2018-05-21T12:24:44-05:00 2017-09-30 Grant Thornton LLP 100 E Wisconsin Ave Milwaukee WI 53202 990 2016-10-01 411704734 BE THE MATCH FOUNDATION % AMY RONNEBERG BETH 7634068700 500 N 5th St Minneapolis MN 554011206 AMY RONNEBERG CFO 7634068694 2018-05-18 true Daniel V Romano P00504182 4142898200 2018-05-16 2016 2022-09-23 18:48:47Z Joy King 500 N 5th St Minneapolis MN 554011206 14015204 false X www.bethematch.org X 1991 MN FUNDRAISING TO SUPPORT THE Mission of the national marrow donor program (NMDP)/Be the match: to save lives through cellular therapy. 17 16 26 2000 0 8943953 11148511 0 0 549878 681796 -209654 -48328 9284177 11781979 6715635 8676854 0 0 2158162 2444793 326157 344100 1277235 912655 1233917 10112609 12699664 -828432 -917685 18229106 16764149 2462984 1499072 15766122 15265077 X FOR PATIENTS WITH BLOOD CANCERS LIKE LEUKEMIA, LYMPHOMA, OR OTHER LIFE-THREATENING BLOOD DISORDERS, THERE IS HOPE FOR A CURE THROUGH MARROW TRANSPLANTATION. THE FIRST STEP IS TO FIND A MATCHED DONOR, BUT 70% PERCENT OF PATIENTS DO NOT HAVE A SUITABLY MATCHED DONOR IN THEIR FAMILY, AND DEPEND ON OUR BE THE MATCH REGISTRY TO FIND A MARROW DONOR. WITH THE SUPPORT OF OUR CONTRIBUTORS, EACH YEAR, WE: - FACILITATE MORE MARROW AND CORD BLOOD TRANSPLANTS - GROW AND DIVERSIFY THE WORLD'S LARGEST AND MOST DIVERSE DONOR REGISTRY - SUPPORT PATIENTS AND THEIR FAMILIES BEFORE, DURING AND AFTER TRANSPLANT - CONDUCT RESEARCH AND EDUCATION TO EXPAND TREATMENT AND IMPROVE OUTCOMES - ENGAGE THE PUBLIC IN OUR LIFE-SAVING MISSION. AS THE WORLD'S LEADING NONPROFIT ORGANIZATION FOCUSED ON SAVING LIVES THROUGH CELLULAR THERAPY, BE THE MATCH CONTINUES TO IMPROVE ACCESS TO TRANSPLANT BY LEADING EFFORTS TO REMOVE BARRIERS TO TREATMENT AND STRENGTHEN OUR ABILITY TO MEET THE GROWING NEED. THANKS TO OUR COMMUNITY O false false 4004794 4004794 PATIENT ASSISTANCE - Be the match foundation (BTMF) PROVIDES FINANCIAL ASSISTANCE TO PATIENTS THROUGHOUT EACH STAGE OF THE TRANSPLANT PROCESS. More than $4M was provided to patients in need this year. TWO GRANT PROGRAMS support patients PRE-TRANSPLANT. DESIGNED TO HELP PATIENTS, WHO HAVE INSURANCE AND FINANCIAL BARRIERS THAT DELAY OR PREVENT THEM FROM FINDING A DONOR. THE FAMILY TYPING GRANT (FTG) PAYS LABS, ON BEHALF OF THE PATIENTS, FOR THE TYPING OF FIRST DEGREE RELATIVES NEEDED TO IDENTIFY IF THERE IS A DONOR IN THE FAMILY. THE FTG HELPED 240 PATIENTS THIS FISCAL YEAR. FOR THOSE WITHOUT A DONOR IN THEIR FAMILY, SEARCH ASSISTANCE FUNDs (SAF) HELPS PATIENTS START THE UNRELATED DONOR SEARCH PROCESS BY GIVING TRANSPLANT CENTERS A GUARANTEE OF PAYMENT FOR SPECIFIC SEARCH AND/OR PROCUREMENT COSTS. THERE WERE 584 PATIENTS APPROVED FOR SAF THIS FISCAL YEAR. BTMF ALSO PROVIDES TWO POST-TRANSPLANT GRANTS TO HELP WITH THE MANY UNCOVERED EXTRA EXPENSES PATIENTS EXPERIENCE FOLLOWING A TRANSPLANT. THE TRANSPLANT SUPPORT ASSISTANCE (TSA) GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED FAMILIES WITHIN THE FIRST YEAR AFTER TRANSPLANT. TSA HELPS WITH EXTRA EXPENSES, SUCH AS TRANSPORTATION, TEMPORARY RELOCATION, CO-PAYS, AND INSURANCE PREMIUMS. THIS YEAR 1,259 PATIENT AWARDS WERE GRANTED TSA - WITH THE AVERAGE GRANT AWARD BEING $2,000. THE JOHN AND CARYN CAMIOLO SURVIVORSHP GRANT (CAM) PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED PATIENTS, WHO ARE BEYOND ONE YEAR POST-TRANSPLANT AND WHO HAVE BEEN DIAGNOSED WITH CHRONIC GRAFT VERSUS HOST DISEASE. CAM HELPS WITH UNCOVERED COSTS OF TREATMENT AND PRESCRIPTIONS. THIS FISCAL YEAR, 103 PATIENTS WERE HELPED THROUGH THE CAM PROGRAM - WITH THE AVERAGE GRANT BEING $500. 2000000 2000000 RECRUITMENT - THE BE THE MATCH REGISTRY PROVIDES THE MOST DIVERSE LISTING OF POTENTIAL DONORS AND CORD BLOOD UNITS IN THE WORLD. BTMF PROVIDES FINANCIAL SUPPORT TO AID IN ADDING MEMBERS TO THE REGISTRY. WITH 19 MILLION POTENTIAL DONORS AND 249,000 CORD BLOOD UNITS, OUR GROWING REGISTRY IS HELPING PATIENTS GET THE TRANSPLANT THEY NEED. IN FISCAL YEAR 2017, 493,000 NEW POTENTIAL DONORS WERE ADDED TO THE BE THE MATCH REGISTRY. ALTHOUGH THERE ARE MILLIONS ON THE REGISTRY, PATIENTS SOMETIMES STILL CANNOT FIND A MATCH. THIS IS DUE IN PART TO THE PATIENTS ETHNIC BACKGROUND. ON AVERAGE, A PATIENT'S LIKELIHOOD OF FINDING A MATCH ON THE BE THE MATCH REGISTRY RANGES FROM 19% TO 80% DEPENDING ON THE ETHNIC BACKGROUND. SOME ETHNIC GROUPS HAVE MORE COMPLEX TISSUE TYPES THAN OTHERS, SO A PERSON'S BEST CHANCE OF FINDING A DONOR IS WITH SOMEONE OF THE SAME ETHNIC BACKGROUND. THE IMPORTANCE OF INCREASING DIVERSITY ON THE REGISTRY IS AN ORGANIZATION GOAL AND PRIORITY AT BE THE MATCH. 1629945 1629945 RESEARCH - RESEARCH INNOVATIONS ARE CRITICAL TO EXPANDING TREATMENT TO MORE PATIENTS AND IMPROVING OUTCOMES. EACH YEAR, BTMF IS PROUD TO INVEST IN RESEARCH THROUGH: THE CENTER FOR INTERNATIONAL BLOOD AND MARROW TRANSPLANT RESEARCH (CIBMTR): THE CIBMTR IS A JOINT COLLABORATION BETWEEN BE THE MATCH AND THE MEDICAL COLLEGE OF WISCONSIN, FACILITATING CRITICAL, CUTTING-EDGE RESEARCH THAT HAS LED TO INCREASED SURVIVAL AND AN ENRICHED QUALITY OF LIFE FOR THOUSANDS OF PATIENTS WORLDWIDE. THIS WORK INCLUDES ESTABLISHING AND MAINTAINING AN EXTENSIVE DATABASE FOR RESEARCHERS, CONDUCTING OBSERVATIONAL STUDIES, AND PLANNING AND FACILITATING CLINICAL TRIALS THAT ASSESS TRENDS AND THERAPIES. LAST YEAR, MORE THAN 220 RESEARCH STUDIES WERE UNDERWAY THROUGH THE CIBMTR. THE AMY STRELZER MANASEVIT RESEARCH PROGRAM (AMY PROGRAM): OUR FLAGSHIP RESEARCH FELLOWSHIP, THE AMY PROGRAM FUNDS EARLY CAREER INVESTIGATORS FOCUSED ON ADVANCES IN THE PREVENTION AND TREATMENT OF POST-TRANSPLANT COMPLICATIONS (E.G., GRAFT-VERSUS-HOST-DISEASE AND INFECTION). IN 2017, WE FUNDED THE WORK OF 10 AMY SCHOLARS. AMY SCHOLARS HAVE GONE ON TO BECOME LEADERS IN THE FIELD, PURSUING SCIENTIFIC ADVANCES THAT HELP BE THE MATCH PATIENTS LIVE LONGER, HEALTHIER LIVES. SINCE 1998, BTMF HAS INVESTED NEARLY $9 MILLION TO HELP LAUNCH THE CAREERS OF 37 YOUNG PHYSICIAN-SCIENTISTS. AFTER RECEIVING THEIR AMY SCHOLAR AWARDS, THIS GROUP HAS GONE ON TO WIN MORE THAN $110 MILLION IN SUBSEQUENT FUNDING TO PURSUE THE DISCOVERIES THAT WILL HELP PATIENTS LIVE LONGER, HEALTHIER LIVES AFTER TRANSPLANT. TODAY, THE AMY STRELZER MANASEVIT RESEARCH PROGRAM FOR THE STUDY OF POST-TRANSPLANT COMPLICATIONS IS ONE OF THE LARGEST AND MOST COVETED FELLOWSHIPS IN THE FIELD OF TRANSPLANTATION. ANTHONY NOLAN TRUST: PROVIDE SUPPORT TO THE ANTHONY NOLAN RESEARCH INSTITUTE TO CONTINUE DEVELOPMENT AND MAINTENANCE OF AN HLA CLASS I AND II SEQUENCE DATABASE AND PROVISION OF HLA CLASS I AND II SEQUENCE INFORMATION. 2806195 1042115 10440934 true true false false false false false false false false true false false true false true false true false false false false false true true true false true true true false false false false false false false false true false false false false true false false false true 129 0 true 26 true false false false false false true true false false false false X 17 16 true false false false true true true true true false false true true true true true true true true false AL AR CA CT FL GA HI ID IL KS KY MD MA MI MS NH NJ NM NY NC ND OR PA RI SC TN UT VA WV WI X X AMY RONNEBERG 7634068694 500 N 5TH ST MINNEAPOLIS MN 554011206 X Joseph Loughran Chair 1.0 0.0 X 0 0 0 Anne McGeorge Vice Chair 1.0 0.0 X 0 0 0 Roger Paschke Secretary 1.0 0.0 X 0 0 0 Robert Sit Treasurer 1.0 0.0 X 0 0 0 Jason Ahlgren Director 1.0 0.0 X 0 0 0 Andrew Block Director - as of 2/2017 1.0 0.0 X 0 0 0 Jeffrey Chell CEO-thru 6/2017; Director 2.0 48.0 X X 0 977403 46084 Diana Clarke-Carter Director - as of 2/2017 1.0 0.0 X 0 0 0 Scot Housh Director 1.0 0.0 X 0 0 0 Bruce Manasevit Director - as of 12/2016 1.0 0.0 X 0 0 0 Jiro Okochi Director 1.0 0.0 X 0 0 0 David Pearce Director 1.0 0.0 X 0 0 0 William Pomeroy Director 1.0 0.0 X 0 0 0 Antonio Prioletti Director 1.0 0.0 X 0 0 0 Richard Rieger Director 1.0 0.0 X 0 0 0 Michael Rose Director 1.0 0.0 X 0 0 0 Thomas Teach Director 1.0 0.0 X 0 0 0 C Randal Mills CEO - as of 7/2017 2.0 48.0 X 0 0 0 Amy Ronneberg Chief Financial Officer 1.0 49.0 X 0 444893 28160 Joy King Exec. Dir. BTMF/SVP PHILAN. 37.5 12.5 X 229926 0 28141 Mary Heffernan Director, Public Engag & Givin 50.0 0.0 X 128530 0 35040 Angela Dahl Corporate Relations Director 50.0 0.0 X 106212 0 14422 Jonathan Carter Manager, Operations 50.0 0.0 X 103484 0 32037 Christine Fleming Former Key Employee 0.0 0.0 X 181014 0 0 749166 1422296 183884 5 true true false MAL WARWICK ASSOCIATES 2550 NINTH STREET SUITE 103 BERKELEY CA 94710 Program Support 324181 OP-3 4 MEADOW ROAD UNIT 3 PROVINCETOWN MA 02657 Walk Run Coordinator 211000 BLACKBAUD PO BOX 930256 ATLANTA GA 31193 Software Support 132912 FIREFLY PARTNERS 3080 VALMOUNT ROAD SUITE 290 BOULDER CO 80301 Software Support 106184 4 1521925 2500000 7126586 98081 11148511 0 274817 274817 0 0 0 0 0 2039666 1632687 406979 406979 406979 532510 1521925 595634 -63124 -63124 19700 4904 14796 14796 0 0 0 0 11781979 633468 4672060 4672060 4004794 4004794 0 0 290346 130656 145173 14517 0 1706462 963344 250429 492689 84276 53427 2419 28430 220585 119516 41975 59094 143124 78696 27487 36941 0 0 21803 21803 0 344100 344100 7700 7700 396377 211039 185338 146872 146872 160341 29794 123881 6666 54416 16138 38278 0 147131 80854 28322 37955 227547 153033 44327 30187 0 0 0 0 274 274 10781 2757 6730 1294 REGISTRATIONS AND MEMBERSHIP 48970 724 46821 1425 RECOGNITION 11705 4407 6977 321 12699664 10440934 981495 1277235 0 0 4599131 2475340 154610 1701111 41607 67227 0 0 0 0 0 0 0 0 14333 56630 6823 6823 274 0 12310856 11250060 0 0 0 0 0 0 1108295 1213781 18229106 16764149 1865732 536780 597252 962292 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2462984 1499072 X 11581396 10872848 4184726 4392229 0 0 15766122 15265077 18229106 16764149 -917685 416640 X false true X true false X 13613895 12186514 12002986 8943953 11148511 57895859 0 0 13613895 12186514 12002986 8943953 11148511 57895859 23048086 34847773 345680 329449 292503 265875 274817 1508324 0 664549 591817 635903 318593 552210 2763072 62167255 0.56055 0.61590 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1828 1828 0 4995 4995 0 0 FUND HELD BY MINNEAPOLIS FDN 1213781 1213781 0 0 X Organization's Liability for uncertain tax positions under ASC 740 Schedule D, Part X, Line 2 THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT THE PROGRAM AND BTMF ARE TAX EXEMPT ORGANIZATIONS UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE NOT-FOR-PROFIT STATUS OF THE PROGRAM AND BTMF ARE CONSIDERED TAX POSITIONS UNDER FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) ACCOUNTING STANDARDS CODIFICATION (ASC) 740, INCOME TAXES. THE ORGANIZATION FOLLOWS THE ACCOUNTING STANDARDS FOR CONTINGENCIES IN EVALUATING UNCERTAIN TAX POSITIONS. THIS GUIDANCE PRESCRIBES RECOGNITION THRESHOLD PRINCIPLES FOR THE FINANCIAL STATEMENT RECOGNITION OF TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN ON A TAX RETURN THAT ARE NOT CERTAIN TO BE REALIZED. NO LIABILITY HAS BEEN RECOGNIZED BY THE ORGANIZATION FOR UNCERTAIN TAX POSITIONS AS OF SEPTEMBER 30, 2017 OR 2016. THE ORGANIZATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. X X X X X X true Mal Warwick Associates 2550 Ninth Street Suite 103 Berkeley CA 947102516 Fundraising consultant false 0 340000 0 0 340000 0 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY Mpls Gala 834960 512705 322255 5000 65311 65203 7963 Mpls Walk+Run 220824 176069 44755 1137 27158 824 1250 35599 9 998651 833151 165500 2192 77062 60359 36599 209977 2054435 1521925 532510 3329 109220 126494 103052 253539 595634 -63124 19700 500 3005 1399 true 1.00000 19700 500 3005 1399 4904 14796 MN true false true false 0.20000 0.80000 JOY KING 500 N 5th Street MINNEAPOLIS MN 554011206 false MICKYLA CONSTANCE GAMING COORDINATOR X false Gross Receipts from Fundraisers PART I, LINE 2B, COLUMN (IV) THE GROSS RECEIPTS FROM THE ACTIVITY THAT MAL WARWICK ASSISTS OUR ORGANIZATION ON ARE NOT ABLE TO BE SEPARATELY REPORTED. MAL WARWICK WORKS ON OUR DIRECT MAIL AND ONLINE GIVING APPEALS. THE WORK OF THis ORGANIZATION AIDS IN MANY OF OUR FUNDRAISING INITIATIVES THROUGHOUT OUR FISCAL YEAR thus cannot be separately reported. Gaming Manager Part III, Line 16 Other gaming managers include finance individuals who count the cash and deposit it at the bank. true NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(c)(3) 2000000 DONOR RECRUITMENT NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(c)(3) 1629945 RESEARCH/SCHOLAR NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(c)(3) 263597 CLINICAL TRIALS NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(c)(3) 184100 VARIOUS NMDP PROGRAMS national marrow donor program 500 N 5th st minneapolis MN 55401 840865803 501(c)(3) 594418 Mexico Support 1 PATIENT SEARCH ASSISTANCE GRANTS 584 1299602 PATIENT POST TRANSPLANT SUPPORT assistance 1259 2575915 DONOR ASSISTANCE 137 64147 TYPING COSTS FOR FAMILY MEMBERS OF PATIENTS 240 65130 Procedure for Monitoring the Use of Grant Funds Inside U.S. Schedule I, Part I, Line 2 THE NATIONAL MARROW DONOR PROGRAM (NMDP) MAKES PAYMENTS TO AND HAS CONTRACTUAL AGREEMENTS WITH THE RECRUITMENT TYPING LABS AND RESEARCH ORGANIZATIONS THAT BTMF HELPS SUPPORT. NMDP MONITORS THESE AGREEMENTS AND PAYMENTS. NMDP FOSTERS AND MAINTAINS THE LONG-STANDING RELATIONSHIPS WITH THE VARIOUS LABS TASKED WITH TYPING OUR NEW RECRUITS. NMDP WORKS CLOSELY WITH THE RESEARCH SCHOLARS FROM THE GRANT AWARD APPLICATION TO THE END OF THE PROJECT. PATIENT GRANTS ARE TRACKED IN OUR CUSTOM BUILT SYSTEM. PATIENT SEARCH ASSISTANCE GRANTS ARE AWARDED THROUGH BTMF. PATIENTS APPLY FOR PRE- AND POST-TRANSPLANT SUPPORT GRANTS THROUGH PATIENT AND HEALTH PROFESSIONAL SERVICES, A DEPARTMENT WITHIN NMDP, WHO REVIEWS APPLICATIONS WEEKLY, DETERMINES THE GRANT NEEDS BASED ON THE PRELIMINARY REGISTRY SEARCH AND TRANSPLANT CENTER CRITERIA. THE PRE-TRANSPLANT GRANTS ARE AWARDED TO COVER POTENTIALLY UNINSURED DONOR SEARCH ASSISTANCE FUNDS, AND CHECKS ARE WRITTEN DIRECTLY TO TRANSPLANT CENTERS (ORGANIZATIONS). THE PATIENT POST-TRANSPLANT GRANTS ARE AWARDED TO THE APPLICANT BASED ON FINANCIAL NEED AND ARE USED TO COVER SUCH ITEMS AS UNINSURED COSTS, CO-PAYS, FOOD, LODGING, AND GROUND TRANSPORTATION. PAYMENTS ARE MADE DIRECTLY TO THE PATIENT/APPLICANT (INDIVIDUAL). DONOR ASSISTANCE CHECKS ARE ALSO AWARDED TO THE APPLICANT BASED ON FINANCIAL NEEDS AND ARE USED TO OFFSET HAVING TO TAKE UNPAID TIME OFF FROM WORK IN ORDER TO DONATE. PAYMENTS ARE MADE DIRECTLY TO THE DONOR (INDIVIDUAL). Purpose of Grant Schedule I, Part II, Line 1(H) Donor Recruitment refers to adding new donors to the be the match registry. Typing Costs for Family Members of Patients Schedule I, Part II, Line 4 Our family typing grant (formerly Related Search Assistance grant) helps patients pay for the typing cost of their family members to determine if they are a match for a transplant. The number of recipients listed on Schedule I includes the number of individuals that were tested for our Related Search assistance Program. Each patient can have more than one family member typed. true true false false false false false true false Jeffrey Chell CEO-thru 6/2017; Director 0 613150 0 177633 0 186620 0 24251 0 21833 0 1023487 0 66289 Amy Ronneberg Chief Financial Officer 0 340347 0 69483 0 35063 0 24251 0 3909 0 473053 0 0 Joy King Exec. Dir. BTMF/SVP PHILAN. 185922 0 26308 0 17696 0 0 0 28141 0 258067 0 0 0 Mary Heffernan Director, Public Engag & Givin 114773 0 12562 0 1195 0 9053 0 25987 0 163570 0 0 0 Christine Fleming Former Key Employee 0 0 0 0 181014 0 0 0 0 0 181014 0 0 0 Top Management's Compensation Schedule J, Part I, Line 3 BTMF USES NMDP'S COMPENSATION COMMITTEE WHICH IS CHARGED WITH SETTING THE COMPENSATION OF NMDP'S CEO. AS REPORTED ON NMDP'S FORM 990, SCHEDULE J, A COMPENSATION COMMITTEE, INDEPENDENT COMPENSATION CONSULTANT, WRITTEN EMPLOYMENT CONTRACT, COMPENSATION SURVEY OR STUDY, AND APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE ARE ALL UTILIZED WHEN DETERMINING COMPENSATION. THE NMDP BYLAWS STATE: "THE COMPENSATION COMMITTEE SHALL BE COMPRISED ONLY OF VOTING DIRECTORS AND SHALL INCLUDE THE CHAIR OF THE BOARD AND AT LEAST ONE (1) NON-OFFICER BOARD MEMBER AS VOTING COMMITTEE MEMBERS. THE COMPENSATION COMMITTEE SHALL REVIEW AND EVALUATE THE OVERALL COMPENSATION AND BENEFIT STRUCTURE OF THE CORPORATION AND SHALL HAVE SUCH OTHER AUTHORITY AND RESPONSIBILITIES AS SET FORTH IN THE COMPENSATION COMMITTEE CHARTER." "THE COMPENSATION COMMITTEE CHARTER STATES: "THE COMPENSATION COMMITTEE SHALL REVIEW AND EVALUATE THE OVERALL COMPENSATION AND BENEFIT STRUCTURE OF THE CORPORATION. THE COMPENSATION COMMITTEE SHALL CONDUCT THE CHIEF EXECUTIVE OFFICER PERFORMANCE EVALUATION AND MAKE CHIEF EXECUTIVE OFFICER COMPENSATION AND BENEFIT RECOMMENDATIONS TO THE EXECUTIVE COMMITTEE. IN MAKING THE CHIEF EXECUTIVE OFFICER'S COMPENSATION AND BENEFIT RECOMMENDATIONS, THE COMMITTEE SHALL UTILIZE, AMONG OTHER THINGS, COMPARABILITY DATA FOR COMPLIANCE WITH IRS INTERMEDIATE SANCTION RULES. ON A PERIODIC BASIS, THE COMPENSATION COMMITTEE SHALL OBTAIN COMPARABILITY DATA FROM AN INDEPENDENT COMPENSATION CONSULTANT. IN ADDITION, THE COMPENSATION COMMITTEE SHALL ADVISE THE CHIEF EXECUTIVE OFFICER IN THE EVALUATION AND COMPENSATION OF AND BENEFITS FOR SENIOR CORPORATION EMPLOYEES, AS WELL AS THE PRESIDENT OF ANY AFFILIATE OF THE CORPORATION REPORTING TO THE CHIEF EXECUTIVE OFFICER." Separation or change-of-control payment Schedule J, part I, line 4A Christine Fleming left the organization in August 2015. During calendar year 2016, She received separation payments of $181,014, which is reported in Schedule J, Part II, Column B(III). Supplemental Nonqualified Retirement Plan Schedule J, Part I, Line 4b The Organization offers its officers, vice presidents, and directors a 457(b) deferred compensation plan (the "plan") created in accordance with applicable provisions of the Internal Revenue Code. The Plan permits employees to defer a portion of their salary until future years. The accumulated deferred compensation balance is not available to employees until termination, retirement, death, or unforeseeable emergency. All amounts of compensation deferred under the Plan, and all income attributable to those amounts, are (until paid or made available to the employee or other beneficiary) solely the property of the Organization, and the Organization has all the related rights of ownership (not restricted to the payment of benefits under the Plan), subject only to the claim of the Organizations general creditors. Participants rights under the Plan are equal to those of general creditors of the Organization in an amount equal to the fair market value of the deferred account for each participant. The related assets and liabilities are reported at fair market value based on quoted market prices and are included within deferred compensation funds and deferred compensation payable in the consolidated statements of financial position. The Organization offers a supplemental benefits plan (the "Supplemental Plan") for its officers, senior vice presidents, and vice presidents. Each year, the Supplemental Plan contributes 14% of salary for the chief executive officer, 9% for other officers and senior vice presidents, and 4% for vice presidents. The Supplemental Plan is a flexible benefit plan allowing the Supplemental Plan participants to select from limited options, which include payment for spousal long-term care, and the balance as a contribution into the 457(b) deferred compensation plan (above) and/or an executive savings plan to supplement current basic and supplemental benefits. The executive savings plan replaced the capital accumulation plan effective January 1, 2013. All Supplemental Plan participants receive life insurance, disability salary continuation, long-term disability and long-term care insurance. The executive savings plan was created in accordance with applicable provisions of the Internal Revenue Code (IRC Sec 7702) whereby after-tax contributions into the plan accumulate without taxation and may be distributed without taxation using a combination of tax-free withdrawals and loans. Contributions will result in current income taxation. Plan balances are personally owned by the plan participants immediately and are not subject to a risk of forfeiture; as such, the plan assets are not recorded on the Organizations financial statements. The Supplemental Plan also provides for additional life insurance up to $750,000. Amounts paid in current year - 457(F) capital accumulation: - Jeffrey Chell $66,289 Non-Fixed Payments Schedule J, Part I, Line 7 Employee discretionary bonus and incentive plan payments are determined each year as part of the performance evaluation completed by human resources in collaboration with the individual's manager. X 6 16021 FMV X 23 16561 FMV X Auction Items 216 58946 FMV X Event Supplies and Awards 17 6553 FMV false true true Use of Third Party to Solicit, Process, or Sell Non-Cash Contributions Schedule M, Part I, Line 32B BTMF uses Wells Fargo to receive stock sent and to sell that stock, which occurs shortly after receipt. this is in alignment with our gift acceptance policy. OTHER PROGRAM SERVICES Form 990, Part III, Line 4d BTMF PARTNERS WITH BE THE MATCH ON VARIOUS INITIATIVES TIED TO THE SHARED MISSION. THESE PROGRAMS INCLUDE: THE JASON CARTER CLINICAL TRIALS PROGRAM HELPS PATIENTS WITH LIFE-THREATENING BLOOD DISORDERS FIND CLINICAL TRIALS. THIS PROGRAM USES A WEBSITE TO CONNECT PATIENTS AND THEIR FAMILIES WITH INFORMATION THAT THEY NEED TO FIND A CLINICAL TRIAL AND RECEIVE ONE-ON-ONE SUPPORT AND EDUCATION FROM A BE THE MATCH EDUCATION SPECIALIST. BE THE MATCH MEXICO WAS A NEW INITIATIVE IN FISCAL YEAR 2017. WITH THE GOAL OF REACHING MORE PATIENTS AND INCREASING DIVERSITY ON THE REGISTRY, WORK BEGAN TO CREATE A NETWORK OF DONOR CENTERS AND FUNDRAISING PARTNERS IN MEXICO. BE THE MATCH IS A LEADER IN PROVIDING HEALTH CARE PROFESSIONALS WITH THE EDUCATION, RESOURCES AND SERVICES THEY NEED TO PROVIDE THE BEST CARE FOR TRANSPLANT PATIENTS. BTMF HELPS TO FUND THE CREATION AND DISTRIBUTION OF A NEWSLETTER FOCUSED ON THE ADVANCEMENTS IN TRANSPLANTATION AS WELL AS QUICK REFERENCE GUIDES, WITH AN ACCOMPANYING APP VERSION, THAT PROVIDES RESOURCES FOR HEALTH CARE PROFESSIONALS WHO CARE FOR PATIENTS BEFORE, DURING, AND/OR AFTER A TRANSPLANT. SPONSORSHIPS FOR THE BE THE MATCH ANNUAL COUNCIL MEETING ARE RECEIVED BY BTMF AND THEN GIFTED TO BE THE MATCH. THIS MEETING CONNECTS ALL THE BTM NETWORK PARTNERS AND FOCUSes ON EDUCATION AND SHARING PROGRESS AND CHALLENGES RELATING TO TRANSPLANTS. BTMF ALLOCATES COMPENSATION AND BENEFITS AND OCCUPANCY COSTS TO PROGRAM BASED ON EMPLOYEE RESPONSIBILITIES. Business Relationships Form 990, Part VI, Line 2 THE FOLLOWING OFFICERS OF BTMF HAVE A REPORTABLE BUSINESS RELATIONSHIP: JEFFREY CHELL AND AMY RONNEBERG (MR. CHELL AND MS. RONNEBERG WERE BOTH OFFICERS OF CLR INSURANCE, LTD. DURING FISCAL YEAR 2017). Members or Stockholders Form 990, Part VI, Line 6 NMDP is the sole corporate member of BTMF. Members or Stockholders Who May Elect And Approve Decisions Form 990, Part VI, Lines 7A & 7B The NMDP board elects the board of directors of BTMF and approves the actions of BTMF. Form 990 Review Process Form 990, Part VI, Line 11b The organization contracted with the outside public accounting firm, Grant Thornton LLP, to prepare the Form 990. Preparing the details and supporting reports for the return is a collaborative effort among a small group of individuals in the financial reporting & compliance area of finance, internal audit and human resources. That work is then reviewed by the manager of financial reporting prior to sending to Grant Thornton LLP; the chief legal officer also reviews the governance sections prior to sending to grant thornton llp. Once a draft is received back from Grant Thornton LLP, it is reviewed by the staff that pulled the details together, Vice President of Finance, Chief Financial Officer, and Executive Director of BTMF. A copy of the return is provided to the NMDP Audit and Finance Committee and the BTMF Board of Directors prior to filing. Conflict of Interest Policy Monitoring & Enforcement Form 990, Part VI, Line 12c The Conflict of Interest Policy states the following: "All Members must disclose to the applicable Organization's Board of Directors or Executive Committee all conflicts of interest and reportable relationships, and must annually complete and submit the Conflict of Interest Questionnaire which is required by this Policy. Whenever in the course of events a Member's circumstances change such that the Member knows or has reason to believe that the Member may have an actual or perceived conflict of interest, such Member shall promptly disclose the potential conflict to the applicable Organization's Board of Directors or Executive Committee. For the purposes of this Article, a Member may formally disclose a conflict or reportable relationship to the Chief Executive Officer (CEO) of NMDP, the BTMF Executive Director and Senior Vice President (SVP) of Philanthropy, or the NMDP Chief Legal Officer (CLO), as applicable, who shall inform the applicable Organization's Board of Directors or Executive Committee for resolution. As noted herein, if the potential conflict involves a Director, that Director shall not participate in or vote upon such matters until the question of the existence of the conflict of interest has been resolved in accordance with this Policy. Likewise, an officer or key employee may not become substantially involved in decision-making involving any covered litigation, contract or transaction until the resolution of the matter in accordance with this Policy. The existence of an actual or potential conflict of interest turns on the specific facts and circumstances in each case. If a Member has an interest which may conflict with those of NMDP and/or BTMF, he or she must immediately disclose the matters and discuss them fully and frankly with the applicable Organization's full Board or the Executive Committee, as set forth in detail below. A Member must not participate in any matter in which that the Member may have an actual or potential conflict of interest without the express approval of the applicable Organization's Board of Directors or its Executive Committee." Process for Determining Compensation Form 990, Part VI, Lines 15a & 15b The BTMF Executive Director and Senior Vice President (SVP) of Philanthropy reports directly to the NMDP CEO and is considered a key employee per IRS definition during fiscal year 2017. The compensation of the BTMF Executive Director and Senior Vice president (SVP) of Philanthropy is reviewed, evaluated, and set in accordance with the NMDP Bylaws and Compensation Committee Charter. The NMDP Bylaws state: "The Compensation Committee shall be comprised only of Voting Directors and shall include the Chair of the Board and at least one (1) non-officer Board member as voting committee members. The Compensation Committee shall review and evaluate the overall compensation and benefit structure of the Corporation and shall have such other authority and responsibilities as set forth in the Compensation Committee Charter." The Compensation Committee Charter states: "The Compensation Committee shall review and evaluate the overall compensation and benefit structure of the Corporation. The Compensation Committee shall conduct the Chief Executive Officer performance evaluation and make Chief Executive Officer compensation and benefit recommendations to the Executive Committee. In making the Chief Executive Officers compensation and benefit recommendations, the Committee shall utilize, among other things, comparability data for compliance with IRS Intermediate Sanction rules. On a periodic basis, the Compensation Committee shall obtain comparability data from an independent compensation consultant. In addition, the Compensation Committee shall advise the Chief Executive Officer in the evaluation and compensation of and benefits for senior corporation employees, as well as the President of any affiliate of the Corporation reporting to the Chief Executive Officer." How Documents are Made Available to The Public Form 990, Part VI, Line 19 The conflict of interest policy, articles of incorporation and consolidated audited financial statements and additional consolidating information are all made available to the public upon request. The consolidated audited financial statements are also available on our website. Summary financial statements are also included in our annual report, which is mailed to key stakeholders and posted on our website. Additionally, articles of incorporation are available at the MN Office of the Secretary of State, and consolidated audited financial statements may be obtained at the MN Office of the Attorney General. Hours for related organization Form 990, Part VII, Section A, Line 1A, Column B The Hours listed on the 990 Part VII are based on a 50 hour week that these individuals devoted to NMDP and BTMF in total during the year. National Marrow Donor Program 500 N 5th St Minneapolis MN 554011206 840865803 TRANSPLANTS CO 501(c)(3) 10 NA false BE THE MATCH BIOTHERAPIES SERVICES LLC 500 N 5th St Minneapolis MN 554011206 811248190 CELLULAR THERAPY MN NMDP C Corp 0 0 false CLR INSURANCE LTD 62 FORUM LN 3RD FL KY1-1203 PO BOX GRAND CAYMAN CJ KY1-1203 840865803 CAPTIVE INSURANCE CJ NMDP C CORP 0 0 false false true true false false false false false false false false false false true true false true false false