2017-11-06T12:09:29-06:00 2016-12-31 521855942 Tate and Tryon 2021 L Street NW Suite 400 Washington DC 20036 990 2016-01-01 650880021 Pulmonary Hypertension Association PULM 3015653994 801 ROEDER ROAD No 1000 SILVER SPRING MD 20910 Brad A Wong PRESIDENT & CEO 3015653994 2017-11-06 1 R Michael Sorrells P00001737 2022932200 216.59.105.130 2017-11-06 12:09:26 ES P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 0A779249EE4AB03D4EBCA877230ED83790B34DB8 2016 2018-03-14 21:41:22Z BRAD A WONG 801 ROEDER ROAD No 1000 SILVER SPRING MD 20910 9521074 0 X WWW.PHASSOCIATION.ORG X 1998 FL To extend and improve the lives of those affected by PH. 24 24 74 12604 606417 57980 10203652 7495965 342865 1018372 56711 210434 -671752 139216 9931476 8863987 1080394 1212407 0 0 4090803 4052362 85000 0 980455 4741346 5871045 9997543 11135814 -66067 -2271827 17279451 16541589 1326605 2505388 15952846 14036201 X TO EXTEND AND IMPROVE THE LIVES OF THOSE AFFECTED BY PH. 0 0 6946329 126707 1076617 The Pulmonary Hypertension Association's (PHA) vision is "a world without pulmonary hypertension (PH), empowered by hope and our mission is "to extend and improve the lives of those affected by PH." To achieve our mission and ultimately realize our vision, PHA provided the following program services and accomplished the following in 2016:ADVOCACY, SUPPORT, AND QUALITY CARE:Advocate for the PH Community - Helped members of the PH community send more than 2,000 messages to members of Congress, regulators, and payers to educate them about PH, living with PH, and the impact of healthcare policies and regulations on them. Raised awareness within the public through PR efforts to the media, social media, PHANews, and phassociation.org which reached more than 15 million people.Empower Patients and Caregivers -Provided in-person support and virtual services, including 230 support groups hosting approximately 750 meetings, an 800 helpline, my PHA and PHA Classroom online resources, local educational meetings, and print resources, to more than 6,000 patients and caregivers. Held biennial PHA International Conference and Scientific Sessions that provided education and networking opportunities for more than 1,400 attendees.Promote Quality Patient Care -Provided more than 2,700 health care providers with CME/CE education through our Preceptorship, On-Demand, Scientific Sessions, and Online University programs. Grew the number of PHA accredited PHCCs to 45 nationwide and the number of PHCC sites participating in the PHA Registry to 12. 1085700 1085700 0 RESEARCH:Catalyze Research for a Cure - Provided funding for nine grants (active and new) that included career development and mentoring research grants and support of the NIH/NHLBI PVDOMICS initiative. 8032029 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 0 0 1 0 0 1 0 1 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 106 0 1 74 1 1 1 0 0 0 0 1 1 0 0 X 24 24 1 0 0 0 1 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MD FL VA TX MA CA OR MO MN OK PA WI GA DE IA IN MT NE SD WY VT AZ LA X X T CHRISTOPHER FORBERG VICE PRESIDENT OF FINANCE 3015653004 801 ROEDER ROAD STE 1000 SILVER SPRING MD 20910 Roger Towle Chair 3.00 0.00 X X 0 0 0 Stephen L White PHD Immediate Past Chair 3.00 0.00 X X 0 0 0 Sally Maddox Secretary 3.00 0.00 X X 0 0 0 Tony Lahnston Treasurer 3.00 0.00 X X 0 0 0 Erika Berman-Rosenzweig MD Director 3.00 0.00 X 0 0 0 Colleen Brunetti Director 3.00 0.00 X 0 0 0 Richard Channick MD Director (1/16 - 6/16) 3.00 0.00 X 0 0 0 Colleen Connor Director 3.00 0.00 X 0 0 0 Laura D'Anna DrPH MPA Director 3.00 0.00 X 0 0 0 Ramona Doyle MD MSc Director 3.00 0.00 X 0 0 0 C Gregory Elliott MD Director (1/16 - 6/16) 3.00 0.00 X 0 0 0 Karen Fagan MD Director 3.00 0.00 X 0 0 0 Stacey Gausling OTL Director 3.00 0.00 X 0 0 0 Amy Kimber RN APNP Director (7/16 - 12/16) 3.00 0.00 X 0 0 0 Jessie Kohler Esq Director 3.00 0.00 X 0 0 0 Mitchell Koppelman PhD Director 3.00 0.00 X 0 0 0 Michael McGoon MD Director 3.00 0.00 X 0 0 0 Vallerie McLaughlin MD Director 3.00 0.00 X 0 0 0 Rita Orth RN Director 3.00 0.00 X 0 0 0 Ron Oudiz MD Director 3.00 0.00 X 0 0 0 Fran Rodgers MSN CRNP Director (7/16 - 12/16) 3.00 0.00 X 0 0 0 Diane Ramirez Director 3.00 0.00 X 0 0 0 Traci Stewart RN MSN Director 3.00 0.00 X 0 0 0 Jack Stibbs Director 3.00 0.00 X 0 0 0 Doug Taylor Director 3.00 0.00 X 0 0 0 Melisa Wilson ARNP Director (7/16 - 12/16) 3.00 0.00 X 0 0 0 Crystal Weber RN Director (1/16 - 6/16) 3.00 0.00 X 0 0 0 Brad Wong President/CEO (beg 6/16) 37.00 3.00 X 119325 0 5776 Rino Aldrighetti Past President/CEO (Thru 6/16) 37.00 3.00 X 125736 0 11800 Carl Hicks Executive Vice President (thru 11/16) 40.00 0.00 X 233274 0 7023 Torgrim Forberg VP of Finance 40.00 0.00 X 112655 0 3406 Kelly Williams VP of Communications & Mktg 40.00 0.00 X 128585 0 15763 Lauren Lefkowitz VP of Human Resources 40.00 0.00 X 115802 0 10265 Mary Kozik VP of Development 40.00 0.00 X 104839 0 8458 Marcie Hoffmann Executive Director, midwest chapter (thru 11/16) 40.00 0.00 X 101897 0 3057 Leslie Orlovsky executive Director, northeast chapter (thru 12/16) 40.00 0.00 X 100429 0 7973 1142542 0 73521 9 0 1 0 Cornerstone Medical Communications LLC 560 Sherwood Parkway Westfield NJ 07090 Program Management Services 1302182 Beacon Hill Staffing Group LLC 152 Bowdoin Street Boston MA 02108 Temporary Employment Services 195566 Cadmus PSG DBA Cenveo Publisher Service PO Box 822934 Philadelphia PA 19182 Publishing Services 149068 The YGS Group 3650 West Market Street York PA 17404 Printing Services 131474 LPL Financial 10801 Johnston Road Ste 216 Charlotte NC 28226 Investment Services 104471 5 670968 6824997 7495965 publications 900099 606417 606417 CONFERENCE 900099 266597 266597 MEMBERSHIP DUES 900099 145358 145358 1018372 210789 210789 355 -355 -355 -355 743052 670968 656732 86320 86320 58245 0 58245 58245 OTHER REVENUE 900099 -5349 -5349 -5349 8863987 470200 606417 291405 X 1014125 1014125 180282 180282 18000 18000 1007534 503349 369530 134655 2471308 1236268 904366 330674 34407 17180 12628 4599 270350 131393 103707 35250 268763 134197 98639 35927 17000 17000 47555 47555 104471 46293 58178 2248266 2211835 10679 25752 145511 142993 2518 616138 496676 52746 66716 92545 49246 41495 1804 401195 240475 95166 65554 287265 184873 51565 50827 1197076 1143744 51965 1367 54942 54942 33815 33815 bankd and credit card f 209001 32000 107440 69561 miscellaneous 166771 134838 30675 1258 special events 152823 0 152823 taxes 62480 62480 34191 4227 28794 1170 11135814 8032029 2123330 980455 2031448 3104830 3321578 801247 51228 71535 477233 328242 172758 148991 11627532 12360021 74907 54965 17279451 16541589 306941 650296 865947 1435947 288000 153717 131145 1326605 2505388 X 5138970 4676587 8609244 7054982 2204632 2304632 15952846 14036201 17279451 16541589 X -2271827 383682 -28500 X X 0 1 X 1 0 X 6255359 9068917 8523860 10203652 7495965 41547753 1267757 223032 412750 373329 470200 2747068 7523116 9291949 8936610 10576981 7966165 44294821 3656385 4703973 3843934 1641689 6737390 20583371 0 3656385 4703973 3843934 1641689 6737390 20583371 23711450 356729 320778 318463 203352 210789 1410111 57980 57980 356729 320778 318463 203352 268769 1468091 76 227501 238645 -5349 460873 7879845 9612803 9482574 11018978 8229585 46223785 0.51300 0.55360 0.03180 0.03180 X Schedule A, Part III, Line 12, Explanation of Other Income: other income - 2013 Amount: $ 76. 2014 Amount: $ 227,501. 2015 Amount: $ 238,645. 2016 Amount: $ -5,349. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 47555 47555 11598226 11645781 732289 183072 0 0 546258 635058 581879 732289 2495484 3743226 45814 50714 48489 47555 192572 136565 158765 145470 183072 623872 935808 2204632 -93571 193571 2304632 1875475 310345 18812 2204632 1875475 1875475 1875475 1875475 1875475 1875475 1.00000 0 0 42649 26724 15925 243925 225254 18671 190659 76264 114395 148991 DEFFERED RENT 131145 131145 9904400 383682 656732 1040414 8863986 0 8863986 11792545 656732 656732 11135813 0 11135813 Part V, Line 4: THE ASSOCIATION'S ENDOWMENT FUNDS INTENDED USES ARE TO PROVIDE: SCHOLARSHIPS FOR PATIENTS AND CAREGIVERS TO ATTEND THE ASSOCIATION'S CONFERENCES AND MEETINGS; MENTORED CLINICAL SCIENTIST DEVELOPMENT AWARD; AND, FINANCIAL SUPPORT FOR THE PHA SUPPORT GROUP LEADERSHIP INSTITUTE. Part XI, Line 2d - Other Adjustments: SPECIAL EVENT EXPENSES 656,732. Part XII, Line 2d - Other Adjustments: SPECIAL EVENT EXPENSES 656,732. 1 Central America and the Caribbean 0 0 program services grants 4000 Europe (Including Iceland & Greenland) 0 program services grants 14000 0 0 0 0 0 0 18000 0 18000 lantos community service award Central America and the Caribbean 1 4000 wire lantos community service award Europe (Including Iceland & Greenland) 3 14000 wire 0 0 0 0 0 0 Part I, Line 2: PHA offers several grant opportunities for both domestic as well as international programs. All grants are based upon established guidelines and are administered by independent committees. Examples would include: (1) Research Grants, (2) Conference Scholarships, and (3) Lantos Grants in addition to other areas. The only exception is the Support Group Central Fund which is not administered by an independent committee. Instead, the program follows established guidelines to provide grants to support group leaders only after: (1) receiving award letters and, (2) providing necessary documentation. CrawPHish Festival 250091 17543 232548 154978 Boston Walk 79790 78051 1739 13475 48 1084139 575374 508765 488279 1414020 670968 743052 656732 656732 86320 1 Stanford University PO Box 44253 San Francisco CA 941444253 941156365 501(C)(3) 93750 RESEARCH AWARD Johns Hopkins University 5501 Hopkins Bayview Circle Baltimore MD 21224 520595110 501(C)(3) 31250 RESEARCH AWARD Brigham & Women's Hospital 221 Longwood Avenue Boston MA 02115 042312909 501(C)(3) 62500 RESEARCH AWARD ATS Foundation 25 Broadway 18th Floor New York NY 10004 202138855 501(C)(3) 80000 RESEARCH AWARD Cleveland Clinic Foundation 9500 Euclid Avenue JJNS Cleveland OH 44195 912153073 501(C)(3) 100000 RESEARCH AWARD The Children's Hospital of Philadelphia 3615 Civic Center Blvd Philadelphia PA 19104 231352166 501(C)(3) 62500 RESEARCH AWARD The Regents of the University of California 3333 California St Suite 315 San Francisco CA 94143 946036493 501(C)(3) 62500 RESEARCH AWARD pulmonary hypertension care centers inc 801 roeder road suite 1000 silver spring MD 20910 811030889 501(C)(3) 126707 program support 8 0 LANTOS AWARDS 1 3000 2016 conference scholarships 231 177282 Part I, Line 2: PHA offers several grant opportunities for both domestic as well as international programs. All grants are based upon established guidelines and are administered by independent committees. Examples would include: (1) Research Grants, (2) Conference Scholarships, and (3) Lantos Grants in addition to other areas. The only exception is the Support Group Central Fund which is not administered by an independent committee. Instead, the program follows established guidelines to provide grants to support group leaders only after: (1) receiving award letters and, (2) providing necessary documentation. X X X X X 0 0 0 0 0 0 0 0 0 Carl Hicks Executive Vice President (thru 11/16 158331 0 7740 0 67203 0 7023 0 1108 0 241405 0 0 0 Part I, Line 3 The Executive Committee, of the Board of Trustees, worked with an external recruiting firm, who conducted a comparison of President/CEO compensation among like organizations to determine the appropriate salary for the newly hired President/CEO. Form 990, Part VI, Section A, line 2 SOME EMERITUS TRUSTEES HAVE A FAMILY RELATIONSHIP WITH ONE ANOTHER, BUT DO NOT HAVE VOTING RIGHTS. PAT PATON AND JUDY SIMPSON ARE SISTERS AND FOUNDING DIRECTORS OF PHA. Form 990, Part VI, Section A, line 6 PULMONARY HYPERTENSION ASSOCIATION IS A MEMBERSHIP ORGANIZATION. Form 990, Part VI, Section B, line 11b WE SET A SPECIAL MEETING (VIA CONFERENCE CALL) FOR OUR AUDIT COMMITTEE TO REVIEW IT WITH THE CPA FIRM THAT CONDUCTS OUR ANNUAL AUDIT AND PREPARES FORM 990. Form 990, Part VI, Section B, line 12c DIRECTORS ARE REQUIRED TO SUBMIT A CONFLICT OF INTEREST DISCLOSURE STATEMENT ON AN ANNUAL BASIS. Form 990, Part VI, Section B, line 15 CEO COMPENSATION: The Executive Committee, of the Board of Trustees, worked with an external recruiting firm, who conducted a comparison of President/CEO compensation among like organizations to determine the appropriate salary for the newly hired President/CEO. STAFF COMPENSATION: HR utilizes compensation consultants, market data, compensation surveys, and performance reviews, to determine annual increases for staff at all levels. Form 990, Part VI, Section C, line 19 OUR FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC ON OUR WEBSITE, THROUGH CHARITY NAVIGATOR, AND BY REQUEST. Form 990, Part IX, line 11g other PROFESSIONAL FEES: Program service expenses 165,630. Management and general expenses 801. Fundraising expenses 1,928. Total expenses 168,359. mailing list: Program service expenses 9,277. Management and general expenses 45. Fundraising expenses 108. Total expenses 9,430. printing services: Program service expenses 60,285. Management and general expenses 291. Fundraising expenses 702. Total expenses 61,278. financial services: Program service expenses 11,593. Management and general expenses 56. Fundraising expenses 135. Total expenses 11,784. recruiting: Program service expenses 50,101. Management and general expenses 242. Fundraising expenses 583. Total expenses 50,926. research: Program service expenses 18,692. Management and general expenses 90. Fundraising expenses 218. Total expenses 19,000. system maintenance: Program service expenses 44,998. Management and general expenses 217. Fundraising expenses 524. Total expenses 45,739. integrated resource planning: Program service expenses 93,022. Management and general expenses 449. Fundraising expenses 1,083. Total expenses 94,554. webinar services: Program service expenses 2,991. Management and general expenses 14. Fundraising expenses 35. Total expenses 3,040. medical equpiment supplier: Program service expenses 1,299,654. Management and general expenses 6,275. Fundraising expenses 15,132. Total expenses 1,321,061. editorial services: Program service expenses 47,665. Management and general expenses 230. Fundraising expenses 555. Total expenses 48,450. software services: Program service expenses 33,903. Management and general expenses 164. Fundraising expenses 395. Total expenses 34,462. language translator: Program service expenses 1,552. Management and general expenses 7. Fundraising expenses 18. Total expenses 1,577. professional education: Program service expenses 11,282. Management and general expenses 54. Fundraising expenses 131. Total expenses 11,467. photography: Program service expenses 5,903. Management and general expenses 28. Fundraising expenses 69. Total expenses 6,000. web development: Program service expenses 37,876. Management and general expenses 183. Fundraising expenses 441. Total expenses 38,500. temporary staffing: Program service expenses 263,023. Management and general expenses 1,270. Fundraising expenses 3,062. Total expenses 267,355. media services: Program service expenses 19,582. Management and general expenses 95. Fundraising expenses 228. Total expenses 19,905. program management: Program service expenses 34,806. Management and general expenses 168. Fundraising expenses 405. Total expenses 35,379. Form 990, Part XI, line 9: restatement adjustment for prior years -28,500. Form 990, Part XII, Line 2c: the process has not changed from the prior year. Operating Losses and Contraction: In June 2016, PHA underwent a change in leadership, appointing a new president and CEO. After a subsequent comprehensive and detailed financial analysis and review of PHA operations, a significant 2016 operating loss (approximately $2.5 million) was projected for both PHA and PHCC, Inc. Management presented the PHA Board of Trustees with an expense reduction plan to be executed in Q4 2016 that would minimize additional losses in 2016, establish a more realistic budget that brings expenses in line with expected revenue, and improve cash flow going forward. The 2016 Board-approved expense reduction plan included an approximately 25% reduction in overall expenses, including a 36% reduction in staff FTE. The largest staff eliminations were made to the Chapters program, which was closed; while additional smaller reductions were made to un-funded or under-funded programs and administrative units. PULMONARY HYPERTENSION CARE CENTERS INC 801 ROEDER ROAD NO 1000 SILVER SPRING MD 20910 811030889 SUPPORT PULMONARY HYPERTENSION ASSOCIATION MD 501(c)(3) Line 12a, I PULMONARY HYPERTENSION ASSOCIATION INC 0 0 1 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0