2017-09-22T11:04:51-05:00 2016-12-31 390859910 Baker Tilly Virchow Krause LLP 1650 Market Street Suite 4500 Philadelphia PA 191037341 990 2016-01-01 203169071 Children's Spine Foundation CHIL 4844106413 PO Box 1072 Layton UT 84041 John M Flynn PRESIDENT 4844106413 2017-09-14 1 Julius C Green CPA P00350393 2159720701 96.89.178.154 2017-09-14 09:01:57 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 7E5DA92259E52EE03175BD1BBF8330D8873B16D3 2016 2021-01-29 14:40:06Z John M Flynn 100 N MARIO CAPECCHI DRIVE SALT LAKE CITY UT 84113 636374 0 X WWW.CHILDRENSSPINEFOUNDATION.ORG X 2005 UT To help children with spine problems live longer, better lives. 6 6 0 6 0 0 677476 599248 0 0 51118 37126 21022 0 749616 636374 61897 81714 0 0 120125 120125 0 0 250 260222 293916 442244 495755 307372 140619 2061611 2251149 22945 6326 2038666 2244823 X Provide structure and funding to support education, provide family support, and conduct prospective and retrospective studies by surgeons and researchers studying complex chest wall and spine deformities in the growing child. 0 0 456955 81714 0 THE CHILDREN'S SPINE FOUNDATION LEADS A COMMUNITY OF INDIVIDUALS DEDICATED TO IMPROVING THE QUALITY OF CARE AND THE OUTCOME OF TREATMENT FOR YOUNG PATIENTS AND FAMILIES DEALING WITH COMPLEX SPINE DEFORMITIES. THE GROUP HAS HAD OVER 100 ARTICLES PUBLISHED IN MAJOR MEDICAL JOURNALS AND HAS PRESENTED OVER 300 STUDIES AT EXPERT MEETINGS. DURING 2016, THE FOUNDATION FOCUSED IT'S EFFORTS IN THREE AREAS. RESEARCH: THE FOUNDATION SUPPORTED MULTIPLE STUDIES ON QUALITY OF LIFE, TREATMENT, AND COMPLICATIONS IN EARLY ONSET SCOLIOSIS. EDUCATION: THE FOUNDATION HOSTED FORUMS FOR CLINICIANS TO DISCUSS BEST PRACTICES AND LATEST TREATMENTS IN COMPLEX SCOLIOSIS. THE FOUNDATION ALSO INITIATED A PROGRAM TO BRING INTERNATIONAL SURGEONS TO THE U.S. TO LEARN FROM LEADING CLINICIANS WITH THE GOAL OF IMPROVING TREATMENT ABROAD. FAMILY SUPPORT: THE FOUNDATION ASSISTED 13 FAMILIES WITHIN THE U.S. OBTAIN ACCESS TO QUALITY MEDICAL CARE. 456955 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 0 0 0 0 0 0 0 0 0 0 0 X 6 6 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 0 0 UT X SARAH MUMFORD 8017266512 1438 E Gilmer Dr Salt Lake City UT 84105 JOHN SMITH MD DIRECTOR 3.00 X X 0 0 0 JOHN M FLYNN MD PRESIDENT 3.00 X X 0 0 0 RANDAL BETZ MD DIRECTOR 3.00 X X 0 0 0 MICHAEL VITALE MD MPH VICE PRESIDENT 3.00 X X 0 0 0 RON EL-HAWARY MD SECRETARY 3.00 X 0 0 0 STEVE SCHWARTZ TREASURER 3.00 X 0 0 0 TRICIA ST HILAIRE EXECUTIVE DIRECTOR 40.00 X 120125 0 0 120125 0 0 1 0 0 0 0 26 599222 4737 599248 25611 25611 11515 0 11515 11515 11515 636374 0 0 37126 X 69750 69750 11964 11964 120125 120125 462 462 8790 8790 98207 75040 22917 250 1275 1275 4979 4979 6258 6258 53943 53943 1402 1402 REGISTRY EXPENSES 118600 118600 495755 456955 38550 250 693648 691094 390876 190926 7500 97000 969587 1272129 2061611 2251149 22945 6326 22945 6326 X 2038666 2244823 2038666 2244823 2061611 2251149 140619 65538 0 X 0 0 0 X University of Utah Health Sciences Center Salt Lake City UT RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 Seattle Children's Hospital Foundation PO Box 5371 MS RC-507 Seattle WA 98115 911156519 501(C)(3) 5100 research project support Beth Israel Deaconness Medical Center 330 Brookline Ave Boston MA 02215 042103881 501(C)(3) 46561 research project support The Trustees of Columbia University 615 WEST 131ST STREET MC 8741 NEW YORK NY 10027 135598093 501(C)(3) 13925 research project support 3 0 TRAVEL FOR MEDICal CARE 7 11964 Part I, Line 2: GRANT RECIPIENTS ARE REQUIRED TO PROVIDE QUARTERLY PROGRESS REPORTS TO ENSURE FUNDS ARE BEING USED FOR THEIR INTENDED PURPOSE. Form 990, Part VI, Section B, line 11b The Executive Director reviews the Form 990 prepared by an independent accounting firm. The Form 990 is then sent to all board members prior to filing the tax return. Form 990, Part VI, Section B, line 12c All Board members and officers of the Foundation are required to annually disclose any conflicts of interest via completion of a conflicts form. Those individuals are also required to disclose any and all ongoing issues that arise during the course of the year. Conflict of interest disclosures are reviewed by the Executive Director. Any individual with a conflict of interest must abstain from voting on the matter. Form 990, Part VI, Section B, line 15a The compensation for the Executive Director is approved annually by the board based upon review of comparative financial indicators and market trends to ensure compensation is within fair market range for the industry. Board level discussions regarding compensation are recorded in the minutes of the board meetings. Form 990, Part VI, Section C, line 19 The Foundation will make its governing documents, conflict of interest policy and internally-prepared financial statements available to the public upon request. Form 990, Part VI, lines 13 and 14 The Foundation does not have a whistleblower or document retention and destruction policy. However, the Foundation is considering adopting these policies in the future. Form 990, Part IX, line 11g Other Contracted Services: Program service expenses 57,884. Management and general expenses 22,917. Fundraising expenses 250. Total expenses 81,051. Measurer: Program service expenses 15,156. Management and general expenses 0. Fundraising expenses 0. Total expenses 15,156. statistician: Program service expenses 2,000. Management and general expenses 0. Fundraising expenses 0. Total expenses 2,000.