2020-08-26T12:57:31-05:00 2020-02-29 113518842 MARKS PANETH LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2019-03-01 237191992 TOURETTE ASSOCIATION OF AMERICA INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 11361 SONJA MASON-VIDAL VICE PRESIDENT, FINANCE 7182242999 2020-08-20 1 ROBERT LYONS P00227472 2125038800 2020-08-20 24.146.222.31 2020-08-20 08:22:58 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 F7BBFA6259344C32E569AC7E54D1F40DDD1EEA94 2019 2020-11-06 18:47:13Z SONJA MASON-VIDAL 42-40 BELL BOULEVARD BAYSIDE NY 11361 8114380 0 X TOURETTE.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 19 19 29 52 0 0 4228564 3607075 174766 116683 177443 220772 -17748 -41382 4563025 3903148 672015 1032007 0 0 2042624 2234673 0 0 528648 2378989 1988058 5093628 5254738 -530603 -1351590 11792422 11065052 782801 1345846 11009621 9719206 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. 0 0 1624460 1032006 RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFIC UNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES, GENETICS, BEHAVIORAL THERAPY, CLINICAL TRIALS. 1562912 116683 PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS. 940653 0 CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION AND CDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROME TO PHYSICIANS AND ALLIED PROFESSIONALS AND TO ENCOURAGE PHYSICIANS TO APPLY TO THE ASSOCIATIONS' REFERRAL LISTS. INCLUDES PROGRAMS TO EDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME. 56750 THE TOURETTE SYNDROME BEHAVIOR TRAINING INSTITUTE ( "TS- BTI") WAS CREATED TO EXPAND THE NUMBER OF HEALTHCARE PROFESSIONALS COMPETENTLY TRAINED IN BEHAVIOR THERAPY FOR TOURETTE SYNDROME AND OTHER TIC DISORDERS. PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 56750 4184775 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 33 0 1 29 1 1 1 0 0 0 0 1 1 0 0 0 0 0 0 X 19 19 0 0 0 0 1 1 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X SONJA MASON-VIDAL VP SEC & TREAS 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612820 ALICE KANE DIRECTOR 2.00 X 0 0 0 AZAD ANAND MD DIRECTOR 2.00 X 0 0 0 BRUCE D OCHSMAN DIRECTOR 2.00 X 0 0 0 CHERI G DAVID CPA CVA DIRECTOR 2.00 X 0 0 0 CINDY KURTZ SECOND VICE CHAIR 2.00 X X 0 0 0 DAVID KOCH DIRECTOR (OUTGOING) 2.00 X 0 0 0 DAVID SCHOENHAAR DIRECTOR 2.00 X 0 0 0 FRED COOK THIRD VICE CHAIR 2.00 X X 0 0 0 JASMINE TARKOFF DIRECTOR 2.00 X 0 0 0 JEFFREY KRAMER DIRECTOR 2.00 X 0 0 0 JOHN WALKUP MD DIRECTOR 2.00 X 0 0 0 JULIE MOELIS DIRECTOR 2.00 X 0 0 0 MONTE REDMAN DIRECTOR 2.00 X 0 0 0 PAUL S DEVORE DIRECTOR 2.00 X 0 0 0 PETER HOLLENBECK PHD FOURTH VICE CHAIR 2.00 X X 0 0 0 RANDI ZEMSKY CHAIR 3.00 X X 0 0 0 REID ASHINOFF DIRECTOR 2.00 X 0 0 0 ROVENA SCHIRLING DIRECTOR 2.00 X 0 0 0 STEPHEN MCCALL M ED DIRECTOR (OUTGOING) 2.00 X 0 0 0 STEPHEN BARRON FIRST VICE CHAIR 2.00 X X 0 0 0 SUSAN COUREY PHD DIRECTOR 2.00 X 0 0 0 AMANDA TALTY PRESIDENT & CEO 40.00 X 233379 0 14894 SONJA MASON-VIDAL VP OF FINANCE & ADMINISTRATION 40.00 X 114575 0 17172 DIANA FELNER VICE PRES., PUBLIC POLICY 40.00 X 113852 0 44402 DIANA SHINEMAN VICE PRES., RESEARCH & MED 40.00 X 125400 0 51590 TRACEY ALEXANDER VP, RESOURCE DEV. & CHAPTER SERVICES 40.00 X 130845 0 16145 718051 0 144203 5 0 1 0 PANOS GRAPHIC SERVICES 4 ANDERSON COURT WESTBURY SHORE NY 11706 GRAPHIC DESIGN SERVICES 168767 1 16910 991402 940653 1658110 24250 3607075 CONFERENCE INCOME 900099 116683 116683 116683 124391 124391 4165106 4068725 96381 96381 96381 101125 991402 142507 -41382 -41382 3903148 116683 0 179390 702404 702404 224350 224350 105253 105253 385076 209775 124182 51119 1494579 1170050 166558 157971 33723 25800 4721 3202 155660 117432 21967 16261 165635 118296 30082 17257 190744 148972 12535 29237 17056 17056 24090 17818 4605 1667 80603 78418 2185 437397 393498 20269 23630 190029 127720 41593 20716 283889 70421 40695 172773 219278 194831 6558 17889 180976 180976 18771 7835 5248 5688 47879 28250 17526 2103 CHAPTER SUPPORT 75371 75371 HONARARIUMS 47000 47000 RECRUITMENT & TRAINING 34185 19414 11931 2840 BANK FEES & CHARGES 27617 26733 884 113173 94158 14905 4110 5254738 4184775 541315 528648 181841 395233 7193131 6503392 1530141 1388424 27585 15749 197138 98324 158485 118290 42264 40195 2608807 2585079 11515 38656 11792422 11065052 268991 248629 497398 1045831 16412 51386 782801 1345846 X 9339693 7999073 1669928 1720133 11009621 9719206 11792422 11065052 -1351590 61175 0 X X 0 1 X 1 1 1 X 2929098 3105580 6229710 4228564 3607075 20100027 2929098 3105580 6229710 4228564 3607075 20100027 1373004 18727023 244479 189751 144102 178745 124391 881468 626480 714182 284562 123370 101125 1849719 22831214 677816 0.82020 0.79140 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: FUNDRAISING INCOME - 2015 AMOUNT: $ 626,480. 2016 AMOUNT: $ 714,182. 2017 AMOUNT: $ 284,562. 2018 AMOUNT: $ 123,370. 2019 AMOUNT: $ 101,125. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 162457 0 0 1 28287 0 0 190744 0 PART I-A, LINE 1: TAA ADVOCATES TO ENSURE GOVERNMENT OFFICIALS UNDERSTAND TOURETTE SYNDROME (TS) AND TIC DISORDERS (TD) AND TO ENSURE POLICIES AND REGULATIONS BEING DRAFTED, RELEASED AND FINALIZED OR SIGNED INTO LAW ARE IN THE BEST INTERESTS OF THOSE WITH TS OR TD. WE ALSO ADVOCATE TO ENSURE ADEQUATE GOVERNMENT FUNDING IS PROVIDED FOR THE CDC TOURETTE SYNDROME PUBLIC HEALTH EDUCATION AND RESEARCH PROGRAM AND AT THE NATIONAL INSTITUTES OF HEALTH'S NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE AND THE NATIONAL INSTITUTE OF MENTAL HEALTH. 334000 6521 6521 334000 326000 8000 6701 6701 334000 326000 6521 6521 326000 326000 5989 5989 326000 326000 4604 4604 326000 1.00000 0 0 158485 118290 40195 40195 X 4131823 61175 231514 -46958 245731 3886092 17056 17056 3903148 5422238 231514 231514 5190724 17056 46958 64014 5254738 PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. PART X, LINE 2: THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2020 AND FEBRUARY 28, 2019 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. PART XI, LINE 2D - OTHER ADJUSTMENTS: INDIRECT FUNDRAISING EXPENSES -46,958. PART XII, LINE 4B - OTHER ADJUSTMENTS: INDIRECT FUNDRAISING EXPENSES 46,958. 1 EUROPE 0 0 RESEARCH GRANT TO FURTHER TOURETTE'S MISSION RESEARCH GRANT 105253 0 0 0 0 0 0 105253 0 105253 EUROPE RESEARCH GRANT TO FURTHER RESEARCH 105253 1 0 0 0 0 0 0 PART I, LINE 2: GRANTEES ARE REQUIRED TO SUBMIT ANNUAL PROGRESS REPORTS. PART III ACCOUNTING METHOD: GALA 916213 846213 70000 82705 GOLF TOURNAMENTS 176314 145189 31125 59802 1092527 991402 101125 142507 142507 -41382 1 JOHNS HOPKINS UNIVERSITY CO BANK OF AMERICA 12529 COLLECTION CENTER DRIVE CHICAGO IL 60693 520595110 501(C)(3) 152559 RESEARCH UC BERKLEY 2195 HEARST AVEM ROOM 130 MAIL 1103 1103 BERKELEY CA 94720 946002123 501(C)(3) 150620 RESEARCH UNIVERSITY OF FLORIDA 123 GRINTER HALL PO BOX 1133001 GAINESVILLE FL 32611 596002052 501(C)(3) 152559 RESEARCH UNIVERSITY OF ROCHESTER 910 GENESEE STREET SUITE 200 ROCHESTER NY 14611 166036493 501(C)(3) 86666 RESEARCH UCSF DEPOSITORY PO BOX 748872 LOS ANGELES CA 90074 946036493 501(C)(3) 160000 RESEARCH 5 DEEP BRAIN STIMULATION RESEARCHERS 1 224350 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X X X 0 0 0 0 0 0 0 0 0 AMANDA TALTY PRESIDENT & CEO 233169 0 0 0 210 0 7001 0 7893 0 248273 0 0 0 DIANA FELNER VICE PRES., PUBLIC POLICY 113537 0 0 0 315 0 3454 0 40948 0 158254 0 0 0 DIANA SHINEMAN VICE PRES., RESEARCH & MED 125211 0 0 0 189 0 3759 0 47831 0 176990 0 0 0 FORM 990, PART VI, SECTION A, LINE 6 TOURETTE ASSOCIATION OF AMERICA INC. IS A MEMBERSHIP ORGANIZATION. ANY PERSON INTERESTED IN TOURETTE SYNDROME, ITS CAUSES, TREATMENT AND ASSOCIATED PROBLEMS MAY BECOME A MEMBER OF THIS ASSOCIATION. FORM 990, PART VI, SECTION A, LINE 7A EACH MEMBER OF THE ASSOCIATION IN GOOD STANDING SHALL BE ENTITLED TO ONE VOTE ON ALL MATTERS SUBMITTED TO A VOTE OF THE MEMBERS. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE 990. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 15A THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE FOR THE OFFICERS. THE CHAIRMAN TAKES THE AMOUNTS TO THE FULL BOARD FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR.