2017-10-26T09:04:10-05:00 2016-12-31 141624930 TEAL BECKER & CHIARAMONTE CPAS PC 7 WASHINGTON SQUARE ALBANY NY 12205 990 2016-01-01 450593226 HANNAH'S HOPE FOR GIANT AXONAL NEUROPATHY INC HANN 5182756040 19 BLUE JAY WAY REXFORD NY 12148 LORI SAMES EXECUTIVE DIRECTOR 5182756040 2017-09-26 1 PASQUALE M SCISCI CPA P00476898 5184566663 2017-09-26 66.109.51.149 2017-09-26 12:48:32 ED P F45C96B994C5F4D7AC3BAC8F047BA55843742F09 E6DE57D26D228C639EBC6AE4C37FB5227596DD07 2016 2021-01-29 14:40:06Z LORI SAMES 19 BLUE JAY WAY REXFORD NY 12148 351469 0 X HANNAHSHOPEFUND.ORG X 2008 NY DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY. 10 8 1 75 0 0 507886 321836 0 0 400614 291 0 0 908500 322127 844218 160817 0 0 58129 61401 0 0 0 102001 31449 1004348 253667 -95848 68460 645703 714163 0 0 645703 714163 DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY. 0 0 186912 160817 GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSION. 186912 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 1 1 0 0 0 0 X 10 8 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 NY X LORI SAMES 5182755359 19 BLUE JAY WAY REXFORD NY 12148 CARRIE FAVARO PRESIDENT 0.00 X X 0 0 0 BETH HAIG SECRETARY 0.00 X X 0 0 0 MATT SAMES DIRECTOR 0.00 X 0 0 0 LAGENIA CLARK DIRECTOR 0.00 X 0 0 0 TODD SILAIKA DIRECTOR 0.00 X X 0 0 0 ERIKA LIGUORI DIRECTOR 0.00 X 0 0 0 MIKE ELLIS DIRECTOR 0.00 X 0 0 0 STEVE EICHORN TREASURER 0.00 X 0 0 0 LORI SAMES EXECUTIVE DIRECTOR 40.00 X 36036 0 22148 36036 0 22148 0 0 0 0 0 219773 102063 321836 291 291 29342 219773 29342 0 322127 291 0 0 160817 160817 36036 36036 22148 22148 3217 3217 7500 6375 1125 1463 1463 320 273 47 2715 2308 407 3371 2865 506 322 274 48 1060 901 159 BUSINESS REGISTRATION F 6751 5738 1013 RESEARCH WAGES AND SUPP 4025 4025 BANK FEES 1911 1624 287 SUPPLIES 735 625 110 1276 1087 189 253667 186912 66755 0 355697 499440 289521 214560 0 6356 6193 485 163 645703 714163 0 0 0 X 645703 714163 645703 714163 645703 714163 68460 0 X 0 1 X 0 0 X 628350 1040917 710579 507884 320422 3208152 628350 1040917 710579 507884 320422 3208152 0 0 0 3208152 3182 4180 945 400614 291 409212 3182 4180 945 400614 291 409212 2317 2317 633849 1045097 711524 908498 320713 3619681 0.88630 0.84140 0.11310 0.10550 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 6356 6193 163 163 X 352541 0 352541 -30414 -30414 322127 284081 30414 30414 253667 0 253667 PART X, LINE 2: THE ORGANIZATION FOLLOWS THE GUIDANCE FOR UNCERTAINTY IN INCOME TAXES. AS OF DECEMBER 31, 2016, THE ORGANIZATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR THE INCOME TAX POSITIONS TAKEN AND TO BE TAKEN ON ITS RETURNS BASED ON AN ASSESSMENT OF MANY FACTORS INCLUDING EXPERIENCE AND INTERPRETATIONS OF TAX LAWS APPLIED TO THE FACTS OF EACH MATTER. THE ORGANIZATION HAS CONCLUDED THAT THERE ARE NO SIGNIFICANT UNCERTAIN TAX POSITIONS REQUIRING DISCLOSURE, AND THERE ARE NO MATERIAL AMOUNTS OF UNRECOGNIZED TAX BENEFITS. PART XI, LINE 4B - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES -30,414. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 30,414. THAT'S AMORE DINNER 116528 108168 8360 8360 EDISON CLUB GOLF EVENT 64340 54163 10177 10177 10 68246 57441 10805 10805 249114 219772 29342 29342 29342 0 1 UNIVERSITY OF WASHINGTON 3917 UNIVERSITY WAY NE SEATTLE WA 98105 916001537 501 (C) (3) 47066 RESEARCH UNIVERSITY OF NORTH CAROLINA 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL NC 27599 566001393 501 (C) (3) 33750 RESEARCH REGENERATIVE RESEARCH FOUNDATION (NEURACELL) 1 DISCOVERY DRIVE RENSSELAER NY 12144 5000 RESEARCH NORTHWESTERN UNIVERSITY 633 CLARK STREET EVANSTON IL 60208 75000 RESEARCH PART I, LINE 2: LORI SAMES RECEIVES PROGRESS REPORTS AND IS ABLE TO MONITOR PROGRESS THROUGH WEBSITES. LORI SAMES FAMILY 58184 WAGES AND HEALTH INSURANCE 0 SCH L, PART IV, BUSINESS TRANSACTIONS INVOLVING INTERESTED PERSONS: (A) NAME OF PERSON: LORI SAMES(D) DESCRIPTION OF TRANSACTION: THE ORGANIZATION PAYS WAGES AND HEALTH INSURANCE FOR PRESIDENT, LORI SAMES. FORM 990, PART VI, SECTION A, LINE 2 DIRECTOR MATT SAMES IS MARRIED TO EXECUTIVE DIRECTOR LORI SAMES. BOARD PRESIDENT CARRIE FAVARO IS SISTER TO EXECUTIVE DIRECTOR LORI SAMES. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR BEFORE IT IS ELECTRONICALLY FILED. FORM 990, PART VI, SECTION B, LINE 12C THE BY-LAWS CLEARLY STATE THAT ALL DIRECTORS AND OFFICERS MUST DISCLOSE ANY POTENTIAL CONFLICTS. THE BY-LAWS STATE THAT SUCH CONFLICTS DO NOT PRECLUDE THE ORGANIZATION FROM CONTRACTING WITH RELATED COMPANIES, BUT THAT CONFLICTED BOARD MEMBERS MUST RECUSE THEMSELVES FROM DISCUSSIONS INVOLVING THEIR INTERESTS. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE FROM THE ORGANIZATION UPON REQUEST.