2019-05-15T20:13:00-06:00 2018-12-31 990 2018-01-01 462829156 A Cure For Ellie % Elizabeth McGinn ACUR 2024874235 3520 S Wakefield St Arlington VA 22206 ELIZABETH MCGINN Director 2024874235 2019-05-15 72.66.18.81 21010520191356626447 2019-05-15 O D99C34F1948E12D7F2F271AC929097E5AB96A1FF D99C34F1948E12D7F2F271AC929097E5AB96A1FF 2018 2019-02-21 02:37:17Z X ELIZABETH MCGINN 3520 S Wakefield St Arlington VA 22206 107860 false X www.acureforellie.org X 2013 VA Fund research on mitochondrial disease and LeukodystrophyLBSL and support affected families 4 4 0 0 100598 107860 0 0 0 100598 107860 70000 80000 0 0 0 0 4942 29261 74942 109261 25656 -1401 44532 43192 0 44532 43192 Provide funding to rare disease research & support affected families false false 80000 80000 We provided $80,000 to a research program at the Kennedy Krieger Institute in Baltimore Maryland. The research seeks to create a treatment for the rare disease - leukodystrophy LBSL. This year's research included testing drugs against the disease in different forms and supported a natural history study with sample of known patients We are still small and are only funding the one piece of research previously listed. We are still small and are only funding the one piece of research previously listed. 80000 true false false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 true 0 false false false false false false false false false X 4 4 true false false false false false false true false false false false true true true false false false false false VA X X ELIZABETH MCGINN 2024874235 3520 S Wakefield St Arlington VA 22206 X ELIZABETH MCGINN Director 15.00 X X 0 0 0 MICHAEL MCGINN Director 5.000 X X 0 0 0 ELIZABETH GULUGIAN Director 1.000 X 0 0 0 CHRIS GULUGIAN Director 1.000 X 0 0 0 MEGAN MITCHELL Director 1.000 X 0 0 0 LANCE STERN Director 1.000 X 0 0 0 MORGAN STERN Director 1.000 X 0 0 0 false false false 107860 107860 107860 X 80000 80000 60 60 1933 1933 1210 1210 5322 5322 1097 1097 19639 19639 109261 109261 0 0 44532 43192 44532 43192 0 0 X 44532 43192 44532 43192 44532 43192 -1401 X false false false X 0 18251 44989 58837 100598 107860 330535 18251 44989 58837 100598 107860 330535 330535 18251 44989 58837 100598 107860 330535 1.00000 1.00000 0.00000 X false Kennedy Krieger Institute 707 North Broadway Baltimore MD 21205 521524965 80000 0 Rare Disease Research 0 0 Part I Line 2 The charity has regular and ad hoc meetings with the lead Part I Line 2 researcher to discuss progress and intentions for future Part I Line 2 research Part VI Line 1a None Part VI Line 1a None Part VI Line 2 Two married couples - The McGinns and the Gulugians Part VI Line 8b We have no committees. Part VI Line 11b The form will be emailed to the board once it is complete and Part VI Line 11b available for print. Part VI Line 12c There is little room for a conflict of interest within A Cure for Ellie Part VI Line 12c but all potential conflicts are to be raised to the board for review Part VI Line 19 We do not make our policies public. Part IX Line 24e Event and General Expense Total expenses - $19639.00 Program service expenses - $19639.00 Mgmt and general expenses - $0.00 Fundraising expenses - $0.00