2020-11-13T11:23:22-06:00 2019-12-31 132872856 ABD ASSOCIATES LLP 100 SUMMIT LAKE DR SUITE 120 VALHALLA NY 105951362 990 2019-01-01 133906297 MAKING HEADWAY FOUNDATION INC C/O EDWARD P MANLEY MAKI 9144238838 115 KING STREET CHAPPAQUA NY 105143460 DANIEL LIPKA EXECUTIVE DIRECTOR 0914238838 2020-11-09 REBECCA DRECHSEL P01425212 9147479000 2020-11-10 52.38.98.93 2020-11-13 11:23:22 CS P 63CA76078FEC55A41995782C385E93BDE80EE1C3 41BD3A6A305A8C713FCBF9339AB346E6036D7CE0 2019 2021-01-29 14:40:06Z EDWARD P MANLEY 115 NEW KING STREET CHAPPAQUA NY 105143460 2605151 false X WWW.MAKINGHEADWAY.ORG X 1996 WHEN A CHILD IS DIAGNOSED WITH A BRAIN OR SPINAL CORD TUMOR, THE WHOLE FAMILY NEEDS A SPECIAL KIND OF CARE AND SUPPORT. MAKING HEADWAY FOUNDATION WAS CREATED IN REPSONSE TO THIS NEED. OUR HUMANISTIC SUPPORT PROGRAMS SUPPORT CHILDREN AND THEIR FAMILIES FROM DIAGNOSIS THROUGH TREATMENT AND BEYOND. THE FOUNDATION IS ALSO COMMITTED TO FUNDING MEDICAL RESEARCH SO BETTER TREATMENTS AND CURES CAN BE FOUND. 10 10 3 0 996217 683703 0 23091 136429 175240 181798 1194548 1001930 973175 650283 0 235824 206194 0 67471 11723 435622 1220722 1292099 -26174 -290169 5686106 5425202 450927 404711 5235179 5020491 X WHEN A CHILD IS DIAGNOSED WITH A BRAIN OR SPINAL CORD TUMOR, THE WHOLE FAMILY NEEDS A SPECIAL KIND OF CARE AND SUPPORT. MAKING HEADWAY FOUNDATION WAS CREATED IN REPSONSE TO THIS NEED. OUR HUMANISTIC SUPPORT PROGRAMS SUPPORT CHILDREN AND THEIR FAMILIES FROM DIAGNOSIS THROUGH TREATMENT AND BEYOND. THE FOUNDATION IS ALSO COMMITTED TO FUNDING MEDICAL RESEARCH SO BETTER TREATMENTS AND CURES CAN BE FOUND. false false 688964 650283 MAKING HEADWAY FOUNDATION MAINTAINS A UNIQUE RELATIONSHIP WITH NYU LANGONE MEDICAL CENTER AND ITS STEPHEN D HASSENFELD CHILDRENS CENTER FOR CANCER AND BLOOD DISORDERS. EACH GRANT THAT IS FUNDED IS SELECTED BASED ON ITS ABILITY TO PROVIDE HUMANISTIC SUPPORT TO PATIENT FAMILIES WHILE SEARCHING FOR IMPROVED TREATMENTS AND EVENTUALLY A CURE. GRANTS WERE ALSO AWARDED TO MEMORIAL SLOAN KETTERING CANCER CENTER (MSKCC), ST BALDRICK'S FOUNDATION (SBF) AND PEDIATRIC BRAIN TUMOR FOUNDATION. 180176 RETURNING HOME FROM THE HOSPITAL CAN BE A DISORIENTING AND ISOLATED FEELING FOR THE PATIENTS AND THEIR FAMILY MEMBERS. THEY FIND THEMSELVES STRUGGLING TO ADJUST TO A FAMILAR PLACE WHERE EVERYTHING HAS CHANGED. TO THIS END, MAKING HEADWAY PROVIDES, FREE OF CHARGE, INDIVIDUAL PSYCHOLOGICAL AND PSYCHIATRIC COUNSELING FOR PARENTS AND THEIR CHILDREN WHO ARE DIAGNOSED WITH A BRAIN OR SPINAL CORD TUMOR AND FREE OF CHARGE EDUCATIONAL COUNSELING FOR CHILDREN SURVIVING A BRAIN OR SPINAL CORD TUMOR WHO HAVE DIFFICULTIES RETURNING TO SCHOOL AND KEEPING UP WITH THE CURRICULUM. 238605 AT THE STEPHEN D HASSENFELD CHILDREN'S CENTER FOR CANCER AND BLOOD DISORDERS WE PROVIDE PATIENT SUPPORT IN THE AMOUNT OF 28,288. OTHER PROGRAMS FUNDED: FUNERAL EXPENSES FOR CHILDREN WHO HAVE PASSED AWAY AND WHOSE FAMILIES CANNOT AFFORD THE COST IN THE AMOUNT OF 68,880. FOURTEEN ONE-YEAR SCHOLARSHIPS OF 5,000 EACH TO CHILDREN SURVIVING A BRAIN TUMOR - 70,000. A YACHT CRUISE AND FAMILY EVENTS FOR THE CHILDREN AND THEIR FAMILIES - 71,437. OTHER EXPENSES INCLUDE ALLOCATION OF OFFICE EXPENSES, OFFICE SALARIES AND PAYROLL TAXES, DESIGN AND EDITING SERVICES, RECRUITING EXPENSES, OCCUPATION, INFORMATION TECHNOLOGY AND INSURANCE. 1107745 true true false false false false false false false false true true true false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 22 0 3 true false false false false false false false false X 10 10 true false false false false false false true true false false true true true true true true true true false NY X X X EDWARD P MANLEY 9144238838 115 NEW KING STREET CHAPPAQUA NY 105143460 X DANIEL LIPKA EXECUTIVE DI 40.00 X 120000 0 0 DAVID ALMEIDA DIRECTOR X 0 0 0 CLINT GREENBAUM FOUNDER ANDT X X 0 0 0 ELISA GREENBAUM VICE CHAIR X X 0 0 0 AUDREY MANLEY SECRETARY X X 0 0 0 EDWARD P MANLEY FOUNDER AND X X 0 0 0 MAYA MANLEY FOUNDER X 0 0 0 CHARLES MCMAHON DIRECTOR X 0 0 0 SUSAN RUBIN DIRECTOR X 0 0 0 SAM SCHWARTZ VP CHAIR RES X X 0 0 0 GREG TAUBIN DIRECTOR X 0 0 0 120000 1 false false false 465525 218178 14263 683703 24639 12620 12019 1694707 1582917 111790 111790 111790 202102 465525 20304 181798 181798 1001930 124410 193817 650283 650283 183131 102553 53108 27470 8945 5009 2594 1342 14118 7906 4094 2118 375 375 18282 18282 36698 9522 8028 19148 23721 9721 10391 3609 236 110 119 7 862 862 6358 1336 1016 4006 12166 5499 6248 419 INDIVIDUAL COUNSELING 143774 143774 SUMMER EVENTS 71437 71437 SCHOLARSHIPS 70000 70000 FUNERAL EXPENSES 68880 68880 -17167 -39147 13003 8977 1292099 1107745 116883 67471 197893 34130 1101589 2887584 2096531 1706040 14343 21081 33706 10865 29199 22841 1105614 396028 1139937 356498 1000 1000 5686106 5425202 39704 32235 406123 369834 5100 2642 450927 404711 X 4943714 4857831 291465 162660 5235179 5020491 5686106 5425202 -290169 75481 X false true X true false X 1006051 916283 958125 996217 683703 4560379 1006051 916283 958125 996217 683703 4560379 4560379 7849 8282 12654 11888 12019 52692 164015 107914 271929 62325 10225 78705 151255 5036255 23823 0.90550 0.94450 X PART II, LINE 10 OTHER INCOME 72,550 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 33706 10865 22841 22841 1746 BERKSHIRE HATHAWAY CL B 356498 F 356498 1001930 1001930 1001930 1292099 1292099 1292099 WINTER EVENT (S 305328 226623 78705 5821 WINTER EVENT (M 238902 238902 5 123397 123397 14483 667627 465525 202102 20304 20304 181798 true NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 163798 PEDIATRIC NEUROSURGE NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 125475 NEURO PSYCHOLOGY TES NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 107219 PRE CLINICAL CORE NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 27961 BIOREPOSITORY CENTER NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 31014 THERAPEUTIC MASSAGE NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 53547 CLINICAL TRIAL MANAG MEMORIAL SLOAN KETTERING 1275 YORK AVENUE NEW YORK NY 10065 131924236 41670 BRAIN TUMOR RECOVERL ST BALDRICKS FOUNDATION 1333 SOUTH MAYFLOWER AVE STE 400 MONROVIA CA 91016 201173824 25000 CANCER RESEARCH NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 41980 NEUROONCOLOGY FELLOW NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 15000 DNA METHYLOGICAL PRO PEDIATRIC BRAIN TUMOR FOUNDATION 302 RIDGEFIELD COURT ASHEVILLE NC 28806 581966822 15000 MEK 162 TRIAL SCHEDULE I, PAGE 1, PART I, LINE 2 GRANT FUNDS ARE PAID QUARTERLY TO NYU LANGONE MEDICAL CENTER AND MEMORIAL SLOAN KETTERING CANCER CENTER. ST. BALDRICKS FOUNDATION WAS PAID ONCE DURING THE YEAR. THEY ARE REQUIRED TO SUBMIT SEMI-ANNUAL AND ANNUAL NARRATIVE AND FINANCIAL REPORTS FOR EACH GRANT. THESE ARE REVIEWED AND THE REMAINING FUNDS ARE PAID OUT DEPENDING ON PROGRESS TOWARD ACHIEVING THE OBJECTIVES STATED IN THE GRANT APPLICATION. PEDIATRIC BRAIN TUMOR FOUNDATION WAS ALSO PAID ONCE DURING THE YEAR. FORM 990 - ORGANIZATION'S MISSION WHEN A CHILD IS DIAGNOSED WITH A BRAIN OR SPINAL CORD TUMOR, THE WHOLE FAMILY NEEDS A SPECIAL KIND OF CARE AND SUPPORT. MAKING HEADWAY FOUNDATION WAS CREATED IN REPSONSE TO THIS NEED. OUR HUMANISTIC SUPPORT PROGRAMS SUPPORT CHILDREN AND THEIR FAMILIES FROM DIAGNOSIS THROUGH TREATMENT AND BEYOND. THE FOUNDATION IS ALSO COMMITTED TO FUNDING MEDICAL RESEARCH SO BETTER TREATMENTS AND CURES CAN BE FOUND. FORM 990, PAGE 2, PART III, LINE 4D OTHER EXPENSES INCLUDE ALLOCATION OF OFFICE EXPENSES, OFFICE SALARIES AND PAYROLL TAXES, DESIGN AND EDITING SERVICES, RECRUITING EXPENSES, OCCUPATION, INFORMATION TECHNOLOGY AND INSURANCE. FORM 990, PAGE 6, PART VI, LINE 2 EDWARD MANLEY MAYA MANLEY FOUNDER/CHR FOUNDER FAMILIAL AUDREY MANLEY EDWARD & MAYA MANLEY SECRETARY FOUNDERS FAMILIAL CLINT GREENBAUM ELISA GREENBAUM FOUNDER/TRE VICE CHAIR FAMILIAL FORM 990, PAGE 6, PART VI, LINE 11B A COPY OF FORM 990 IS EMAILED OR MAILED TO EACH BOARD MEMBER AND THE EXECUTIVE DIRECTOR FOR REVIEW. ANY QUESTIONS THEY MAY HAVE ARE ANSWERED PROMPTLY. BOARD REVIEW AND APPROVAL IS REQUIRED BEFORE FORM 990 IS MAILED TO THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED AT EACH BOARD MEETING AS WELL AS IN THE ANNUAL QUESTIONNAIRE MAILED TO EACH BOARD MEMBER. FORM 990, PAGE 6, PART VI, LINE 15A THE CHAIRMAM REVIEWS EMPLOYEES PERFORMANCE DURING THE YEAR AND CONSULTS INDEPENDENT SALARY SURVEYS FOR NONPROFIT ORGANIZATIONS. HE THEN MAKES A RECOMMENDATION TO THE BOARD WHICH IS THEN REVIEWED AND APPROVED AT THE DECEMBER BOARD MEETING. FORM 990, PAGE 6, PART VI, LINE 15B THE CHAIRMAM REVIEWS EMPLOYEES PERFORMANCE DURING THE YEAR AND CONSULTS INDEPENDENT SALARY SURVEYS FOR NONPROFIT ORGANIZATIONS. HE THEN MAKES A RECOMMENDATION TO THE BOARD, WHICH IS THEN REVIEWED AND APPROVED AT THE DECEMBER BOARD MEETING. FORM 990, PAGE 6, PART VI, LINE 18 ALL SUCH DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990 AND THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON GUIDESTAR AND THE MAKING HEADWAY WEBSITE. LINKS TO THE FINANCIAL STATEMENTS ARE PROVIDED ON EACH OF OUR SPECIAL EVENT FUNDRAISING PORTALS. FORM 990, PAGE 6, PART VI, LINE 19 ALL SUCH DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990 AND THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON GUIDESTAR AND THE MAKING HEADWAY WEBSITE. LINKS TO THE FINANCIAL STATEMENTS ARE PROVIDED ON EACH OF OUR SPECIAL EVENT FUNDRAISING PORTALS.