2019-11-15T06:42:19-08:00 2018-12-31 390919055 Ritz Holman LLP 330 E Kilbourn Ste 550 Milwaukee WI 532023144 990 2018-01-01 464152355 CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE CHIL 4149189822 555 E WELLS ST STE 1100 MILWAUKEE WI 53202 ROBERT COLBERT MD PHD Treasurer 2019-11-15 true KATY L SOMMER P00273273 4142711451 2018 2020-03-31 21:24:44Z EMILY VON SCHEVEN 9976474 false false X https://www.carragroup.org/ X 2014 CA CARRA members work together to capitalize on opportunities, actively develop a structure and a scientific agenda, and collaborate with potential funding sources to create a research alliance that benefits our patients. CARRA Conducts collaborative research to prevent, treat and cure pediatric rheumatic diseases. 9 5 0 0 10497647 6025669 2298414 3884923 2102 19852 46030 12798163 9976474 405348 560529 0 358999 249771 0 0 4508744 7066469 5273091 7876769 7525072 2099705 16222097 18423173 1148769 1250140 15073328 17173033 X CARRA members work together to capitalize on opportunities, actively develop a structure and a scientific agenda, and collaborate with potential funding sources to create a research alliance that benefits our patients. CARRA Conducts collaborative research to prevent, treat and cure pediatric rheumatic diseases. false false 4518304 3824673 CARRA Registry: CARRA and the Duke Clinical Research Institute (DCRI) are collaborating to launch the second phase of the CARRA Registry, a registry of children and young adults with pediatric-onset rheumatic conditions such as juvenile idiopathic arthritis (JIA). The Registry is a cornerstone of CARRA and provides disease and treatment data on children with a variety of rheumatic diseases. 1162913 51250 Other program services: Informatics/Programing, Leadership service associated with furthering the mission and ACR meeting expenses. 661073 9000 Annual Meeting: provides many opportunities to develop and refine scientific approaches to questions in clinical and translational research, while networking with colleagues. The meeting offers a unique, interactive format with sessions that encourage active participation, including brainstorming and contributing to new research initiatives and ideas. 521011 521011 6863301 true true false false false false false false false false false false false false false true true false false false false true false false false false false true true false false false false false false false false false false false false false false false false false false false false false true 8 0 true 0 false false false false false false false false false 0 false false false false false false false false false false false false X 9 5 false true true false true false false true true false false true true true true false true true true false CA X EXECUTIVE DIRECTOR INC 4142766445 555 E WELLS STREET SUITE 110 MILWAUKEE WI 53202 YUKIKO KIMURA MD PAST PRESIDENT 3.00 0.00 X 100927 0 0 ROBERT FUHLBRIGGE MD PHD PRESIDENT 3.00 0.00 X X 54432 0 0 CAROL WALLACE MD Director 1.00 0.00 X 0 0 0 HARRY SAAL PHD Director 1.00 0.00 X 0 0 0 BRIAN KOTZIN MD Director 1.00 0.00 X 0 0 0 LEIGH WHITE JD Director 1.00 0.00 X 0 0 0 CHRISTY SANDBORG MD CHAIR 3.00 0.00 X 0 0 0 EMILY VON SCHEVEN MD MAS Vice President 3.00 0.00 X 74412 0 0 ROBERT COLBERT MD PHD Treasurer 3.00 0.00 X 20000 0 0 249771 1 false false false DUKE CLINICAL RESEARCH INSTITUTE 2400 PRATT ST DURHAM NC 27705 REGISTRY MANAGEMENT 3995607 BOSTON CHILDRENS HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 INFORMATICS SUPPORT 260000 EXECUTIVE DIRECTOR INC 555 e wells street milwaukee WI 53202 management 517250 GROUP CONSULTING 120 COUNTY LINE ROAD BRYN MAWR PA 19010 ORG. CONSULTING 186519 4 6025669 6025669 annual meeting 541900 9000 9000 Membership Dues & Assessments 900099 51250 51250 RESEARCH STUDIES & COLLAB 541900 3824673 3824673 3884923 19852 19852 0 0 0 0 0 0 0 Grant Support Refunds 900099 46030 46030 46030 9976474 3930953 19852 X 521011 521011 7659 7659 31859 31859 0 249771 249771 0 0 0 0 0 1471975 597292 874683 760 760 20250 20250 0 0 0 4210417 4206507 3910 19254 872 18382 41544 30668 10876 472854 437562 35292 0 0 53732 28421 25311 0 739816 739816 0 0 0 23406 23406 Miscellaneous 12461 11863 598 0 7876769 6863301 1013468 0 4099256 2763778 3504290 7124102 5890000 6098750 2710543 2400430 0 0 0 0 18008 36113 0 0 0 0 0 0 16222097 18423173 1139319 1242090 9450 8050 1148769 1250140 X 9508328 11074283 5565000 6098750 15073328 17173033 16222097 18423173 2099705 X X false true X true false X 1840811 2755621 4523687 10497647 6025669 25643435 0 0 1840811 2755621 4523687 10497647 6025669 25643435 0 25643435 286 672 1267 2102 19852 24179 0 46030 46030 25713644 10762936 0.99730 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 9930444 9930444 46030 46030 9976474 7830739 7830739 46030 46030 7876769 Part X : FIN48 Footnote The Organization is exempt from income tax under Section 501(c)(3) of Internal Revenue Code and is classified as other than a private foundation. Management has reviewed all tax positions recognized in previously filed tax returns and those expected to be taken in future tax returns. As of December 31, 2018, the Organization had no amounts related to unrecognized income tax benefits and no amounts related to accrued interest and penalties. The Organization does not anticipate any significant changes to unrecognized income tax benefits over the next year. Part XI, Line 4b: Other revenue amounts included on 990 but not included in F/S Grant Support Refunds $46030 Part XII, Line 4b: Other revenue amounts included on 990 but not included in F/S Grant Support Refunds $46030 CANADA RESEARCH STUDY 31859 Cash FMV 1 false false false false false false Part II, Line 1 - Method of Accounting CARRA has a Grants Review Committee that oversees the funding of grants. Grant recipients must go through a grant review process, which includes a final grant report due within 30 days of the end of the project period. false ANN & ROBERT LURIE CHILDRENS 225 E CHICAGO AVE CHICAGO IL 60611 362170833 3 25000 0 FMV SMALL GRANT CHILDRENS HOSPITAL OF PHILA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 3 8640 0 FMV PUBLICATION GRANT CINCINNATI CHILDRENS HOSPITAL 3333 BURNET AVE CINCINNATI OH 45229 316026285 3 25000 0 FMV SMALL GRANT COLUMBIA UNIVERSITY 116TH ST NEW YORK NY 10027 135598093 3 9269 0 FMV SMALL GRANT DUKE UNIVERSITY 2301 ERWIN RD DURHAM NC 27710 560532129 3 19278 0 FMV FELLOWS GRANT EAST TENNESSEE ST UNIV 1276 GILBREATH DR JOHNSON CITY TN 37614 626021046 3 50000 0 FMV LARGE GRANT FEINSTEIN INST FOR MED RES 350 COMMUNITY DR MANHASSET NY 11030 112673595 3 30408 0 FMV SMALL GRANT/FELLOWS GRANT HACKENSAVK UNIV MED CENTER 30 PROSPECT AVE HACKENSACK NJ 07601 221487576 3 24978 0 FMV SMALL GRANT HOSPITAL FOR SPECIAL SURGERY 541 E 71ST ST NEW YORK NY 10021 131624135 3 25000 0 FMV FELLOWS GRANT INDIANA UNIVERSITY 107 S INDIANA AVE BLOOMINGTON IN 47405 356018940 3 70736 0 FMV SMALL GRANT/LARGE GRANT RESEARCH INST AT NATIONWIDE 700 CHILDRENS DR COLOMBUS OH 43205 316056230 3 49978 0 FMV SMALL GRANT/FELLOWS GRANT RUTGERS UNIVERSITY 57 US HIGHWAY 1 NEW BRUNSWICK NJ 08901 122600108 3 10000 0 FMV PUBLICATION GRANT SEATTLE CHILDRENS HOSPITAL 400 SAND POINT WAY NE SEATTLE WA 98105 910564748 3 29985 0 FMV SMALL GRANT/FELLOWS GRANT SETON HEALTHCARE 1345 PHILOMENA ST AUSTIN TX 78723 272193174 3 25000 0 FMV SMALL GRANT THE UNIVERSITY OF CALIFORNIA 1111 FRANKLIN ST OAKLAND CA 94607 946036493 3 59332 0 FMV SMALL GRANT/FELLOWS GRANT UNIVERSITY OF ALABAMA BIRM 1720 2ND AVE BIRMINGHAM AL 35294 636005396 3 8369 0 FMV PUBLICATION GRANT UNIVERSITY OF PENNSYLVANIA 801 SPRUCE ST PHILADELPHIA PA 19107 231352685 3 22032 0 FMV SMALL GRANT/FELLOWS GRANT VANDERBILT UNIVERSITY 2201 WEST END AVE NASHVILLE TN 37235 352528741 3 24998 0 FMV FELLOWS GRANT 18 0 PRES. TRAVEL AWARD 3 7659 FMV Additional Supplemental Information UNSPENT GRANTS OF $46,030 WERE REFUNDED THROUGHOUT THE YEAR. Form 990, Part III, Line 4d: Other Program Services Description OTHER PROGRAM SERVICES 4: Other program services: Informatics/Programing, Leadership service associated with furthering the mission and ACR meeting expenses. Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company CARRA contracts with Executive Director Inc. (A for-profit Management Company) to provide office facilities, management, record keeping, accounting, storage, other significant services, plus related overhead costs. Form 990, Part VI, Line 4: Description of Significant Changes to Organizational Documents Changes to the bylaws were made in the current year.Article VI: Deleted reference to membership charterArticle VII: Increased max number of directors from 7 to 11Changed director terms from 3 to 2 yearsChange the number of Board classes from 3 to 2Changed term end date from Dec 31 to June 30Article VIII: Added Executive Committee as a Board CommitteeUpdated Steering Committee duties to include 1) overseeing research activities of the corporation and (2) overseeing the structure, organization, and activities of the membershipArticle IX: Changed terms so that officers are chosen biannually Form 990, Part VI, Line 11b: Form 990 Review Process PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY THE CFO AND THE EXECUTIVE DIRECTOR AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts The Conflict of Interest policy is monitored by the Ethics Committee and reviewedand signed at the beginning of each fiscal year by all staff and Board members withsignificant decision making authority. It is each signator's obligation to discloseany potential conflict as soon as it is known, or reasonably should be known. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management The Board of Directors shall review any compensation packages of the Executive Director and the Chief Financial Officer, and shall approve such compensation only after determining that the compensation is reasonable. Compensation is determined using information about compensation paid by similarly situated taxable and tax-exempt organizations for similar services. Such information may include up-to-date compensation surveys compiled by independent firms or actual written offers from similarly situated organizations. Approvals of all compensation must be documented in writing with the dates and terms of the agreement, a record of all individuals who voted in consideration, along with all information and the information's source. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available The most recent Form 990s (including financial information), the Bylaws, Articles ofIncorporation, Form 1023 Application for Exemption, and Conflict of Interest Policyare provided to the public upon request Form 990, Part XII, Line 2: Change of Oversight or Selection Process CARRA now has a finance committee that oversees the approval of the audit.