2017-05-09T06:53:47-05:00 2016-12-31 560747981 DIXON HUGHES GOODMAN LLP 500 RIDGEFIELD COURT ASHEVILLE NC 28806 990 2016-01-01 581966822 PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC PEDI 8286656891 302 RIDGEFIELD COURT ASHEVILLE NC 28806 DONALD W GODEN CFO/SECRETARY 8286656891 2017-05-08 1 AMY BIBBY P00445891 8282542254 2017-05-08 12.25.12.224 2017-05-08 06:19:26 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 3C4A73C7F70BFF54BAAC11A85090BDFB39FC8B01 2016 2021-01-29 14:40:06Z ROBIN P BOETTCHER 302 RIDGEFIELD COURT ASHEVILLE NC 28806 5774875 0 X WWW.CURETHEKIDS.ORG X 1992 GA ELIMINATE CHILDHOOD BRAIN TUMORS AND SUPPORT FAMILIES LIVING WITH THIS DEVASTATING DISEASE. 12 12 44 2760 0 0 5417837 5452263 0 0 239232 77585 -129701 -143999 5527368 5385849 1811111 1791392 0 0 2521219 2331321 0 0 500616 2341482 1307372 6673812 5430085 -1146444 -44236 2897967 2631277 1320681 1086784 1577286 1544493 X THE PBTF FUNDS RESEARCH SEEKING BETTER TREATMENTS AND ULTIMATELY CURES FOR PEDIATRIC BRAIN TUMORS. THE FOUNDATION ALSO PROVIDES EDUCATIONAL, EMOTIONAL AND FINANCIAL SUPPORT FOR FAMILIES, INCLUDING SCHOLARSHIPS FOR SURVIVORS, BEREAVEMENT SUPPORT, PEER SUPPORT, FAMILY CAMPS AND EDUCATIONAL CONFERENCES. 0 0 4226619 1791392 0 IN 2016, THE PEDIATRIC BRAIN TUMOR FOUNDATION:- INVESTED IN 15 OF THE MOST INNOVATIVE PEDIATRIC BRAIN TUMOR RESEARCH PROJECTS INVOLVING 20 OF THE TOP INSTITUTIONS AIMED AT DEVELOPING NEW AND IMPROVED TREATMENTS, MORE TARGETED THERAPIES, GATHERING MORE DATA AND MODELS TO SHARE WITH LABS AROUND THE WORLD, SPURRING COLLABORATION AND IMPROVING SURVIVAL AND QUALITY OF LIFE.- SUPPORTED $89,750 IN COLLEGE SCHOLARSHIPS TO 105 SURVIVORS.- DISTRIBUTED NEW TOOLKIT CREATED FOR NEWLY-DIAGNOSED FAMILIES.- CONDUCTED THREE "MEET THE EXPERT" EDUCATIONAL/NETWORKING CONFERENCES.- PROVIDED $436,027 IN EMERGENCY FINANCIAL AID TO 349 FAMILIES IN 11 STATES.- SUPPORTED THE INTERNATIONAL SYMPOSIUM ON PEDIATRIC NEURO-ONCOLOGY.THE FOUNDATION COMPLETED ITS FIRST THREE-YEAR STRATEGIC PLAN AT THE END OF 2016 AND BEGAN TO DEVELOP ITS NEXT PLAN. IN KEEPING WITH ITS GOAL OF UNITING THE PEDIATRIC BRAIN TUMOR COMMUNITY FOR GREATER IMPACT, THE FOUNDATION CONVENED REPRESENTATIVES OF 14 OTHER NONPROFITS TO ATTEND A PORTION OF PBTF'S ANNUAL RESEARCH MEETING AND TO DISCUSS PARTNERSHIPS AND COLLABORATIONS. THE PBTF CREATED OPPORTUNITIES FOR LIKE ORGANIZATIONS" TO RAISE AWARENESS THROUGH CO-BRANDED SOCIAL MEDIA VEHICLES DURING BRAIN TUMOR AWARENESS MONTH AND CHILDHOOD CANCER AWARENESS MONTH. THE PBTF JOINED FORCES WITH THE 20-YEAR-OLD WE CAN PEDIATRIC BRAIN TUMOR NETWORK IN LOS ANGELES TO FORM ITS NEW CALIFORNIA CHAPTER AND DEVELOPED THE ILLINOIS CHAPTER, BASED IN GREATER CHICAGO, TO BETTER REACH AND SERVE FAMILIES. THE FOUNDATION ALSO COMBINED WITH VS. CANCER, A RALEIGH, N.C.-BASED ORGANIZATION FOUNDED BY A CHILDHOOD CANCER SURVIVOR. NET REVENUES FROM VS. CANCER'S SPORTS FUNDRAISING PLATFORM ARE INVESTED IN NATIONAL RESEARCH PROJECTS AND LOCAL HOSPITAL SUPPORT PROGRAMS. VS. CANCER IS NOW A PART OF THE PBTF'S FUNDRAISING LINEUP. 4226619 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 45 0 1 44 1 0 0 0 0 0 1 1 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AZ CA FL GA IL KS KY LA ME MD MA MI NH NJ NM NY NC ND OH OR PA RI SC VA WA WV WI AL AR CO CT OK TN UT HI MN MS MO X X X DONALD GODEN 8286656891 302 RIDGEFIELD COURT ASHEVILLE NC 28806 LARRY LITTLE CHAIRMAN OF THE BOARD (BEGAN 2016) 1.00 X X 0 0 0 JACK MCGINNIS TREASURER 1.00 X X 0 0 0 WAYNE TOYOTA BOARD MEMBER 1.00 X 0 0 0 ROSEMARY GULLIKSON BOARD MEMBER 1.00 X 0 0 0 DOUG PORTER BOARD MEMBER 1.00 X 0 0 0 JILL SCOGNAMIGLIO BOARD MEMBER 1.00 X 0 0 0 BOB HENIG BOARD MEMBER 1.00 X 0 0 0 CHASE JONES BOARD MEMBER 1.00 X 0 0 0 ANNE SUTTON BOARD MEMBER 2.00 X 0 0 0 KURT YNDESTAD BOARD MEMBER 1.00 X 0 0 0 BRADY YOUNG BOARD MEMBER 1.00 X 0 0 0 SUSIE ROSSICK BOARD MEMBER 1.00 X 0 0 0 ROBIN P BOETTCHER PRESIDENT/CEO 50.00 X 151139 0 13807 DONALD W GODEN CFO/SECRETARY 50.00 X 112027 0 18587 JOANNE T SALCIDO VP RESEARCH AND ADVOCACY 50.00 X 129845 0 11722 TIFFANY ARMSTRONG V/P CAMPAIGN DEVELOPMENT 50.00 X 111852 0 14551 504863 0 58667 4 0 1 0 0 569853 4882410 425368 5452263 47612 47612 275000 245027 29973 29973 29973 0 569853 143999 -143999 -143999 5385849 0 0 -66414 1012448 1012448 525777 525777 253167 253167 304958 138863 123893 42202 1507303 876467 291126 339710 45984 43460 895 1629 326268 311839 7782 6647 146808 138755 2907 5146 17400 17400 7245 7245 142430 112134 15344 14952 18709 16542 577 1590 283021 184488 93683 4850 25362 218 25144 233505 157095 35303 41107 344103 299670 16992 27441 88341 86479 1775 87 62687 40748 10655 11284 36555 23301 9283 3971 MISCELLANEOUS 48014 5168 42846 0 5430085 4226619 702850 500616 X 509535 440730 31573 28568 107510 121554 24448 2213 58019 79856 775553 646134 165670 129419 1981609 1809865 19603 19072 2897967 2631277 202060 156825 1118621 929959 1320681 1086784 X 1450182 1421106 127104 123387 1577286 1544493 2897967 2631277 -44236 11443 0 X X 0 1 X 1 0 X 5184847 4725202 5223226 5591788 6347569 27072632 5184847 4725202 5223226 5591788 6347569 27072632 1803628 25269004 181494 162284 119046 90088 77585 630497 27703129 14254 0.91210 0.89790 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 6276878 6276878 463844 115961 0 0 445792 494861 498850 463844 1903347 2855021 111448 123715 124713 115961 475837 713756 1716243 1716243 2400000 36783 720540 1716243 3000000 26268 626268 2400000 3000000 95369 95369 3000000 3000000 110722 110722 3000000 1.00000 0 0 99345 82767 16578 676208 563367 112841 129419 X 5587783 11443 46492 143999 201934 5385849 0 5385849 5620576 46492 143999 190491 5430085 0 5430085 PART V, LINE 4: THE ENDOWMENT FUNDS ARE A BOARD DESIGNATED RESERVE FUND TO ASSURE THE FOUNDATION'S ABILITY TO RESPOND TO PROGRAM RELATED OPPORTUNITIES (BOTH RESEARCH AND FAMILY SUPPORT) THAT MAY BE BEYOND THE FUNDS AVAILABLE FROM NORMAL OPERATIONS. DURING 2015, THE BOARD LOWERED ITS INTERNALLY RESTRICTED AMOUNT FROM $2,400,000 TO 1,716,243. THIS REDUCTION IS ILLUSTRATED IN PART V THROUGH $683,757 SHOWN AS AN EXPENDITURE. PART X, LINE 2: THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE; ACCORDINGLY, THE ACCOMPANYING FINANCIAL STATEMENTS DO NOT REFLECT A PROVISION OR LIABILITY FOR FEDERAL AND STATE INCOME TAXES. THE FOUNDATION HAS DETERMINED THAT IT DOES NOT HAVE ANY MATERIAL UNRECOGNIZED TAX BENEFITS OR OBLIGATIONS AS OF DECEMBER 31, 2016. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 143,999. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 143,999. 1 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES GRANTS TO RECIPIENTS LOCATED IN REGION GRANT GIVEN TO ASSIST IN RESEARCH OF CANCERS INVOLVING PEDIATRIC BRAIN TUMORS 166667 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM GRANTS TO RECIPIENTS LOCATED IN REGION GRANT GIVEN TO ASSIST IN RESEARCH OF CANCERS INVOLVING PEDIATRIC BRAIN TUMORS 86500 0 0 0 0 0 0 253167 0 253167 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES RESEARCH ON CANCERS INCLUDING PEDIATRIC BRAIN TUMORS 166667 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH ON CANCERS INCLUDING PEDIATRIC BRAIN TUMORS 86500 CHECK 2 0 0 0 0 0 0 PART I, LINE 2: SUBSEQUENT TO GRANTING MONIES TO FOREIGN ENTITIES, THE ORGANIZATION REQUESTS INFORMATION AS TO HOW THE FUNDS WERE USED AND DOCUMENTATION AS TO THE USE OF THE FUNDS. THE ORGANIZATION COMPARES THIS INFORMATION WITH THE INTENDED USE OF THE GRANT TO ENSURE THE FOREIGN ORGANIZATION IS COMPLYING WITH THE GRANT REQUIREMENTS. THE ORGANIZATION, IN ITS GRANT AUTHORIZATION LETTERS, RESERVES THE RIGHT TO CONDUCT SITE VISITS, AND OFTEN EXERCISES THIS RIGHT. GA CHAPTER CHARITY GOLF TOURNAMENT 355256 355256 4000 28273 79426 RALEIGH RADIOTHON 121882 121882 83 1619 5 92715 92715 3450 6666 20482 569853 569853 7450 35022 101527 143999 -143999 1 UNIVERSITY OF CALIF AT SAN FRANCISCO 1855 FOLSOM ST - SUITE 535 SAN FRANCISCO CA 94143 680000845 501(C)(3) 501667 SUPPORT FOR PEDIATRIC NEURO-ONCOLOGY CONSORTIUM, FAMILY SUPPORT PROGRAM, CHILDREN'S HOSP LOS ANGELES 4650 SUNSET BLVD LOS ANGELES CA 90027 951690977 501(C)(3) 10000 FAMILY SUPPORT PROGRAMS PHILADELPHIA RONALD MCDONALDS HOUSE 3925 CHESTNUT ST PHILADELPHIA PA 19104 237377505 501(C)(3) 10000 FAMILY SUPPORT PROGRAMS TEXAS CHILDREN'S HOSP 6621 FANNIN ST HOUSTON TX 77030 741100555 501(C)(3) 10000 FAMILY SUPPORT PROGRAMS DUKE UNIVERSITY MEDICAL CENTER BOX 3156 PATHOLOGY DURHAM NC 27710 560532129 501(C)(3) 160852 RESEARCH ENTITLED, PEDIATRIC BRAIN TUMOR BIOLOGY AND THERAPEUTICS ACCELERATE BRAIN CANCER CURE INC 1717 RHODE ISLAND AVENUE NW WASHINGTON DC 20036 522320756 501(C)(3) 50000 PROJECT IMMUNOSIGNATURES CHILDREN'S ONCOLOGY GP 3501 CIVIC CENTER BLVD PHILADELPHIA PA 19104 453083156 501(C)(3) 50000 PROJECT EVERY CHILD CHILDREN'S HOSPITAL OF PHILADELPHIA LOCKER BOX 1352 PHILADELPHIA PA 19178 231352166 501(C)(3) 6389 VS. CANCER LOCAL GRANTS SEATTLE CHILDREN'S 4800 SAND POINT WAY NE SEATTLE WA 98105 910564748 501(C)(3) 17829 VS. CANCER LOCAL GRANTS UNC LINEBERGER CANCER CENTER UNC LINEBERGER CB 7295 CHAPEL HILL NC 27599 566057494 501(C)(3) 49247 VS. CANCER LOCAL GRANTS CHILDREN'S HOSP AT OU MED CENTER 1200 N CHILDRENS AVE OKLAHOMA CITY OK 73104 731200262 501(C)(3) 9120 VS. CANCER LOCAL GRANTS UPSTATE GOLISANO CHILDREN'S HOSPITAL 1 CHILDRENS CIRCLE SYRACUSE NY 13210 161068101 501(C)(3) 7370 VS. CANCER LOCAL GRANTS DANA-FARBER CANCER CENTER 450 BROOKLINE AVE BOSTON MA 02215 042263040 501(C)(3) 91105 FAMILY SUPPORT PROGRAMS, VS. CANCER LOCAL GRANTS, EARLY CAREER DEVELOPMEN 13 SCHOLARSHIPS 105 89750 DIRECT AID TO FAMILIES 349 436027 PART I, LINE 2: ALL ANNUAL RESEARCH GRANTS ARE REVIEWED BY OUR RESEARCH ADVISORY NETWORK AND EVALUATED ON SEVERAL CRITERIA, INCLUDING SCIENTIFIC MERIT OF THE GRANT APPLICATION; SCIENTIFIC BACKGROUND OF THE RESEARCHERS; THE PEER REVIEWED RESEARCH PUBLICATIONS OF THE PRINCIPLE INVESTIGATORS APPLYING; THE SUPPORTING COLLABORATIVE RESEARCH ENVIRONMENT IN THE RESEARCH INSTITUTION; AND THE VIABILITY OF RESEARCH PROPOSED, AND FACILITIES AVAILABLE. EACH GRANT RECIPIENT IS REQUIRED TO SUBMIT PERIODIC UPDATES, AND A FINAL REPORT BEFORE THE FINAL GRANT PAYMENT IS MADE. EACH RESEARCH APPLICATION HAS TO HAVE A HYPOTHESIS DRIVEN RESEARCH PROPOSAL. EACH APPLICATION MUST HAVE A LIST OF SPECIFIC AIMS THAT ARE TO BE ACHIEVED OVER THE TIMELINE OF THE RESEARCH PROJECT. A TIME LINE IS REQUESTED FOR THE ACHIEVEMENT OF THE SPECIFIC AIMS. THE PROGRESS REPORTS REQUIRE THAT THE ACHIEVEMENT OF SPECIFIC AIMS BE DETAILED WITH A SCIENTIFIC DESCRIPTION OF THE MANNER IN WHICH THEY WERE ACHIEVED. IF AN EVENT HAS OCCURRED THAT ALTERS THE ACHIEVEMENT OF THE SPECIFIC AIMS WITHIN THE TIME LINE OF THE RESEARCH PLAN THE RESEARCHERS MUCH GIVE A REASON THAT IT HAS NOT BEEN ACHIEVED AND A NO COST EXTENSION MAY BE REQUESTED AND A NEW TIMELINE IS ESTABLISHED BEFORE THE FINAL PROGRESS REPORT IS ISSUED. EACH GRANT ALLOWS FOR THE OPPORTUNITY OF A SITE VISIT BY THE PBTF AND THESE SITE VISITS ARE MADE BY THE DIRECTOR OF RESEARCH AS WELL AS THE SENIOR SCIENTIFIC RESEARCH ADVISOR, THE PBTF PRESIDENT AS WELL AS THE EXECUTIVE DIRECTOR. RESEARCHER PRESENT THEIR RESEARCH RESULTS IN PERSON AND THE PBTF ASKED QUESTIONS ABOUT THE RESULTS. ALL GRANT APPLICATIONS AND RESEARCH PROJECTS HAVE THE SAME REQUIREMENTS ON GRANT APPROVAL AND REPORTING REGARDLESS OF THE LOCATION OF THE RESEARCHER AND HIS INSTITUTION. THESE REPORTS ARE REVIEWED BY OUR DIRECTOR OF RESEARCH FUNDING AND OUR CONTRACTED SENIOR SCIENTIFIC RESEARCH ADVISOR. FINAL APPROVAL ON ALL GRANTS IS CONDITIONED ON BOARD OF DIRECTOR APPROVAL. X X X 0 0 0 0 0 0 0 0 0 ROBIN P BOETTCHER PRESIDENT/CEO 151139 0 0 0 0 0 5425 0 8382 0 164946 0 0 0 X 38 160469 FAIR MARKET VALUE X 2 15909 X 22 54530 X EVENT EQUIPMENT 52 57465 FAIR MARKET VALUE X VEHICLE EQUIPMENT 93 23715 FAIR MARKET VALUE 0 1 0 FORM 990, PART VI, SECTION A, LINE 1 THE BOARD OF DIRECTORS MAY, BY RESOLUTION, DESIGNATE TWO (2) OR MORE DIRECTORS TO CONSTITUTE AN EXECUTIVE COMMITTEE, WHICH COMMITTEE, TO THE EXTENT PROVIDED IN SUCH RESOLUTION, SHALL HAVE AND MAY EXERCISE ALL OF THE AUTHORITY OF THE BOARD OF DIRECTORS IN THE MANAGEMENT OF THE CORPORATION EXCEPT AS OTHERWISE REQUIRED BY LAW. ALL MEMBERS OF THE EXECUTIVE COMMITTEE SHALL BE DIRECTORS OF THE CORPORATION. VACANCIES IN THE MEMBERSHIP OF THE COMMITTEE SHALL BE FILLED BY THE BOARD OF DIRECTORS AT ANY ANNUAL OR SPECIAL MEETING OF THE BOARD OF DIRECTORS. THE EXECUTIVE COMMITTEE SHALL KEEP REGULAR MINUTES OF ITS PROCEEDINGS AND REPORT THE SAME TO THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B THE RETURN WAS PREPARED BY AN INDEPENDENT ACCOUNTANT WITH ASSISTANCE AND OVERSIGHT BY MANAGEMENT. THE CFO, PRESIDENT, AND FINANCE COMMITTEE REVIEWED THE RETURN WITH THE PREPARERS AT MULTIPLE STAGES OF COMPLETION. UPON RECEIVING A FINAL DRAFT, THE RETURN WAS PRESENTED AT A SCHEDULED BOARD MEETING ON APRIL 20TH, 2017. THE RETURN WAS PRESENTED TO THE FULL BOARD BY A MEMBER OF THE ACCOUNTING FIRM AND THE MANAGEMENT OF THE ORGANIZATION, AND A PERIOD OF TIME FOR QUESTIONS AND COMMENTS WAS ALLOWED. FORM 990, PART VI, SECTION B, LINE 12C ALL FINANCIAL TRANSACTIONS (BOTH REVENUE AND EXPENSE) ARE CONDUCTED WITH THE KNOWLEDGE AND/OR APPROVAL OF EITHER THE PRESIDENT/CEO OR THE CFO. THESE TRANSACTIONS ARE REVIEWED FOR ANY POTENTIAL CONFLICTS OF INTERESTS. ANY ISSUES ARE BROUGHT TO THE ATTENTION OF THE EXECUTIVE COMMITTEE. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD'S EXECUTIVE COMMITTEE DETERMINES COMPENSATION AND BENEFITS FOR THE PRESIDENT/CEO AFTER REVIEWING THE MOST CURRENT GUIDESTAR NONPROFIT COMPENSATION REPORT, OTHER COMPARABLE DATA, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION, RESPONSIBILITY AND BUDGET TO DETERMINE THE REASONABLENESS OF THE SALARY FORM 990, PART VI, SECTION C, LINE 18 RECENT FILINGS OF THE FORM 990 ARE AVAILABLE ONLINE AT CURETHEKIDS.ORG, GUIDESTAR, AND CHARITY NAVIGATOR. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE THROUGH INSPECTION AT THE ADMINISTRATIVE OFFICE IN ASHEVILLE, NC. ADDITIONALLY, THESE DOCUMENTS ARE MADE AVAILABLE TO ALL STATE GOVERNMENTS THAT REQUIRE ANNUAL FILING OF CHARITABLE ORGANIZATIONS. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.