2025-11-13T09:00:06-06:00 2024-12-31 580692043 MAULDIN & JENKINS LLC 200 GALLERIA PKWY SE STE 1700 ATLANTA GA 303395946 990 2024-01-01 050577683 LEWY BODY DEMENTIA ASSOCIATION INC LEWY 4049356444 912 KILLIAN HILL ROAD SW LILBURN GA 30047 ALLISON FELDMAN EXECUTIVE DIRECTOR 4049356444 2025-11-03 1 0 MELISSA SEWARD P02145103 7709558600 2025-10-29 2024 2025-03-06 01:10:19Z ALLISON FELDMAN 912 KILLIAN HILL ROAD SW LILBURN GA 30047 6449845 0 X WWW.LBDA.ORG X 2003 SC THROUGH OUTREACH, EDUCATION, AND RESEARCH, WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS. 9 9 22 9 0 0 2932041 4587955 447476 264620 254372 123553 7673 1041 3641562 4977169 323296 389500 0 0 1867164 2117962 3750 54596 268288 861584 1478642 3055794 4040700 585768 936469 8179993 9612448 222751 330287 7957242 9282161 THROUGH OUTREACH, EDUCATION, AND RESEARCH, WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS. 0 0 2502444 389500 LEWY BODY DEMENTIA ASSOCIATION, INC. (LBDA) PROVIDES INFORMATION ON LEWY BODY DEMENTIAS TO CAREGIVERS, FAMILIES, PROFESSIONALS, AND THE GENERAL PUBLIC, AND ENCOURAGES SCIENTIFIC ADVANCEMENTS. LBDA PROGRAMS INCLUDE A NATIONAL SUPPORT GROUP NETWORK, EXTENSIVE WEBSITE AND ONLINE COMMUNITIES, EMAIL AND TOLL FREE TELEPHONE HELP LINES, AND INFORMATION PACKETS AND BROCHURES. LBDA REPRESENTATIVES ATTEND SCIENTIFIC CONFERENCES, HOST EXHIBITS AT NATIONAL MEDICAL CONFERENCES, AND SUPPORT THE LBDA SCIENTIFIC ADVISORY COUNCIL. THROUGH LBDA'S RESEARCH CENTERS OF EXCELLENCE GRANT PROGRAM, LBDA HELPS FUND ACADEMIC RESEARCH CENTERS DELIVERING CLINICAL CARE, OUTREACH, AND EDUCATION OF PUBLIC AND PROFESSIONALS. 713819 264620 IN FURTHERANCE OF ITS MISSION TO SUPPORT THOSE WITH LBD, CAREGIVERS, AND RESEARCH RELATED TO THE DISEASE, THE ASSOCIATION ENTERS INTO CONTRACTS WITH OUTSIDE ENTITIES TO ASSIST THEM WITH EDUCATION, SUPPORT, SURVEYS, EMAIL CAMPAIGNS AND RESEARCH EFFORTS ADDRESSING THE DISEASE. 3216263 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 21 0 1 22 1 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 GA SC X X THE ORGANIZATION 4049356444 912 KILLIAN HILL ROAD SW LILBURN GA 30047 SARAH SUNG PRESIDENT 1.00 X X 0 0 0 MARSHALL CANNON VICE PRESIDENT 1.00 X X 0 0 0 CARLA ABDELNOUR SECRETARY 1.00 X X 0 0 0 ROGER BEAN TREASURER 1.00 X X 0 0 0 ANITHA RAO MD MEMBER 1.00 X 0 0 0 RODNEY WITCHER MEMBER 1.00 X 0 0 0 ANGELA LUNDE MEMBER 1.00 X 0 0 0 JEFFREY JACOB MEMBER 1.00 X 0 0 0 GENELL GREENBERG MEMBER 1.00 X 0 0 0 ALLISON FELDMAN EXECUTIVE DIRECTOR 40.00 X 229285 0 9023 KEITH FARGO DIRECTOR OF SCIENTIFIC INITIATIVES 40.00 X 181919 0 7138 ANGELA TAYLOR VICE PRESIDENT OF STRATEGIC INITIATIVES 40.00 X 155931 0 6118 IAN RICHARD VICE PRESIDENT OF DEVELOPMENT 40.00 X 137931 0 4635 JULIA WOOD DIRECTOR OF PROFESSIONAL AND COMMUNITY EDUCATION 40.00 X 110030 0 0 815096 0 26914 5 0 1 0 HARRIS BAIO & MCCULLOUGH MARKETING COM 520 SOUTH FRONT STREET PHILADELPHIA PA 01917 MARKETING 180032 1 4587955 4587955 FEE FOR SERVICE 900099 264620 264620 264620 257329 257329 1338900 1472676 -133776 -133776 -133776 1041 0 1041 1041 4977169 264620 0 124594 X 389500 389500 238308 212094 16682 9532 1484646 1330464 67827 86355 39019 34983 1719 2317 220389 197320 10786 12283 135600 121406 6636 7558 107729 107729 35853 35853 54596 54596 41936 41936 521460 433493 87967 90689 90689 74456 159 42162 32135 176272 63073 57149 56050 49801 25 49776 148099 138823 7821 1455 217869 204224 11505 2140 14478 10 10601 3867 4040700 3216263 556149 268288 1006413 1292715 655311 1361857 72708 97707 23279 7227 57116 57116 0 0 6401639 6822906 20643 30036 8179993 9612448 192613 281050 30138 49237 222751 330287 X 7936662 9261581 20580 20580 7957242 9282161 8179993 9612448 936469 388450 0 X X 0 1 X 1 0 X 3748271 2871842 4151470 2932041 4587955 18291579 447476 264620 712096 3748271 2871842 4151470 3379517 4852575 19003675 394875 170000 1007650 12998 4900 1590423 0 394875 170000 1007650 12998 4900 1590423 17413252 559 500 128420 178647 257329 565455 559 500 128420 178647 257329 565455 5925 5925 3748830 2872342 4279890 3564089 5109904 19575055 0.88960 0.87080 0.02890 0.01710 X SCHEDULE A, PART I, LINE 10 LEWY BODY DEMENTIA ASSOCIATION, INC. IS A 501(C)(3) DESCRIBED UNDER SECTIONS 509(A)(1) AND 170(B)(1)(A)(VI). HOWEVER, THE ORGANIZATION ALSO QUALIFIES AND ELECTS TO FILE UNDER SECTION 509(A)(2). RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 57116 57116 0 0 LEASE LIABILITY 30182 OTHER LIABILITIES 19055 49237 X 5323683 388450 388450 4935233 41936 41936 4977169 3998764 0 3998764 41936 41936 4040700 PART X, LINE 2: THE ASSOCIATION IS EXEMPT FROM THE INCOME TAXES UNDER SECTION 501(C)(3) OF THE UNITED STATES INTERNAL REVENUE CODE. ACCORDINGLY, NO PROVISION FOR INCOME TAXES IS RECORDED IN THE ACCOMPANYING FINANCIAL STATEMENTS. HOWEVER, INCOME FROM CERTAIN ACTIVITIES NOT DIRECTLY RELATED TO THE ASSOCIATION'S TAX-EXEMPT PURPOSE IS SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. IN THE OPINION OF MANAGEMENT, THE ASSOCIATION HAD NO SIGNIFICANT UNRELATED BUSINESS TAXABLE INCOME DURING 2024 OR 2023. ACCORDINGLY, NO PROVISION OR BENEFIT FOR FEDERAL AND STATE INCOME TAXES HAS BEEN RECORDED IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE ASSOCIATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN, AND AS SUCH DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. X 1 THINK AND INK GRANT CONSULTING 309 EAST PACES FERRY RD NE SUITE 40 ATLANTA GA 30305 GRANT WRITING 0 0 50146 -50146 50146 -50146 GA SC 1 BARROW NEUROLOGICAL INSTITUTE 100 WEST WASHINGTON STREET PHOENIX AZ 85003 860174371 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD CLEVELAND CLINIC FOUNDATION PO BOX 952027 CLEVELAND OH 44193 340714585 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD COLUMBIA UNIVERSITY 630 WEST 168TH ST NEW YORK NY 10032 135598093 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD EMORY UNIVERSITY PO BOX 935084 ATLANTA GA 31193 580566256 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD JOHNS HOPKINS UNIVERSITY 3910 KESWICK RD N BUILDING BALTIMORE MD 21211 520595110 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD MASSACHUSETTS GENERAL HOSPITAL 100 FEDERAL STREET BOSTON MA 02110 042697983 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD MAYO CLINIC ROCHESTER MINNESOTA 200 1ST STREET SW ROCHESTER MN 55905 416011702 50000 0 RESEARCH CENTER OF EXCELLENCE AWARD MAYO CLINIC JACKSONVILLE FLORIDA 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD OREGON HEALTH & SCIENCE UNIVERSITY PO BOX 3003 PORTLAND OR 97208 931176109 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD RUSH UNIVERSITY MEDICAL CENTER 1725 W HARRISON STREET SUITE 755 CHICAGO IL 60612 362174823 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD STANFORD UNIVERSITY 485 BROADWAY STREET UNIVERSITY HALL 3RD FLOOR REDWOOD CITY CA 94063 941156365 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316025986 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 956006144 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF COLORADO MAIL STOP F428 BLDG 500 13001 E 17TH PLACE ROOM W1124 AURORA CO 80045 846000555 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF FLORIDA (GAINESVILLE) MCKNIGHT BRAIN INSTITUTE 1149 NEWELL DRIVE PO BOX 100236 GAINESVILLE FL 32610 596002052 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF MIAMI 1320 S DIXIE HWY PH 1230 CORAL GABLES FL 33146 590624458 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF MICHIGAN 3003 S STATE STREET ANN ARBOR MI 48109 386006309 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE STE 2200 CB 1350 CHAPEL HILL NC 27599 566001393 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF PENNSYLVANIA HUP 3W GATES BLDG NEUROLOGY PHILADELPHIA PA 19104 231352685 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE BOX 359472 SEATTLE WA 98105 916001537 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 956006144 50000 0 NIPSA HOUSTON METHODIST RESEARCH INSTITUTE 6670 BERTNER AVE R12-107 HOIUSTON TX 77030 741180155 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD MAYO CLINIC SCOTTSDALE ARIZONA 13400 EAST SHEA BLVD SCOTTSDALE AZ 85259 860800150 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVE CHARLESTON SC 29425 576000722 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD UNIVERSITY OF PITTSBURGH 300 MURDOCH I BUIDLING PITTSBURGH PA 15260 250965591 12500 0 RESEARCH CENTER OF EXCELLENCE AWARD 25 0 PART I, LINE 2: EACH GRANTEE IS REQUIRED TO SUBMIT AN ANNUAL AND/OR FINAL REPORT FOR THE ACTIVITIES CARRIED OUT WITH THE FUNDS, WHICH MUST ALIGN WITH THE GOALS OF THE PROGRAM AS OUTLINED IN THE REQUEST FOR APPLICATIONS AND IN THE CONTRACT THAT IS SIGNED WITH THE GRANTEE INSTITUTION. X X 0 0 0 0 0 0 0 0 0 ALLISON FELDMAN EXECUTIVE DIRECTOR 229285 0 0 0 0 0 9023 0 0 0 238308 0 0 0 KEITH FARGO DIRECTOR OF SCIENTIFIC INITIATIVES 181919 0 0 0 0 0 7138 0 0 0 189057 0 0 0 ANGELA TAYLOR VICE PRESIDENT OF STRATEGIC INITIATI 155931 0 0 0 0 0 6118 0 0 0 162049 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE BOARD OF DIRECTORS IS PROVIDED A DRAFT COPY OF THE FORM 990 FOR REVIEW PRIOR TO ISSUANCE. EACH BOARD MEMBER IS SENT THE 990 ELECTRONICALLY AND GIVEN A SUFFICIENT AMOUNT OF TIME TO REVIEW AND COMMENT. FORM 990, PART VI, SECTION B, LINE 12C WE HAVE A WRITTEN POLICY THAT IS SHARED ANNUALLY; AT EACH MEETING, BOARD DIRECTORS GIVE A VERBAL ACKNOWLEDGEMENT IF ANYTHING HAS CHANGED SINCE THE PREVIOUS MEETING. WHERE CONFLICTS MAY ARISE, THE BOARD DIRECTOR INVOLVED WOULD RECUSE THEMSELVES FROM DISCUSSION OR VOTING ON THE RELATED TOPIC. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR THE CEO/ED AND OTHER OFFICERS AND KEY EMPLOYEES ARE REVIEWED AND DETERMINED BY THE EXECUTIVE COMMITTEE ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION C, LINE 19 LBDA MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 340,895. MANAGEMENT AND GENERAL EXPENSES 80,206. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 421,101. MAINTENANCE SERVICES: PROGRAM SERVICE EXPENSES 38,240. MANAGEMENT AND GENERAL EXPENSES 7,761. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 46,001. GRAPHIC DESIGN: PROGRAM SERVICE EXPENSES 19,233. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 19,233. SCIENCE WRITER: PROGRAM SERVICE EXPENSES 35,125. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 35,125. PART XII, LINE 2C THE ORGANIZATION HAS NOT CHANGED THE OVERSIGHT OR SELECTION PROCESS DURING THE YEAR.