2017-05-11T08:47:35-05:00 2016-12-31 EISNERAMPER LLP 750 THIRD AVENUE NEW YORK NY 100172703 990 2016-01-01 133349872 HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC % NADENE ALLEYNE HUNT 2122421968 505 EIGHTH AVENUE SUITE 902 NEW YORK NY 10018 LOUISE VETTER CEO 2122421968 2017-05-10 true CANDICE METH P01306891 2129498700 64.238.150.10 26368720171315000002 2017-05-11 P A4E2B1F60762E2DF4E2E3494326C6793A8CB008D E3BC2674F97B35F2DABA3B65960F5E9508779E7C 2016 2021-01-29 14:40:06Z LOUISE VETTER 505 EIGHTH AVENUE SUITE 902 NEW YORK NY 10018 9167020 false 9201 X WWW.HDSA.ORG X 1986 NY HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. is a HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 16 16 39 500 0 8464439 8562031 0 0 9389 11868 21507 5021 8495335 8578920 1622642 2330540 0 0 3192777 3234229 0 0 853135 2219403 2476841 7034822 8041610 1460513 537310 5163913 6072984 1029247 1519710 4134666 4553274 X HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A NATIONAL VOLUNTARY HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. false false 1922577 1238290 RESEARCH - Supplies research as advised by its Scientific Advisory Board. The research projects are involved in finding cures and treatments for Huntington's disease. 1989511 1092250 PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 914745 CHAPTER DEVELOPMENT - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES. 1420787 EDUCATION 1420787 6247620 true true false false false false false false false true true false false false true true true false false false false true false false true false false true false true false false false false false false false false true false false false false true false false false true X 90 0 true 39 true false false false false false true true false false false true false X 16 16 false false false false false false false true true false true true true true true true true true true true false AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X NADENE ALLEYNE 2122421968 505 EIGHTH AVENUE SUITE 902 NEW YORK NY 10018 JANG-HO CHA MD PHD PAST CHAIR 6.0 3.0 X X 0 0 0 DANIEL VANDIVORT TREASURER 6.0 3.0 X X 0 0 0 STEVEN SEEKINS PAST-CHAIR THROUGH 11/18/16 6.0 3.0 X X 0 0 0 EJ GARNER CHAIR-ELECT 6.0 3.0 X X 0 0 0 JENNIFER LEYTON SECRETARY 6.0 3.0 X X 0 0 0 Arik Johnson PSYD CHAIR 6.0 3.0 X X 0 0 0 GERALD A FRANCESE ESQ TRUSTEE 6.0 3.0 X 0 0 0 CLAUDIA ADKISON JD PHD TRUSTEE THROUGH 11/18/16 6.0 3.0 X 0 0 0 MICHAEL BERMAN TRUSTEE THROUGH 11/18/16 6.0 3.0 X 0 0 0 HUGH DE LOAYZA TRUSTEE 6.0 3.0 X 0 0 0 SAMUEL FRANK MD Trustee 6.0 3.0 X 0 0 0 MICHELLE GRAY PHD Trustee 6.0 3.0 X 0 0 0 BILL KLINE Trustee 6.0 3.0 X 0 0 0 ARVIND SREEDHARAN TRUSTEE 6.0 3.0 X 0 0 0 DONALD HIGGINS MD TRUSTEE 6.0 3.0 X 0 0 0 MICHAEL ROTH TRUSTEE 6.0 3.0 X 0 0 0 DANIEL BRENNAN TRUSTEE 6.0 3.0 X 0 0 0 STACY COEN TRUSTEE 6.0 3.0 X 0 0 0 VICTOR SUNG MD TRUSTEE 6.0 3.0 X 0 0 0 Louise Vetter Chief Executive Officer 35.0 3.0 X 264026 0 51910 Nadene Alleyne Director of Finance & Admin 35.0 3.0 X 133089 0 46763 George Yohrling Dir. of Med.& Scientific Aff 35.0 3.0 X 181001 0 10542 Nancy Rhodes Director of Field Dev & Oper. 35.0 3.0 X 136949 0 30838 Debra Lovecky Director of Prog Serv & Advoca 35.0 3.0 X 130426 0 20509 845491 0 160562 5 false true false 0 228658 2660302 1923456 3749615 297015 8562031 0 11983 11983 0 0 0 0 0 287140 287255 -115 -115 -115 300845 2660302 300845 0 0 0 MISCELLANEOUS 900099 5021 5021 5021 8578920 16889 2205562 2205562 0 124978 124978 0 397115 288961 42605 65549 0 2084426 1516737 223629 344060 106300 77350 11404 17546 402144 292621 43144 66379 244244 177724 26204 40316 0 360 360 59141 35667 14558 8916 0 0 0 445368 331180 102820 11368 0 67365 25714 34614 7037 0 0 266592 177728 44432 44432 0 0 304100 245998 46307 11795 1079 1079 0 22268 16203 2389 3676 42929 31346 4543 7040 PRINTING AND PUBLICATIONS 192564 74034 84677 33853 PRIZES, GIFTS & AWARDS 468080 398372 345 69363 POSTAGE AND SHIPPING 85485 16093 36046 33346 TELEPHONE 72172 37827 27526 6819 449338 173525 194173 81640 8041610 6247620 940855 853135 0 0 3446259 4495719 1115008 905233 0 0 0 0 0 0 0 0 0 0 131246 129720 374755 328601 45608 46154 425792 496158 0 0 0 0 0 0 0 0 5163913 6072984 387458 359940 540161 1032367 26886 12954 0 0 0 0 0 0 0 0 0 0 74742 114449 1029247 1519710 X 119282 930538 3765384 3372736 250000 250000 4134666 4553274 5163913 6072984 X 537310 1298 -120000 X false true X true false X 6386080 7152478 7706642 8464439 8562031 38271670 0 0 6386080 7152478 7706642 8464439 8562031 38271670 2614134 35657536 6926 2524 7436 11868 28754 0 20142 22576 25757 21507 5021 95003 38395427 0.92869 0.92454 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 281881 -17004 264877 280466 1415 281881 278372 2094 280466 276790 1582 278372 0.94400 0.05600 false false 64105 40093 24012 293565 271423 22142 17085 17085 46154 0 DEFERRED RENT 93118 OBLIGATIONS UNDER CAPITAL LEASE 21331 114449 X 9510651 1298 2853889 2855187 6655464 1923456 1923456 8578920 8935104 120000 2696950 2816950 6118154 1923456 1923456 8041610 ENDOWMENT SCHEDULE D, PART V, LINE 4: The Society's endowment consists of donor-restricted funds established for research purposes. SCHEDULE D, PART XI, LINE 2D & 4B: lINE 2D: TOTAL REVENUE FROM HDSA CHAPTERS OF ($2,853,889) LINE 4B: TOTAL PAYMENTS FROM HDSA CHAPTERS OF $1,923,456 SCHEDULE D, PART XII, LINE 2D & 4B: lINE 2D: TOTAL EXPENSES FROM HDSA CHAPTERS ($2,696,950) BAD DEBT EXPENSE (120,000) --------- ($2,816,950) LINE 4B: TOTAL PAYMENTS FROM HDSA CHAPTERS OF $1,923,456 FORM 990, SCHEDULE D, PART X: The Society follows the provisions of the Financial Accounting Standards Board's (the "FASB") Accounting Standards Codification ("ASC") Topic 740, Income Taxes, as it relates to accounting and reporting for uncertainty in income taxes. Because of the Society's general tax-exempt status, management believes ASC Topic 740 has not had, and is not anticipated to have, a material impact on the Society's financial statements. true North America Grantmaking N/A 49978 Europe (Including Iceland and Greenland) Grantmaking N/A 75000 124978 124978 Europe (Including Iceland and Greenland) MEDICAL RESEARCH 75000 North America MEDICAL RESEARCH 49978 2 false false false false false false MAINTAINING RECORDS FOREIGN ACTIVITIES FORM 990, SCHEDULE F, PART I, LINE 1 THE ORGANIZATION REQUESTS SEMI-ANNUAL FINANCIAL REPORTS FROM grantees OFFICES. 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X see supp info X 9 36869 FMV X MISCELLANEOUS GOODS 559 260146 FMV false true true CARS AND VEHICLES FORM 990, SCHEDULE M, LINE 6 AND LINE 9: HUNTINGTON'S DISEASE SOCIETY IS THE RECIPIENT OF THE PROCEEDS FROM SALES OF VEHICLE AND SECURITIES DONATIONS THROUGH UNRELATED INTERMEDIARY ORGANIZATIONS. PART III - PROGRAM SERVICES 4D: Education Provides information and education through publication and distribution of newsletters, brochures and science updates. Payroll FORM 990, PAGE 1, PART I, QUESTION 5, AND PAGE 5, QUESTION 2A: The Society currently employees 39 individuals. Payroll and benefits are processed through a professional employer organization (PEO) which files the form w-3 on the Society's behalf under the peo's federal EIN#. Therefore the society does not file a form w-3. REVIEW OF FORM 990 FORM 990, PART VI, SECTION B, LINE 11B: MANAGEMENT THOROUGHLY REVIEWS AND SUBSEQUENTLY PROVIDES AN ELECTRONIC DRAFT COPY OF FORM 990 TO THE GOVERNING BODY FOR REVIEW BEFORE FILING WITH THE IRS. CONFLICT OF INTEREST POLICY FORM 990, PART VI, SECTION B, LINE 12C: OFFICERS AND TRUSTEES ARE REQUESTED TO ANNUALLY SIGN DOCUMENTATION. OFFICER COMPENSATION FORM 990, PART VI, SECTION B, LINE 15A AND 15B: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION OF THE BOARD. GOVERNING DOCUMENTS FORM 990, PART VI, SECTION C, LINE 19: THE SOCIETY MAKES ITS by-laws, ARTICLES OF INCORPORATION, IRS FORM 1023, annual reports, audited financial statements, IRS Form 990 documents, conflict of interest policy and privacy policy AVAILABLE TO THE PUBLIC UPON REQUEST. 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