2017-11-14T07:51:48-06:00 2016-12-31 042571780 ALEXANDER ARONSON FINNING & CO PC 50 WASHINGTON STREET WESTBOROUGH MA 01581 990 2016-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET NO 200 NEWTON MA 02458 DAVID ARONS CEO 6179249997 2017-11-13 1 JOHN BUCKLEY CPA P00830631 5083669100 2017-11-13 64.238.141.162 2017-11-13 17:45:35 ES P C3B1CA5E9EDD1B55B0F6E2DA0EC022650C85F82C E389E89C54D8B2D0E67DFD5473BAB8CDEAF766EE 2016 2017-02-10 21:41:12Z DAVID ARONS 55 CHAPEL STREET NO 200 NEWTON MA 02458 10688759 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.WE HAVE A RIGOROUS AND THOUGHTFUL AGENDA, INTEGRATING RESEARCH AND PUBLIC POLICY TO BRIDGE CRITICAL GAPS. STARTING WITH DISCOVERY SCIENCE, TO CLINICAL TRIAL DESIGN AND THE DEVELOPMENT OF NEW THERAPIES, THERE ARE MANY OPPORTUNITIES TO MAKE IMPROVEMENTS AND SPEED THE MOMENTUM OF NEW FINDINGS. IT'S TIME TO BUILD ON PROGRESS AND TRANSFORM TOMORROW, TODAY. 13 13 41 20000 0 0 8730063 9735788 0 0 139064 21054 -1586911 -1687747 7282216 8069095 2072587 2301482 0 0 3782710 2828614 0 0 1055748 2967612 2115448 8822909 7245544 -1540693 823551 2713664 2335945 3393913 2168681 -680249 167264 X NATIONAL BRAIN TUMOR SOCIETY IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.WE HAVE A RIGOROUS AND THOUGHTFUL AGENDA, INTEGRATING RESEARCH AND PUBLIC POLICY TO BRIDGE CRITICAL GAPS. STARTING WITH DISCOVERY SCIENCE, TO CLINICAL TRIAL DESIGN AND THE DEVELOPMENT OF NEW THERAPIES, THERE ARE MANY OPPORTUNITIES TO MAKE IMPROVEMENTS AND SPEED THE MOMENTUM OF NEW FINDINGS. IT'S TIME TO BUILD ON PROGRESS AND TRANSFORM TOMORROW, TODAY. 0 0 4065932 2264482 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY, INC. (NBTS) FOCUSES ON FUNDING BOTH ADULT AND PEDIATRIC BRAIN TUMOR RESEARCH IN A STRATEGIC APPROACH THAT DRIVES THE GREATEST IMPACT, RESULTS, AND PROGRESS. OUR RESEARCH PROGRAM IS PATIENT-CENTRIC, COLLABORATIVE, AND STRUCTURED WITH A DISCIPLINED FOCUS ON DEVELOPING NEW, EFFECTIVE TREATMENTS FOR BRAIN TUMORS. WE DON'T FOCUS ON ONE SPECIFIC APPROACH TO RESEARCH, BUT DEVELOP PIONEERING INITIATIVES THAT COMBINE INNOVATIVE BUSINESS MODELS WITH CUTTING EDGE SCIENCE, TO ADDRESS KEY CHALLENGES AND ALLOW US TO ACCELERATE THE TRANSLATION SCIENCE INTO SURVIVAL. IN ITS HISTORY, NBTS HAS FUNDED MORE THAN $30 MILLION IN HIGH-IMPACT SCIENTIFIC RESEARCH AND SOME OF THE MOST IMPORTANT DEVELOPMENTS AND PROGRESS IN THE BRAIN TUMOR FIELD WERE INFLUENCED, DRIVEN, DISCOVERED AND ACCOMPLISHED AS A DIRECT RESULT OF NBTS'S WORK. THESE INCLUDE: 1. FUNDED CRITICAL NEW SCIENTIFIC DISCOVERIES IN ADULT AND PEDIATRIC BRAIN TUMOR RESEARCH THAT HAVE OPENED OPPORTUNITIES FOR TARGETED THERAPY USING NEW GENOMIC SCIENCE TO PURSUE NEW AND BETTER TREATMENTS. HIGHLIGHTS INCLUDE DISCOVERY OF NEW OPPORTUNITY TO MAKE PROGRESS AGAINST THE MOST DEADLY CHILDHOOD BRAIN TUMOR AND FUNDING ENABLED DISCOVERY OF NEW UNDERSTANDING OF HOW HIGH-GRADE AND LOW-GRADE BRAIN TUMORS GROW AND WHAT POTENTIALLY CAN SHUT THEM OFF. 2. SHORTENED THE TRADITIONAL LONG RESEARCH TIMELINE THROUGH OUR "DEFEAT" BRAIN TUMOR INITIATIVES THAT ACCELERATE RESEARCH THROUGH COLLABORATION AND UNPRECEDENTED DATA SHARING. THE DEFEAT GBM COLLABORATIVE IDENTIFIED NEW POTENTIAL NEW TREATMENTS IN UNDER TWO YEARS TO BE EVALUATED IN CLINICAL TRIALS. 3. LED GLOBAL INITIATIVE THAT IMPROVED USE OF MRI IMAGING TO SPEED UP BRAIN TUMOR DRUG DEVELOPMENT4. SUCCESSFULLY ADVOCATED FOR INCREASED FEDERAL FUNDING FOR BRAIN TUMOR RESEARCH YEAR OVER YEAR IN ADULTS AND ESTABLISHED NEW FEDERAL FUNDING OPPORTUNITY FOR PEDIATRIC BRAIN TUMORS.5. BUILT AND MOBILIZED THE LARGEST VOLUNTEER ADVOCACY GROUP FOCUSED ON BRAIN TUMOR POLICY IN THE UNITED STATES ORGANIZED TO RAISE THEIR VOICES TO ELECTED OFFICIALS. 1581196 37000 PUBLIC POLICY & ADVOCACY: NBTS IS A RECOGNIZED NATIONAL PUBLIC POLICY AND ADVOCACY LEADER IN THE BRAIN TUMOR SPACE. BY MOBILIZING THOUSANDS OF VOLUNTEERS TO ADVOCATE TO CONGRESS AND THE ADMINISTRATION, IT HAS SUCCEEDED IN INCREASING THE AMOUNT OF FEDERAL FUNDING DEVOTED TO BRAIN TUMOR RESEARCH, ADVANCED FEDERAL POLICY TO STRENGTHEN ADULT AND PEDIATRIC BRAIN TUMOR RESEARCH AND DRUG DEVELOPMENT AND IMPROVED REGULATORY AND FUNDING POLICIES DEVELOPED BY THE FDA AND NATIONAL CANCER INSTITUTE. NBTS CONTINUES TO SUCCESSFULLY PROVIDE AN OPPORTUNITY FOR PATIENTS, CAREGIVERS AND RESEARCHERS TO COME TO WASHINGTON AND EDUCATE CONGRESS AND FEDERAL AGENCIES. THROUGH ADVOCACY OUR COMMUNITY HAS A VOICE AND HAS POWER TO MAKE POSITIVE CHANGE. 5647128 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 0 1 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 1 45 0 1 41 1 0 0 0 0 0 1 1 0 0 0 0 X 13 13 1 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MA CA AZ X X STEVE GALLUCCI CHIEF FINANCIAL OFFICER 6173932816 55 CHAPEL STREET NEWTON MA 02458 ALISON ROSS ESQ BOARD MEMBER 1.00 X 0 0 0 RICHARD GENDERSON CLERK 1.00 X X 0 0 0 MICHAEL NATHANSON CHAIR 5.00 X X 0 0 0 ERIC B WISSNIA BOARD MEMBER 1.00 X 0 0 0 SARAH DURHAM VICE CHAIR 2.00 X X 0 0 0 PATRICK CONNELLY BOARD MEMBER 1.00 X 0 0 0 MICHAEL DURBIN BOARD MEMBER 1.00 X 0 0 0 JOHN FRISHKOPF TREASURER 1.00 X X 0 0 0 CHANDRI NAVARRO BOARD MEMBER 1.00 X 0 0 0 STEPHEN SADLER JD BOARD MEMBER 1.00 X 0 0 0 DAVID DONABEDIAN BOARD MEMBER 1.00 X 0 0 0 AUTUMN MCDONALD BOARD MEMBER 1.00 X 0 0 0 CARRIE TREADWELL BOARD MEMBER 1.00 X 0 0 0 KRISTEN CAMPANA BOARD MEMBER (RESIGNED) 1.00 X 0 0 0 DAVID ARONS CEO 40.00 X 171067 0 17409 SAMANTHA MASTERSON CHIEF ADVANCEMENT OFFICER 40.00 X 160180 0 4556 CRAIG STRENGER NATIONAL DIRECTOR OF FIELD OPS 40.00 X 119084 0 16608 MICHAEL ANTONELLIS DIRECTOR OF MARKEITNG COMMUNICATIONS 40.00 X 114241 0 4295 WENDI NANCE INDUSTRY DEVELOPMENT OFFICER 40.00 X 138369 0 6557 702941 0 49425 5 0 1 0 MORGAN LEWIS & BOCKIUS LLP 1 FEDERAL ST BOSTON MA 02110 LEGAL 102307 1 20495 6980730 2734563 21075 9735788 22788 22788 930183 931917 -1734 -1734 -1734 0 6980730 1687747 -1687747 -1687747 8069095 0 0 -1666693 2301482 2301482 353213 264909 47120 41184 2047072 1277229 147546 622297 40096 7626 8168 24302 217451 211330 728 5393 170782 52904 24415 93463 166395 132708 22468 11219 52782 52782 60000 60000 2387 2387 391595 273074 59648 58873 123816 111862 11954 122599 53249 15146 54204 514251 416031 86717 11503 224611 157305 26119 41187 308729 231289 6301 71139 45888 22944 22944 11382 4553 6529 300 DUES AND SUBSCRIPTIONS 37444 35966 669 809 TRAINING & RECRUITING 33208 17984 7303 7921 BOARD MEETING AND TRAVE 10924 10924 BAD DEBT 5000 2000 3000 4437 1759 2678 7245544 5647128 542668 1055748 833169 1405475 535015 378428 59255 84306 953314 928880 54266 24434 1181363 398801 50596 44501 2713664 2335945 617644 483859 2736269 1599374 40000 85448 3393913 2168681 X -2338117 -534380 1361214 404990 296654 296654 -680249 167264 2713664 2335945 823551 23962 0 X X 0 1 X 1 0 X 8815314 9293204 9387870 8730063 7735788 43962239 8815314 9293204 9387870 8730063 7735788 43962239 43962239 132366 114572 55033 42956 22788 367715 44329954 0.99170 0.98810 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 132046 132046 7779637 7911683 545584 136396 0 0 684881 699860 591145 545584 2521470 3782205 92331 102177 86536 132046 413090 171220 174965 101199 136396 583780 875670 306397 5707 312104 305010 1387 306397 300399 4611 305010 298412 1987 300399 307008 3404 12000 298412 0.00000 0.95040 0.04960 0 0 135666 127288 8378 207947 195203 12744 609701 606389 3312 24434 X 9987403 23962 208986 1687747 1920695 8066708 2387 2387 8069095 9139890 208986 1687747 1896733 7243157 2387 2387 7245544 PART V, LINE 4: THE SOCIETY HAS PERMANENTLY RESTRICTED NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2016 WAS INVESTED IN BOND FUNDS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS. THIS PUBLICATION IS CURRENTLY BEING UPDATED. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2016. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. WALK - RACE FOR HOPE - PA 835397 835397 121572 WALK - RACE FOR HOPE - DC 1039578 1039578 62476 36 5105755 5105755 1503699 6980730 6980730 1687747 1687747 -1687747 1 MEMORIAL SLOAN KETTERING CANCER CENTER 633 THIRD AVE 285TH FLOOR NEW YORK NY 10017 131924236 501 (C) 3 500000 RESEARCH LUDWIG INSTITUTE FOR CANCER RESEARCH 666 THIRD AVENUE 28TH FLOOR NEW YORK NY 10017 237121131 501 (C) 3 1000000 RESEARCH UC SANFRANCISCO 3333 CALIFORNIA STREET - SUITE 315 SAN FRANCISCO CA 94143 946036493 501 (C) 3 65650 RESEARCH UNIVERSITY OF TEXAS MD ANDERSON CENTER PO BOX 4390 HOUSTON TX 77030 741587488 501 (C) 3 500000 RESEARCH ASU RESEARCH COLLABORATORY PO BOX 2260 TEMPE AZ 85280 463815674 501 (C) 3 100000 RESEARCH DUKE UNIVERSITY 201 TRENT DR BAKER HOUSE DURHAM NC 27708 560532129 501 (C) 3 25000 RESEARCH MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501 (C) 3 300000 RESEARCH DANA-FARBER CANCER INSTITUTE 450 BROOKLINE AVE BOSTON MA 02215 042263040 501 (C) 3 50000 RESEARCH UC LOS ANGELES 405 HILGARD AVE PO BOX 956089 LOS ANGELES CA 90095 956006143 501 (C) 3 90000 RESEARCH YALE UNIVERSITY 47 COTTAGE ST SUITE 216 NEW HAVEN CT 06510 060646973 501 (C) 3 250000 RESEARCH UNIVERSITY OF ILLINOIS AT URBANA - CHAMPAIGN 28392 NETWORK PLACE CHICAGO IL 60673 376000511 501 (C) 3 250000 RESEARCH EMERY UNIVERSITY 1599 CLIFTON RD NE 4TH FLOOR ATLANTA GA 30322 580566256 501 (C) 3 250000 RESEARCH STANFORD UNIVERSITY 3160 PORTER DRIVE SUITE 100 PALO ALTO CA 94304 941156365 501 (C) 3 125000 RESEARCH THE V FOUNDATION FOR CANCER RESEARCH 14600 WESTERN PARKWAY CARY NC 27513 133705951 501 (C) 3 50000 RESEARCH 14 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. X X X 0 0 0 0 0 0 0 0 0 DAVID ARONS CEO 171067 0 0 0 0 0 4803 0 12606 0 188476 0 0 0 SAMANTHA MASTERSON CHIEF ADVANCEMENT OFFICER 160180 0 0 0 0 0 3692 0 864 0 164736 0 0 0 SCOTT MEMMOT SCOTT IS A FORMER BOARD MEMBER AND PARTNER AT A LAW FIRM 102307 NATIONAL BRAIN TUMOR SOCIETY PAID THE LAW FIRM THAT SCOTT MEMMOT IS A PARTNER AT $102,307 DURING 2016. SCOTT IS A FORMER BOARD MEMBER OF NATIONAL BRAIN TUMOR SOCIETY. 0 FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMILAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE. IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE SOCIETY'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITOR. CURE GBM 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC