2019-07-18T12:28:44-05:00 2018-12-31 BKD LLP 655 Third Avenue 1200 New York NY 10017 990 2018-01-01 362883000 American Liver Foundation % DAVID TICKER AMER 2126681000 39 Broadway Suite 2700 New York NY 10006 DAVID TICKER CFO 2126681000 2019-05-15 true Aaron Shapiro P01333816 2128674000 167.68.126.162 26511920192035000001 2019-07-18 P AA081CA9EBCB26667D05DC7D0EA836463BDCC5C6 AA081CA9EBCB26667D05DC7D0EA836463BDCC5C6 2018 2019-02-21 02:37:17Z DAVID TICKER 39 BROADWAY SUITE 2700 NEW YORK NY 10006 10829231 false X WWW.LIVERFOUNDATION.ORG X 1976 NY OUR MISSION IS TO FACILITATE, ADVOCATE AND PROMOTE EDUCATION, SUPPORT SERVICES AND RESEARCH FOR THE PREVENTION, TREATMENT, AND CURE OF LIVER DISEASE. 25 24 79 2000 0 41140 6597397 9257672 0 0 362665 115387 2449637 -174702 9409699 9198357 350000 475000 0 0 5261420 5484590 0 0 959680 3309839 3336259 8921259 9295849 488440 -97492 5320791 5260328 1674753 1933110 3646038 3327218 X OUR MISSION IS TO FACILITATE, ADVOCATE AND PROMOTE EDUCATION, SUPPORT SERVICES AND RESEARCH FOR THE PREVENTION, TREATMENT AND CURE OF LIVER DISEASE. false false 1859566 PUBLIC AND PATIENT EDUCATION Information specialists are available to answer questions about liver disease and liver wellness, including risk factors, prevention, symptoms, early detection, diagnosis and treatment options. American Liver Foundation (ALF) can direct callers to local services in their area, help them learn about clinical trials and help them find a physician. Interpretation services are available for non-English speakers. We also host a vibrant online community across numerous social media platforms and one website. The Liver Lowdown e-newsletter is disseminated to provide information about the prevention, treatment and cure of liver about the Foundation's educational and signature programs; an in-depth focus on specific types of liver disease, and profiles of liver patientscaregivers' personal experiences. In 2018, over 100,000 people received each of our issues. In CY 2018, our HelpLine answered over 10,000 requests for information via phone, e-chat, email and "snail mail". ALF launched a new and improved public website, www.liverfoundation.org at the end of 2017. This website helps us better deliver quality programs and events to our constituents including multimedia webinars, videos and broadcasts. We've seen a rise in use with approximately 3.5 million-page views in 2018 from 1.9 million unique visitors. At the end of this year, we had 153, 848 Facebook fans and 6,069 Twitter followers. Our support community on the Inspire platform had over 19,000 members. We held a Facebook Live Event on End-Stage Liver Disease that reached over 6,800 people. In CY 2018, we continued our series of patient education webinars. Webinars sponsored by our Divisions include features on elimination of hepatitis c, alcohol related hepatitis, auto-immune hepatitis, pediatric liver disease, nutrition and the liver, prevention of fatty liver disease, mental health, and liver transplantation. On the National Level, we hosted webinars on NAFLD/NASH, pediatric NASH, and Liver Cancer. These and other videos on our You Tube channel were viewed more than 53,000 times. ALF expanded its educational resource library by creating updated and new resources on viral hepatitis, veteran's hepatitis c testing, liver transplant, and nonalcoholic fatty liver disease. Many of these resources are available in English, Chinese, Korean, Vietnamese, Russian and Spanish). All brochures are available for download from our website at https://liverfoundation.org/for-patients/resources/brochures/ ALF's National Patient Advisory Committee, made up of patient advocates from across the country with hepatitis C, NAFLD, primary biliary cholangitis and alcohol-related liver disease, was expanded to include patients with Hepatic Encephalopathy. Educational videos were created featuring these patients are available at https://www.youtube.com/playlist?list=PLrhF_O3gHrY5d7ttwyjik9dTTLny qNqoA ALF's 5th Annual Liver Cancer Awareness Campaign reached over 12 million people in targeted advertising in San Francisco, Los Angeles, New York, Dallas and Houston. The campaign had nationwide reach via social media during October (Liver Cancer Awareness Month) and on our website, which had nearly 38,000 visitors on ALF's Liver Cancer webpage, a 660% increase from the previous month. In 2018, the American Liver Foundation met with representatives from the Food and Drug Administration (FDA) to share experiences, perspectives, needs and priorities of patients living with alcohol-related liver disease. Our patient education and support program for Primary Biliary Cholangitis (PBC) continued with a new PBC Blog located on our website. Over 6,000 unique individuals read the first blog piece, entitled "What we wish people knew about PBC." We created 4 PBC friendly cooking videos with two physicians, which has received over 14,000 views on ALF's YouTube Channel. The videos can be viewed here: https://www.youtube.com/playlist?list=PLrhF_O3gHrY5IhVoQ9CUFx1RU0VW gIaao Our Connect Texas Testing Initiative provided hepatitis C testing and linkage to care to high-risk populations in 8 counties in Texas. Nearly 3,400 people were tested in 2018, with all that tested positive linked to services to assist them in obtaining treatment. The Great Lakes Division continued their testing initiative in under-served populations in Chicago. 1,435 individuals were tested and linked to care. New in 2018: ALF launched the NASH Facebook Support Group, a support community for those affected by Nonalcoholic Steatohepatitis (NASH). This group is open to anyone connected to NASH around the country and serves as a space to feel less alone and seek answers to questions they may have about their journey. Average discussion topics include: what to ask your doctor, NASH progression, understanding transplant procedures, various symptoms these patients are experiencing, diet/nutrition, and dealing with stress and stigma. The group consists of 522 members. Our Ask the Experts educational program offered participants across the United States access to hear from medical professionals on a variety of topics, including viral hepatitis, non-alcoholic fatty liver disease, alcohol-related liver disease, liver cancer, nutrition, managing your medications and liver wellness. More than 1,200 people participated in these programs. 1725794 PATIENT SUPPORT ALF's Viral Hepatitis community education program provides comprehensive and accurate information about hepatitis (A, B, and C), including risk factors, transmission and prevention, and an overview of treatment options. In CY 2018, ALF reached 5,768 people through this important program. 1844091 COMMUNITY SERVICES ALF offers several Community Education Programs on liver health and liver disease that are interactive and age appropriate. These popular programs include: Love Your Liver, Liver Wellness - What Everybody Needs to Know, Teens to Twenties - Liver Wellness Guide, Non-Alcoholic Fatty Liver Disease, and Alcohol-Related Liver Disease. In addition, ALF participates in community health fairs and coalition meetings to raise awareness of liver disease. In CY 2018, Community Education Programs reached a combined total of 11,278 people nationwide, and health fairs/outreach reached 4,701 people. ALF participates in federal, state and local advocacy efforts to address the needs of people affected by liver disease and that focus on larger healthcare issues to improve liver health and increase research funding. In CY 2018, ALF has been included in community sign-on letters advocating for patients with chronic diseases on issues including access to care and research; participated in coalitions with various other patient advocacy groups to urge increased funding for the NIH, CDC, VA, and DOD; distributed "calls to action" for our community to contact their elected officials regarding a variety of issues relating to liver disease through our Advocacy Platform, which currently includes 640 constituents; hosted and education and advocacy day in Washington, DC that included 57 patient advocates representing multiple disease states; and brought patient advocates to Liver Hill Day with the American Association for the Study of Liver Disease and the Digestive Diseases National Coalition. 1962335 475000 RESEARCH AND PROFESSIONAL EDUCATION 1962335 475000 7391786 true true false false false false false false true true true false false false true false true false false false false false false false true false false true true true false false false false false false false false false false false false false false false false false true 184 0 79 true true true false false false false true true false false false true false false false X 25 24 false false false false false false false true true false true true true true true true true true true true false AL AK AZ AR AP CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X DAVID TICKER 2126681000 39 BROADWAY SUITE 2700 NEW YORK NY 10006 X THOMAS NEALON III PRESIDENT & CEO 35.0 0.0 X X 235607 0 37251 NICHOLAS J DEROMA CHAIRMAN 0.3 0.0 X X 0 0 0 DANIEL E WEIL TREASURER 0.3 0.0 X X 0 0 0 CAROLINE BERLINGER BOARD MEMBER 0.3 0.0 X 0 0 0 MIKE BRAUNSTEIN BOARD MEMBER 0.3 0.0 X 0 0 0 ROBERT BRICKMAN BOARD MEMBER 0.3 0.0 X 0 0 0 EUGENE CAUTILLO BOARD MEMBER 0.3 0.0 X 0 0 0 EDDIE CHEUNG MD FACG BOARD MEMBER 0.3 0.0 X 0 0 0 BRIAN CHRISTIE BOARD MEMBER 0.3 0.0 X 0 0 0 EDGAR DELGADO BOARD MEMBER 0.3 0.0 X 0 0 0 ALLAN J DOERR BOARD MEMBER 0.3 0.0 X 0 0 0 T CLARK GAMBLIN MD MS BOARD MEMBER 0.3 0.0 X 0 0 0 MICHAEL KERR BOARD MEMBER 0.3 0.0 X 0 0 0 ELIZABETH LEESMANN BOARD MEMBER 0.3 0.0 X 0 0 0 ROBERT LEVENTHAL MD FACP AGAF BOARD MEMBER 0.3 0.0 X 0 0 0 ROHIT LOOMBA MD BOARD MEMBER 0.3 0.0 X 0 0 0 ROBERT MEROWITZ BOARD MEMBER 0.3 0.0 X 0 0 0 TOM NEALON BOARD MEMBER 0.3 0.0 X 0 0 0 NICOLE SMITH PHD BOARD MEMBER 0.3 0.0 X 0 0 0 KAREN HOFFMAN SNYDER BOARD MEMBER 0.3 0.0 X 0 0 0 SUSAN SHERMAN STONE CPA MST BOARD MEMBER 0.3 0.0 X 0 0 0 EMMANUEL THOMAS MD PHD BOARD MEMBER 0.3 0.0 X 0 0 0 TRACI TIGUE BOARD MEMBER 0.3 0.0 X 0 0 0 HILLEL TOBIAS MD PHD BOARD MEMBER 0.3 0.0 X 0 0 0 ROCKY YAPP MD MPH AGAF BOARD MEMBER 0.3 0.0 X 0 0 0 DAVID TICKER EVP & CFO 35.0 0.0 X 181953 0 27793 LYNN SEIM EVP & COO 35.0 0.0 X 188562 0 6784 JOANN THOMPSON NATIONAL SR. DIR OF DIVISIONS 35.0 0.0 X 155000 0 1743 ERIKA GOODMAN NATIONAL SR DIR OF DEVELOPMENT 35.0 0.0 X 142788 0 18561 VERONICA PEREZ EXECUTIVE DIRECTOR - GNY DIV 35.0 0.0 X 127724 0 25350 KATHLEEN FLYNN EXECUTIVE DIRECTOR - CT DIV 35.0 0.0 X 128299 0 15220 GAIL FAVREAU EXECUTIVE DIRECTOR - NE DIV 35.0 0.0 X 126694 0 17879 FARRAH DOUGLAS EXECUTIVE DIRECTOR - GLA DIV 35.0 0.0 X 126807 0 13008 1413434 0 163589 13 false true false JPA HEALTH COMMUNICATIONS 1101 CONNECTICUT AVE NW WASHINGTON DC 20036 PUBLIC RELATIONS 129509 AMPLOTECH LLC PO BOX 16422 SAN JUAN PR 00908 MARKETING 144860 2 17299 4939897 4300476 14588 9257672 0 58839 58839 0 0 0 0 0 789715 733167 56548 56548 56548 697352 4939897 897707 -200355 -200355 0 0 0 0 0 0 OTHER 25653 25653 25653 9198357 -59315 425000 425000 50000 50000 0 0 834693 670691 90446 73556 0 3921008 3129446 423196 368366 22588 18014 2437 2137 349766 279165 37751 32850 356535 284871 38506 33158 0 257 257 0 0 0 15276 15276 790989 653696 44909 92384 161630 147632 859 13139 506587 238492 154329 113766 200301 160083 21610 18608 0 666904 532337 71955 62612 396093 336805 21157 38131 0 0 2903 2903 0 41625 33259 4495 3871 31142 24883 3363 2896 HOTEL AND CATERING 401486 326313 3257 71916 MISCELLANEOUS 121066 81099 7677 32290 9295849 7391786 944383 959680 1458383 1570520 68499 80389 934485 1117480 0 0 0 0 0 0 0 0 0 0 288229 219161 1311470 1232914 116422 78556 2454773 2194222 0 0 0 0 0 0 0 0 5320791 5260328 528691 668614 175000 237500 0 0 0 0 801234 793980 0 0 0 99509 0 0 169828 133507 1674753 1933110 X -299628 -474617 2953631 2809800 992035 992035 3646038 3327218 5320791 5260328 -97492 -221328 X false true X true false X 7402572 1318021 7306322 6597397 9257672 31881984 0 0 7402572 1318021 7306322 6597397 9257672 31881984 5094623 26787361 60575 28795 52306 55931 58839 256446 0 253316 711 15001 2449637 25653 2744318 34882748 0.76793 0.77560 X 0.00000 part Ii AMERICAN LIVER FOUNDATION CHANGED THEIR YEAR-END IN 2015 FROM SEPTEMBER 30 TO DECEMBER 31. THE DATA IN 2015 REPRESENTS THE 3 MONTHS ENDED DECEMBER 31, 2015. false true X 1215883 -75352 27943 1112588 1103423 174960 62500 1215883 1095696 57727 50000 1103423 1073159 22537 1095696 1142761 5398 75000 1073159 0.89160 0.10840 false false 97448 96318 1130 464782 449473 15309 749240 687123 62117 78556 0 DEFERRED RENT 133507 133507 9229753 -221328 268000 46672 9183081 15276 15276 9198357 9548573 268000 268000 9280573 15276 15276 9295849 PART IV, LINE 2B FUNDS HELD ON BEHALF OF OTHERS - ALF ACTS AS AN ADMINISTRATOR FOR FUNDS COLLECTED ON BEHALF OF LIVER TRANSPLANT PATIENTS. ALF DISBURSES FUNDS TO COVER THE COST OF PROPERLY DOCUMENTED POST-SURGERY EXPENSES. part v, line 4 INTENDED USE OF ENDOWMENT FUNDS HAS BEEN SPECIFIED BY THE DONOR. ALL FUNDS ON HAND ARE USED TO GENERATE INTEREST/DIVIDEND INCOME AND CAPITAL GAINS TO SUPPORT VARIOUS RESEARCH INITIATIVES. CHALLENGE EVENT 809411 809411 37702 21797 GALA 802868 583018 219850 8319 77715 761 76 4024970 3547468 477502 133689 497090 27960 92674 5637249 4939897 697352 142008 612507 27960 115232 897707 -200355 true COLUMBIA UNIVERSITY PO BOX 29789 NEW YORK NY 10087 135598093 501(C)(3) 75000 RESEARCH GRANT YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 06508 060646973 501(C)(3) 100000 RESEARCH GRANT THE REGENTS OF THE UNIVERSITY OF CALIFORNIA PO BOX 989062 SACRAMENTO CA 95798 946036494 501(C)(3) 100000 RESEARCH GRANT The Regents of the University of Michigan 5028 Wolverine Tower 3003 South Sta Ann Arbor MI 48109 386006309 501(c)(3) 75000 Research Grant Trustees of the University of Pennsylvania Office of Research Service 3451 Wa RM P-221 Philadelphia PA 19104 231352685 501(c)(3) 75000 Research Grant 5 post doctorate award 4 50000 SCHEDULE I, PART I, LINE 2 ANNUAL REPORTS DETAILING RESEARCH FINDINGS ARE SUBMITTED IN ORDER TO MAINTAIN FUNDING. X X false false false false false false false false false THOMAS NEALON III PRESIDENT & CEO 235607 0 0 0 0 0 2211 0 35040 0 272858 0 DAVID TICKER EVP & CFO 181953 0 0 0 0 0 1910 0 25883 0 209746 0 LYNN SEIM EVP & COO 188562 0 0 0 0 0 1910 0 4874 0 195346 0 ERIKA GOODMAN NATIONAL SR DIR OF DEVELOPMENT 142788 0 0 0 0 0 1494 0 17067 0 161349 0 VERONICA PEREZ EXECUTIVE DIRECTOR - GNY DIV 127724 0 0 0 0 0 0 0 25350 0 153074 0 JOANN THOMPSON NATIONAL SR. DIR OF DIVISIONS 155000 0 0 0 0 0 1513 0 230 0 156743 0 FORM 990, PART VI, SECTION B, LINE 11B A DRAFT OF THE FORM 990 IS SENT TO THE FINANCE COMMITTEE FOR REVIEW AND COMMENTS IN THE MONTHLY MEETING PRIOR TO FILING. IN ADDITION, A DRAFT OF THE FORM 990 IS ALSO SENT TO EACH BOARD MEMBER FOR DISCUSSION. AFTER QUESTIONS AND COMMENTS ARE ADDRESSED AND THE FORM 990 IS APPROVED, IT IS READY FOR FILING. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, OUR CONFLICT OF INTEREST FORM IS COMPLETED BY OFFICERS AND DIRECTORS. THE FORM MUST INDICATE ANY POSSIBLE CONFLICTS OF INTEREST AND BE SIGNED BY ALL OFFICERS AND DIRECTORS. WHEN ANY SUCH CONFLICT OF INTEREST IS RELEVANT TO A MATTER REQUIRING ACTION BY THE BOARD, THE INTERESTED PERSON SHALL CALL IT TO THE ATTENTION OF THE BOARD AND SUCH PERSON SHALL NOT VOTE ON THE MATTER. MOREOVER, THE PERSON HAVING A CONFLICT SHALL RETIRE FROM THE ROOM IN WHICH THE BOARD IS MEETING AND SHALL NOT PARTICIPATE IN THE FINAL DELIBERATION OR DECISION REGARDING THE MATTER UNDER CONSIDERATION. HOWEVER, THAT PERSON SHALL PROVIDE THE BOARD WITH ANY AND ALL RELEVANT INFORMATION. THE MINUTES OF THE MEETING OF THE BOARD, SHALL REFLECT THAT THE CONFLICT OF INTEREST WAS DISCLOSED AND THAT THE INTERESTED PERSON WAS NOT PRESENT DURING THE FINAL DISCUSSION OR VOTE AND DID NOT VOTE. WHEN THERE IS A DOUBT AS TO WHETHER A CONFLICT OF INTEREST EXISTS, THE MATTER SHALL BE RESOLVED BY A VOTE OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 15A CEO compensation is determined by the National Board of Director's Executive Committee and approved by the Board members. In determining salary levels, the Executive Committee reviews an annual salary survey of national voluntary health organizations prepared for the National Health Council and reviews prior year performance. Current market conditions and the financial condition of the American Liver Foundation are also considered in setting compensation. This review was last conducted in 2018. FORM 990, PART VI, SECTION B, LINE 15B The salary of officers and key employees are determined by the CEO, COO and CFO based on performance, market conditions and the financial condition of the American Liver Foundation. FORM 990, PART VI, SECTION C, LINE 19 VIA WWW.LIVERFOUNDATION.ORG