2019-09-05T14:12:21-05:00 2018-12-31 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2018-01-01 521841165 ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE ACMG 3017182014 7101 WISCONSIN AVENUE NO 1101 BETHESDA MD 20814 MICHAEL S WATSON EXECUTIVE DIRECTOR 3017182014 2019-09-05 1 RICHARD J LOCASTRO CPA P00288314 3019519090 75.103.231.202 2019-09-05 15:12:16 ED P 4FA38BE9C690C82C721A5060F87FC7588CB81F81 C6B98AA4431DF555754CEAEBF131E6352A0B42C7 2018 2019-02-21 02:37:17Z MICHAEL S WATSON 7101 WISCONSIN AVENUE NO 1101 BETHESDA MD 20814 646255 0 X WWW.ACMGFOUNDATION.ORG X 1992 IL SEE PART III, LINE 1. 14 14 38 14 0 0 678684 582589 0 0 20275 28638 31526 35028 730485 646255 797559 609837 0 0 129485 202221 0 0 59194 110431 137774 1037475 949832 -306990 -303577 3002758 2538965 883612 758072 2119146 1780893 X SUPPORT THE AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS' (ACMG) EDUCATIONAL MISSION TO "TRANSLATE GENES INTO HEALTH" BY RAISING FUNDS TO ATTRACT THE NEXT GENERATION OF MEDICAL GENETICISTS AND GENETIC COUNSELORS, TO SPONSOR IMPORTANT RESEARCH AND TO PROMOTE INFORMATION ABOUT MEDICAL GENETICS. 0 0 689419 609837 2018 SUMMER GENETICS SCHOLARS PROGRAM: ACCORDING TO THE ROYAL COLLEGE OF PHYSICIANS, THERE SHOULD BE ONE FULLTIME EQUIVALENT CLINICAL GENETICIST PER 250,000 CITIZENS. FOLLOWING THE MOST RECENT CERTIFICATION CYCLE IN THE UNITED STATES, THERE IS CURRENTLY ONLY ON PER 608,000 AMERICANS, LESS THAN HALF OF THE MINIMUM NEEDED TO ADEQUATELY SERVE THE COUNTRY.TO ADDRESS THIS CRITICAL ISSUE, THE ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE (ACMG FOUNDATION) AND ACMG ARE JOINING FORCES TO INTRODUCE SECOND-YEAR MEDICAL STUDENTS TO THE MEDICAL GENETICS FIELD THROUGH AN INTENSIVE SUMMER PROGRAM. BY PAIRING STUDENTS WITH PRACTICING GENETICISTS, THIS PROGRAM WILL FOSTER PROFESSIONAL MENTORSHIP AND HIGHLIGHT THE MANY DIVERSE EMPLOYMENT OPPORTUNITIES WITHIN THE FIELD OF MEDICAL GENETICS.ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- GENZYME CORPORATION FELLOWSHIP- SHIRE CORPORATION FELLOWSHIP 689419 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 1 20 0 1 38 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 MD X MICHAEL S WATSON 3017182014 7101 WISCONSIN AVENUE SUITE 1101 BETHESDA MD 20814 BRUCE R KORF PRESIDENT 3.00 3.00 X X 0 0 0 RODNEY HOWELL PAST PRESIDENT 2.00 0.00 X X 0 0 0 DAVID A WHITEMAN VICE PRESIDENT 2.00 0.00 X X 0 0 0 BRIAN E WARD SECRETARY/TREASURER 1.00 0.00 X X 0 0 0 ART L BEAUDET DIRECTOR 1.00 0.00 X 0 0 0 THOMAS ERICKSON DIRECTOR 1.00 0.00 X 0 0 0 LAUREL ESTABROOK DIRECTOR 1.00 0.00 X 0 0 0 MADHIRI HEDGE DIRECTOR 1.00 0.00 X 0 0 0 EVAN JONES DIRECTOR 1.00 0.00 X 0 0 0 PHILIP FEBBO DIRECTOR 1.00 0.00 X 0 0 0 MATTHEW RABINOWTIZ DIRECTOR 1.00 0.00 X 0 0 0 GERALD FELDMAN EX-OFFICIO REPRESENTATIVE 1.00 3.00 X 0 0 0 ANTHONY GREGG EX-OFFICIO REPRESENTATIVE 1.00 3.00 X 0 0 0 LOUANNE HUDGINS EX-OFFICIO REPRESENTATIVE 1.00 5.00 X 0 0 0 MICHAEL S WATSON EXECUTIVE DIRECTOR 8.00 29.50 X 385400 0 54905 MELANIE WELLS DIRECTOR OF ADMINISTRATION 8.00 29.50 X 139884 0 25408 525284 0 80313 2 0 1 0 0 582589 582589 28638 28638 ACMG ADMIN. FEES 900099 34500 34500 MISCELLANEOUS 900099 528 528 35028 646255 0 0 63666 539277 539277 70560 70560 48448 19596 18724 10128 122294 24636 92641 5017 7796 1336 6287 173 13122 3438 8586 1098 10561 2509 7195 857 2591 2591 18850 18850 2881 81 2800 2893 723 1050 1120 5212 42 4704 466 11568 2203 5120 4245 13977 13977 43400 8922 2065 32413 12000 12000 2968 2968 1585 1585 PAYROLL FEES 9710 9710 H.R. EXPENSES 3621 907 2408 306 DUES/SUBSCRIPTIONS 2933 2189 424 320 CREDIT CARD FEES 1329 1078 251 2256 1000 1256 949832 689419 201219 59194 1633516 1682344 1083897 550877 1591 5533 36221 3820 3140 32401 280614 267810 3002758 2538965 398457 514307 485155 243765 883612 758072 X -587889 -497844 2706035 2277737 1000 1000 2119146 1780893 3002758 2538965 -303577 -34676 0 X 0 1 X 1 0 X X 1 THE AMERICAN COLLEGE OF MEDICAL GENETICS 521774227 10 1 21777 0 1 21777 0 1 1 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 PART IV, SECTION A, LINE 2: ACMG FOUNDATION'S SUPPORTED ORGANIZATION, AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS, IS A 501(C)(6). PART I, LINE 11G(III): ACMG IS A 501(C)(6). FOR PURPOSES OF THE SUPPORTING ORGANIZATION CALCULATIONS, IT IS TESTED PURSUANT TO THE 509(A)(2) PUBLIC SUPPORT TEST. PART IV, SECTION A, LINE 3B: ANNUALLY, ACMG FOUNDATION COMPLETES THE PUBLIC SUPPORT TEST FOR ACMG UNDER SECTION 509(A)(2) TO ENSURE IT SATISFIES THE PUBLIC SUPPORT REQUIREMENTS. PART IV, SECTION A, LINE 3C: ACMG FOUNDATION SUPPORT TO ACMG WAS USED EXCLUSIVELY FOR SECTION 170(C)(2)(B) PURPOSES. 1996 276 2272 1730 266 1996 1464 266 1730 1303 161 1464 1007 296 1303 0.55990 0.44010 0 0 5053 1742 3311 31168 2078 29090 32401 DUE TO RELATED PARTY 243765 243765 X 611579 -34676 -34676 646255 0 646255 949832 0 949832 0 949832 PART V, LINE 4: CONTRIBUTIONS ARE RESTRICTED BY DONORS TO BE INVESTED IN PERPETUITY. INTEREST EARNED ON THE INVESTED BALANCE, WHEN RELEASED, IS USED TO SUPPORT THE GENERAL OPERATIONS OF THE FOUNDATION. PART X, LINE 2: FOR THE YEAR ENDED DECEMBER 31, 2018, THE FOUNDATION HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. 1 AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS 7101 WISCONSIN AVE STE 1101 BETHESDA MD 20814 521774227 501(C)(6) 21777 ADMINISTRATIVE AWARD BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA BCM 310 HOUSTON TX 77030 741613878 501(C)(3) 67500 2018-2019 GENZYME FELLOWSHIP CHILDREN'S RESEARCH INSTITUTE 111 MICHIGAN AVE NW WASHINGTON DC 20010 521654453 501(C)(3) 150000 2018-2019 SHIRE FELLOWSHIP DUKE UNIVERSITY BOX 104132 DURHAM NC 27708 560532129 501(C)(3) 75000 2018-2019 PFIZER FELLOWSHIP THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER 7000 FANNING ST HOUSTON TX 77030 741761309 501(C)(3) 75000 2018-2019 SHIRE FELLOWSHIP UNIVERSITY OF MIAMI PO BOX 405803 ATLANTA GA 30834 590624458 501(C)(3) 75000 2018-2019 SHIRE FELLOWSHIP UNIVERSITY OF WASHINGTON OF SEATTLE 1959 NE PACIFIC ST SEATTLE WA 98195 916001537 501(C)(3) 75000 2018-2019 PFIZER FELLOWSHIP 6 1 STIPEND AWARD 14 70560 PART I, LINE 2: GRANTS ARE REVIEWED ANNUALLY FOR FINANCIAL STATUS AND INCLUDED IN A GRANT SCHEDULE THAT RECONCILES INCOME VERSUS EXPENSES. GRANTEES FOR PFIZER AND GENZYME AWARDS HAVE TO SUBMIT REPORTS MIDWAY INTO THE REPORTING YEAR AND AT THE END OF EACH OF THE REPORTING YEARS. X X X X 0 0 0 0 0 0 0 0 0 MICHAEL S WATSON EXECUTIVE DIRECTOR 385400 0 0 0 0 0 35567 0 19338 0 440305 0 0 0 MELANIE WELLS DIRECTOR OF ADMINISTRATION 139884 0 0 0 0 0 8760 0 16648 0 165292 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE SENIOR FINANCE MANAGER. A COPY OF THE FORM 990 WAS SENT TO THE BOARD OF DIRECTORS PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST FORMS ARE ANNUALLY COMPLETED BY ALL EMPLOYEES, DIRECTORS AND COMMITTEE MEMBERS. THE PRESIDENT AND COMMITTEE CHAIRS ASK FOR DISCLOSURES AT MEETINGS. IF A DIRECTOR HAS A DISCLOSURE, S/HE IS ASKED TO LEAVE THE ROOM DURING DISCUSSION OF A CONFLICTED ISSUE. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR'S SALARY IS REVIEWED EACH YEAR BY THE PRESIDENT OF THE ACMG, THE PRESIDENT OF THE ACMG FOUNDATION, AND THE IMMEDIATE PAST PRESIDENT OF ACMG. THEY RECOMMEND SALARY INCREASES TO THE BOARD OF DIRECTORS FOR APPROVAL. THE DIRECTOR OF ADMINISTRATION'S SALARY IS RECOMMENDED BY THE EXECUTIVE DIRECTOR, APPROVED BY THE THREE PRESIDENTS AND SENT FOR BOARD APPROVAL. THE BOARD APPROVES THE ENTIRE SALARY POOL FOR ACMG/ACMG FOUNDATION DURING THE BUDGET APPROVAL PROCESS EACH YEAR. THE EXECUTIVE DIRECTOR HAS A WRITTEN EMPLOYMENT CONTRACT WHICH IS SIGNED EVERY THREE TO FIVE YEARS. IN THE SALARY REVIEW PROCESS, THE EXECUTIVE COMMITTEE COMPARES THE EXECUTIVE DIRECTOR'S SALARY TO THOSE IN THE GENETICS INDUSTRY AS WELL AS TO SALARIES IN SIMILAR ORGANIZATIONS THROUGH SALARY REPORTS AND 990S. THE THREE PRESIDENTS ARE CHAIRS OF THEIR DEPARTMENTS AND/OR DEANS AND HAVE COMPARABLE SALARY INFORMATION FROM THEIR UNIVERSITIES THAT ARE ALSO USED. CORRESPONDENCE IS SENT TO ACMG/ACMG FOUNDATION'S HUMAN RESOURCE DEPARTMENT FOR FILING IN SALARY RECORDS. THE LAST COMPENSATION REVIEW TOOK PLACE IN JANUARY 2018. FORM 990, PART VI, SECTION C, LINE 19 COPIES OF THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS 7101 WISCONSIN AVENUE SUITE 1101 BETHESDA MD 20814 521774227 TO IMPROVE HEALTH THROUGH MEDICAL GENETICS IL 501(C)(6) N/A N/A 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS B 21777 ACTUAL AMOUNTS AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS K 13977 ACTUAL AMOUNTS AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS O 4190896 ACTUAL AMOUNTS