2017-10-24T15:51:52-05:00 2016-12-31 221430039 SOBEL & CO LLC CPA'S 293 EISENHOWER PARKWAY LIVINGSTON NJ 070391711 990 2016-01-01 820547746 LIFE RAFT GROUP INC LIFE 9738379092 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 NORMAN J SCHERZER EXEC. DIRECTOR 9738379092 2017-10-24 1 BRIDGET HARTNETT P01429163 9739949494 2017-10-24 96.225.92.15 2017-10-24 14:51:28 ED P 5D8FD90DCCFC339B21E91C119FA42FD3A4D8683C A9828ADE4B4B0A61667A22AFFFD9E5DD50E0A9BD 2016 2021-01-29 14:40:06Z NORMAN J SCHERZER 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 1034709 0 X WWW.LIFERAFTGROUP.ORG X 2002 NJ THE MISSION OF THE LIFE RAFT GROUP IS TO ENSURE SURVIVAL OF GIST PATIENTS THROUGH A COMPREHENSIVE APPROACH CONNECTING INDIVIDUAL PATIENTS' NEEDS, THE WORLDWIDE COMMUNITY OF GIST ADVOCATES AND THE GLOBAL HEALTH AND RESEARCH ENVIRONMENT. 10 10 24 21 0 0 4129106 898690 18020 9184 10472 17339 30690 29528 4188288 954741 675000 337500 0 0 1028379 1259459 0 0 121792 675387 770399 2378766 2367358 1809522 -1412617 6669149 5244565 117015 105048 6552134 5139517 X OUR MISSION IS TO ENSURE THE SURVIVAL OF GIST PATIENTS THROUGH A COMPREHENSIVE APPROACH CONNECTING INDIVIDUAL PATIENTS' NEEDS, THE WORLDWIDE COMMUNITY OF GIST ADVOCATES AND THE GLOBAL HEALTH AND RESEARCH ENVIRONMENT. TO ACHIEVE THIS, WE FOCUS ON THREE KEY AREAS: PATIENT SUPPORT & EDUCATION, ADVOCACY, AND RESEARCH. 0 0 1523721 337500 RESEARCH: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER - GIST (GASTROINTESTINAL STROMAL TUMORS) - AND TO HELP THOSE LIVING WITH IT UNTIL THEN. TO ACHIEVE THIS, WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF THE GIST PATIENT FOREMOST. THE LIFE RAFT GROUP IS THE ONLY GIST ADVOCACY ORGANIZATION WITH A DEDICATED RESEARCH INITIATIVE LED BY A COLLABORATIVE TEAM OF WORLD RENOWNED SCIENTISTS AND CLINICIANS IN GIST. OUR INITIATIVES ARE CONTSTANTLY ANALYZED TO ENSURE THEIR FOCUS REMAINS ON FINDING A CURE FOR GIST. 423178 9184 INFORMATION, EDUCATION AND SUPPORT: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER - GIST (GASTROINTESTINAL STROMAL TUMORS) - AND TO HELP THOSE LIVING WITH IT UNTIL THEN.THE LRG PROVIDES SUPPORT & EDUCATION TO PATIENTS & CAREGIVERS LIVING WITH GIST ON AN INDIVIDUAL BASIS BY PROVIDING ONE-ON-ONE COUNSELING SESSIONS, LOCAL IN-PERSON MEETINGS, A BIENNIAL MEETING THAT GATHERS THE PATIENT, PHARMACUETICAL & MEDICAL PROFESSIONAL COMMUNITIES TOGETHER IN A SUPPORTIVE AND EDUCATIONAL SETTING. WE ALSO OFFER EDUCATION TO THE GIST COMMUNITY AT LARGE THROUGH OUR VIDEOS & WEBINARS, WEBSITES, WORLDWIDE GIST SPECIALIST DATABASE, A ONE-OF-A-KIND GIST-SPECIFIC CLINICAL TRIALS DATABASE, NEWSLETTERS & OTHER MATERIALS & EVENTS. 118622 PATIENT OUTREACH & ASSISTANCE (FAMILY SERVICES): THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER - GIST (GASTROINTESTINAL STROMAL TUMORS) - AND TO HELP THOSE LIVING WITH IT UNTIL THEN.THE LRG PROVIDES SUPPORT & EDUCATION TO PATIENTS & CAREGIVERS LIVING WITH GIST ON AN INDIVIDUAL BASIS BY PROVIDING ONE-ON-ONE COUNSELING SESSIONS, LOCAL IN-PERSON MEETINGS, A BIENNIAL MEETING THAT GATHERS THE PATIENT, PHARMACUETICAL & MEDICAL PROFESSIONAL COMMUNITIES TOGETHER IN A SUPPORTIVE AND EDUCATIONAL SETTING. WE ALSO OFFER EDUCATION TO THE GIST COMMUNITY AT LARGE THROUGH OUR VIDEOS & WEBINARS, WEBSITES, WORLDWIDE GIST SPECIALIST DATABASE, A ONE-OF-A-KIND GIST-SPECIFIC CLINICAL TRIALS DATABASE, NEWSLETTERS & OTHER MATERIALS AND EVENTS. 98852 ADVOCACY: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER - GIST (GASTROINTESTINAL STROMAL TUMORS) - AND TO HELP THOSE LIVING WITH IT UNTIL THEN.THE LRG IS A VERY ACTIVE PRESENCE IN EFFECTING CHANGE IN THE GIST COMMUNITY. OUR ADVOCACY ROLE RANGES FROM HELPING PATIENTS WITH TREATMENT ACCESS ISSUES ON A ONE-ON-ONE BASIS, CREATING REGIONAL GROUPS IN UNDERSERVED AREAS IN ORDER TO BETTER INFORM & EMPOWER PATIENTS, CHAMPIONING PATIENTS' NEEDS BEFORE GOVERNMENT & POLICY MAKERS AND REPORTING ON TRENDS IN DOSAGE AND SURVIVAL TO THE WORLD. 98852 2164373 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 10 0 1 24 1 0 0 0 0 0 1 1 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 0 0 NJ X X X THE ORGANIZATION 9738379092 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 JERRY CUDZIL PRESIDENT 1.00 X X 0 0 0 RAYMOND MONTAGUE EX OFFICIO 1.00 X 0 0 0 STAN BUNN TRUSTEE 1.00 X 0 0 0 JIM HUGHES TRUSTEE 1.00 X 0 0 0 RODRIGO SALAS TRUSTEE 1.00 X 0 0 0 JOHN POSS TRUSTEE 1.00 X 0 0 0 TEENA PETERSOHN TRUSTEE 1.00 X 0 0 0 JERRY KNAPP TRUSTEE 1.00 X 0 0 0 MIA BYRNE EX OFFICIO 1.00 X 0 0 0 GARY GLASSER SECRETARY/TREASURER 1.00 X X 0 0 0 NORMAN J SCHERZER EXECUTIVE DIRECTOR 35.00 X 115381 0 8200 115381 0 8200 1 0 0 0 VDI EXPRESS LLC 277 FAIRFIELD ROAD STE 310 WAYNE NJ 07004 GENERAL IT SUPPORT 132780 1 85444 813246 898690 EDUCATIONAL SEMINARS 611710 9184 9184 0 9184 17339 17339 103176 85444 79968 23208 23208 OTHER 900099 6320 6320 6320 954741 9184 0 46867 X 262500 262500 75000 75000 123581 111223 4943 7415 954927 859434 38197 57296 20494 18445 819 1230 69993 62993 2800 4200 90464 81418 3619 5427 400 360 16 24 9500 8550 380 570 342089 307880 13684 20525 4733 4260 189 284 60318 54287 2412 3619 13050 11745 522 783 121001 108901 4840 7260 96935 87242 3877 5816 6014 5412 241 361 8170 7352 327 491 EDUCATIONAL SEMINAR EXP 52823 47541 2113 3169 COMMUNICATIONS 28794 25915 1151 1728 PRINTING & PUBLICATIONS 15704 14134 628 942 POSTAGE 10868 9781 435 652 2367358 2164373 81193 121792 5262111 4223696 1370782 994168 6760 4175 147279 139704 13589 7575 15907 14951 6669149 5244565 117015 105048 117015 105048 X 5168134 4130517 1384000 1009000 6552134 5139517 6669149 5244565 -1412617 0 X X 0 1 X 1 0 X 1471833 3059129 2777555 4129106 898690 12336313 1471833 3059129 2777555 4129106 898690 12336313 5743431 6592882 18697 9136 9166 10472 17339 64810 127 537 355 6320 7339 12408462 379082 0.53130 0.55200 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 125353 118641 6712 21926 21063 863 7575 X 928775 -52823 -52823 981598 -26857 -26857 954741 2341392 26857 26857 2314535 52823 52823 2367358 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIATION FOLLOWS ACCOUNTING STANDARDS THAT PROVIDE CLARIFICATION ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN THE ORGANIZATION'S FINANCIAL STATEMENTS. THE GUIDANCE PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, AND ALSO PROVIDES GUIDANCE ON DE-RECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, DISCLOSURE AND TRANSITION. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ON UNRECOGNIZED TAX BENEFITS IN INCOME TAX EXPENSE. NO INTEREST AND PENALTIES WERE RECORDED DURING THE YEARS ENDED DECEMBER 31, 2016 AND 2015. AT DECEMBER 31, 2016 AND 2015, THERE ARE NO SIGNIFICANT INCOME TAX UNCERTAINTIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: EDUCATIONAL SEMINAR EXPENSES INCLUDED IN NET SPECIAL EVENT REVENUE -52,823. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE -26,857. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSES 26,857. PART XII, LINE 4B - OTHER ADJUSTMENTS: EDUCATIONAL SEMINAR EXPENSE 52,823. 1 0 0 0 0 0 0 0 0 0 EUROPE TO CONDUCT RESEARCH TO DISCOVER REASONS FOR GIST TREATMENT RESISTANCE.TO CONDUCT RESEARCH TO DISCOVER REASONS FOR GIST TREATMENT RESISTANCE. 37500 WIRE TRANSFER EUROPE TO CONDUCT RESEARCH TO DISCOVER REASONS FOR GIST TREATMENT RESISTANCE. 37500 WIRE TRANSFER 2 0 0 0 0 0 0 NIGHT TO FIGHT CANCER 140166 73572 66594 3250 14150 3425 18102 WATER OF LIFE 48454 11872 36582 3750 18536 18755 188620 85444 103176 7000 32686 3425 36857 79968 23208 1 UNIVERSITY OF PITTSBURGH 5117 CENTRE AVENUE PITTSBURGH PA 15213 250965591 501(C)(3) 37500 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. PORTLAND VA RESEARCH FOUNDATION 3710 US VETERANS HOSPITAL ROAD PORTLAND OR 97201 943090170 501(C)(3) 37500 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. CLEVELAND CLINIC 9500 EUCLID AVENUE L25 CLEVELAND OH 44195 340714575 501(C)(3) 37500 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. STANFORD UNIVERSITY 300 PASTEUR DRIVE L-225 STANFORD CA 94305 941156365 501(C)(3) 37500 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. BRIGHAM & WOMEN'S HOSPITAL 75 FRANCIS STREET THORN 5TH FLOOR BOSTON MA 02115 042312909 501(C)(3) 37500 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. PORTLAND VA MEDICAL CENTER 3710 US VETERANS HOSPITAL ROAD PORTLAND OR 97201 943090170 501(C)(3) 37500 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501(C)(3) 37500 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. 7 PART I, LINE 2: THE GRANT RECIPIENTS MUST SUBMIT REGULAR PROGRESS REPORTS, BUDGET REPORTS AND COPIES OF ARTICLES AND PRESENTATIONS IN WHICH THE PRINCIPAL INVESTIGATOR IS LISTED AS THE AUTHOR, AS WELL AS PARTICIPATE IN A SPECIFIED NUMBER OF IN-PERSON AND TELECONFERENCE MEETINGS EVERY TWELVE MONTHS. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS FIRST REVIEWED BY THE DIRECTOR OF FINANCE, THEN BY THE EXECUTIVE DIRECTOR AFTER DISCUSSION WITH THE DIRECTOR OF FINANCE. IT IS ALSO SENT TO THE BOARD TREASURER AND THE BOARD PRESIDENT AND ANY QUESTIONS OR COMMENTS ARE DISCUSSED WITH THE EXECUTIVE DIRECTOR AND DIRECTOR OF FINANCE. FORM 990, PART VI, SECTION B, LINE 12C POTENTIAL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 15A AT LEAST ONCE A YEAR THE EXECUTIVE DIRECTOR MEETS TO REVIEW AND DISCUSS REPORTS OF COMPARABLE NON-PROFIT SALARIES PREPARED BY INDEPENDENT ORGANIZATIONS. THIS REVIEW PROVIDES THE GUIDELINES FOR REVIEWING AND APPROVING ANY SALARY RECOMMENDATIONS PROPOSED BY THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION MAKES ITS FORM 1023 AND 990 AVAILABLE FOR PUBLIC INSPECTION THROUGH THE ORGANIZATION'S WEBSITE, UPON REQUEST AND VIA WWW.GUIDESTAR.ORG. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS, INCLUDING A CONFLICT OF INTEREST POLICY (PART OF BY-LAWS), AND FINANCIAL STATEMENTS ARE POSTED TO THE ORGANIZATION'S WEBSITE AND ARE ALSO MADE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER CONSULTING SERVICES: PROGRAM SERVICE EXPENSES 307,880. MANAGEMENT AND GENERAL EXPENSES 13,684. FUNDRAISING EXPENSES 20,525. TOTAL EXPENSES 342,089. FORM 990, PART XII, LINE 2C NO CHANGE IN THE OVERSIGHT OR SELECTION PROCESS FROM THE PRIOR YEAR.