2025-11-17T08:38:33-06:00 2024-12-31 990 2024-01-01 274464618 WESCOE FOUNDATION FOR PULMONARY FIBROSIS WESC 4845536340 229 N MAIN STREET COOPERSBURG PA 18036 JENNIFER SINGLEY EXECUTIVE DIRECTOR 4845536340 2025-11-10 0 2024 2025-03-06 01:10:19Z JENNIFER SINGLEY 229 N MAIN STREET COOPERSBURG PA 18036 192899 0 X WWW.WESCOE.ORG X 2009 PA THE WESCOE FOUNDATION FOR PULMONARY FIBROSIS PROVIDES SUPPORT, EDUCATION, ADVOCACY AND RESOURCES FOR PATIENTS LIVING WITH IDIOPATHIC PULMONARY FIBROSIS (IPF), THEIR FAMILIES AND CARE PARTNERS IN ORDER TO SUSTAIN THE HIGHEST POSSIBLE QUALITY OF LIFE. 6 6 5 35 0 0 207299 178815 0 0 25 6 -11110 -10899 196214 167922 0 0 0 0 93671 90883 0 0 12631 103120 86692 196791 177575 -577 -9653 15327 5674 0 0 15327 5674 X THE WESCOE FOUNDATION FOR PULMONARY FIBROSIS PROVIDES SUPPORT, EDUCATION, ADVOCACY AND RESOURCES FOR PATIENTS LIVING WITH IDIOPATHIC PULMONARY FIBROSIS (IPF), THEIR FAMILIES AND CARE PARTNERS IN ORDER TO SUSTAIN THE HIGHEST POSSIBLE QUALITY OF LIFE. 0 0 136551 SUPPORT GROUPS AND PATIENT & CARE PARTNER EDUCATION: THROUGH OUR SUPPORT GROUPS, THE WESCOE FOUNDATION FOR PULMONARY FIBROSIS CONNECTS PATIENTS, CARE PARTNERS, AND FAMILIES TO ESSENTIAL EDUCATION, SUPPORT, AND RESOURCES WHILE NAVIGATING PULMONARY FIBROSIS. WE HAVE EVOLVED FROM ONE SUPPORT GROUP IN THE LEHIGH VALLEY, PENNSYLVANIA AREA TO 19 SUPPORT GROUPS IN PENNSYLVANIA, NEW JERSEY, AND DELAWARE. THE SCOPE OF OUR OUTREACH HAS EXTENDED FROM REGIONAL EFFORTS TO NATIONAL AND GLOBAL RECOGNITION WITHIN THE PULMONARY FIBROSIS COMMUNITY. OUR VIRTUAL PLATFORM HAS ALLOWED US TO MAINTAIN CONSISTENT PARTICIPATION AND ACCESSIBILITY, ENSURING THAT PATIENTS AND FAMILIES, REGARDLESS OF GEOGRAPHIC LOCATION, REMAIN CONNECTED AND SUPPORTED. THESE MEETINGS FOSTER MEANINGFUL PEER CONNECTIONS, PROVIDE ACCESS TO LEADING PULMONARY SPECIALISTS, AND EDUCATE PARTICIPANTS WITH CURRENT INFORMATION ON DISEASE MANAGEMENT, CLINICAL TRIALS, AND IMPROVING ONE'S QUALITY OF LIFE. TO GROW AND DEVELOP OUR PROGRAMMING, OUR COLLABORATIVE EFFORTS WITH MAJOR MEDICAL CENTERS, AREA COMMUNITY HOSPITALS, AND CLINICAL AND ACADEMIC INSTITUTIONS REMAIN STRONG, WITH PATIENT AND COMMUNITY ENGAGEMENT. WE HAVE EXPANDED OUR GROUPS TO PRIORITIZE CARE PARTNER SUPPORT, LUNG TRANSPLANT EDUCATION, AND OVERALL MENTAL HEALTH. ADDITIONALLY, OUR SUPPORT GROUPS HAVE BEEN EXPANDED TO FURTHER SUPPORT TO INCLUDE WOMEN, VETERANS, AND GRIEF GROUPS.IN ADDITION TO OUR SUPPORT GROUP NETWORK, THE WESCOE FOUNDATION HAS DEVELOPED A COMPREHENSIVE PATIENT EDUCATION PROGRAM DESIGNED TO EDUCATE INDIVIDUALS AND THEIR FAMILIES THROUGH THE PROGRESSION OF THE DISEASE. THE PULMONARY FIBROSIS PODCAST FEATURES EXPERT INTERVIEWS WITH PULMONOLOGISTS, TRANSPLANT SPECIALISTS, MENTAL HEALTH PROFESSIONALS, AND PATIENTS & CARE PARTNERS, OFFERING ACCESSIBLE, REAL-WORLD INSIGHTS INTO LIVING WELL WITH PULMONARY FIBROSIS. THE QUARTERLY EDUCATIONAL LECTURE SERIES BRINGS TOGETHER LEADING CLINICIANS AND RESEARCHERS TO DISCUSS TOPICS SUCH AS SYMPTOM MANAGEMENT, PULMONARY REHABILITATION, CLINICAL TRIALS, AND LUNG TRANSPLANTATION, PROVIDING PARTICIPANTS WITH UP-TO-DATE, EVIDENCE-BASED KNOWLEDGE. LASTLY, WE DISTRIBUTE PATIENT CAREBOOKS, A FOUNDATIONAL RESOURCE DEVELOPED TO HELP INDIVIDUALS AND CARE PARTNERS NAVIGATE THEIR DIAGNOSIS, TREATMENT OPTIONS, AND SELF-ADVOCACY WITHIN THE HEALTHCARE SYSTEM. THESE MATERIALS COMPLEMENT OUR VIRTUAL PROGRAMS AND HELP ENSURE THAT EDUCATION CONTINUES BEYOND THE MEETING SETTING. 136551 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 1 5 0 0 0 0 0 0 0 0 0 0 0 X 6 6 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 1 0 PA X KYLE ELSENBAUMER 6107514104 229 N MAIN ST COOPERSBURG PA 18036 JENNIFER WESCOE SINGLEY EXECUTIVE DIRECTOR 50.00 X X 45000 0 0 TRISHA COLASURDO VICE PRESIDENT 1.00 X X 0 0 0 PAUL FRANK ESQ BOARD MEMBER 1.00 X X 0 0 0 GERARD PETERSEN PRESIDENT 1.00 X X 0 0 0 KYLE ELSENBAUMER TREASURER 1.00 X X 0 0 0 MIKE PFEIFFER BOARD MEMBER 1.00 X 0 0 0 DOUGLAS CORWIN BOARD MEMBER 1.00 X 0 0 0 DENNIS MCGORRY BOARD MEMBER 1.00 X 0 0 0 45000 0 0 0 0 0 0 0 22016 156799 178815 6 6 14078 22016 24977 -10899 -10899 167922 0 0 -10893 45000 36000 6750 2250 39425 35760 1692 1973 6458 5489 646 323 5553 5553 916 916 15622 13279 1562 781 22210 11657 6349 4204 8570 4285 2571 1714 282 240 28 14 5015 4263 502 250 679 340 204 135 3572 1786 1072 714 SUPPORT GROUPS 12716 12716 CONSULTING 6081 6081 SUPPLIES 2421 2058 242 121 MEMBERSHIPS 1956 1663 196 97 1099 934 110 55 177575 136551 28393 12631 14648 5674 6528 6528 679 0 15327 5674 0 0 X 15327 5674 15327 5674 15327 5674 -9653 0 X 1 X 0 0 0 X 202093 177456 170796 207299 178815 936459 4240 8500 12740 206333 185956 170796 207299 178815 949199 0 0 0 949199 22 33 27 25 6 113 22 33 27 25 6 113 264 264 206355 186253 170823 207324 178821 949576 0.99960 0.99950 0.00010 0.00010 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 6528 6528 0 0 COOPERSBURG 5K 18143 9265 8878 12615 GOLF EVENT 15789 10589 5200 12056 1 2162 2162 306 36094 22016 14078 24977 24977 -10899 FORM 990, PART VI, SECTION B, LINE 11B THE BOARD TREASURER AND EXECUTIVE DIRECTOR REVIEW THE 990 AND DISSEMINATE IT TO THE ENTIRE BOARD OF DIRECTORS FOR DISCUSSION AND APPROVAL BEFORE SUBMITTING IT TO THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ALL DIRECTORS REVIEW/SIGN CONFLICT OF INTEREST POLICY AT ANNUAL MEETING. FORM 990, PART VI, SECTION B, LINE 15 THE PROCESS FOR DETERMINING COMPENSATION INCLUDES A REVIEW AND APPROVAL BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 18 FORM 1023 AND FORM 990 ARE MADE AVAILABLE UPON REQUEST. FORM 990 IS ALSO AVAILABLE ON GUIDESTAR. FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS ARE AVAILABLE UPON REQUEST,