2019-05-14T08:26:03-04:00 2018-12-31 461517562 Simmons and Jamieson CPAs 6525 The Corners Parkway 116 Peachtree Corners GA 30092 990 2018-01-01 760700153 American Partnership For Eosinophilic Disorders AMER PO Box 29545 Atlanta GA 30359 Wendy M Book MD President 7134937749 2019-05-10 true James B Murphy P00847588 7704482525 2019-05-14 75.147.197.177 2019-05-14 08:27:46 5851642019134olv3gkk 2019-05-14 P 67F4DFC5E12C16B7947EA98B0E7705E874CAA53C 67F4DFC5E12C16B7947EA98B0E7705E874CAA53C 2018 2019-02-21 02:37:17Z APFED 512216 false X APFED.ORG X 2001 TX See Schedule O 11 11 3 0 0 303239 223590 105700 187201 299 155 134036 77256 543274 488202 219500 254000 0 130188 129777 0 15883 230540 254800 580228 638577 -36954 -150375 421621 283082 5108 16944 416513 266138 See Schedule O 320442 Education, awareness, advocacy, and support: APFED hosted our annual patient education and awareness conference, EOS Connection. We worked with the FDA and stakeholders to organize and host a Hypereosinophilic Syndrome patient focused drug development conference. APFED worked with the CDC to propose and justify new ICD-10 codes for rare eosinophilic diseases. APFED continues to advocate for medical foods coverage. We continue to develop and expand educational materials and the e-learning center. We developed, published, and distributed HES and EoE toolkits, and a new top-6 free cookbook. Started an initiative to educate and assist teens with transition and transfer of care to the adult healthcare setting. We continued distribution of education materials to healthcare providers on eosinophilic disorders and developed materials for grade school education. APFED actively participates in National Eosinophilic Awareness Week. 268018 254000 Research:APFED funded two multi-year research grants through APFEDs HOPE grant program. APFED again collaborated with the AAAAI to award 2-year competitive research grants. We partnered with AAAAI and NASPGHAN to award abstract grants presented at the annual scientific meetings. APFED continues to be an active participant in the NIH Rare Clinical Disease Research Network and funded the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR), presenting the patient perspective at an annual meeting, assisting with the patient contact registry, and educational materials. APFED co-authored multiple scientific publications in collaboration with CEGIR and NIH. Co-authored publication with NIH task force (RETREAD). 588460 true true false false false false false false false false false false false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 0 0 3 true false false false false false false false false X 11 11 true false false false true false false true true false false true true true false true true false false false AK AL AR CA CO CT FL GA HI KS KY MA MD ME MI MN MO MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV X Michael Piansky MD 7134937749 PO Box 29545 Atlanta GA 30359 X Wendy M Book President 10.00 0.00 X X 0 0 0 Elizabeth McCarty Vice President 5.00 0.00 X X 0 0 0 Michael Piansky Treasurer 15.00 0.00 X X 0 0 0 Pradyumna Tummala Chairman 5.00 0.00 X X 0 0 0 Tom Fanning Web Coordinator 15.00 0.00 X 0 0 0 Gerald J Gleich Medical advisor 5.00 0.00 X 0 0 0 Kathleen Sable Director 15.00 0.00 X 0 0 0 Dawn McCoy Director 15.00 0.00 X 0 0 0 Giles M Schanen Secretary 10.00 0.00 X X 0 0 0 Donalyn Denise Mack Director 15.00 0.00 X 0 0 0 Juliet Ross Director 10.00 0.00 X 0 0 0 Mary Jo Strobel Executive Director 50.00 0.00 X 0 0 0 0 0 0 0 false false false 3620 219970 223590 Conferences 423000 187201 187201 187201 155 155 101270 24014 77256 77256 488202 187356 0 77256 254000 254000 120080 106693 7430 5957 9697 8616 600 481 10509 10509 708 708 4033 2362 1671 8047 8047 4514 4063 451 2900 2900 State registration 6615 6615 Advocacy 1300 1300 Newletter 2866 2866 Education programs 210220 210220 3088 702 2386 638577 588460 34234 15883 417107 283082 4514 421621 283082 16944 5108 5108 16944 X 416513 106638 159500 416513 266138 421621 283082 -150375 0 X false true X true X 422923 229282 430110 541044 407444 2030803 32897 49133 74445 105700 101270 363445 5367 2785 1827 2112 3192 15283 461187 281200 506382 648856 511906 2409531 2409531 601 500 369 299 155 1924 601 500 369 299 155 1924 461788 281700 506751 649155 512061 2411455 0.99920 0.99910 0.00000 0.00000 X true false false false false false false false false false 512216 512216 -24014 -24014 488202 662591 662591 -24014 -24014 638577 Other revenues included on Form 990 (Part XI, line 4b) Fund raising expenses -24,014 Other expenses not included on Form 990 (Part XII, line 2d) Fund raising expenses -24,014 EoE Concert 5000 5000 Hope-Horizon 42606 42606 10 53664 53664 24014 101270 101270 24014 24014 77256 false AAAAI 555 East Wells St Ste 1100 Milwaukee WI 53202 40000 Lurie Childrens Hospital 225 E Chicago Ave Chicago IL 60611 50000 Research Cincinnati Childrens Hospital Med MLC 7028 Cincinnati OH 452293039 37500 Research Mass General Hospital - Research PO Box 414876 Boston MA 022414876 50000 Research NIAID 5601 Fishers Land Suite 6D Rockville MD 20852 25000 University of Utah 201 S Presidents Circle RM 406 Salt Lake City UT 84112 50000 Research International Eosinophil Society 555 East Wells St Suite 1100 Milwaukee WI 53202 5000 Research NASPGHAN 714 N Bethlehem Pike Ambler PA 19002 1500 Research Officer directors etc family relationship Part VI line 2 Wendy M Book, MD - PresidentMichael Piansky, MD - TreasurerRelated by marriage Members or stockholder classes and rights Part VI line 6 The organization has members and memberships that are open to anyone who wishes to be involved in the cause. Form 990 governing body review Part VI line 11 The organizations tax return preparer provided a preliminary copy of the return to board members for review. Any necessary changes are made and the final return is presented to the president for signature and filing. Governing documents etc available to public Part VI line 19 The organization makes its governing documents, conflicts of interest statement and financial statements available to the pubic upon written request. General explanation attachment Form 990, Part III, Item 1 Organizations MissionAPFED is dedicated to patients and their families coping with eosinophilic disorders. It strives to expand education, create awareness and support research regarding these disorders while promoting advocacy among its members. The mission is accomplished by various means conferences, newsletters, pamphlets, research grants and fundraising. Form 990, Part I, Item 1 Organizations Mission or Most Significant ActivitiesAPFED is dedicated to patients and their families coping with eosinophilic disorders. It strives to expand education, create awareness and support research regarding these disorders while promoting advocacy among its members. The mission is accomplished by various means conferences, newsletters, pamphlets, research grants and fundraising.