2025-11-14T15:27:33+00:00 2024-12-31 135565207 KPMG LLP 8350 Broad Street Suite 900 McLean VA 22102 990 2024-01-01 131930701 CYSTIC FIBROSIS FOUNDATION CYST 3019514422 4550 MONTGOMERY AVENUE 1100n BETHESDA MD 20814 MICHAEL P BOYLE MD PRESIDENT & CEO 2025-11-14 true Brian Kearns P02061479 7032868000 2025-11-14 2024 2025-03-06 01:10:19Z MICHAEL P BOYLE MD 4550 MONTGOMERY AVENUE 1100n BETHESDA MD 20814 1863238088 false X https://www.cff.org/ X 1955 DE TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE. 17 16 875 56403 35543466 34190123 86607373 95892260 3437695 3272736 179149610 231324892 22821602 25308432 292016280 355798320 200455461 202017166 0 127953243 143748863 176400 353500 35110169 114819495 93019390 443404599 439138919 -151388319 -83340599 4885921122 4986222387 292964822 292597881 4592956300 4693624506 SEE SCHEDULE O false false 306392964 198809390 16435185 Medical Program Expenses. SEE SCHEDULE O. 22163320 0 0 Education Program Expenses. See Schedule O. 18153082 3207776 0 Community Service Program Expenses. SEE SCHEDULE O. 346709366 true true false true false false false false false false true true false false true true true false false false true true false true true true false true true true false false false false false false false false false false true false false false true true true true false false true 1413 1 true 875 true true true false false false false true true false false false true false true false X 17 16 false false false false false false false true true false true true true true true true true true true true true true CA FL GA AL HI IL KS KY MD MA MI MN MS NH NJ NM NY NC ND OR PA RI SC TN UT VA AR WV WI X X IRENA BARISIC & MICHAEL CAVADEL 3019514422 4550 MONTGOMERY AVENUE SUITE 1100N BETHESDA MD 20814 MICHAEL P BOYLE MD PRESIDENT & CEO 40.0 1.0 X X 1054388 0 220763 CAROLE B GRIEGO MD TRUSTEE 3.0 0.0 X 0 0 0 DAVID A MOUNT TREASURER 5.0 0.0 X 0 0 0 DODZIE SOGAH PHD TRUSTEE 3.0 0.0 X 0 0 0 DOMINIC J CARUSO TRUSTEE 3.0 0.0 X 0 0 0 ELISE EBERWEIN TRUSTEE 3.0 0.0 X 0 0 0 ERIC R OLSON PHD VICE CHAIR 5.0 0.0 X 0 0 0 ERIC SCHNEIDER MD TRUSTEE 3.0 0.0 X 0 0 0 JESSICA H BOYD MD TRUSTEE 3.0 0.0 X 0 0 0 JOHN S WEINBERG EXECUTIVE VICE CHAIR 5.0 0.0 X 0 0 0 KATE O'DONNELL TRUSTEE 3.0 0.0 X 0 0 0 KC BRYAN WHITE CHAIR 8.0 0.0 X 0 0 0 LOUIS A DEFALCO VICE CHAIR 5.0 0.0 X 0 0 0 PAUL A MOTENKO TRUSTEE 3.0 0.0 X 0 0 0 ROBERT H NIEHAUS VICE CHAIR 5.0 0.0 X 0 0 0 STEVEN SHAK MD TRUSTEE 3.0 0.0 X 0 0 0 TERESA L ELDER VICE CHAIR 5.0 0.0 X 0 0 0 IRENA BARISIC EVP & CHIEF OPERATING & FINANCIAL OFFICER 40.0 1.0 X 761939 0 82616 MICHAEL B CAVADEL SVP, CHIEF LEGAL OFFICER 40.0 0.0 X 558135 0 103062 ALBERT FARO MD Chief Medical Officer Beg. 7/1/2024 40.0 0.0 X 571672 0 99918 BRUCE MARSHALL MD Chief Medical Officer Ending 7/1/2024 40.0 0.0 X 515472 0 34656 JOHN C MAHLER JR MD CHIEF INVESTMENT OFFICER 40.0 0.0 X 1866868 0 75759 JOHN P CLANCY MD SVP, CLINICAL RESEARCH 40.0 0.0 X 669826 0 95378 STEVEn ROWE MD EVP, Chief Scientific Officer 32.0 0.0 X 534655 0 132551 ANDREW LEWIS MANAGING DIRECTOR, INVESTMENTS 40.0 0.0 X 1363454 0 38260 EARL A LEE MANAGING DIRECTOR, INVESTMENTS 40.0 0.0 X 1226269 0 368483 ENRIQUE LIN SHIAO PHD Principal of Mission Related Investments 40.0 0.0 X 507691 0 81951 ERIC KOEHRSEN MANAGING DIRECTOR, INVESTMENTS 40.0 0.0 X 976105 0 304602 GENTIANA S AROVAS MANAGING DIRECTOR, INVESTMENTS OPERATIONS 40.0 0.0 X 642532 0 177127 11249006 0 1815126 388 true true false VERTEX PHARMACEUTICALS INC 50 NORTHERN AVE BOSTON MA 02210 CONTRACTED RESEARCH 12500000 Prime Medicine Inc 21 Erie Street Cambridge MA 02139 Contracted Research 6000000 ANAGRAM THERAPEUTICS INC 10 SPEEN ST STE 302 FRAMINGHAM MA 01701 CONTRACTED RESEARCH 5500000 PIONEERING MEDICINE (CF) LLC 55 CAMBRIDGE PKWY STE 800E CAMBRIDGE MA 02142 CONTRACTED RESEARCH 5211571 Slalom LLC 821 2ND AVE SUITE 1900 SEATTLE WA 98104 Technology Consulting 3656673 125 220756 52860455 42811049 8777057 95892260 SCIENTIFIC CONFERENCE 611600 3015236 3015236 DATA SAFETY MONITORING BOARD REVENUE 541900 257500 257500 0 0 0 0 3272736 86902027 35543466 51358561 12346115 339998 12006117 0 0 1636572899 1492150032 144422867 0 144422865 144422865 15278137 52860455 15278137 16130 11599 4531 4531 0 0 REFUNDED OR CANCELLED GRANTS 900099 12822451 12822451 0 0 OTHER MISCELLANEOUS REVENUE 900099 135335 0 0 135335 0 0 0 0 0 0 0 0 12957786 355798320 16435185 35543466 207927409 189712483 189712483 648911 648911 11655772 11655772 7377657 4454463 2668623 254571 109686 104204 5482 103316517 54900056 29590592 18825869 7591804 4101309 2061086 1429409 18310800 9380238 4628915 4301647 7042399 3771085 1903150 1368164 610499 289235 298573 22691 515914 1624 514290 840554 840554 353500 353500 3153831 3153831 7184578 4934416 2250162 0 120179 92759 8774 18646 5517115 2991090 527317 1998708 14237632 8180444 3420824 2636364 7667521 4585375 1566658 1515488 2562131 1484177 554960 522994 11407805 9210895 861488 1335422 2645604 1882652 455272 307680 792595 504491 258372 29732 CONTRACTED RESEARCH 31692660 31692660 Other Taxes and Fees 2124394 555746 1498875 69773 TRAINING 759753 409381 269835 80537 Miscellaneous 713382 186622 503330 23430 473243 138723 318976 15544 439138919 346709365 57319385 35110169 20000 20000 109087327 93127571 15055739 15058913 22382858 20660450 0 0 206966 126801 4831329 5773137 35602656 25873408 8863037 9729248 2705339108 2761100818 1764791266 1928159315 88133200 99228437 167210292 53237697 4885921122 4986222387 37939543 39199190 226220440 228373004 2685701 2877223 0 26119138 22148464 292964822 292597881 X 4576101051 4673524731 16855249 20099775 4592956300 4693624506 4885921122 4986222387 -83340599 184008805 0 X false true true false X 73199355 86536159 97948958 86607373 95892261 440184106 0 0 73199355 86536159 97948958 86607373 95892261 440184106 0 440184106 95019118 74598441 75903369 88665749 98908144 433094821 0 9386514 6491041 12503243 14646633 15429604 58457035 931735962 56595821 0.47243 0.48114 X Schedule A, Part II, Line 12 THE CF FOUNDATION HAS PROVIDED GROSS RECEIPTS FROM RELATED ACTIVITIES. THE CF FOUNDATION HAS INCLUDED REGISTRATION FEES FROM THE ANNUAL SCIENTIFIC CONFERENCE THAT IT HOSTS, THE NORTH AMERICAN CYSTIC FIBROSIS CONFERENCE ("NACFC"). NACFC BRINGS TOGETHER SCIENTISTS, CLINICIANS, AND CAREGIVERS TO SHARE THIER CF RESEARCH AND EXPERIENCES. THE CF FOUNDATION HAS ALSO INCLUDED REIMBURSEMENTS FOR COSTS RELATED TO THE DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE ON LINE 12. Schedule A, Part II, Line 10 Other Income DESCRIPTION - GROSS FUNDRAISING REVENUE, COLUMN A - 3754416.0, COLUMN B - 3443701.0, COLUMN C - 12338183.0, COLUMN D - 14594252.0, COLUMN E - 15278139.0, COLUMN F - 49408691.0; DESCRIPTION - GROSS GAMING REVENUE, COLUMN A - 89000.0, COLUMN B - 14800.0, COLUMN C - 106070.0, COLUMN D - 21710.0, COLUMN E - 16130.0, COLUMN F - 247710.0; DESCRIPTION - EMPLOYEE RETENTION CREDIT, COLUMN A - 2653151.0, COLUMN B - 3025780.0, COLUMN C - 0.0, COLUMN D - 0.0, COLUMN E - 0.0, COLUMN F - 5678931.0; DESCRIPTION - OTHER MISC. REVENUE, COLUMN A - 2889947.0, COLUMN B - 6760.0, COLUMN C - 58990.0, COLUMN D - 30671.0, COLUMN E - 135335.0, COLUMN F - 3121703.0; RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false false true 1117 false true 1718977 false true 11637 1731731 false Schedule C, Part II-B, Line 1 DETAILED DESCRIPTION OF THE LOBBYING ACTIVITY THE CF FOUNDATION IS FOCUSED ON CURING CF AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CF RESEARCH, THE CF FOUNDATION ADVOCATES FOR POLICIES THAT SUPPORT BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH, DRIVE THE DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CF, AND PROMOTE ACCESS TO HIGH-QUALITY, SPECIALIZED CARE FOR EVERYONE LIVING WITH THE DISEASE. ADVOCACY ACTIVITIES INCLUDE MEETINGS WITH LAWMAKERS AND THEIR STAFF, EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CF COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CF COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, Making public statements on issues that directly impact the CF Community and Foundation, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES. 6656489 4204724 2451765 28946167 21668684 7277483 9729248 Closely-held equity interests Financial derivatives PVT EQTY & OTHR ILLIQUID OPPORTUNISTIC GLOBAL PUBLIC EQUITY PERPETUAL TRUSTS & OTHER PERPETUAL TRUSTS 4504202 F GLOBAL PUBLIC EQUITY 94046759 F OPPORTUNISTIC 456083030 F PVT EQTY & OTHR ILLIQUID 1326700948 F Credit 46824376 F 1928159315 Federal Income Taxes OPERATING LEASE LIABILITIES OPERATING LEASE LIABILITIES 22148464 22148464 X 523975413 184008805 343639 0 184352444 339622969 16175351 0 16175351 355798320 423307207 343639 0 343639 422963568 16175351 0 16175351 439138919 Schedule D, Part X, Line 2 FIN 48 (ASC 740) footnote The Foundation is a not-for-profit voluntary health organization exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code (the Code) and from state taxes and has been classified as an organization that is not a private foundation under Section 509(a) of the Code. The Foundation does not have a material unrelated business income tax liability as of December 31, 2024 and 2023. Contributions to the Foundation qualify for the charitable contributions deduction to the extent provided by Section 170 of the Code. The Foundation is not aware of any tax position taken that requires disclosure based on current facts and circumstances. The Foundation annually reviews its tax positions and has determined that there are no material uncertain tax positions that require recognition or disclosure in the financial statements. In 2024, the Foundation began separately reporting unrelated business income tax expense within the other changes in net assets section of the statement of activities. This expense was previously reported within net nonoperating investment income. This change in presentation is due to the increase in unrelated business income tax expense generated by certain alternative investments. true Central America and the Caribbean Investments NONE 780922982 East Asia and the Pacific Investments NONE 79983461 East Asia and the Pacific Grantmaking NONE 532103 East Asia and the Pacific Program Services CONTRACTED RESEARCH 207000 Europe (Including Iceland and Greenland) Grantmaking NONE 7778176 Europe (Including Iceland and Greenland) Investments NONE 132126305 Europe (Including Iceland and Greenland) Mission Related Investments NONE 5412733 Europe (Including Iceland and Greenland) Program Services CONTRACTED RESEARCH 58305 Middle East and North Africa Grantmaking NONE 140000 Middle East and North Africa Investments NONE 999645 Middle East and North Africa Mission Related Investments NONE 18213731 North America (Canada & Mexico only) Grantmaking NONE 3205493 North America (Canada & Mexico only) Investments NONE 30576512 South Asia Program Services CONTRACTED RESEARCH 290000 0 0 0 0 0 0 1060446446 0 1060446446 East Asia and the Pacific CLINICAL RESEARCH 223134 Wire East Asia and the Pacific PILOT STUDY 55531 Wire East Asia and the Pacific PILOT STUDY 89594 Wire East Asia and the Pacific RESEARCH 163844 Wire East Asia and the Pacific THERAPEUTICS DEVELOPMENT AWARD 207000 Wire Europe (Including Iceland and Greenland) CLINICAL RESEARCH 1334899 Wire Europe (Including Iceland and Greenland) CLINICAL RESEARCH 340205 Wire Europe (Including Iceland and Greenland) CLINICAL RESEARCH 343967 Wire Europe (Including Iceland and Greenland) CLINICAL RESEARCH CENTER 983151 Wire Europe (Including Iceland and Greenland) CLINICAL RESEARCH STUDY 93028 Wire Europe (Including Iceland and Greenland) CLINICAL RESEARCH STUDY 1040970 Wire Europe (Including Iceland and Greenland) PILOT STUDY 56000 Wire Europe (Including Iceland and Greenland) PILOT STUDY 55980 Wire Europe (Including Iceland and Greenland) PILOT STUDY 50000 Wire Europe (Including Iceland and Greenland) PILOT STUDY 112000 Wire Europe (Including Iceland and Greenland) QUALITY IMPROVEMENT 150000 Wire Europe (Including Iceland and Greenland) QUALITY IMPROVEMENT 999500 Wire Europe (Including Iceland and Greenland) QUALITY IMPROVEMENT 80689 Wire Europe (Including Iceland and Greenland) RESEARCH 167955 Wire Europe (Including Iceland and Greenland) RESEARCH 124688 Wire Europe (Including Iceland and Greenland) RESEARCH 157494 Wire Europe (Including Iceland and Greenland) RESEARCH 156016 Wire Europe (Including Iceland and Greenland) RESEARCH 165417 Wire Europe (Including Iceland and Greenland) RESEARCH 127614 Wire Europe (Including Iceland and Greenland) RESEARCH 126075 Wire Europe (Including Iceland and Greenland) RESEARCH 310566 Wire Europe (Including Iceland and Greenland) RESEARCH 154907 Wire Europe (Including Iceland and Greenland) RESEARCH STUDY 83085 Wire Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 358785 Wire Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 201185 Wire Europe (Including Iceland and Greenland) TRAINING 4000 Wire Europe (Including Iceland and Greenland) THERAPEUTICS DEVELOPMENT AWARD 58305 Wire Middle East and North Africa CLINICAL RESEARCH STUDY 84000 Wire Middle East and North Africa PILOT STUDY 56000 Wire North America (Canada & Mexico only) CLINICAL CARE RESEARCH 332511 Wire North America (Canada & Mexico only) CLINICAL RESEARCH 747519 Wire North America (Canada & Mexico only) CLINICAL RESEARCH CENTER 42860 Wire North America (Canada & Mexico only) CLINICAL RESEARCH CENTER 143397 Wire North America (Canada & Mexico only) CLINICAL RESEARCH STUDY 169145 Wire North America (Canada & Mexico only) CLINICAL RESEARCH STUDY 201208 Wire North America (Canada & Mexico only) CLINICAL RESEARCH STUDY 168000 Wire North America (Canada & Mexico only) CLINICAL RESEARCH STUDY 106784 Wire North America (Canada & Mexico only) PILOT STUDY 56000 Wire North America (Canada & Mexico only) PILOT STUDY 56000 Wire North America (Canada & Mexico only) PILOT STUDY 55300 Wire North America (Canada & Mexico only) PILOT STUDY 56000 Wire North America (Canada & Mexico only) PILOT STUDY 111760 Wire North America (Canada & Mexico only) PILOT STUDY 55984 Wire North America (Canada & Mexico only) QUALITY IMPROVEMENT 67116 Wire North America (Canada & Mexico only) RESEARCH 335999 Wire North America (Canada & Mexico only) RESEARCH 157560 Wire North America (Canada & Mexico only) RESEARCH 168000 Wire North America (Canada & Mexico only) RESEARCH 167350 Wire South Asia THERAPEUTICS DEVELOPMENT AWARD 290000 Wire 53 3 true false true true true false Schedule F, Part I, Line 2 Procedures for monitoring use of grant funds THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE U.S. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE CF FOUNDATION AND THE SPONSORED INSTITUTION. SPONSORED INSITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE CF FOUNDATION'S SCIENTIFIC STAFF TO REVIEW PROGRESS, AND FINANCIAL REPORTS ARE REVIEWED BY GRANTS MANAGEMENT STAFF TO ENSURE FUNDS WERE USED AS INTENDED. THE FINAL GRANT PAYMENT IS TYPICALLY CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. X X X X X X true LAUTMAN MASKA NEILL & COMPANY 1730 RHODE ISLAND AVE NW WASHINGTON FM 20036 MAIL COUNSEL false 11672048 228000 11444048 Graham Pelton 39 Beechwood Road Summit NJ 07901 Fundraising advisory false 100000 -100000 Allen Balik 1 Canopy Lane Napa CA 94558 Fundraising advisory false 25500 -25500 11672048 353500 11318548 CA CO CT DE FL GA AL HI ID IL IN IA KS KY LA ME AK MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA AZ RI SC SD TN TX UT VT VA AR WA WV WI WY Ski Event 2598020 652851 1945169 837 1061676 473265 38066 371325 Atlanta Walk 2362136 2272671 89465 629 21729 27866 1250 37991 748 63178436 49934933 13243503 76347 6110984 3355826 505762 3194584 68138592 52860455 15278137 77813 7194389 3856957 545078 3603900 15278137 0 0 0 16130 11599 true 0.85 16130 11599 NH false LICENSING WAS NOT REQUIRED FOR THE EVENT HELD IN THIS STATE. false false false 0.0 1.0 CYSTIC FIBROSIS FOUNDATION 4550 MONTGOMERY AVE SUITE 1100N BETHESDA MD 20814 false false Schedule G, Part IV 1. LAUTMAN MASKA NEIL & COMPANY: OUR PARTNERSHIP WITH LAUTMAN IS AIMED AT BOLSTERING FUNDRAISING FOR OUR ANNUAL FUND PROGRAM WHICH GENERATES NEARLY $12 MILLION IN DONATIONS EACH YEAR. OUR ANNUAL FUND APPEALS, 65 ROSES CLUB MONTHLY GIVING PROGRAM, GIVINGTUESDAY CAMPAIGN, AND CHAPTER AND YEAR END GIVING EFFORTS ARE ALL EXAMPLES OF FUNDRAISING ACTIVITIES STRENGTHENED BY OUR PARTNERSHIP WITH LAUTMAN. 2. GRAHAM PELTON: WE HAVE PARTNERED WITH GRAHAM PELTON, A NATIONALLY RECOGNIZED FUNDRAISING AND NONPROFIT MANAGEMENT FIRM, TO HELP CONDUCT A THOROUGH ASSESSMENT OF OUR COMPREHENSIVE FUNDRAISING ACTIVITIES. THEY WILL ASSIST IN SHAPING OUR FUNDRAISING PROGRAM WITH THE ULTIMATE GOAL OF RAISING THE FUNDS NEEDED TO ADVANCE OUR MISSION. 3. ALLEN BALIK: WITH HIS EXTENSIVE EXPERIENCE IN THE WINE INDUSTRY, MR. BALIK HAS BEEN ENGAGED TO PROVIDE STRATEGIC AND LOGISTICAL COUNSEL ON THE CF FOUNDATION'S WINEMASTERS FUNDRAISING EVENT. true Advocate Charitable Foundation 2025 Windsor Dr Oak Brook IL 60523 363297360 501C(3) 43047 ADULT CARE Advocate Charitable Foundation 363297360 501C(3) 204730 CF CARE CENTER Albany Medical College 141338310 501c(3) 202590 CF CARE CENTER Albert Einstein College of Medicine 830621846 501C(3) 56000 PILOT STUDY All Children's Research Institute Inc 592481742 501c(3) 168372 CLINICAL RESEARCH CENTER Ann & Robert H Lurie Children's Hospital of Chicago 362170833 501c(3) 56172 ADULT CARE Ann & Robert H Lurie Children's Hospital of Chicago 362170833 501c(3) 173000 CF CARE CENTER Ann & Robert H Lurie Children's Hospital of Chicago 362170833 501c(3) 111237 CLINICAL RESEARCH CENTER Ann & Robert H Lurie Children's Hospital of Chicago 362170833 501c(3) 130000 RESEARCH Ann & Robert H Lurie Children's Hospital of Chicago 362170833 501c(3) 134000 TRAINING Arkansas Children's Hospital Research Institute Inc 710694931 501C(3) 162520 CF CARE CENTER Arkansas Children's Hospital Research Institute Inc 710694931 501C(3) 49999 CLINICAL RESEARCH STUDY Ascension Seton 741109643 501c(3) 394953 CF CARE CENTER Ascension Seton 741109643 501c(3) 105526 CLINICAL RESEARCH CENTER Ascension Seton 741109643 501c(3) 55999 QUALITY IMPROVEMENT Atlantic Health System Inc 521958352 501c(3) 190338 CF CARE CENTER Atlantic Health System Inc 521958352 501c(3) 104622 CLINICAL RESEARCH CENTER Atrium Health Foundation 566060481 501C(3) 36960 ADULT CARE Atrium Health Foundation 566060481 501C(3) 344313 CF CARE CENTER Augusta University Research Institute Inc 581418202 501c(3) 220173 CF CARE CENTER Augusta University Research Institute Inc 581418202 501c(3) 92128 CLINICAL RESEARCH CENTER Augusta University Research Institute Inc 581418202 501c(3) 84000 QUALITY IMPROVEMENT Baylor College of Medicine 741613878 501c(3) 19455 ADHERENCE Baylor College of Medicine 741613878 501c(3) 575049 CF CARE CENTER Baylor College of Medicine 741613878 501c(3) 197668 CLINICAL RESEARCH CENTER Baylor College of Medicine 741613878 501c(3) 16663 CLINICAL RESEARCH STUDY Baylor Scott & White Health 463131350 501C(3) 123310 CF CARE CENTER Baystate Medical Center Inc 042790311 501C(3) 63210 CF CARE CENTER Baystate Medical Center Inc 042790311 501C(3) 66990 TRAINING Benaroya Research Institute at Virginia Mason 910653422 501C(3) 166387 RESEARCH Beth Israel Deaconess Medical Center Inc 042103881 501c(3) 57780 CLINICAL RESEARCH Billings Clinic Foundation 810407289 501C(3) 181940 CF CARE CENTER Billings Clinic Foundation 810407289 501C(3) 72333 CLINICAL RESEARCH CENTER Board of Regents of the University of Nebraska 470049123 501c(3) 442698 CF CARE CENTER Board of Regents of the University of Nebraska 470049123 501c(3) 120718 CLINICAL RESEARCH CENTER Board of Regents of the University of Oklahoma Health Sciences Center 731563627 501C(3) 281890 CF CARE CENTER Board of Regents of the University of Oklahoma Health Sciences Center 731563627 501C(3) 127019 CLINICAL RESEARCH CENTER Board of Regents of the University of Oklahoma Health Sciences Center 731563627 501C(3) 10000 TRAINING Board of Regents of the University of Wisconsin System 396006492 IRC 115 223862 ADHERENCE Board of Regents of the University of Wisconsin System 396006492 IRC 115 389501 CF CARE CENTER Board of Regents of the University of Wisconsin System 396006492 IRC 115 180190 CLINICAL RESEARCH CENTER Board of Trustees of Michigan State University 386005984 501C(3) 33974 ADULT CARE Board of Trustees of Michigan State University 386005984 501C(3) 149385 CF CARE CENTER Board of Trustees of Michigan State University 386005984 501C(3) 119499 THERAPEUTICS DISCOVERY RESEARCH Board of Trustees of Southern Illinois University 376005961 501C(3) 43576 CF CARE CENTER Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 23520 ADHERENCE Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 143516 ADULT CARE Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 376770 CF CARE CENTER Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 217172 CLINICAL CARE RESEARCH Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 138650 CLINICAL RESEARCH CENTER Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 27604 QUALITY IMPROVEMENT Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 418000 RESEARCH Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 152000 RESEARCH STUDY Board of Trustees of the Leland Stanford Junior University 941156365 501c(3) 67000 TRAINING Boston Children's Health Physicians LLP 133956599 LLP 227920 CF CARE CENTER Boston Children's Health Physicians LLP 133956599 LLP 129900 CLINICAL RESEARCH CENTER Brigham and Women's Hospital Inc 042312909 501C(3) 170755 PILOT STUDY Brigham and Women's Hospital Inc 042312909 501C(3) 76000 RESEARCH STUDY Brigham and Women's Hospital Inc 042312909 501C(3) 130601 TRAINING CAMC Health Education and Research Institute Inc 550753754 501C(3) 93620 CF CARE CENTER Carnegie Mellon University 250969449 501C(3) 50000 CLINICAL RESEARCH STUDY Carnegie Mellon University 250969449 501C(3) 56000 PILOT STUDY Carnegie Mellon University 250969449 501C(3) 110000 RESEARCH STUDY Case Western Reserve University 341018992 501c(3) 168000 CLINICAL RESEARCH CENTER Case Western Reserve University 341018992 501c(3) 112000 PILOT STUDY Case Western Reserve University 341018992 501c(3) 2183802 RESEARCH Case Western Reserve University 341018992 501c(3) 2022810 RESEARCH CENTER Case Western Reserve University 341018992 501c(3) 156890 RESEARCH STUDY Case Western Reserve University 341018992 501c(3) 107287 TRAINING Cedars Sinai Medical Center 951644600 501c(3) 112000 PILOT STUDY Cedars Sinai Medical Center 951644600 501c(3) 586000 RESEARCH Cedars Sinai Medical Center 951644600 501c(3) 250000 RESEARCH CENTER Cedars Sinai Medical Center 951644600 501c(3) 151000 RESEARCH STUDY Cedars Sinai Medical Center 951644600 501c(3) 224000 THERAPEUTICS DISCOVERY RESEARCH Center for Public Health Innovation 934703123 501C(3) 299118 CLINICAL CARE RESEARCH Center for Public Health Innovation 934703123 501C(3) 83009 QUALITY IMPROVEMENT Central Florida Pulmonary Group PA 591760017 C CORP 160750 CF CARE CENTER Central Florida Pulmonary Group PA 591760017 C CORP 72188 CLINICAL RESEARCH CENTER Chattanooga Hamilton County Hospital Authority 626000101 501C(3) 82670 CF CARE CENTER Children's Health Care 411754276 501c(3) 137920 CF CARE CENTER Children's Health Care 411754276 501c(3) 132508 CLINICAL RESEARCH CENTER Children's Hospital Corporation 042774441 501c(3) 1738647 ADHERENCE Children's Hospital Corporation 042774441 501c(3) 539799 CF CARE CENTER Children's Hospital Corporation 042774441 501c(3) 931134 CLINICAL RESEARCH CENTER Children's Hospital Corporation 042774441 501c(3) 716089 CLINICAL RESEARCH STUDY Children's Hospital Corporation 042774441 501c(3) 111998 QUALITY IMPROVEMENT Children's Hospital Corporation 042774441 501c(3) 436054 RESEARCH Children's Hospital Corporation 042774441 501c(3) 75000 RESEARCH STUDY Children's Hospital Corporation 042774441 501c(3) 134000 TRAINING Children's Hospital Los Angeles 951690977 501c(3) 156820 CF CARE CENTER Children's Hospital Los Angeles 951690977 501c(3) 119481 CLINICAL RESEARCH CENTER Children's Hospital Los Angeles 951690977 501c(3) 50000 CLINICAL RESEARCH STUDY Children's Hospital Los Angeles 951690977 501c(3) 298964 RESEARCH Children's Hospital Los Angeles 951690977 501c(3) 200099 TRAINING Children's Hospital Medical Center 310833936 501c(3) 33593 ADHERENCE Children's Hospital Medical Center 310833936 501c(3) 210850 CF CARE CENTER Children's Hospital Medical Center 310833936 501c(3) 352110 CLINICAL RESEARCH Children's Hospital Medical Center 310833936 501c(3) 286542 CLINICAL RESEARCH CENTER Children's Hospital Medical Center 310833936 501c(3) 317070 CLINICAL RESEARCH STUDY Children's Hospital Medical Center 310833936 501c(3) 296617 QUALITY IMPROVEMENT Children's Hospital Medical Center 310833936 501c(3) 547992 RESEARCH CENTER Children's Hospital Medical Center 310833936 501c(3) 75000 RESEARCH STUDY Children's Hospital Medical Center 310833936 501c(3) 267321 TRAINING Children's Hospital Medical Center of Akron 340714357 501c(3) 36523 ADULT CARE Children's Hospital Medical Center of Akron 340714357 501c(3) 255580 CF CARE CENTER Children's Hospital Medical Center of Akron 340714357 501c(3) 138421 CLINICAL RESEARCH CENTER Children's Hospital of Orange County 952321786 501C(3) 115980 CF CARE CENTER Children's Hospital of Orange County 952321786 501C(3) 84481 CLINICAL RESEARCH CENTER Children's Hospital of Orange County 952321786 501C(3) 56000 QUALITY IMPROVEMENT Children's Hospital of Pittsburgh Foundation 251865744 501C(3) 465730 CF CARE CENTER Children's Lung Specialists Craig Nakamura MD LTD 880271963 501C(3) 190780 CF CARE CENTER Children's Research Institute 521654453 501C(3) 189490 CF CARE CENTER Children's Research Institute 521654453 501C(3) 99568 CLINICAL RESEARCH CENTER Children's Specialty Group PLLC 541871633 LLC 192250 CF CARE CENTER Christiana Care Health Services Inc 510103684 501C(3) 43047 ADULT CARE Christiana Care Health Services Inc 510103684 501C(3) 47884 CF CARE CENTER Clemson University 576000254 501C(3) 50000 CLINICAL RESEARCH STUDY Colorado State University 846000545 IRC 115 111128 PILOT STUDY Colorado State University 846000545 IRC 115 167996 RESEARCH Connecticut Children's Medical Center 060646755 501c(3) 100905 CF CARE CENTER Cook Children's Medical Center 752051646 501c(3) 353350 CF CARE CENTER Cook Children's Medical Center 752051646 501c(3) 166732 CLINICAL RESEARCH CENTER Cook Children's Medical Center 752051646 501c(3) 84000 QUALITY IMPROVEMENT Curators of the University of Missouri 436003859 501C(3) 263588 CF CARE CENTER Curators of the University of Missouri 436003859 501C(3) 56000 PILOT STUDY Curators of the University of Missouri 436003859 501C(3) 168000 RESEARCH Curators of the University of Missouri 436003859 501C(3) 76000 RESEARCH STUDY Dartmouth-Hitchcock Clinic 222519596 501C(3) 249146 CLINICAL RESEARCH STUDY Dayton Childrens Hospital 310672132 501c(3) 220190 CF CARE CENTER Dayton Childrens Hospital 310672132 501c(3) 105963 CLINICAL RESEARCH CENTER Drexel University 231352630 501C(3) 93780 CF CARE CENTER Driscoll Children's Hospital 742577746 501C(3) 89130 CF CARE CENTER Duke University 560532129 501c(3) 42007 ADULT CARE Duke University 560532129 501c(3) 195714 CF CARE CENTER Duke University 560532129 501c(3) 773403 CLINICAL CARE RESEARCH Duke University 560532129 501c(3) 129478 CLINICAL RESEARCH STUDY Duke University 560532129 501c(3) 84803 TRAINING East Carolina University 566000403 IRC 115 43090 CF CARE CENTER East Tennessee Children's Hospital Association Inc 626002604 501C(3) 151040 CF CARE CENTER Eastern Maine Medical Center 010211501 501C(3) 65880 CF CARE CENTER Emory University 580566256 501c(3) 23519 ADHERENCE Emory University 580566256 501c(3) 613061 CF CARE CENTER Emory University 580566256 501c(3) 383813 CLINICAL CARE RESEARCH Emory University 580566256 501c(3) 283584 CLINICAL RESEARCH CENTER Emory University 580566256 501c(3) 398060 CLINICAL RESEARCH STUDY Emory University 580566256 501c(3) 207349 QUALITY IMPROVEMENT Emory University 580566256 501c(3) 1078305 RESEARCH Emory University 580566256 501c(3) 152999 RESEARCH STUDY Emory University 580566256 501c(3) 633668 THERAPEUTICS DISCOVERY RESEARCH Emory University 580566256 501c(3) 204999 TRAINING Fred Hutchinson Cancer Center 911935159 501C(3) 85000 RESEARCH STUDY Geisinger Clinic 236291113 501C(3) 258858 CF CARE CENTER Georgia Department of Public Health 900676388 GOVERNMENT ENTITY 78168 QUALITY IMPROVEMENT Georgia Tech Research Corporation 580603146 IRC 115 56000 PILOT STUDY Georgia Tech Research Corporation 580603146 IRC 115 156250 RESEARCH Georgia Tech Research Corporation 580603146 IRC 115 75000 RESEARCH STUDY Georgia Tech Research Corporation 580603146 IRC 115 425879 THERAPEUTICS DISCOVERY RESEARCH Gundersen Lutheran Medical Foundation Inc 391249705 501C(3) 63755 CF CARE CENTER Hartford Hospital 060646668 501C(3) 103730 CF CARE CENTER Health Research Inc New York State Department of Health 141402155 501C(3) 81572 QUALITY IMPROVEMENT HEALTHWELL FOUNDATION 200413676 501C(3) 3000000 Patient Assistance Henry M Jackson Foundation for the advancement of Military Medicine Inc 521317896 501C(3) 47500 CF CARE CENTER HMH Hospitals Corporation 221487576 501C(3) 124999 RESEARCH HMH Hospitals Corporation 221487576 501C(3) 200000 THERAPEUTICS DISCOVERY RESEARCH ICAHN School of Medicine at Mount Sinai 136171197 501C(3) 111929 PILOT STUDY ICAHN School of Medicine at Mount Sinai 136171197 501C(3) 335350 RESEARCH Inova Health Care Services 540620889 501C(3) 43866 ADULT CARE Inova Health Care Services 540620889 501C(3) 277570 CF CARE CENTER Inova Health Care Services 540620889 501C(3) 67536 CLINICAL RESEARCH CENTER IOM Health Systems LP 351963748 C CORP 61840 CF CARE CENTER Iowa Health Foundation 421467682 501C(3) 108260 CF CARE CENTER Jaeb Center for Health Research Foundation Inc 593187624 501C(3) 6907230 CLINICAL RESEARCH STUDY Joe DiMaggio Children's Hospital Foundation Inc 650492343 501C(3) 69943 CF CARE CENTER Joe DiMaggio Children's Hospital Foundation Inc 650492343 501C(3) 11200 CLINICAL RESEARCH CENTER Joe DiMaggio Children's Hospital Foundation Inc 650492343 501C(3) 59523 CLINICAL RESEARCH STUDY Johns Hopkins All Children's Hospital Inc 590683252 501c(3) 190990 CF CARE CENTER Johns Hopkins All Children's Hospital Inc 590683252 501c(3) 84000 QUALITY IMPROVEMENT Johns Hopkins University 520595110 501c(3) 23520 ADHERENCE Johns Hopkins University 520595110 501c(3) 55592 ADULT CARE Johns Hopkins University 520595110 501c(3) 476660 CF CARE CENTER Johns Hopkins University 520595110 501c(3) 993137 CLINICAL CARE RESEARCH Johns Hopkins University 520595110 501c(3) 245601 CLINICAL RESEARCH CENTER Johns Hopkins University 520595110 501c(3) 875850 CLINICAL RESEARCH STUDY Johns Hopkins University 520595110 501c(3) 280000 RESEARCH Johns Hopkins University 520595110 501c(3) 74996 RESEARCH STUDY Johns Hopkins University 520595110 501c(3) 1178622 THERAPEUTICS DISCOVERY RESEARCH Johns Hopkins University 520595110 501c(3) 172000 TRAINING Kaiser Foundation Research Institute a division of Kaiser Foundation Hospit als 941105628 501C(3) 545982 CF CARE CENTER Landon Pediatric Foundation 931097216 501C(3) 43710 CF CARE CENTER Lee Memorial Health System Foundation Inc 650645343 501C(3) 49520 CF CARE CENTER Lehigh Valley Hospital Inc 231689692 501C(3) 87300 CF CARE CENTER Lenox Hill Hospital 131624070 501C(3) 175820 CF CARE CENTER Lenox Hill Hospital 131624070 501C(3) 192578 CLINICAL RESEARCH CENTER Life Sciences Research Foundation 521231801 501C(3) 86240 THERAPEUTICS DISCOVERY RESEARCH Loma Linda University 951816009 501C(3) 92280 CF CARE CENTER Long Island Jewish Medical Center 112241326 501C(3) 258740 CF CARE CENTER Long Island Jewish Medical Center 112241326 501C(3) 153398 CLINICAL RESEARCH CENTER Louisiana State University Health Sciences Center 720702002 501C(3) 167170 CF CARE CENTER Loyola University Chicago 361408475 501c(3) 214760 CLINICAL CARE RESEARCH Loyola University Medical Center 364015560 501C(3) 96660 CF CARE CENTER Maine Medical Center 010238552 501c(3) 245960 CF CARE CENTER Maine Medical Center 010238552 501c(3) 138038 CLINICAL RESEARCH CENTER Marshfield Clinic Inc 390452970 501C(3) 60520 CF CARE CENTER Mary Bridge Children's Foundation 943030039 501C(3) 132805 CF CARE CENTER Massachusetts Institute of Technology 042103594 501C(3) 85000 RESEARCH STUDY Mayo Clinic 416011702 501C(3) 162460 CF CARE CENTER Mayo Clinic Jacksonville 593337028 501C(3) 104070 CF CARE CENTER Mayo Clinic Jacksonville 593337028 501C(3) 2800 CLINICAL RESEARCH STUDY Medical University of South Carolina 576000722 IRC 115 43047 ADULT CARE Medical University of South Carolina 576000722 IRC 115 236590 CF CARE CENTER Medical University of South Carolina 576000722 IRC 115 213297 CLINICAL RESEARCH CENTER Memorial Health Services 951643381 501C(3) 119267 CLINICAL RESEARCH CENTER Memorial Medical Center Foundation 956105984 501C(3) 209100 CF CARE CENTER MH Mission Hospital LLLP 832048706 LLP 55010 CF CARE CENTER Middle East Cystic Fibrosis Association 851096028 170(B)(1)(A)(VI) 74895 QUALITY IMPROVEMENT Monmouth Medical Center Foundation 222456079 501C(3) 153800 CF CARE CENTER National Disease Research Interchange 232213205 501C(3) 246727 THERAPEUTICS DISCOVERY RESEARCH National Jewish Health 742044647 501c(3) 23520 ADHERENCE National Jewish Health 742044647 501c(3) 468421 CF CARE CENTER National Jewish Health 742044647 501c(3) 392074 CLINICAL RESEARCH National Jewish Health 742044647 501c(3) 618968 CLINICAL RESEARCH CENTER National Jewish Health 742044647 501c(3) 1170525 CLINICAL RESEARCH STUDY National Jewish Health 742044647 501c(3) 111627 PILOT STUDY National Jewish Health 742044647 501c(3) 155970 RESEARCH National Jewish Health 742044647 501c(3) 76000 RESEARCH STUDY New York University 135562308 501C(3) 132940 CF CARE CENTER New York University 135562308 501C(3) 168000 RESEARCH North Suburban Pulmonary and Critical Care Consultants SC 364393017 C CORP 45720 CF CARE CENTER Northwestern University 362167817 501c(3) 63881 ADHERENCE Northwestern University 362167817 501c(3) 150460 CF CARE CENTER Northwestern University 362167817 501c(3) 94759 CLINICAL RESEARCH CENTER Northwestern University 362167817 501c(3) 138751 CLINICAL RESEARCH STUDY Northwestern University 362167817 501c(3) 101500 TRAINING Oklahoma State University 731383996 501C(3) 18118 ADHERENCE Oregon Health & Science University 931176109 501c(3) 110272 ADULT CARE Oregon Health & Science University 931176109 501c(3) 408894 CF CARE CENTER Oregon Health & Science University 931176109 501c(3) 249318 CLINICAL RESEARCH CENTER Oregon Health & Science University 931176109 501c(3) 154555 QUALITY IMPROVEMENT Oregon State University 611730890 IRC 115 56000 PILOT STUDY Oregon State University 611730890 IRC 115 168000 RESEARCH Oregon State University 611730890 IRC 115 74995 RESEARCH STUDY Orlando Health Foundation Inc 592244943 501C(3) 108420 CF CARE CENTER Parkview Hospital Inc 350868085 501C(3) 55400 CF CARE CENTER Pensacola Lung Group MDs PA 592313481 501C(3) 72500 CF CARE CENTER Phoenix Children's Hospital Foundation 742421549 501C(3) 412480 CF CARE CENTER Phoenix Children's Hospital Foundation 742421549 501C(3) 110611 CLINICAL RESEARCH CENTER Prisma Health - Upstate 811723202 501C(3) 46005 ADULT CARE Prisma Health - Upstate 811723202 501C(3) 158850 CF CARE CENTER Prisma HealthMidlands 582296052 501C(3) 158830 CF CARE CENTER Providence Health & Services - Washington 510216586 501C(3) 297610 CF CARE CENTER Providence Health & Services - Washington 510216586 501C(3) 132179 CLINICAL RESEARCH CENTER Regents of the University of California at Irvine 952226406 501C(3) 77000 RESEARCH STUDY Regents of the University of California Davis 946036494 501c(3) 190040 CF CARE CENTER Regents of the University of California Davis 946036494 501c(3) 81410 CLINICAL RESEARCH CENTER Regents of the University of California San Diego 956006144 501c(3) 46079 ADULT CARE Regents of the University of California San Diego 956006144 501c(3) 445006 CF CARE CENTER Regents of the University of California San Diego 956006144 501c(3) 169790 CLINICAL RESEARCH CENTER Regents of the University of California San Diego 956006144 501c(3) 168000 CLINICAL RESEARCH STUDY Regents of the University of California San Diego 956006144 501c(3) 75995 RESEARCH STUDY Regents of the University of Michigan 386006309 501c(3) 23520 ADHERENCE Regents of the University of Michigan 386006309 501c(3) 101408 ADULT CARE Regents of the University of Michigan 386006309 501c(3) 484600 CF CARE CENTER Regents of the University of Michigan 386006309 501c(3) 237977 CLINICAL RESEARCH CENTER Regents of the University of Michigan 386006309 501c(3) 450390 CLINICAL RESEARCH STUDY Regents of the University of Michigan 386006309 501c(3) 112000 PILOT STUDY Regents of the University of Michigan 386006309 501c(3) 186000 QUALITY IMPROVEMENT Regents of the University of Michigan 386006309 501c(3) 1215200 RESEARCH Regents of the University of Michigan 386006309 501c(3) 250000 RESEARCH CENTER Regents of the University of Michigan 386006309 501c(3) 109997 RESEARCH STUDY Regents of the University of Michigan 386006309 501c(3) 83600 TRAINING Regents of the University of Minnesota 416007513 IRC 115 34865 ADHERENCE Regents of the University of Minnesota 416007513 IRC 115 59429 ADULT CARE Regents of the University of Minnesota 416007513 IRC 115 536117 CF CARE CENTER Regents of the University of Minnesota 416007513 IRC 115 84117 CLINICAL RESEARCH Regents of the University of Minnesota 416007513 IRC 115 295163 CLINICAL RESEARCH CENTER Regents of the University of Minnesota 416007513 IRC 115 51376 QUALITY IMPROVEMENT Regents of the University of Minnesota 416007513 IRC 115 133998 TRAINING Renown Health Foundation 942972749 501C(3) 65450 CF CARE CENTER Rhode Island Hospital 050258954 501C(3) 51740 ADULT CARE Rhode Island Hospital 050258954 501C(3) 181659 CF CARE CENTER Rhode Island Hospital 050258954 501C(3) 130795 RESEARCH Rush University Medical Center 362174823 501C(3) 155279 CF CARE CENTER Rutgers The State University of New Jersey 226001086 501C(3) 36960 ADULT CARE Rutgers The State University of New Jersey 226001086 501C(3) 177600 CF CARE CENTER Rutgers The State University of New Jersey 226001086 501C(3) 98291 CLINICAL RESEARCH CENTER Rutgers The State University of New Jersey 226001086 501C(3) 168000 RESEARCH RWJ Barnabas Health Inc 221494440 501C(3) 35300 ADULT CARE RWJ Barnabas Health Inc 221494440 501C(3) 59620 CF CARE CENTER Saint Francis Medical Center 370662569 501c(3) 169330 CF CARE CENTER Sanford Clinic 460447693 501c(3) 190050 CF CARE CENTER Sanford Medical Center Fargo 450226909 501C(3) 57620 CF CARE CENTER Santa Barbara Cottage Hospital 951644629 501C(3) 98080 CF CARE CENTER Seattle Children's Hospital 910564748 501c(3) 18450 ADHERENCE Seattle Children's Hospital 910564748 501c(3) 182800 CF CARE CENTER Seattle Children's Hospital 910564748 501c(3) 5459200 CLINICAL RESEARCH Seattle Children's Hospital 910564748 501c(3) 10180397 CLINICAL RESEARCH CENTER Seattle Children's Hospital 910564748 501c(3) 12893328 CLINICAL RESEARCH STUDY Seattle Children's Hospital 910564748 501c(3) 56000 QUALITY IMPROVEMENT Seattle Children's Hospital 910564748 501c(3) 52449 RESEARCH Seattle Children's Hospital 910564748 501c(3) 97729 TRAINING South Broward Hospital District 596014973 501C(3) 216850 CF CARE CENTER Spectrum Health Foundation 382752328 501c(3) 387397 CF CARE CENTER Spectrum Health Foundation 382752328 501c(3) 182986 CLINICAL RESEARCH CENTER Spectrum Health Foundation 382752328 501c(3) 50848 QUALITY IMPROVEMENT St Alexius Medical Center 450226711 501C(3) 37270 CF CARE CENTER St Joseph's Hospital and Medical Center 221487602 501C(3) 49810 CF CARE CENTER St Jude Children's Research Hospital Inc 620646012 501C(3) 84000 RESEARCH STUDY St Jude Children's Research Hospital Inc 620646012 501C(3) 337598 THERAPEUTICS DISCOVERY RESEARCH St Louis University 430654872 501c(3) 214370 CF CARE CENTER St Louis University 430654872 501c(3) 98007 CLINICAL RESEARCH CENTER St Louis University 430654872 501c(3) 966263 CLINICAL RESEARCH STUDY St Luke's Regional Medical Center LTD 820161600 501c(3) 205240 CF CARE CENTER St Luke's Regional Medical Center LTD 820161600 501c(3) 142557 CLINICAL RESEARCH CENTER St Vincent Hospital of the Hospital Sisters of the Third Order of St Franci s 390817529 501C(3) 167360 CF CARE CENTER Stanford Health Care 946174066 501C(3) 63333 CF CARE CENTER State of Maryland University of Maryland - College ParkBaltimore 526002033 IRC 115 56000 PILOT STUDY State of Maryland University of Maryland - College ParkBaltimore 526002033 IRC 115 78158 QUALITY IMPROVEMENT State of Maryland University of Maryland - College ParkBaltimore 526002033 IRC 115 489004 RESEARCH State of Mississippi - University of Mississippi Medical Center 646008520 501C(3) 204930 CF CARE CENTER State University of Iowa 426004813 IRC 115 287125 CF CARE CENTER State University of Iowa 426004813 IRC 115 139157 CLINICAL RESEARCH CENTER State University of Iowa 426004813 IRC 115 422230 CLINICAL RESEARCH STUDY State University of Iowa 426004813 IRC 115 110619 PILOT STUDY State University of Iowa 426004813 IRC 115 955934 RESEARCH State University of Iowa 426004813 IRC 115 900000 RESEARCH CENTER State University of Iowa 426004813 IRC 115 2053746 THERAPEUTICS DISCOVERY RESEARCH State University of Iowa 426004813 IRC 115 7730 TRAINING Sutter Bay Hospitals 940562680 501C(3) 51470 CF CARE CENTER Sutter Medical Center Sacramento 941156621 501C(3) 174088 CF CARE CENTER Texas A&M AgriLife Research 746000541 501C(3) 168000 RESEARCH Texas Tech University Health Sciences Center 752668014 IRC 115 74660 CF CARE CENTER The Administrators of the Tulane Educational Fund 720423889 501C(3) 240750 CF CARE CENTER The Administrators of the Tulane Educational Fund 720423889 501C(3) 113780 CLINICAL RESEARCH CENTER The Administrators of the Tulane Educational Fund 720423889 501C(3) 273966 RESEARCH The American Society of Gene Cell Therapy 911766321 C CORP 100000 THERAPEUTICS DISCOVERY RESEARCH The Board of Trustees of the University of Arkansas acting for and behalf o f the University of Arkansas for Medical Sciences 716046242 IRC 115 244272 CF CARE CENTER The Board of Trustees of the University of Arkansas acting for and behalf o f the University of Arkansas for Medical Sciences 716046242 IRC 115 165529 CLINICAL RESEARCH CENTER The Carle Foundation 371119538 501C(3) 67050 CF CARE CENTER The Charlotte-Mecklenburg Hospital Authority 560529945 501C(3) 184838 CLINICAL RESEARCH STUDY The Children's Hospital of Philadelphia 231352166 501c(3) 53794 ADULT CARE The Children's Hospital of Philadelphia 231352166 501c(3) 215780 CF CARE CENTER The Children's Hospital of Philadelphia 231352166 501c(3) 248108 CLINICAL RESEARCH The Children's Hospital of Philadelphia 231352166 501c(3) 246986 CLINICAL RESEARCH CENTER The Children's Hospital of Philadelphia 231352166 501c(3) 588374 CLINICAL RESEARCH STUDY The Children's Hospital of Philadelphia 231352166 501c(3) 169446 QUALITY IMPROVEMENT The Children's Hospital of Philadelphia 231352166 501c(3) 75999 RESEARCH STUDY The Children's Hospital of Philadelphia 231352166 501c(3) 314265 TRAINING The Children's Mercy Hospital 440605373 501c(3) 191710 CF CARE CENTER The Children's Mercy Hospital 440605373 501c(3) 168921 CLINICAL RESEARCH CENTER The Cleveland Clinic Foundation 340714585 501c(3) 60480 ADULT CARE The Cleveland Clinic Foundation 340714585 501c(3) 185285 CF CARE CENTER The Cleveland Clinic Foundation 340714585 501c(3) 1050149 CLINICAL CARE RESEARCH The Cleveland Clinic Foundation 340714585 501c(3) 90824 CLINICAL RESEARCH CENTER The Cleveland Clinic Foundation 340714585 501c(3) 50000 CLINICAL RESEARCH STUDY The Cleveland Clinic Foundation 340714585 501c(3) 28170 QUALITY IMPROVEMENT The Cleveland Clinic Foundation 340714585 501c(3) 168000 RESEARCH The Feinstein Institutes for Medical Research 112673595 501c(3) 51083 ADULT CARE The General Hospital Corporation 042697983 501c(3) 272130 CF CARE CENTER The General Hospital Corporation 042697983 501c(3) 536392 CLINICAL CARE RESEARCH The General Hospital Corporation 042697983 501c(3) 626133 CLINICAL RESEARCH The General Hospital Corporation 042697983 501c(3) 265735 CLINICAL RESEARCH CENTER The General Hospital Corporation 042697983 501c(3) 556578 CLINICAL RESEARCH STUDY The General Hospital Corporation 042697983 501c(3) 129999 RESEARCH The General Hospital Corporation 042697983 501c(3) 138000 TRAINING The Hitchcock Foundation 020222139 501c(3) 311878 CF CARE CENTER The Hitchcock Foundation 020222139 501c(3) 152373 CLINICAL RESEARCH CENTER The Medical College of Wisconsin Inc 390806261 501c(3) 407218 CF CARE CENTER The Medical College of Wisconsin Inc 390806261 501c(3) 140474 CLINICAL RESEARCH CENTER The Medical College of Wisconsin Inc 390806261 501c(3) 51679 QUALITY IMPROVEMENT The Medical College of Wisconsin Inc 390806261 501c(3) 202791 TRAINING The Nemours Foundation 590634433 501c(3) 23128 ADHERENCE The Nemours Foundation 590634433 501c(3) 448060 CF CARE CENTER The Nemours Foundation 590634433 501c(3) 84132 CLINICAL RESEARCH CENTER The Nemours Foundation 590634433 501c(3) 71520 QUALITY IMPROVEMENT The Ohio State University 316025986 IRC 115 36929 ADULT CARE The Ohio State University 316025986 IRC 115 492280 RESEARCH The Ohio State University 316025986 IRC 115 99146 TRAINING The Pennsylvania State University 246000376 IRC 115 234570 CF CARE CENTER The Pennsylvania State University 246000376 IRC 115 100736 CLINICAL RESEARCH CENTER The Rector and Visitors of the University of Virginia 546001796 501c(3) 299830 CF CARE CENTER The Rector and Visitors of the University of Virginia 546001796 501c(3) 155090 CLINICAL RESEARCH CENTER The Rector and Visitors of the University of Virginia 546001796 501c(3) 318437 CLINICAL RESEARCH STUDY The Rector and Visitors of the University of Virginia 546001796 501c(3) 508351 QUALITY IMPROVEMENT The Regents of the University of California Los Angeles 956006143 501C(3) 141654 ADULT CARE The Regents of the University of California Los Angeles 956006143 501C(3) 298153 CF CARE CENTER The Regents of the University of California Los Angeles 956006143 501C(3) 444869 CLINICAL CARE RESEARCH The Regents of the University of California Los Angeles 956006143 501C(3) 96000 CLINICAL RESEARCH The Regents of the University of California Los Angeles 956006143 501C(3) 58206 CLINICAL RESEARCH CENTER The Regents of the University of California Los Angeles 956006143 501C(3) 144944 CLINICAL RESEARCH STUDY The Regents of the University of California Los Angeles 956006143 501C(3) 1117717 RESEARCH The Regents of the University of California Los Angeles 956006143 501C(3) 224000 THERAPEUTICS DISCOVERY RESEARCH The Regents of the University of California Los Angeles 956006143 501C(3) 10000 TRAINING The Regents of the University of California San Francisco 946036493 501c(3) 46079 ADULT CARE The Regents of the University of California San Francisco 946036493 501c(3) 406092 CF CARE CENTER The Regents of the University of California San Francisco 946036493 501c(3) 710753 CLINICAL CARE RESEARCH The Regents of the University of California San Francisco 946036493 501c(3) 155878 CLINICAL RESEARCH CENTER The Regents of the University of California San Francisco 946036493 501c(3) 233000 RESEARCH The Regents of the University of California San Francisco 946036493 501c(3) 341000 TRAINING The Regents of the University of Colorado 846000555 501c(3) 23383 ADHERENCE The Regents of the University of Colorado 846000555 501c(3) 35237 ADULT CARE The Regents of the University of Colorado 846000555 501c(3) 332628 CF CARE CENTER The Regents of the University of Colorado 846000555 501c(3) 84184 CLINICAL CARE RESEARCH The Regents of the University of Colorado 846000555 501c(3) 570397 CLINICAL RESEARCH The Regents of the University of Colorado 846000555 501c(3) 662964 CLINICAL RESEARCH CENTER The Regents of the University of Colorado 846000555 501c(3) 447422 CLINICAL RESEARCH STUDY The Regents of the University of Colorado 846000555 501c(3) 159000 RESEARCH The Regents of the University of Colorado 846000555 501c(3) 76000 RESEARCH STUDY The Regents of the University of Colorado 846000555 501c(3) 584109 TRAINING The Research Foundation for State University of New York 141368361 501c(3) 20761 ADHERENCE The Research Foundation for State University of New York 141368361 501c(3) 46079 ADULT CARE The Research Foundation for State University of New York 141368361 501c(3) 538995 CF CARE CENTER The Research Foundation for State University of New York 141368361 501c(3) 124813 CLINICAL RESEARCH CENTER The Research Foundation for State University of New York 141368361 501c(3) 761029 CLINICAL RESEARCH STUDY The Research Foundation for State University of New York 141368361 501c(3) 84000 QUALITY IMPROVEMENT The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 87499 ADULT CARE The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 452700 CF CARE CENTER The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 205134 CLINICAL RESEARCH CENTER The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 50000 CLINICAL RESEARCH STUDY The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 84000 QUALITY IMPROVEMENT The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 285631 RESEARCH The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 650000 RESEARCH CENTER The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 419978 THERAPEUTICS DISCOVERY RESEARCH The Research Institute at Nationwide Children's Hospital 316056230 501c(3) 134000 TRAINING The Tampa General Hospital Foundation 237354477 501C(3) 232690 CF CARE CENTER The Toledo Hospital 344428256 501c(3) 188152 CF CARE CENTER The Toledo Hospital 344428256 501c(3) 104000 CLINICAL RESEARCH CENTER The Trustees of Columbia University in the City of New York 135598093 501c(3) 58648 ADULT CARE The Trustees of Columbia University in the City of New York 135598093 501c(3) 390492 CF CARE CENTER The Trustees of Columbia University in the City of New York 135598093 501c(3) 271068 CLINICAL CARE RESEARCH The Trustees of Columbia University in the City of New York 135598093 501c(3) 259160 CLINICAL RESEARCH CENTER The Trustees of Columbia University in the City of New York 135598093 501c(3) 196000 QUALITY IMPROVEMENT The Trustees of Columbia University in the City of New York 135598093 501c(3) 1202973 RESEARCH The Trustees of Columbia University in the City of New York 135598093 501c(3) 1415822 THERAPEUTICS DISCOVERY RESEARCH The Trustees of Columbia University in the City of New York 135598093 501c(3) 201000 TRAINING The University of Arizona 742652689 IRC 115 23520 ADHERENCE The University of Arizona 742652689 IRC 115 40376 ADULT CARE The University of Arizona 742652689 IRC 115 198750 CF CARE CENTER The University of Arizona 742652689 IRC 115 265689 CLINICAL RESEARCH CENTER The University of Arizona 742652689 IRC 115 450232 CLINICAL RESEARCH STUDY The University of Chicago 362177139 501C(3) 127050 CF CARE CENTER The University of Tennessee 626001636 IRC 115 251779 CF CARE CENTER The University of Tennessee 626001636 IRC 115 55168 RESEARCH The University of Texas Health Science Center at Houston 741761309 IRC 115 125000 RESEARCH The University of Texas Health Science Center at San Antonio 741586031 501C(3) 81706 ADULT CARE The University of Texas Health Science Center at San Antonio 741586031 501C(3) 248150 CF CARE CENTER The University of Texas Health Science Center at San Antonio 741586031 501C(3) 74480 CLINICAL RESEARCH CENTER The University of Texas Health Science Center at San Antonio 741586031 501C(3) 129411 RESEARCH The University of Texas Southwestern Medical Center 756002868 IRC 115 23262 ADHERENCE The University of Texas Southwestern Medical Center 756002868 IRC 115 574800 CF CARE CENTER The University of Texas Southwestern Medical Center 756002868 IRC 115 403941 CLINICAL RESEARCH CENTER The University of Texas Southwestern Medical Center 756002868 IRC 115 125395 CLINICAL RESEARCH STUDY The University of Texas Southwestern Medical Center 756002868 IRC 115 304567 QUALITY IMPROVEMENT The University of Texas Southwestern Medical Center 756002868 IRC 115 135990 TRAINING The University of Vermont and State Agricultural College 030179440 501c(3) 174669 CLINICAL RESEARCH CENTER The University of Vermont and State Agricultural College 030179440 501c(3) 168000 RESEARCH The University of Vermont Medical Center Inc 030219309 501C(3) 15635 ADHERENCE The University of Vermont Medical Center Inc 030219309 501C(3) 60480 ADULT CARE The University of Vermont Medical Center Inc 030219309 501C(3) 193020 CF CARE CENTER Thomas Jefferson University 231352651 501C(3) 43046 ADULT CARE Thomas Jefferson University 231352651 501C(3) 100690 CF CARE CENTER Trustees of Boston University 042103547 501C(3) 130000 RESEARCH Trustees of Dartmouth College 020222111 501c(3) 416694 CLINICAL RESEARCH STUDY Trustees of Dartmouth College 020222111 501c(3) 56000 PILOT STUDY Trustees of Dartmouth College 020222111 501c(3) 1026711 RESEARCH Trustees of Dartmouth College 020222111 501c(3) 939998 RESEARCH CENTER Trustees of Dartmouth College 020222111 501c(3) 77000 RESEARCH STUDY Trustees of Indiana University 356001673 501c(3) 42778 ADULT CARE Trustees of Indiana University 356001673 501c(3) 678111 CF CARE CENTER Trustees of Indiana University 356001673 501c(3) 400493 CLINICAL RESEARCH CENTER Trustees of Indiana University 356001673 501c(3) 4014448 CLINICAL RESEARCH STUDY Trustees of Indiana University 356001673 501c(3) 56000 PILOT STUDY Trustees of Indiana University 356001673 501c(3) 160061 QUALITY IMPROVEMENT Trustees of Indiana University 356001673 501c(3) 110000 RESEARCH STUDY Trustees of Indiana University 356001673 501c(3) 267992 TRAINING Trustees of the University of Pennsylvania 231352685 501c(3) 60477 ADULT CARE Trustees of the University of Pennsylvania 231352685 501c(3) 361925 CF CARE CENTER Trustees of the University of Pennsylvania 231352685 501c(3) 127512 CLINICAL CARE RESEARCH Trustees of the University of Pennsylvania 231352685 501c(3) 98575 CLINICAL RESEARCH CENTER Trustees of the University of Pennsylvania 231352685 501c(3) 392098 CLINICAL RESEARCH STUDY Trustees of the University of Pennsylvania 231352685 501c(3) 56000 PILOT STUDY Trustees of the University of Pennsylvania 231352685 501c(3) 168000 RESEARCH Trustees of the University of Pennsylvania 231352685 501c(3) 4000 TRAINING University at Buffalo Pediatric Associates 161238821 501c(3) 205850 CF CARE CENTER University at Buffalo Pediatric Associates 161238821 501c(3) 83998 QUALITY IMPROVEMENT University Health System Inc 311626179 501C(3) 166210 CF CARE CENTER University Hospitals Cleveland Medical Center 341567805 501c(3) 44006 ADULT CARE University Hospitals Cleveland Medical Center 341567805 501c(3) 356960 CF CARE CENTER University Hospitals Cleveland Medical Center 341567805 501c(3) 199358 CLINICAL RESEARCH CENTER University Hospitals Cleveland Medical Center 341567805 501c(3) 115589 CLINICAL RESEARCH STUDY University Hospitals Cleveland Medical Center 341567805 501c(3) 83982 QUALITY IMPROVEMENT University of Alabama at Birmingham 636005396 501c(3) 23520 ADHERENCE University of Alabama at Birmingham 636005396 501c(3) 73187 ADULT CARE University of Alabama at Birmingham 636005396 501c(3) 478301 CF CARE CENTER University of Alabama at Birmingham 636005396 501c(3) 90047 CLINICAL RESEARCH University of Alabama at Birmingham 636005396 501c(3) 664412 CLINICAL RESEARCH CENTER University of Alabama at Birmingham 636005396 501c(3) 755978 CLINICAL RESEARCH STUDY University of Alabama at Birmingham 636005396 501c(3) 49622 PILOT STUDY University of Alabama at Birmingham 636005396 501c(3) 838749 QUALITY IMPROVEMENT University of Alabama at Birmingham 636005396 501c(3) 2962497 RESEARCH University of Alabama at Birmingham 636005396 501c(3) 815000 RESEARCH CENTER University of Alabama at Birmingham 636005396 501c(3) 110000 RESEARCH STUDY University of Alabama at Birmingham 636005396 501c(3) 1671124 THERAPEUTICS DISCOVERY RESEARCH University of Alabama at Birmingham 636005396 501c(3) 167000 TRAINING University of Cincinnati 316000989 501C(3) 43047 ADULT CARE University of Cincinnati 316000989 501C(3) 146041 CF CARE CENTER University of Cincinnati 316000989 501C(3) 75741 CLINICAL RESEARCH CENTER University of Cincinnati 316000989 501C(3) 55960 QUALITY IMPROVEMENT University of Cincinnati 316000989 501C(3) 163263 RESEARCH University of Connecticut Health Center 521725543 501C(3) 164371 RESEARCH University of Florida 596002052 IRC 115 53823 ADULT CARE University of Florida 596002052 IRC 115 289602 CF CARE CENTER University of Florida 596002052 IRC 115 214387 CLINICAL RESEARCH CENTER University of Georgia Research Foundation Inc 581353149 501C(3) 192640 RESEARCH University of Kansas Medical Center Research Institute Inc 481108830 501C(3) 26654 ADHERENCE University of Kansas Medical Center Research Institute Inc 481108830 501C(3) 302890 CF CARE CENTER University of Kansas Medical Center Research Institute Inc 481108830 501C(3) 168615 CLINICAL RESEARCH CENTER University of Kansas Medical Center Research Institute Inc 481108830 501C(3) 50000 CLINICAL RESEARCH STUDY University of Kansas Medical Center Research Institute Inc 481108830 501C(3) 56000 PILOT STUDY University of Kansas Medical Center Research Institute Inc 481108830 501C(3) 287109 RESEARCH University of Kansas Medical Center Research Institute Inc 481108830 501C(3) 75600 TRAINING University of Kentucky Research Foundation 616033693 501C(3) 334600 CF CARE CENTER University of Kentucky Research Foundation 616033693 501C(3) 137600 CLINICAL RESEARCH CENTER University of Kentucky Research Foundation 616033693 501C(3) 163024 CLINICAL RESEARCH STUDY University of Louisville Research Foundation Inc 611029626 501C(3) 317846 CF CARE CENTER University of Louisville Research Foundation Inc 611029626 501C(3) 55827 PILOT STUDY University of Massachusetts 043167352 IRC 115 46078 ADULT CARE University of Massachusetts 043167352 IRC 115 162990 CF CARE CENTER University of Massachusetts 043167352 IRC 115 97003 CLINICAL RESEARCH CENTER University of Miami 590624458 501c(3) 30369 ADULT CARE University of Miami 590624458 501c(3) 217429 CF CARE CENTER University of Miami 590624458 501c(3) 224056 CLINICAL RESEARCH CENTER University of New Mexico 856000642 IRC 115 317600 CF CARE CENTER University of North Carolina at Chapel Hill 566001393 501c(3) 43047 ADULT CARE University of North Carolina at Chapel Hill 566001393 501c(3) 574348 CF CARE CENTER University of North Carolina at Chapel Hill 566001393 501c(3) 105280 CLINICAL RESEARCH University of North Carolina at Chapel Hill 566001393 501c(3) 969087 CLINICAL RESEARCH CENTER University of North Carolina at Chapel Hill 566001393 501c(3) 526225 CLINICAL RESEARCH STUDY University of North Carolina at Chapel Hill 566001393 501c(3) 56000 PILOT STUDY University of North Carolina at Chapel Hill 566001393 501c(3) 172835 QUALITY IMPROVEMENT University of North Carolina at Chapel Hill 566001393 501c(3) 1044102 RESEARCH University of North Carolina at Chapel Hill 566001393 501c(3) 900000 RESEARCH CENTER University of North Carolina at Chapel Hill 566001393 501c(3) 377000 RESEARCH STUDY University of North Carolina at Chapel Hill 566001393 501c(3) 1258183 THERAPEUTICS DISCOVERY RESEARCH University of North Carolina at Chapel Hill 566001393 501c(3) 316500 TRAINING University of Pittsburgh 250965591 501c(3) 19612 ADHERENCE University of Pittsburgh 250965591 501c(3) 57731 CLINICAL CARE RESEARCH University of Pittsburgh 250965591 501c(3) 397920 CLINICAL RESEARCH CENTER University of Pittsburgh 250965591 501c(3) 583738 CLINICAL RESEARCH STUDY University of Pittsburgh 250965591 501c(3) 111879 PILOT STUDY University of Pittsburgh 250965591 501c(3) 144821 RESEARCH University of Pittsburgh 250965591 501c(3) 109036 RESEARCH CENTER University of Pittsburgh 250965591 501c(3) 148000 TRAINING University of Rochester 160743209 501c(3) 46079 ADULT CARE University of Rochester 160743209 501c(3) 205810 CF CARE CENTER University of Rochester 160743209 501c(3) 83428 CLINICAL RESEARCH CENTER University of Rochester 160743209 501c(3) 55682 PILOT STUDY University of South Alabama 630477348 501C(3) 76000 RESEARCH STUDY University of South Florida 593102112 IRC 115 77440 CF CARE CENTER University of South Florida 593102112 IRC 115 59497 RESEARCH University of South Florida 593102112 IRC 115 4000 TRAINING University of Southern California 951642394 501c(3) 197187 CF CARE CENTER University of Southern California 951642394 501c(3) 53911 CLINICAL RESEARCH CENTER University of Southern California 951642394 501c(3) 163995 RESEARCH University of Texas Health Science Center at Tyler 756001354 501C(3) 88560 CF CARE CENTER University of Texas Health Science Center at Tyler 756001354 501C(3) 18739 CLINICAL RESEARCH CENTER University of Texas Health Science Center at Tyler 756001354 501C(3) 149999 RESEARCH University of Texas MD Anderson Cancer Center 746001118 IRC 115 125000 RESEARCH University of Utah 876000525 501c(3) 60480 ADULT CARE University of Utah 876000525 501c(3) 648411 CF CARE CENTER University of Utah 876000525 501c(3) 209221 CLINICAL RESEARCH CENTER University of Utah 876000525 501c(3) 56000 QUALITY IMPROVEMENT University of Utah 876000525 501c(3) 67000 TRAINING University of Washington 916001537 IRC 115 243970 CF CARE CENTER University of Washington 916001537 IRC 115 414043 CLINICAL CARE RESEARCH University of Washington 916001537 IRC 115 1709639 CLINICAL RESEARCH University of Washington 916001537 IRC 115 477035 CLINICAL RESEARCH CENTER University of Washington 916001537 IRC 115 2155537 CLINICAL RESEARCH STUDY University of Washington 916001537 IRC 115 55592 PILOT STUDY University of Washington 916001537 IRC 115 374000 RESEARCH University of Washington 916001537 IRC 115 900000 RESEARCH CENTER University of Washington 916001537 IRC 115 304000 RESEARCH STUDY University of Washington 916001537 IRC 115 23906 THERAPEUTICS DISCOVERY RESEARCH University of Washington 916001537 IRC 115 184100 TRAINING University Psychiatric Practice Inc 161426208 501C(3) 26888 CF CARE CENTER University System of New Hampshire 026000937 501C(3) 46000 QUALITY IMPROVEMENT Utah State University 876000528 501c(3) 124981 RESEARCH Valley Children's Hospital 941294954 501C(3) 117300 CF CARE CENTER Vanderbilt University Medical Center 352528741 501c(3) 55691 ADULT CARE Vanderbilt University Medical Center 352528741 501c(3) 415748 CF CARE CENTER Vanderbilt University Medical Center 352528741 501c(3) 163621 CLINICAL RESEARCH CENTER Vanderbilt University Medical Center 352528741 501c(3) 112000 QUALITY IMPROVEMENT Variety Children's Hospital 590638499 501C(3) 60120 CF CARE CENTER VHS Children's Hospital of Michigan Inc 272845064 C CORP 107400 CF CARE CENTER Via Christi Hospitals Wichita Inc 481172106 501C(3) 155340 CF CARE CENTER Virginia Commonwealth University 546001758 IRC 115 23520 ADHERENCE Virginia Commonwealth University 546001758 IRC 115 337871 CF CARE CENTER Virginia Commonwealth University 546001758 IRC 115 107087 CLINICAL RESEARCH CENTER Virginia Commonwealth University 546001758 IRC 115 111998 QUALITY IMPROVEMENT Virginia Polytechnic Institute and State University 546001805 501C(3) 166921 RESEARCH Wake Forest University Health Sciences 223849199 501c(3) 43047 ADULT CARE Wake Forest University Health Sciences 223849199 501c(3) 175612 CF CARE CENTER Wake Forest University Health Sciences 223849199 501c(3) 135817 CLINICAL RESEARCH CENTER Warren Clinic Inc 731310891 501C(3) 123110 CF CARE CENTER WASHINGTON HOSPITAL CENTER CORPORATION 521272129 501C(3) 43047 ADULT CARE Washington University 430653611 501c(3) 506972 CF CARE CENTER Washington University 430653611 501c(3) 441996 CLINICAL CARE RESEARCH Washington University 430653611 501c(3) 254010 CLINICAL RESEARCH CENTER Washington University 430653611 501c(3) 596645 CLINICAL RESEARCH STUDY Washington University 430653611 501c(3) 250000 RESEARCH CENTER Washington University 430653611 501c(3) 865569 THERAPEUTICS DISCOVERY RESEARCH Wayne State University 386028429 501c(3) 110810 CF CARE CENTER Wayne State University 386028429 501c(3) 140496 CLINICAL RESEARCH CENTER Weill Medical College of Cornell University 131623978 501C(3) 245582 TRAINING West Virginia University Research Corporation 550665758 501C(3) 201530 CF CARE CENTER West Virginia University Research Corporation 550665758 501C(3) 76942 CLINICAL RESEARCH CENTER West Virginia University Research Corporation 550665758 501C(3) 220218 CLINICAL RESEARCH STUDY Western Michigan University School of Medicine 454135256 501C(3) 40917 CF CARE CENTER Yale University 060646973 501c(3) 77534 ADULT CARE Yale University 060646973 501c(3) 229630 CF CARE CENTER Yale University 060646973 501c(3) 111981 PILOT STUDY Yale University 060646973 501c(3) 335930 RESEARCH Yale University 060646973 501c(3) 75000 RESEARCH STUDY Yale University 060646973 501c(3) 109000 TRAINING ZEPHYRX LLC 842846558 LLC 95534 CF CARE CENTER 215 9 FELLOWSHIPS 69 580008 COMMUNITY IMPACT 7 68903 Schedule I, Part III SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds THE CF FOUNDATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE CF FOUNDATION'S SCIENTIFIC STAFF TO ASSESS RESEARCH PROGRESS and grants management staff review financial reports to ensure funders were used as intended. THE FINAL GRANT PAYMENT IS TYPICALLY CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. In addition, the CF Foundation awards scientific research grants to an academic institution and its affiliate where a key employee also performs part-time cystic fibrosis research. The CF Foundation, the institution, and the individual have established and agreed upon appropriate safeguards to manage potential conflicts of interest, while enabling this mission-critical research to continue. X X X X X X false true false true false false false true false MICHAEL P BOYLE MD PRESIDENT & CEO 721173 0 311579 0 21636 0 163962 0 56801 0 1275151 0 110514 0 IRENA BARISIC EVP & CHIEF OPERATING & FINANCIAL OFFICER 610580 0 150219 0 1140 0 80370 0 2246 0 844555 0 0 0 MICHAEL B CAVADEL SVP, CHIEF LEGAL OFFICER 470090 0 86964 0 1081 0 65989 0 37073 0 661197 0 0 0 STEVEn ROWE MD EVP, Chief Scientific Officer 438558 0 93679 0 2418 0 78210 0 54341 0 667206 0 0 0 JOHN C MAHLER JR MD CHIEF INVESTMENT OFFICER 766301 0 1091398 0 9169 0 34656 0 41103 0 1942627 0 0 0 BRUCE MARSHALL MD Chief Medical Officer Ending 7/1/2024 359859 0 150051 0 5562 0 34656 0 0 0 550128 0 39825 0 JOHN P CLANCY MD SVP, CLINICAL RESEARCH 523667 0 138635 0 7524 0 41817 0 53561 0 765204 0 33111 0 ALBERT FARO MD Chief Medical Officer Beg. 7/1/2024 480427 0 83943 0 7302 0 37474 0 62444 0 671590 0 14536 0 EARL A LEE MANAGING DIRECTOR, INVESTMENTS 665920 0 558525 0 1824 0 349255 0 19228 0 1594752 0 174565 0 ERIC KOEHRSEN MANAGING DIRECTOR, INVESTMENTS 600659 0 374293 0 1153 0 248801 0 55801 0 1280707 0 156672 0 ANDREW LEWIS MANAGING DIRECTOR, INVESTMENTS 469402 0 891950 0 2102 0 20856 0 17404 0 1401714 0 0 0 GENTIANA S AROVAS MANAGING DIRECTOR, INVESTMENTS OPERATIONS 478673 0 161598 0 2261 0 122786 0 54341 0 819659 0 53221 0 ENRIQUE LIN SHIAO PHD Principal of Mission Related Investments 241850 0 265203 0 638 0 34656 0 47295 0 589642 0 0 0 Schedule J, Part I, Line 4b Supplemental nonqualified retirement plan THE EXECUTIVE LISTED BELOW PARTICIPATED IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. TOTAL PAYMENTS MADE BY THE PLAN TO THE EXECUTIVE DURING THE REPORTING YEAR IS PROVIDED BELOW: NAME: MICHAEL P. BOYLE, M.D. AMOUNT: $14,112 Schedule J, Part I, Line 5a Compensation contingent on revenues of the organization The CF Foundation Investments Department Incentive Compensation and Retention Plan provides annual cash incentives to the CIO and certain Investment department staff, based on both quantitative and qualitative performance. For eligible staff, a portion is deferred and vests after three years, accruing interest tied to portfolio returns during the deferral period. Awards may be forfeited or paid pro-rata upon death, disability, or separation from service. Schedule J, Part I, Line 7 Non-fixed payments SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE CF FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN MAKES NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON the achievement of long-term performance objectives established in ADVANCE BY THE COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PLAN DO NOT INCLUDE PROGRAM RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. 34 25196 Other - NET CASH RECEIPTS 115 1647245 Other - NET CASH RECEIPTS X TANGIBLE AND SERVICE AUCTION ITEMS 12633 7104616 Other - NET CASH RECEIPTS 1 false true true Schedule M, Part I, Line 6 THE CF FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS. Form 990, Part III, Line 1 THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION (CF FOUNDATION) IS TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE. Form 990, Part III, Line 4a MEDICAL AND RESEARCH PROGRAMS - THE CF FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CF, A PROGRESSIVE, GENETIC DISEASE THAT AFFECTS APPROXIMATELY 40,000 PEOPLE IN THE UNITED STATES, AND MORE THAN 100,000 WORLDWIDE, FROM ANY BACKGROUND. THE CF FOUNDATION ANNUALY FUNDS OVER $250 MILLION IN RESEARCH TO HELP DISCOVER AND DEVELOP EFFECTIVE CF THERAPIES, LEARN MORE ABOUT THE SCIENCE OF CF, AND PROMOTE HIGHLY SPECIALIZED CARE. DUE IN PART TO THE CF FOUNDATION'S EFFORTS, THE AVERAGE LIFE EXPECTANCY OF PEOPLE BORN TODAY WITH CF IS NOW MORE THAN 60 YEARS OF AGE, MORE THAN DOUBLE WHAT IT WAS IN 2000. THE CF FOUNDATION FUNDS DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY AND PHARMACEUTICAL COMPANIES AND ACADEMIC RESEARCH CENTERS. THE CF FOUNDATION DRUG DEVELOPMENT PIPELINE HAS DOZENS OF THERAPIES IN DEVELOPMENT INCLUDING TREATMENTS THAT ADDRESS COMPLICATIONS, LIKE INFECTIONS, AND GENETIC THERAPIES THAT COULD ONE DAY LEAD TO A CURE FOR ALL PEOPLE WITH CF, INCLUDING THOSE WITH RARE AND NONSENSE DISEASE-CAUSING MUTATIONS. THE CF FOUNDATION THERAPEUTICS LAB HELPS EXPEDITE THE EARLY STAGES OF DRUG DISCOVERY THAT COULD CORRECT OR IMPROVE THE FUNCTION OF THE DEFECTIVE CYSTIC FIBROSIS TRANSMEMBRANE CONDUCTANCE REGULATOR (CFTR) PROTEIN. THE LAB BRIDGES THE GAP BETWEEN DISCOVERIES MADE AT ACADEMIC INSTITUTIONS AND THE DEVELOPMENT OF NEW MEDICATIONS BY THE PHARMACEUTICAL INDUSTRY. TO SUPPORT ITS MISSION, THE CF FOUNDATION ALSO FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 100 CARE CENTERS AT HOSPITALS ACROSS THE COUNTRY. THIS NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2024, THE FOUNDATION PROVIDED MORE THAN $45 MILLION IN FUNDING FOR CARE CENTERS AND CLINICIANS. THIS WORK INCLUDES DEVELOPING CARE GUIDELINES, FUNDING PROFESSIONAL DEVELOPMENT AWARDS, AND ADVANCING QUALITY IMPROVEMENT OF THE HIGHLY SPECIALIZED CARE NEEDED TO LIVE WITH THE DISEASE. THE CF FOUNDATION ALSO MANAGES A PATIENT REGISTRY OF MORE THAN 30,000 PEOPLE WITH CF. THIS INVALUABLE TOOL HELPS IDENTIFY NEW HEALTH TRENDS TO INFORM DEVELOPMENT OF EFFECTIVE TREATMENTS AND IMPROVEMENT OF QUALITY CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR NONPROFIT HEALTH ORGANIZATIONS, INCLUDING OTHER CF ADVOCACY GROUPS. Form 990, Part III, Line 4c COMMUNITY SERVICES - THE CF FOUNDATION PROVIDES SUPPORT FOR PEOPLE WITH CF AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF. THIS IS ACHIEVED BY SUPPORTING HIGH QUALITY, SPECIALIZED CARE, OFFERING RESOURCES AND TOOLS TO HELP PEOPLE DIRECT THEIR OWN CARE, AND DEVELOPING PROGRAMS TO HELP PEOPLE WITH CF AND THEIR LOVED ONES CONNECT, LEARN FROM ONE ANOTHER, AND CELEBRATE THEIR JOURNEYS TOGETHER. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF THERAPIES HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. THE CF FOUNDATION'S COMPASS PROGRAM IS A HIGHLY PERSONALIZED SERVICE THAT HELPS PEOPLE LIVING WITH CF AND THEIR FAMILIES NAVIGATE CHALLENGES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO CF THERAPIES AND CARE. IN 2024, SKILLED COMPASS CASE MANAGERS RESPONDED TO MORE THAN 6,000 INQUIRIES FROM PEOPLE WITH CF, THEIR FAMILIES, AND THEIR HEALTHCARE PROVIDERS, ASSISTING THEM WITH UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGE AND BENEFITS, AS WELL AS OFFERING SUPPORT FOR OTHER ASPECTS OF DAILY LIFE WITH CF. CASE MANAGERS ALSO HELPED CONNECT INDIVIDUALS WITH CF TO RESOURCES FOR CHALLENGES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. THROUGH THESE EFFORTS, THE CF FOUNDATION SAVED CLIENTS MORE THAN $3 MILLION IN 2024. THE CF FOUNDATION TYPICALLY HOSTS MORE THAN 1,000 NATIONAL AND CHAPTER EVENTS ANNUALLY FOR PEOPLE WITH CF, THEIR FAMILY MEMBERS, AND VOLUNTEERS. VIRTUAL EVENTS, INCLUDING BREATHECON, RESEARCHCON, AND ROSEUP, WERE DESIGNED BY AND FOR ADULTS WITH CF, THEIR FAMILIES, CLINICIANS, AND RESEARCHERS AS A WAY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE. Form 990, Part III, Line 4b PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO SUPPORT ITS MISSION, THE CF FOUNDATION CREATED EDUCATIONAL CONTENT DESIGNED TO INFORM AND SUPPORT PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC ABOUT THE DISEASE THAT IS MADE AVAILABLE ON ITS WEBSITE AND SOCIAL MEDIA CHANNELS. EACH YEAR, MILLIONS VISIT THE CF FOUNDATION'S WEBSITE, WHICH IS REGULARLY UPDATED WITH A LARGE VOLUME OF ORIGINAL AND UPDATED CONTENT, INCLUDING NEWS STORIES, EDUCATIONAL PAGES, VIDEOS, AND COMMUNITY BLOG POSTS. YEAR-ROUND MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS, AND ALLIED HEALTH PROFESSIONALS AND CREATE OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. Form 990, Part VI, Line 10b THE CF FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE U.S. THAT ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION. Form 990, Part VI, Line 11b Review of form 990 by governing body THE CF FOUNDATION PRESENTS AN INITIAL DRAFT OF THE FORM 990 TO ITS BOARD OF TRUSTEES FOR REVIEW AND FEEDBACK. THE COMPENSATION COMMITTEE OF THE BOARD, ALONG WITH THE CF FOUNDATION'S ERISA ATTORNEYS, SPECIFICALLY REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. ADDITIONALLY, THE AUDIT COMMITTEE OF THE BOARD REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. THE BOARD OF TRUSTEES RECEIVES THE FINAL, COMPLETED VERSION OF THE FORM 990 PRIOR TO ITS FILING. Form 990, Part VI, Line 12c Conflict of interest policy THE CF FOUNDATION HAS A WRITTEN CONFLICT OF INTEREST POLICY, WHICH REQUIRES OFFICERS, TRUSTEES, AND KEY EMPLOYEES TO ANNUALLY DISCLOSE THEIR INTERESTS THAT COULD GIVE RISE TO CONFLICTS. BOARD OFFICER AND TRUSTEE DISCLOSURES ARE REVIEWED BY THE BOARD'S GOVERNANCE COMMITTEE. KEY EMPLOYEE DISCLOSURES ARE REVIEWED BY THE CHIEF LEGAL OFFICER. THE CF FOUNDATION WILL WORK TO MITIGATE ANY CONFLICTS OF INTEREST. IF A CONFLICT OF INTEREST IS UNABLE TO BE MITIGATED, THE CF FOUNDATION MAY REQUIRE OTHER ACTIONS AS APPROPRIATE. Form 990, Part VI, Line 15a Process to establish compensation of top management official THE TOTAL COMPENSATION OF EXECUTIVES AT THE CF FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED TALENT TO FULFILL THE CF FOUNDATION'S CRITCALLY IMPORTANT MISSION. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES; (2) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL; (3) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S COMPENSATION, BEFORE ANY NEW COMPENSATION ARRANGEMENT IS IMPLEMENTED, TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BASED ON THE APPROPRIATE COMPARABILITY DATA AND THE EXECUTIVE'S PERFORMANCE; AND (4) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. Form 990, Part VI, Line 15b Process to establish compensation of other employees THE PROCESS DESCRIBED ABOVE WAS most recently used TO ESTABLISH 2024 COMPENSATION FOR THE FOLLOWING OFFICERS and KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT AND CEO EXECUTIVE VICE PRESIDENT, CHIEF OPERATING & FINANCIAL OFFICER CHIEF INVESTMENT OFFICER SENIOR VICE PRESIDENT, CLINICAL RESEARCH EXECUTIVE VICE PRESIDENT AND CHIEF SCIENTIFIC OFFICER STRATEGIC ADVISOR, EXECUTIVE VICE PRESIDENT, AND CHIEF MEDICAL OFFICER SENIOR VICE PRESIDENT AND CHIEF MEDICAL OFFICER Form 990, Part VI, Line 19 Required documents available to the public THE CF FOUNDATION MADE THE FOLLOWING DOCUMENTS AVAILABLE TO THE PUBLIC DURING THE TAX YEAR: THE CF FOUNDATION'S FORMS 1023 AND 990 WERE AVAILABLE ON ITS WEBSITE, WWW.CFF.ORG. THE CF FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE CF FOUNDATION IN WRITING. THE CF FOUNDATION'S BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE CF FOUNDATION'S WEBSITE, WWW.CFF.ORG. Form 990, Part VIII, Line 11d Other Miscellaneous Revenue - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; Oaktree QR CLV LP 333 S GRAND AVE LOS ANGELES CA 90071 Investments DE 251866 13751866 Cystic Fibrosis Foundation CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC 4550 MONTGOMERY AVE STE 110 BETHESDA MD 20814 912059167 RESEARCH MD 501(c)(3) Type I CFF true AXAR QR OPPORTUNISTIC CREDIT FUND LP 402 WEST 13TH STREET FLOOR 5 NEW YORK NY 10014 933694283 INVESTMENTS DE Excluded 838845 22761571 false false 0.92141 LF-CFF INCUBATOR FUND II LP 800 BOYLSTON STREET SUITE 1715 BOSTON MA 02199 873507143 INVESTMENTS DE Excluded -641159 31178 false false 1 LF-CFF INCUBATOR FUND LP 800 BOYLSTON STREET SUITE 1715 BOSTON MA 02199 851584805 INVESTMENTS DE Excluded -1686725 14780680 false false 1 CHARITABLE REMAINDER TRUST (2) FIDUCIARY CA NA Trust false CHARITABLE REMAINDER TRUST FIDUCIARY TN NA Trust false CHARITABLE REMAINDER TRUST FIDUCIARY NM NA Trust false PERPETUAL TRUST FIDUCIARY MA NA Trust false false true false false false false false false false false false false false false false false false false false AXAR QR OPPORTUNISTIC CREDIT FUND LP B 16000000 CASH LF-CFF INCUBATOR FUND LP B 6283000 CASH LF-CFF INCUBATOR FUND II LP B 494000 CASH