 0 4563019 4559402 3617 149 149 14399 14399 517111 457027 60084 0 0 78378 38666 39712 0 839327 839327 0 0 3180 3180 27764 27764 Staff Training and Development 8000 8000 Miscellaneous 2415 770 1645 0 8415703 7575590 840113 0 2763778 2642705 7124102 9229981 6098750 7000000 2400430 1947168 0 0 0 0 36113 44148 0 0 0 0 9539 0 18423173 20873541 1242090 1085591 8050 1350 1250140 1086941 X 11074283 12786600 6098750 7000000 17173033 19786600 18423173 20873541 2613567 X X false true X true false X 2755621 4523687 10497647 6025669 7209074 31011698 0 0 2755621 4523687 10497647 6025669 7209074 31011698 0 31011698 672 1267 2102 19852 167009 190902 0 46030 10269 56299 31258899 14405854 0.99210 0.99730 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 11024577 11024577 4693 4693 11029270 8411010 8411010 4693 4693 8415703 Part X : FIN48 Footnote The Organization is exempt from income tax under Section 501(c)(3) of Internal Revenue Code and is classified as other than a private foundation. Management has reviewed all tax positions recognized in previously filed tax returns and those expected to be taken in future tax returns. As of December 31, 2019, the Organization had no amounts related to unrecognized income tax benefits and no amounts related to accrued interest and penalties. The Organization does not anticipate any significant changes to unrecognized income tax benefits over the next year. Part XI, Line 4b: Other revenue amounts included on 990 but not included in F/S Grant Support Refunds $4693 Part XII, Line 4b: Other revenue amounts included on 990 but not included in F/S Grant Support Refunds $4693 NETHERLANDS SUMMER SCHOOL 2950 CASH FMV 1 false false false false false false Part II, Line 1 - Method of Accounting CARRA has a Grants Review Committee that oversees the funding of grants. Grant recipients must go through a grant review process, which includes a final grant report due within 30 days of the end of the project period. false CHILDRENS HOSPITAL MONTEFIOR 3415 BAINBRIDGE AVE THE BRONX NY 10467 131740114 3 50000 0 FMV LARGE GRANT CHILDRENS HOSPITAL OF PHILA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 3 7386 0 FMV FELLOWS GRANT CHILDRENS HOSPITAL OF PITTSB 4401 PENN AVENUE PITTSBURGH PA 15224 251865744 3 25000 0 FMV SMALL GRANT CINCINNATI CHILDRENS HOSPITAL 3333 BURNET AVE CINCINNATI OH 45229 316026285 3 25000 0 FMV SMALL GRANT HARVARD PILGRIM HEALTH CARE 93 WORCESTER ST WELLESLEY MA 02481 042663394 3 24918 0 FMV SMALL GRANT ICAHN SCHOOL MED-MOUNT SINAI 1 GUSTAVE L LEVY PL NEW YORK NY 10029 136171197 3 50000 0 FMV LARGE GRANT RESEARCH FOUNDATION FOR SUNY 35 STATE ST ALBANY NY 12207 141368361 3 48663 0 FMV LARGE GRANT THE UNIVERSITY OF CALIFORNIA 1111 FRANKLIN ST OAKLAND CA 94607 946036493 3 25000 0 FMV SMALL GRANT UNIVERSITY OF ALABAMA BIRM 1720 2ND AVE BIRMINGHAM AL 35294 636005396 3 25000 0 FMV SMALL GRANT UNIVERSITY OF COLORADO 2055 REGENT DR BOULDER CO 80309 846000555 3 50000 0 FMV LARGE GRANT UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS MN 55455 416007513 3 10000 0 FMV DATA ANALYSIS GRANT 11 0 PRES. TRAVEL AWARD 1 2490 FMV UTRECHT SUMMER SCHOOL TRAVEL GRANT 3 4789 FMV PUBLICATION SUPPORT GRANT 2 4680 FMV Additional Supplemental Information UNSPENT GRANTS OF $4,693 WERE REFUNDED THROUGHOUT THE YEAR. Form 990, Part III, Line 4d: Other Program Services Description OTHER PROGRAM SERVICES 4: Other program services: Informatics/Programing, Leadership service associated with furthering the mission and ACR meeting expenses. Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company CARRA contracts with Executive Director Inc. (A for-profit Management Company) to provide office facilities, management, record keeping, accounting, storage, other significant services, plus related overhead costs. Form 990, Part VI, Line 11b: Form 990 Review Process PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY MANAGEMENT AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts The Conflict of Interest policy is monitored by the Ethics Committee and reviewedand signed at the beginning of each fiscal year by all staff and Board members withsignificant decision making authority. It is each signator's obligation to discloseany potential conflict as soon as it is known, or reasonably should be known. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management The Board of Directors shall review any compensation packages and shall approve such compensation only after determining that the compensation is reasonable. Compensation is determined using information about compensation paid by similarly situated taxable and tax-exempt organizations for similar services. Such information may include up-to-date compensation surveys compiled by independent firms or actual written offers from similarly situated organizations. Approvals of all compensation must be documented in writing with the dates and terms of the agreement, a record of all individuals who voted in consideration, along with all information and the information's source. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available The most recent Form 990s (including financial information), the Bylaws, Articles ofIncorporation, Form 1023 Application for Exemption, and Conflict of Interest Policyare provided to the public upon request Form 990, Part XII, Line 2: Change of Oversight or Selection Process CARRA now has a finance committee that oversees the approval of the audit.