2019-11-15T14:30:50-06:00 2018-12-31 141624930 TEAL BECKER & CHIARAMONTE CPAS PC 7 WASHINGTON SQUARE ALBANY NY 12205 990 2018-01-01 450593226 HANNAH'S HOPE FOR GIANT AXONAL NEUROPATHY INC HANN 5182755359 19 BLUE JAY WAY REXFORD NY 12148 LORI SAMES EXECUTIVE DIRECTOR 5182755359 2019-11-14 1 PASQUALE M SCISCI CPA P00476898 5184566663 2019-11-14 66.109.51.149 2019-11-14 11:22:18 ES P 0419DB40783615FF97CEB94556BD4DACB10CA5A7 731535BAB0334EB94764972787A9A6DB69DE507B 2018 2020-03-31 21:24:44Z LORI SAMES 19 BLUE JAY WAY REXFORD NY 12148 1255631 0 X HANNAHSHOPEFUND.ORG X 2008 NY DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY. 8 5 2 150 0 0 349078 292829 0 0 1029600 185164 0 749273 1378678 1227266 253950 302768 0 0 82104 135220 0 0 0 40508 30269 376562 468257 1002116 759009 1716279 2483866 0 8578 1716279 2475288 DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY. 0 0 393085 302768 GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSION. 393085 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 1 0 0 2 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 8 5 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 NY X LORI SAMES 5182755359 19 BLUE JAY WAY REXFORD NY 12148 CARRIE FAVARO PRESIDENT 0.00 X X 0 0 0 ELIZABETH HAIG SECRETARY 0.00 X X 0 0 0 MATT SAMES DIRECTOR 0.00 X 0 0 0 LAGENIA CLARK DIRECTOR 20.00 X 17500 0 22371 TODD SILAIKA DIRECTOR 0.00 X 0 0 0 ERIKA LIGUORI DIRECTOR 0.00 X 0 0 0 MIKE ELLIS DIRECTOR 0.00 X 0 0 0 STEVE EICHORN TREASURER 0.00 X X 0 0 0 LORI SAMES EXECUTIVE DIRECTOR 40.00 X 58765 0 30494 76265 0 52865 0 0 0 0 0 178513 114316 292829 2115 2115 183049 0 183049 183049 183049 28365 178513 28365 0 PHARMA ASSET/MILESTONE 446110 749273 749273 749273 1227266 749273 0 185164 302768 302768 76265 45824 30441 52865 31719 21146 6090 3654 2436 8500 8500 1665 1665 1284 1284 6609 6609 4705 4705 1597 1597 PATIENT TESTING 2415 2415 RESEARCH SUPPLIES 2000 2000 BANK AND CREDIT CARD CH 648 648 TELEPHONE 491 491 355 355 468257 393085 75172 0 321724 126077 1394555 2357789 6356 6356 0 0 1716279 2483866 8578 0 8578 X 1716279 2475288 1716279 2475288 1716279 2483866 759009 0 X 0 1 X 0 0 X 710579 507884 320422 349078 292829 2180792 710579 507884 320422 349078 292829 2180792 0 0 0 2180792 945 400614 291 702 2115 404667 945 400614 291 702 2115 404667 711524 908498 320713 349780 294944 2585459 0.84350 0.87810 0.15650 0.12190 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 6356 6356 0 0 X 1250696 0 1250696 -23430 -23430 1227266 491687 23430 23430 468257 0 468257 PART X, LINE 2: THE ORGANIZATION FOLLOWS THE GUIDANCE FOR UNCERTAINTY IN INCOME TAXES. AS OF DECEMBER 31, 2018, THE ORGANIZATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR THE INCOME TAX POSITIONS TAKEN AND TO BE TAKEN ON ITS RETURNS BASED ON AN ASSESSMENT OF MANY FACTORS INCLUDING EXPERIENCE AND INTERPRETATIONS OF TAX LAWS APPLIED TO THE FACTS OF EACH MATTER. THE ORGANIZATION HAS CONCLUDED THAT THERE ARE NO SIGNIFICANT UNCERTAIN TAX POSITIONS REQUIRING DISCLOSURE, AND THERE ARE NO MATERIAL AMOUNTS OF UNRECOGNIZED TAX BENEFITS. PART XI, LINE 4B - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES -23,430. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 23,430. HOUSTON GALA 92825 77027 15798 15798 SPLASH-N-DASH 11150 7828 3322 3322 12 102903 93658 9245 9245 206878 178513 28365 28365 28365 0 1 UNIVERSITY OF NORTH CAROLINA 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL NC 27599 566001393 501 (C) (3) 160268 RESEARCH NORTHWESTERN UNIVERSITY 633 CLARK STREET EVANSTON IL 60208 362167817 501 (C) (3) 137500 RESEARCH REGENERATIVE RESEARCH FOUNDATION (NEURACHELL) 1 DISCOVERY DRIVE RENSSELAER NY 12144 203654626 501 (C) (3) 5000 RESEARCH PART I, LINE 2: LORI SAMES RECEIVES PROGRESS REPORTS AND IS ABLE TO MONITOR PROGRESS THROUGH WEBSITES. LORI SAMES FAMILY 81136 WAGES AND HEALTH INSURANCE 0 SCH L, PART IV, BUSINESS TRANSACTIONS INVOLVING INTERESTED PERSONS: (A) NAME OF PERSON: LORI SAMES(D) DESCRIPTION OF TRANSACTION: THE ORGANIZATION PAYS WAGES AND HEALTH INSURANCE FOR EXECUTIVE DIRECTOR, LORI SAMES. FORM 990, PART VI, SECTION A, LINE 2 DIRECTOR MATT SAMES IS MARRIED TO EXECUTIVE DIRECTOR LORI SAMES. BOARD PRESIDENT CARRIE FAVARO IS SISTER TO EXECUTIVE DIRECTOR LORI SAMES. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR BEFORE IT IS ELECTRONICALLY FILED. FORM 990, PART VI, SECTION B, LINE 12C THE BY-LAWS CLEARLY STATE THAT ALL DIRECTORS AND OFFICERS MUST DISCLOSE ANY POTENTIAL CONFLICTS. THE BY-LAWS STATE THAT SUCH CONFLICTS DO NOT PRECLUDE THE ORGANIZATION FROM CONTRACTING WITH RELATED COMPANIES, BUT THAT CONFLICTED BOARD MEMBERS MUST RECUSE THEMSELVES FROM DISCUSSIONS INVOLVING THEIR INTERESTS. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE FROM THE ORGANIZATION UPON REQUEST.