2025-11-12T08:26:48-00:00 2024-12-31 621813735 Foundation Group Inc 2451 Atrium Way Suite 300 Nashville TN 37214 990 2024-01-01 850767017 The MOG Project Inc MOGP 3019285491 19414 Haven White Ct Gaithersburg MD 20879 Julia Lefelar Executive Director 3019285491 2025-11-12 true Shannon M Evans EA P01691628 6153619445 2025-11-12 2024 2025-03-06 01:10:19Z Julia Lefelar 19414 Haven White Court Gaithersburg MD 20879 223528 false X https://mogproject.org X 2020 MD To raise awareness, educate doctors, patients and caregivers, advance research through expert collaboration and fundraising, and provide support and advocacy for our community in hopes of finding a cure. 5 5 0 40 0 237314 217401 0 4257 5586 448 273 242019 223260 50017 70000 0 0 0 0 173922 153436 223939 223436 18080 -176 162470 196262 53625 162470 142637 X To raise awareness, educate doctors, patients and caregivers, advance research through expert collaboration and fundraising, and provide support and advocacy for our community in hopes of finding a cure. false false 116461 40000 Educational Events Programs We have an International MOGAD Patient Summit and a US MOGAD Patient Summit Program that provides education for MOGAD Patients worldwide and in the US. Patients can attend in person or see the event livestreamed. They can also participate in the event by asking questions to the presenters. Presenters include top experts in the disease worldwide. These programs are currently based in the US and streamed live globally. We also provide a website and YouTube Channel filled with written materials, infographics and videos aimed at educating patients, caregivers and medical professionals. In addition, we hold a Blog space for articles written to educate patients on research articles and patient experience so that they can know what others have gone through, informing them better on what to expect with disease management. We also provide a great deal of printed materials for patients that we distribute at events and send to clinics treating MOGAD all over the world. 26236 25000 Research Programs We work to affect research in MOGAD through patient participation in surveys in collaboration with reputable researchers/industry partners to help guide research to better understand the patient experience given that this is a newly discovered disease that requires better understanding of what symptoms patients experience and how their disease manifests over time. We also use these surveys to understand what the patient population needs in various world areas, including underserved communities. We also provide, when available, funds we raised as grants for adjudicated research as part of our Research for Rare program, which covers two types of grants one that funds research in impactful areas that will provide seed data for larger grants available at institutions like NIH, and another that funds infrastucture, such as registries for data collection and management. 76423 5000 Support We provide support groups through social media channels as well as support for small groups via Zoom. We use these groups to connect patients to others going through the same thing they are since they will have difficulty forming local groups to do this as MOGAD is a rare disease. We also provide support events where medical experts gather to do a QA for patients regularly throughout the year, giving patients an opportunity to get support backed by expert medical advice in a general manner. In addition, we have a Childrens Ambassador Program for kids led by parents to provide a support network for kids under 18. We also have a Peer-to-Peer program called MOGmentors that connects new patients with volunteers who have gone through a good amount of time living with the disease and can help others unfamiliar. 219120 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 1 0 true 0 false false false false false false false false false false false false X 5 5 true false false false false false false true true false false true true true true false false false false false MD X X Foundation Group Inc 6153619445 2451 Atrium Way Suite 300 Nashville TN 37214 X Julia Lefelar Executive Director 030.00 X X 0 0 0 Amy Ednie President 002.00 X X 0 0 0 Andrea Mitchell Director of Blind Resources 005.00 X 0 0 0 Jim Broutman Chief Media Officer 030.00 X 0 0 0 Steven Salky Legal Council 001.00 X 0 0 0 false false false 217401 217401 5586 5586 450 268 182 Credit Card Cash Back Rewards 900099 91 91 91 223260 5677 X 70000 70000 0 0 0 0 0 0 0 0 0 0 0 341 341 0 0 45500 45500 721 403 318 6195 3840 2355 25649 25509 140 0 0 66794 66794 0 6733 5571 1162 0 0 0 1360 1360 Volunteer Appreciation 143 143 0 223436 219120 4316 0 81889 13066 80581 182367 829 162470 196262 53625 0 53625 X 162470 35412 107225 162470 142637 162470 196262 X -176 -19657 X false false false X 72709 83306 237314 217401 610730 72709 83306 237314 217401 610730 610730 4257 5586 9843 1094 848 1094 541 3577 624150 50000 X 0.00000 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Massachusetts General Hospital 275 Cambridge St Boston MA 02114 041564655 501c3 40000 Medical Research Siegel Rare Neuroimmune Assoc 1787 Sutter Pkwy Powell OH 43065 911780467 501c3 5000 Medical Research Brigham & Women's Hospital 75 Francis Street Boston MA 02115 042312909 501c3 25000 Educational Award 3 Part I Line 2 The board of directors reviews proposed recipients to determine needs and proposed uses of assistance. The recipients are then routinely monitored to ensure the assistance is being used accordingly to accomplish the proposed purpose. Form 990, Part III, Line 4d Program Service Expenses 0, Grants and allocations 0, Revenue 0 Policy Programs Our policy programs are aimed at affecting policy and bringing awareness to MOGAD worldwide. Examples of this include our work to advocate for increased funding at NINDS/NIH and the creation of a ICD-10 code with the CDC and and ICD-11 code with the WHO. Other efforts include work to encourage lawmakers to recognize MOGAD as a disease so that patients with the invisible disability caused by the disease who cannot work can get their disability approved though federal/state social security mechanisms. Form 990, Part VI, Section A, Line 2 Julia Lefelar, Executive Director is the sister of Amy Ednie, President. Form 990, Part VI, Section B, Line 12c The organization reviews the 990 form at a board meeting prior to submitting to the IRS. Form 990, Part VI, Section B, Line 12c The organization enforced compliance with its conflict of interest policy by reviewing it periodically at board meetings. Form 990, Part VI, Section C, Line 19 The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. Form 990, Part XI, Line 9 The organizations previously reported ending balance was overstated by 19,657. Form 990, Part IX, Line 11g Other professional fees includes program consulting.