2019-11-15T12:08:07-06:00 2018-12-31 263753134 CBIZ MHM LLC 500 BOYLSTON STREET BOSTON MA 02116 990 2018-01-01 451623549 T1D EXCHANGE INC T1DE 6178926100 11 AVENUE DE LAFAYETTE 5TH FLOOR BOSTON MA 02111 REBECCA PARKES CHIEF OPERATING OFFICER 6178926100 2019-11-14 1 BRENDA L BOOTH P01342395 6177610600 2019-11-14 207.172.72.163 2019-11-14 13:38:51 ES P 60FF9891D1F5F02B6CE76569FE37055EDA903CEE 6EBF32EC077803D5773B28E578504B4367373832 2018 2020-03-31 21:24:44Z DAVID WALTON 11 AVENUE DE LAFAYETTE 5TH FLOOR BOSTON MA 02111 17044637 0 X WWW.T1DEXCHANGE.ORG X 2011 DE SEE SCHEDULE O 13 11 31 13 0 31970 1708747 16508806 826196 480113 18585 55718 0 0 2553528 17044637 0 0 0 0 3794120 4112494 0 0 532344 3249475 3494842 7043595 7607336 -4490067 9437301 8933069 18448667 822959 901256 8110110 17547411 X T1D EXCHANGE IS A LEADING PROVIDER OF REAL-WORLD EVIDENCE, DEDICATED TO IMPROVING CARE FOR PEOPLE AFFECTED BY TYPE 1 DIABETES. T1D EXCHANGE ACTIVELY SUPPORTS QUALITY IMPROVEMENT AND INNOVATION THROUGH ITS QUALITY IMPROVEMENT COLLABORATIVE, PATIENT REGISTRY, DATA-ORIENTED RESEARCH SERVICES AND BIENNIAL DIABETES INNOVATION CHALLENGE. IT PLAYS AN ACTIVE ROLE IN CREATING REAL-WORLD IMPACT WITH THIS INTEGRATED DATA BY PROVIDING CLINICIANS, RESEARCHERS, INDUSTRY PARTNERS AND ADVOCATES WITH THE RESOURCES AND SERVICES THEY NEED FOR BETTER DECISION SUPPORT AND POPULATION HEALTH MANAGEMENT. 0 0 4435160 480113 THE ORGANIZATION MAINTAINS FOUR MAJOR PROGRAMS - THE T1D EXCHANGE REGISTRY, THE QUALITY IMPROVEMENT COLLABORATIVE, PATIENT-CENTERED RESEARCH, AND BIOBANK, AND MAINTAINS A DATA SET OF OVER 30,000 INDIVIDUALS WITH TYPE 1 DIABETES INCLUDING SELF-REPORTED, EHR, AND BIOLOGICAL DATA. T1D EXCHANGE HAS A STRONG TRACK RECORD IN SUPPORTING CLINICAL RESEARCH AND PATIENT-REPORTED OUTCOMES RESEARCH FOCUSING ON TYPE 1 DIABETES. 4435160 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 1 45 0 1 31 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 13 11 0 0 0 0 1 1 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA AL AR CA FL GA HI IL KS KY MD MI MN OR PA RI SC TN UT VA WV WI MS NH NJ NC X RENE WEATHERS 6178926100 11 AVENUE DE LAFAYETTE 5TH FLOOR BOSTON MA 02111 GINA AGIOSTRATDOU DIRECTOR 1.00 0.00 X 0 0 0 ABBIE CEINIKER DIRECTOR 1.00 1.00 X 0 0 0 JOHN COLLINS AS OF 1018 DIRECTOR/TREASURER 1.00 0.00 X X 0 0 0 CHRISTINA CSIMMA DIRECTOR 1.00 0.00 X 0 0 0 HAYDON KEITNER DIRECTOR 1.00 0.00 X 0 0 0 DANA BALL CEO UNTIL 718 DIR., PRESIDENT, SEC. OF BD. 2018 40.00 1.00 X X 303353 0 17152 CHRISTINA CSIMMA DIRECTOR 1.00 0.00 X 0 0 0 JENNIFER MCCABE DIRECTOR 1.00 0.00 X 0 0 0 JAY MOHR DIRECTOR 1.00 0.00 X 0 0 0 MARIJANE NORRIS-GEARY DIRECTOR 1.00 1.00 X 0 0 0 KIM PEMBLE UNTIL 1018 DIRECTOR/TREASURER 1.00 0.00 X X 0 0 0 DAVID WALTON DIRECTOR 1.00 0.00 X 0 0 0 DEBORAH PINE DIRECTOR 1.00 0.00 X 0 0 0 KEITH RYAN CHAIRMAN OF BOARD 1.00 1.00 X X 0 0 0 DARA SHUSTER AS OF 718 CEO, DIRECTOR, PRES. & SEC. OF BOARD 40.00 1.00 X X 209612 0 9505 REBECCA PARKES CHIEF ADVANCEMENT OFFICER 40.00 0.00 X 181453 0 9580 JASON DANA COSTA UNTIL 418 CHIEF FINANCIAL OFFICER 40.00 1.00 X 71683 0 7680 JAYA PLMANABHAN CHIEF TECHNOLOGY OFFICER 40.00 0.00 X 222897 0 7243 WENDY WOLF DIRECTOR OF BIOBANK AND REGISTRY 40.00 0.00 X 209512 0 18814 ALICIA MCAULIFFE-FOGARTY VP PATIENT-CENTERED RESEARCH 40.00 0.00 X 170001 0 13752 NICOLE RIOLES ASSOC. DIR. OF QUALITY IMPROVEMENT 40.00 0.00 X 145251 0 20893 HALEY OH ASSOC. DIR. OF CLINICAL RESEARCH 40.00 0.00 X 117645 0 3527 1631407 0 108146 11 0 1 0 NEWFIRE LLC 210 BROADWAY ST SUITE 201 CAMBRIDGE MA 02139 SOFTWARE DESIGN & DEVELOPMENT 1685403 COMMCREATIVE 75 FOUNTAIN STREET FRAMINGHAM MA 01702 MARKETING 249239 UNIVERSITY OF WASHINGTON GRANT/CONTRACT ACCOUNTING BOX 3549 SEATTLE WA 98195 RESEARCH 210190 3 265000 16243806 16508806 CONTRACT SERVICE REVENUE 900099 480113 480113 480113 55718 55718 17044637 480113 0 55718 1025216 631180 211538 182498 2470938 1384618 923979 162341 380272 115321 261395 3556 236068 52946 178993 4129 84838 42569 42269 85865 85865 308998 131441 147629 29928 241415 129362 112053 162575 32298 98389 31888 543771 193502 303157 47112 200817 159056 35079 6682 90042 83137 4801 2104 417721 395922 15571 6228 30650 20089 6696 3865 PROGRAM SERVICES 1189335 1040662 96973 51700 RECRUITMENT & TRAINING 112815 3057 109445 313 BAD DEBT EXPENSE 26000 20000 6000 7607336 4435160 2639832 532344 901719 1589925 1581319 1896696 3909832 11835784 379378 110535 46382 433449 337733 199773 173618 137960 1006474 1023250 655627 1370821 278720 50247 8933069 18448667 462372 415567 150000 100000 100000 258403 110587 127286 822959 901256 X 3222040 5114138 4888070 12433273 8110110 17547411 8933069 18448667 9437301 0 X 0 1 X 1 0 X 1077959 7577245 11084716 1708747 16508806 37957473 1077959 7577245 11084716 1708747 16508806 37957473 21840692 16116781 1074 12210 22623 18585 55718 110210 38067683 6101025 0.42340 0.60400 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 96621 30464 66157 241112 169309 71803 137960 DEFERRED RENT 44776 OFFICERS RETIREMENT PLAN LIABILITY 30247 DUE TO RELATED PARTY 52263 127286 X 17055727 11090 11090 17044637 0 17044637 7618426 11090 11090 7607336 0 7607336 PART X, LINE 2: T1D EXCHANGE AND THE FOUNDATION ARE BOTH NONPROFIT ORGANIZATIONS AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND EACH IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. AS A RESULT, NO PROVISION FOR INCOME TAXES IS PRESENTED IN THESE CONSOLIDATED FINANCIAL STATEMENTS. HOWEVER, IN CERTAIN CIRCUMSTANCES, THE ORGANIZATION MAY BE SUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM UNRELATED TRADE OR BUSINESS INCOME. AS DECEMBER 31, 2018 AND 2017, MANAGEMENT'S POSITION IS THAT THE ORGANIZATION DOES NOT HAVE ANY LIABILITIES ASSOCIATED WITH UNRELATED TRADE OR BUSINESS INCOME. THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BY EVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE CONSOLIDATED FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSES, IF ANY, IN ITS CONSOLIDATED STATEMENTS OF ACTIVITIES. X X 0 0 0 0 0 0 0 1 0 DANA BALL CEO UNTIL 718 DIR., PRESIDENT, SEC. OF BD. 2018 228155 0 75000 0 198 0 14720 0 2432 0 320505 0 0 0 DARA SHUSTER AS OF 718 CEO, DIRECTOR, PRES. & SEC. OF BOARD 209474 0 0 0 138 0 7341 0 2164 0 219117 0 0 0 REBECCA PARKES CHIEF ADVANCEMENT OFFICER 181370 0 0 0 83 0 8452 0 1128 0 191033 0 0 0 JAYA PLMANABHAN CHIEF TECHNOLOGY OFFICER 222759 0 0 0 138 0 0 0 7243 0 230140 0 0 0 WENDY WOLF DIRECTOR OF BIOBANK AND REGISTRY 209274 0 0 0 238 0 18200 0 614 0 228326 0 0 0 ALICIA MCAULIFFE-FOGARTY VP PATIENT-CENTERED RESEARCH 169915 0 0 0 86 0 8272 0 5480 0 183753 0 0 0 NICOLE RIOLES ASSOC. DIR. OF QUALITY IMPROVEMENT 145251 0 0 0 0 0 17791 0 3102 0 166144 0 0 0 PART I, LINE 7 A DISCRETIONARY BONUS WAS PAID TO AN OFFICER OF THE ORGANIZATION. FORM 990, PART I, LINE 1 T1D EXCHANGE IS A NONPROFIT, RESEARCH ORGANIZATION DEDICATED TO ACCELERATING THERAPIES AND IMPROVING CARE FOR PEOPLE AFFECTED BY TYPE 1 DIABETES. T1D EXCHANGE ACTIVELY SUPPORTS DISCOVERY AND INNOVATION THROUGH ITS BIOBANK AND PATIENT DATA. AT THE SAME TIME, THE ORGANIZATION UNDERSTANDS THAT EVIDENCE GATHERED IN THE "REAL WORLD" CAN HELP BRIDGE THE GAP BETWEEN DISCOVERY IN RESEARCH SETTINGS AND IMPACT IN PEOPLE'S LIVES. T1D EXCHANGE MODEL USES CUTTING-EDGE TOOLS, RESEARCH METHODS, AND A ROBUST IT PLATFORM TO GATHER EVIDENCE FROM THE REAL-WORLD AND CLINICAL EXPERIENCES OF PEOPLE LIVING WITH TYPE 1 DIABETES. THE GOAL IS TO CONNECT BIOLOGICAL SAMPLES, MEDICAL DATA, AND PATIENT INSIGHTS TO ALL STAGES OF RESEARCH AND DEVELOPMENT, EXPEDITING THE DEVELOPMENT OF THERAPIES AND BETTER CARE FOR EVERYONE AFFECTED BY TYPE 1 DIABETES. T1D EXCHANGE IS SUPPORTED BY 2 KEY PROGRAMS, THE T1D EXCHANGE REGISTRY AND THE QUALITY IMPROVEMENT COLLABORATIVE AND MAINTAINS A DATA SET OF OVER 30,000 INDIVIDUALS WITH TYPE 1 DIABETES INCLUDING SELF-REPORTED, EHR, AND BIOLOGICAL DATA. THE T1D EXCHANGE HAS A STRONG TRACK RECORD IN SUPPORTING CLINICAL RESEARCH AND PATIENT-REPORTED OUTCOMES RESEARCH FOCUSING ON TYPE 1 DIABETES. FORM 990, PART VI, SECTION A, LINE 6 THE MEMBER IS THOSE PERSONS SERVING FROM TIME TO TIME AS THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION A, LINE 7A T1D EXCHANGE IS A MEMBERSHIP CORPORATION. THE MEMBER IS THOSE PERSONS SERVING FROM TIME TO TIME AS THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11B PRIOR TO FILING FROM 990 THE COMPLETED FORM 990 IS DISTRIBUTED TO THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION CONTINUALLY MONITORS AND ENFORCES THE CONFLICT OF INTEREST POLICY BY (1) REQUIRING ALL NEW BOARD MEMBERS TO SIGN THE POLICY AND IDENTIFY ANY CONFLICTS THAT MAY EXIST, AND (2) ANNUALLY RE-AFFIRM WITH ALL MEMBERS OF THE BOARD OF DIRECTORS AND IDENTIFY AND CONFLICTS OF INTEREST THAT MAY HAVE OCCURED IN THE PRIOR YEAR. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS IS REPONSIBLE FOR THE YEARLY PERFORMANCE EVALUATION AND SALARY REVIEW OF THE EXECUTIVE DIRECTOR AND ANY EMPLOYEES EARNING $200,000 OR MORE. THE BOARD USES SALARY SURVEY'S AS A BENCHMARK FOR EACH POSITION, UTILIZING COMPARABLES FROM OTHER SIMILAR ORGANIZATIONS AND OTHER AVAILABLE DATA. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION MAKES ITS FORM 1023, AND 990S AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. T1D EXCHANGE SUPPORTING FOUNDATION INC 11 AVENUE DE LAFAYETTE 5TH FLOOR BOSTON MA 02111 475074602 BENEFITING AND SUPPORTING THE CHARITABLE ACTIVITIES OF T1D EXCHANGE, INC. MA 501(C)(3) LINE 12A, I T1D EXCHANGE INC 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 T1D EXCHANGE SUPPORTING FOUNDATION INC Q 52263 FMV