2017-07-12T14:02:13-05:00 2017-02-28 113518842 MARKS PANETH LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2016-03-01 237191992 TOURETTE ASSOCIATION OF AMERICA INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 11361 SONJA MASON-VIDAL VICE PRESIDENT, FINANCE 7182242999 2017-07-12 1 ROBERT R LYONS CPA P00227472 2125038800 2017-07-12 69.74.165.34 2017-07-12 14:54:53 ED P 0EA133E925D455436872AF86EAC7847202410F97 B8E8917F0931719FE7A109CCAA1C726E9AF7A481 2016 2021-01-29 14:40:06Z SONJA MASON-VIDAL 42-40 BELL BOULEVARD BAYSIDE NY 11361 10865550 0 X TOURETTE.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 21 21 26 35 0 0 2929098 3105580 169185 164082 484554 321068 0 0 3582837 3590730 875157 1111550 0 0 3097093 2666472 0 0 926666 2697974 2229293 6670224 6007315 -3087387 -2416585 12790097 11104146 1148052 1318850 11642045 9785296 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. 0 0 2026250 1111550 RESEARCH - IDENTIFY THE CAUSES OF TOURETTE SYNDROME, IMPROVE PATIENT CARE AND ULTIMATELY FIND A CURE FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES AND CLINICAL CARE. 1441399 164082 PUBLIC EDUCATION - PROVIDES FOR EDUCATION AND AWARENESS TO THE PUBLIC ON TOURETTE SYNDROME, AMONG OTHER THINGS, MAILING OF TOURETTE SYNDROME PAMPHLETS, BROCHURES, VIDEOS AND FILMS. 915459 CENTER FOR DISEASE CONTROL PROGRAM - THE ASSOCIATION AND CENTERS FOR DISEASE CONTROL PREVENTION (CDC) MEDICAL EDUCATION PARTNERSHIP IS PART OF A LARGER APPROPRIATION FROM THE US CONGRESS TO PROMOTE EXPERT MEDICAL EDUCATION ON TOURETTE SYNDROME (TS). THE GOALS OF THE MEDICAL EDUCATION PROGRAM ARE TO PROVIDE EXPERT EDUCATION IN TS TO PHYSICIANS AND TO ALLIED PROFESSIONALS, AND TO ENCOURAGE PHYSICIANS APPLICATION TO THE ASSOCIATION'S REFERRAL LISTS. THE TOURETTE SYNDROME BEHAVIOR TRAINING INSTITUTE ( "TS- BTI") WAS CREATED TO EXPAND THE NUMBER OF HEALTHCARE PROFESSIONALS COMPETENTLY TRAINED IN BEHAVIOR THERAPY FOR TOURETTE SYNDROME AND OTHER TIC DISORDERS. 58292 PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 58292 4441400 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 31 0 26 1 0 0 0 0 0 1 1 0 0 0 0 X 21 21 0 0 0 0 1 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X SONJA MASON-VIDAL 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612820 ROVENA SCHIRLING CHAIR 5.00 X X 0 0 0 MONTE REDMAN FIRST VICE CHAIR 2.00 X X 0 0 0 MARCIE KIRKPATRICK SECOND VICE CHAIR 2.00 X X 0 0 0 ALICE KANE THIRD VICE CHAIR 2.00 X X 0 0 0 CINDY KURTZ FOURTH VICE CHAIR 2.00 X X 0 0 0 FRED COOK FINANCE COMMITTEE CHAIR 2.00 X X 0 0 0 BRUCE D OCHSMAN DIRECTOR 2.00 X 0 0 0 STEPHEN BARRON DIRECTOR 2.00 X 0 0 0 REID ASHINOFF DIRECTOR 2.00 X 0 0 0 PAUL S DEVORE DIRECTOR 2.00 X 0 0 0 KENNETH D MOELIS DIRECTOR (FORMER) 2.00 X 0 0 0 ROBIN SMALL DIRECTOR 2.00 X 0 0 0 RANDI ZEMSKY DIRECTOR 2.00 X 0 0 0 JOSEPH CAMPOLO DIRECTOR 2.00 X 0 0 0 DAVID KOCH DIRECTOR 2.00 X 0 0 0 JULIE MOELIS DIRECTOR 2.00 X 0 0 0 DR AZAD ANAND DIRECTOR 2.00 X 0 0 0 DR PETER HOLLENBROOK DIRECTOR 2.00 X 0 0 0 STEPHEN MCCALL M ED DIRECTOR 2.00 X 0 0 0 JEFFREY KRAMER DIRECTOR 2.00 X 0 0 0 NANCY KRAMER DIRECTOR 2.00 X 0 0 0 CHRIS OVITZ DIRECTOR 2.00 X 0 0 0 JOHN MILLER PRESIDENT & CEO (AS OF 2/8/16) 40.00 X 199001 0 14001 KEVIN MCNAUGHT VICE PRESIDENT, MED/SCI PR 40.00 X 151343 0 7594 JULIE NOULAS VICE PRESIDENT, FINANCE 40.00 X 137512 0 7049 AMANDA TALTY V.P., DEVELOPMENT (AS OF 6/13/16) 40.00 X 70233 0 1055 JENNIFER DAVIS V.P., CHAPTER NETWORKS & SUPPORT 40.00 X 117335 0 15934 SASKIA THOMSON V.P., MARKETING & COMMUNICATIONS 40.00 X 174728 0 7565 MICHAEL CAPOBIANCO VICE PRESIDENT, DEVELOPMENT (FORMER) 40.00 X 64455 0 7644 ELRIDGE PROCTOR V.P., PUBLIC POLICY (FORMER) 40.00 X 86746 0 4553 DIANA FELNER V.P., PUBLIC POLICY (AS OF 11/1/16) 40.00 X 12459 0 0 1013812 0 65395 5 0 1 0 0 94728 1083554 907820 1019478 8149 3105580 CONFERENCE INCOME 900099 163663 163663 SALE OF INFO MATERIAL 900099 419 419 164082 189751 189751 6691955 6560638 131317 131317 131317 714182 1083554 714182 0 3590730 164082 0 321068 819856 819856 291694 291694 1172161 781844 180815 209502 1112612 637357 179643 295612 20092 8106 5379 6607 145619 76892 39136 29591 215988 123972 49326 42690 237420 173267 41751 22402 204811 204019 792 134838 82882 9738 42218 122248 68118 22857 31273 218038 127642 45507 44889 178847 131957 14455 32435 147592 147592 19823 11000 4442 4381 45274 34634 9055 1585 PRINTING AND PUBS. 381758 317823 1294 62641 NATIONAL CONFERENCE 173740 173740 POSTAGE 157225 76888 13987 66350 CHAPTER SUPPORT 63971 63971 143708 88146 21864 33698 6007315 4441400 639249 926666 505031 2381638 7401090 2382780 39009 60745 403272 296749 243582 221183 256836 231501 33048 25335 4165065 5735716 12790097 11104146 339058 435747 757646 827553 51348 55550 1148052 1318850 X 10835229 9126486 480816 332810 326000 326000 11642045 9785296 12790097 11104146 -2416585 559836 0 X X 0 1 X 1 1 1 X 4301410 4750321 3219382 2929098 3105580 18305791 4301410 4750321 3219382 2929098 3105580 18305791 298086 18007705 413354 345085 480555 244479 189751 1673224 443 36281 32121 68845 20047860 516832 0.89820 0.89910 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 91345 0 0 1 47857 0 0 139202 0 326000 5989 5989 326000 326000 4604 4604 326000 326000 1560 1560 326000 326000 1953 1953 326000 326000 3417 3417 326000 1.00000 0 0 256836 231501 25335 25335 X 4299141 559836 148575 708411 3590730 0 3590730 6155890 148575 148575 6007315 0 6007315 PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. PART X, LINE 2: THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2017 AND FEBRUARY 29, 2016 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. GALA 822156 699656 122500 107974 GOLF TOURNAMENTS 535363 322373 212990 263182 1 440217 61525 378692 343026 1797736 1083554 714182 714182 714182 0 1 AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 410726167 501(C)(3) 86666 RESEARCH CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501(C)(3) 63275 RESEARCH THE GENERAL HOSPITAL CORPORATION PO BOX 414876 BOSTON MA 02241 042697983 501(C)(3) 90000 RESEARCH JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 501(C)(3) 136500 RESEARCH REGENTS OF THE UNIVERSITY OF CALIFORNA 9500 GILMAN DRIVE LA JOLLA CA 92093 956006144 501(C)(3) 40000 RESEARCH UC REGENTS 405 HILGARD AVENUE LOS ANGELES CA 90095 956006143 501(C)(3) 130415 RESEARCH UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC 3901 RAINBOW BLVD KANSAS CITY KS 66103 481108830 501(C)(3) 136500 RESEARCH UNIVERSITY OF SOUTH FLORIDA PO BOX 864568 ORLANDO FL 32886 593102112 501(C)(3) 68250 RESEARCH UNIVERSITY OF UTAH 1471 FEDERAL WAY SALT LAKE CITY UT 84102 876000525 501(C)(3) 68250 RESEARCHRESEARCH 9 DEEP BRAIN STIMULATION 1 129000 PROVIDING CARE TO PATIENTS WITH TOURETTES(CENTERS OF EXCELLENCE PROGRAM) 5 152470 MAINTAINING BRAIN BANK COLLECTION 1 10000 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X X 0 0 0 0 0 0 0 0 0 JOHN MILLER PRESIDENT & CEO (AS OF 2/8/16) 199001 0 0 0 0 0 0 0 14001 0 213002 0 0 0 KEVIN MCNAUGHT VICE PRESIDENT, MED/SCI PR 151343 0 0 0 0 0 0 0 7594 0 158937 0 0 0 SASKIA THOMSON V.P., MARKETING & COMMUNICATIONS 174728 0 0 0 0 0 0 0 7565 0 182293 0 0 0 FORM 990, PART VI, SECTION A, LINE 6 TOURETTE ASSOCIATION OF AMERICA INC. IS A MEMBERSHIP ORGANIZATION. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE 990. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 15 THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE. THE CHAIRMAN TAKES THE AMOUNTS TO THE FULL BOARD FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 FINANCIAL STATEMENTS, FORM 990 AND ANNUAL REPORT ARE ON THE WEB. ALL OTHER POLICIES ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF INDEPENDENT ACCOUNTANT HAS NOT BEEN CHANGED FROM PRIOR YEAR.