2018-06-27T17:16:55-07:00 2017-12-31 990 2017-01-01 411717098 AMERICAN BRAIN FOUNDATION AMER 6129286300 201 Chicago Avenue Minneapolis MN 55415 Jane Ransom Executive Director 6129286100 2018-06-25 2017 2022-09-23 18:48:47Z Jane Ransom 201 Chicago Avenue Minneapolis MN 55415 5156571 0 X www.americanbrainfoundation.org X 1992 MN The American Brain Foundation brings researchers and donors together to defeat brain disease. We believe that funding research across a broad spectrum of brain diseases and conditions is the best hope for reaching our vision of a world without brain disease. 15 15 0 75 0 0 2963961 3997898 0 0 529802 983314 -102549 -7331 3391214 4973881 961995 1079596 0 0 743132 670709 0 14000 436808 946394 990128 2651521 2754433 739693 2219448 10824647 12383859 1602444 942208 9222203 11441651 X The American Brain Foundation brings researchers and donors together to defeat brain disease. We believe that funding research across a broad spectrum of brain diseases and conditions is the best hope for reaching our vision of a world without brain disease. If we cure one brain disease, we will cure many. In 2017 the American Brain Foundation increased its investment in the rising generation of brain disease investigators. With an eye toward involving more people in our research mission, we built and tested the world's first neuroscience crowdfunding platform. And we honored the outstanding scientists and members of the public who are leading the fight to defeat brain disease. 1 0 987064 890793 0 GRANTS: In 2017, the American Brain Foundation funded research projects in Multiple Sclerosis, Ataxia, Tourette Syndrome, Parkinson's Disease, Stroke, Muscular Dystrophy, Myasthenia Gravis, Epilepsy, Migraine, Intracerebral Hemorrhage, X-linked Dystonia Parkinsonism, Neurodevelopmental impairment/congenital heart disease, Alzheimer's Dementia, and Epilepsy. We co-funded these grants with our research partners: Alzheimer's Association American Academy of Neurology, American Epilepsy Society, American Heart Association, Consortium of Multiple Sclerosis Centers, Epilepsy Foundation, Muscular Dystrophy Association, Myasthenia Gravis Foundation of America, National Ataxia Foundation, National Multiple Sclerosis Society, Parkinson's Foundation, Society of Vascular and Interventional Neurology, and Tourette Association of America. 217309 0 AWARDS: The American Brain Foundation also honored and provided financial support to leaders in the fight against brain disease-both scientists and members of the public. PUBLIC LEADERSHIP IN NEUROLOGY AWARD: B. Smith and Dan Gasby received the American Brain Foundation's prestigious Public Leadership in Neurology Award. The award honors an individual or group outside of the medical profession. Honorees are known for advancing public understanding and awareness of neurologic disease, being effective advocates for neuroscience research, and making significant contributions to improve patient care. B. Smith, a nationally-recognized celebrity chef, restaurateur, supermodel, and lifestyle maven, was diagnosed with early onset Alzheimer's in 2013. Smith and Dan Gasby, her husband and business partner, have crisscrossed the country, making appearances at Alzheimer's educational and fundraising events. They co-authored the book Before I Forget: Love, Hope, and Acceptance in our Fight Against Alzheimer's, released by Random House in January 2016. Dan Gasby recently joined the American Brain Foundation's Board of Directors to help amplify our voice in making curing brain disease a public cause. BOARD CHAIR AWARD: Our Board Chair Kevin Goodno presented the Board Chair Award to Francis Kittredge, MD, FAAN, the first President of the American Academy of Neurology Foundation which later became the American Brain Foundation. Dr. Kittredge pioneered the Clinical Research Training Scholarship program which remains the cornerstone of the American Brain Foundation. Eighty-seven percent of award recipients have gone on to receive NIH and other funding-an outcome on target with the Foundation's research focus. ASSOCIATION OF INDIAN NEUROLOGISTS IN AMERICA LIFETIME ACHIEVEMENT AWARD: Through its fund at the American Brain Foundation, the Association of Indian Neurologists in America presented its Lifetime Achievement Award to Kapil Sethi, MD. The award recognizes a leader in neurology by his or her peers. Dr. Sethi was honored for his dedication in advancing the training of North American Neurologists of Indian origin and promoting innovation and research in the field of neurology. AMERICAN ACADEMY OF NEUROLOGY SCIENTIFIC AWARDS: The American Brain Foundation underwrote the American Academy of Neurology's prestigious scientific awards, including the internationally-known Potamkin Prize in Pick's, Alzheimer's, and related diseases, and the Sheila Essey Award for Research in ALS. Other awards included: Dreifuss-Penry Epilepsy Award, Norman Geschwind Prize in Behavioral Neurology, Wayne A. Hening Sleep Medicine Investigator Award, Herzog Neuroendocrine Research Award, Mitchell B. Max Award for Neuropathic Pain, Movement Disorders Research Award, Michael S. Pessin Stroke Leadership Prize, Bruce S. Schoenberg International Award in Neuroepidemiology, Sleep Science Award, Jon Stolk Award in Movement Disorders for Young Investigators, Founders Award, and S. Weir Mitchell Award. 779261 0 0 PUBLIC OUTREACH: The Foundation invested in several public awareness-building projects, including an inspirational video about our mission, a marketing plan, refreshed branding, and a new, educational website. The website incorporates the world's first neuroscience crowdfunding platform. Crowdfunding builds awareness of our mission and of the connections between the various diseases of the brain, which most of the public thinks of as distinct and unconnected. It is also a fundraising tool. The Foundation also built awareness of our cause through several events and projects, including: BRAIN HEALTH FAIR: provided educational materials on brain disease to nearly 2,000 patients, families and caregivers affected by neurological disease in the Boston area, at this event organized by the American Academy of Neurology. STANDING STRONG: A special event which drew the connection between Alzheimer's disease and our mission through a professionally-produced play at Park Square Theater in St. Paul, Minnesota. COMMITMENT TO CURES: An awards dinner at the American Academy of Neurology's annual meeting. BIKE HELMET GIVE-AWAY: Helping to distribute 3,000 free bike helmets to adults, children and nonprofits in Minneapolis, Minnesota. TRAUMATIC BRAIN INJURY(TBI) MEDIA CAMPAIGN: A media campaign on concussion and TBI in the Twin Cities market, as part of run-up to the Super Bowl, undertaken through a media partnership with the Twin Cities NBC affiliate, KARE11, including broadcast spots, homepage banner, and social media campaign. AMERICAN ACADEMY OF NEUROLOGY CONFERENCE: The Foundation staffed a booth at the American Academy of Neurology's weeklong annual conference, which drew 14,000 members of the neurology community, and whose purpose was to build awareness of the Foundation and our work. 23352 0 CROWDFUNDING FOR CURES: To expand support for research, the American Brain Foundation built and tested the world's first neuroscience crowdfunding platform, with the aim of formally launching campaigns in 2018. Crowdfunding advances our mission by bringing researchers and donors together online in campaigns to raise needed research dollars and raise public awareness. Scientific investigators may qualify their projects for crowdfunding through a two-part online application process. In a vetting process developed by the Foundation's Research Advisory Committee, projects are approved for posting by review panels the American Academy of Neurology experts. Once a research project is posted on our platform, the Foundation works with the researcher to launch a crowdfunding campaign in its support. Patients, caregivers, and others can sort through the projects on the crowdfunding platform by disease, and then give directly to projects they care about most. One hundred percent of donations go directly to project support. 23352 0 0 2006986 1 1 0 0 0 1 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 15 0 1 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AK AL AR AZ CA CO CT DC FL GA HI IL KS KY MA MD MI MN MS NC ND NH NM NV NY OH OK OR PA RI SC TN UT VA WA WI WV X X TIMOTHY J ENGEL 6129286100 201 Chicago Avenue Minneapolis MN 55415 X X KEVIN P GOODNO CHAIR & TRUSTEE 2 X X 0 0 0 SUSAN SCHNEIDER WILLIAMS TRUSTEE 2 X 0 0 0 RALPH JOZEFOWICZ TREASURER & TRUSTEE 2 X X 0 0 0 A GORDON SMITH SECRETARY & TRUSTEE 2 X X 0 0 0 JOHN C MAZZIOTTA PAST CHAIR & TRUSTEE 2 X 0 0 0 BRUCE MILLER TRUSTEE 2 X 0 0 0 JEFFREY ROSENFELD TRUSTEE 2 X 0 0 0 MARTIN SHENKMAN TRUSTEE 2 X 0 0 0 LISA M SHULMAN TRUSTEE 2 X 0 0 0 BEN UTECHT TRUSTEE 2 X 0 0 0 DAN GASBY TRUSTEE 2 X 0 0 0 ROBERT C GRIGGS VICE CHAIR & TRUSTEE 2 X X 0 0 0 SHAFALI JESTE TRUSTEE 2 0 X 0 0 0 RALPH L SACCO TRUSTEE 2 X 0 0 0 JOSEPH I SIRVEN TRUSTEE 2 X 0 0 0 CATHY RYDELL TRUSTEE 2 0 X 0 0 0 JANE RANSOM EXECUTIVE DIRECTOR 45 X 244721 0 37585 TIMOTHY J ENGEL CHIEF FINANCIAL OFFICER 1 X 9682 0 1350 SHELLY RUCKS DIRECTOR OF DEVELOPMENT 45 X 121412 0 6741 375815 0 45676 2 0 1 1 American Academy of Neurology 201 Chicago Avenue Minneapolis MN 55415 Shared Personnel & Services 1064333 Weber Shandwick 8000 Norman Center Dr Suite 400 Bloomington MN 55437 Website Development 271942 Dorsey and Whitney LLP PO Box 1680 Minneapolis MN 55480 Legal Consulting 116078 3 0 0 174600 0 0 3823298 28461 3997898 0 0 0 0 0 13925 0 0 13925 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 969389 0 0 0 969389 0 969389 0 0 969389 174600 6944 182690 -8090 0 -8090 0 0 0 0 0 0 0 0 0 0 0 0 759 0 0 759 759 4973881 0 0 975983 1068596 1068596 11000 11000 0 0 0 0 366133 272909 53978 39246 0 0 0 0 159460 104272 37139 18049 36684 27344 5408 3932 55846 41627 8233 5986 52586 38081 8795 5710 299356 177853 94428 27075 83647 45121 6753 31773 14000 14000 198232 110380 27933 59919 50073 14461 35612 62891 22572 14127 26192 129392 3447 110 125835 93151 28359 27927 36865 25500 8297 12421 4782 30472 30472 12755 12755 Bad Debt Expense 964 0 632 332 Dues & Subscriptions 3695 2195 0 1500 2754433 2006986 310639 436808 991888 931310 2700510 1714434 582850 1944882 20218 1532 0 0 0 0 0 0 0 0 132405 104970 223770 41469 0 182301 6396776 7504430 10824647 12383859 244253 37689 1110643 596826 247548 307693 1602444 942208 X 2850063 3440364 4652559 6271476 1719581 1729811 9222203 11441651 10824647 12383859 2219448 0 0 0 0 0 X 0 1 X 1 0 X 3839907 3888559 2819224 2963961 4164036 17675687 0 0 0 0 0 0 0 0 0 0 0 0 3839907 3888559 2819224 2963961 4164036 17675687 8581602 9094085 71750 169538 167694 162367 207358 778707 0 0 0 0 0 0 0 0 0 0 18454394 0.49279 0.47559 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2 0 49689 0 0 0 249689 0 1 1 2548029 10230 372416 66600 0 0 2864075 2309591 99650 202959 64171 0 0 2548029 2313483 53010 -15761 41141 0 0 2309591 2167328 64500 121553 39898 0 0 2313483 1765723 132407 309190 39892 0 0 2167428 0 0.6 0.4 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 223770 0 41469 182301 182301 0 Accrued Expenses 90151 Refundable Advances 217542 307693 X 5165540 0 8969 0 182690 191659 4973881 0 0 0 4973881 2946091 8977 0 0 182681 191658 2754433 0 0 0 2754433 Schedule D, Part V, Line 4 A portion of the interest earned on endowment funds, recorded as temporarily restricted funds, is used to support awards and clinical research training scholarships. Schedule D, Part X, Line 2 The Organization follows the provisions of FASB ASC 740-10-25, which requires that a tax position be recognized or derecognized based on a "more likely than not" threshold. This applies to positions taken or expected to be taken in a tax return. The Organization does not believe its financial statements include any uncertain tax positions. The Organizations tax returns are subject to review and examination by federal authorities. Schedule D, Part XI, Line 2d Revenue related to Fundraising Event Schedule D, Part XII, Line 2d Expenses related to Fundraising Event Standing Strong 49444 6944 42500 0 0 4000 5085 0 73226 Committment to Cures 132100 0 132100 0 0 0 33153 10000 57226 0 181544 6944 174600 0 0 4000 38238 10000 130452 182690 -8090 1 American Academy of Neurology Institute 201 Chicago Avenue Minneapolis MN 55415 410726167 918488 Clinical Research Training Scholarships, scientific awards, and non-scientific awards for work on diseases of the brain and nervous system. American Heart Association PO Box 84150 Dallas TX 75284 135613797 75108 2017 Lawrence Brass Award for Cardiovascular and Stroke Research National MS Society 733 3rd Ave Third Floor New York NY 10017 135661935 75000 Clinical Scientist Development Award in Multiple Sclerosis Grant 3 0 Recognition Award 1 10000 Schedule I, Part I, Line 2 The American Brain Foundation (ABF) supports funding for Clinical Research Training Scholarships offered to neurologist and clinical investigators interested in academic careers in clinical research. X X X X 0 0 0 0 0 0 0 0 0 JANE RANSOM EXECUTIVE DIRECTOR 222290 0 21389 0 1042 0 24058 0 13527 0 282306 0 21389 0 SHELLY RUCKS DIRECTOR OF DEVELOPMENT 120908 0 0 0 504 0 0 0 6741 0 128153 0 0 0 TIMOTHY J ENGEL CHIEF FINANCIAL OFFICER 8335 0 1133 0 214 0 894 0 460 0 11036 0 1133 0 Schedule J, Part I, Line 3 American Brain Foundation (ABF) shares employees with American Academy of Neurology (AAN) through a contractual arrangement by which AAN's employees are leased to ABF. This arrangement included, as of 2017, the Foundation's Executive Director being leased through AAN. The ABF's Board of Directors is responsible for hiring and setting the compensation for the Executive Director. The Board employs procedures (use of independent consultant, compensation survey and no involvement of persons with conflict of interest) and last set compensation amounts in 2017. Other key employees leased from AAN compensation is established (using independent consultant, employment agreements, compensation survey and approval by board) by AAN's compensation committee (and approved by the AAN board). ABF's other Officer, Timothy Engel, is AAN's CFO and his compensation is under the charge of the CEO/Executive Director of AAN. The CEO of AAN is charged with setting the compensation for the CFO and in doing so compensation surveys are utilized. X 20639 Cost X 1 7822 Cost 0 0 0 0 Form 990, Part III, Line 2 To expand support for research, the American Brain Foundation built and tested the world's first neuroscience crowdfunding platform, with the aim of formally launching campaigns in 2018. Crowdfunding advances our mission by bringing researchers and donors together online in campaigns to raise needed research dollars and raise public awareness. Form 990, Part VI, Section B, Line 11b The CFO undertook extensive review of the draft Form 990 as initially prepared by the Finance Business Manager. Their review was thereafter augmented by exempt organizations Tax/Legal Counsel. This Form 990 was then presented to the Audit Committee by the CFO and other members of the management team. The Audit Committee reviewed the Form 990 and identified any agreed upon changes to be made. In line with Minnesota Law, the final Form 990 was approved by the Board of Directors. The final 990 was brought to the Board for discussion during a full meeting of the Board of Directors, prior to filing the final Form 990. At that time, the completed overview of this Form 990 was provided to the Board by the CFO. Form 990, Part VI, Section B, Line 12c The Foundation's conflict of interest policy covers individuals serving as an officer, director, committee member, or positions of official responsibility or leadership. All covered individuals are required to complete a relationship disclosure statement annually, or as changes in personal circumstances occur. The statements are reviewed and actions determined according to the Foundation's hierarchy based on position; or by the Executive Committee if a resolution cannot be made. Potential conflicts are handled on an individual basis. Actions taken depend on the severity of the conflict which include no action required, on-going monitoring with appropriate disclosure, or withdrawal from the conflicting relationship. Conflict of interest proceedings are documented in meeting minutes or as appropriate. Form 990, Part VI, Section B, Line 15 In 2017 the Foundation's Executive Director was leased to ABF through a contractual relationship with AAN. The ABF's Executive Committee is responsible for hiring and setting the compensation for the Executive Director. The committee employs procedures (use of independent consultant, compensation survey and approval by board) and last set compensation amounts in 2017. Form 990, Part VI, Section C, Line 19 The Foundation makes its financial statements and bylaws available to the public on its website. The Foundation does not make its other governing documents (e.g. articles of incorporation) nor its COI policy available to the public. Form 990, Part VII, Section A, Line 1a Because Jane Ransom's and Timothy Engel's services are accessed from the American Academy of Neurology (an unrelated organization) via a leasing arrangement, a "yes" answer is not require on Line 5. However, the compensation these individuals received from that organization is reported in Line 1a's Columns D and F as though it had been provided directly by ABF, with concomitant Schedule J reporting. Extension was filed