2017-01-24T13:43:00-06:00 2015-12-31 042571780 ALEXANDER ARONSON FINNING & CO PC 21 EAST MAIN STREET WESTBOROUGH MA 01581 990 2015-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET NO 200 NEWTON MA 02458 DAVID ARONS CEO 6179249997 2017-01-23 1 JOHN BUCKLEY CPA P00830631 5083669100 2017-01-18 2015 2021-01-29 14:40:06Z X DAVID ARONS 55 CHAPEL STREET NO 200 NEWTON MA 02458 10724553 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.WE HAVE A RIGOROUS AND THOUGHTFUL AGENDA, INTEGRATING RESEARCH AND PUBLIC POLICY TO BRIDGE CRITICAL GAPS. STARTING WITH DISCOVERY SCIENCE, TO CLINICAL TRIAL DESIGN AND THE DEVELOPMENT OF NEW THERAPIES, THERE ARE MANY OPPORTUNITIES TO MAKE IMPROVEMENTS AND SPEED THE MOMENTUM OF NEW FINDINGS. IT'S TIME TO BUILD ON PROGRESS AND TRANSFORM TOMORROW, TODAY. 16 16 65 20000 0 0 9387870 8730063 0 0 136024 139064 -1442137 -1586911 8081757 7282216 2451549 2072587 0 0 5072051 3782710 0 0 1164786 3473598 2967612 10997198 8822909 -2915441 -1540693 4293080 2713664 3333834 3393913 959246 -680249 X NATIONAL BRAIN TUMOR SOCIETY IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.WE HAVE A RIGOROUS AND THOUGHTFUL AGENDA, INTEGRATING RESEARCH AND PUBLIC POLICY TO BRIDGE CRITICAL GAPS. STARTING WITH DISCOVERY SCIENCE, TO CLINICAL TRIAL DESIGN AND THE DEVELOPMENT OF NEW THERAPIES, THERE ARE MANY OPPORTUNITIES TO MAKE IMPROVEMENTS AND SPEED THE MOMENTUM OF NEW FINDINGS. IT'S TIME TO BUILD ON PROGRESS AND TRANSFORM TOMORROW, TODAY. 0 0 4856740 2061287 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY, INC. (NBTS) FOCUSES ON FUNDING BOTH ADULT AND PEDIATRIC BRAIN TUMOR RESEARCH IN A STRATEGIC APPROACH THAT DRIVES THE GREATEST IMPACT, RESULTS, AND PROGRESS. OUR RESEARCH PROGRAM IS PATIENT-CENTRIC, COLLABORATIVE, AND STRUCTURED WITH A DISCIPLINED FOCUS ON DEVELOPING NEW, EFFECTIVE TREATMENTS FOR BRAIN TUMORS. WE DON'T FOCUS ON ONE SPECIFIC APPROACH TO RESEARCH, BUT DEVELOP PIONEERING INITIATIVES THAT COMBINE INNOVATIVE BUSINESS MODELS WITH CUTTING EDGE SCIENCE, TO ADDRESS KEY CHALLENGES AND ALLOW US TO ACCELERATE THE TRANSLATION SCIENCE INTO SURVIVAL. IN ITS HISTORY, NBTS HAS FUNDED MORE THAN $30 MILLION IN HIGH-IMPACT SCIENTIFIC RESEARCH AND SOME OF THE MOST IMPORTANT DEVELOPMENTS AND PROGRESS IN THE BRAIN TUMOR FIELD WERE INFLUENCED, DRIVEN, DISCOVERED AND ACCOMPLISHED AS A DIRECT RESULT OF NBTS'S WORK. THESE INCLUDE: 1. FUNDED CRITICAL NEW SCIENTIFIC DISCOVERIES IN ADULT AND PEDIATRIC BRAIN TUMOR RESEARCH THAT HAVE OPENED OPPORTUNITIES FOR IMMUNOTHERAPY AND USING NEW GENOMIC SCIENCE TO PURSUE NEW AND BETTER TREATMENTS. HIGHLIGHTS INCLUDE DISCOVERY OF NEW OPPORTUNITY TO MAKE PROGRESS AGAINST THE MOST DEADLY CHILDHOOD BRAIN TUMOR AND FUNDING ENABLED DISCOVERY OF NEW UNDERSTANDING OF HOW HIGH-GRADE AND LOW-GRADE BRAIN TUMORS GROW AND WHAT POTENTIALLY CAN SHUT THEM OFF. 2. SHORTENED THE TRADITIONAL LONG RESEARCH TIMELINE THROUGH OUR "DEFEAT" BRAIN TUMOR INITIATIVES THAT ACCELERATE RESEARCH THROUGH COLLABORATION AND UNPRECEDENTED DATA SHARING. THE DEFEAT GBM COLLABORATIVE IDENTIFIED NEW POTENTIAL NEW TREATMENTS IN UNDER TWO YEARS TO BE EVALUATED IN CLINICAL TRIALS. 3. LEAD GLOBAL INITIATIVE THAT IMPROVED USE OF MRI IMAGING TO SPEED UP BRAIN TUMOR DRUG DEVELOPMENT4. SUCCESSFULLY ADVOCATED FOR INCREASED FEDERAL FUNDING FOR BRAIN TUMOR RESEARCH YEAR OVER YEAR IN ADULTS AND ESTABLISHED NEW FEDERAL FUNDING OPPORTUNITY FOR PEDIATRIC BRAIN TUMORS.5. BUILD AND MOBILIZED THE LARGEST VOLUNTEER ADVOCACY GROUP IN THE UNITED STATES TO RAISE THEIR VOICES TO ELECTED OFFICIALS. 1888732 11300 PUBLIC POLICY & ADVOCACY: NBTS IS A RECOGNIZED NATIONAL PUBLIC POLICY AND ADVOCACY LEADER IN THE BRAIN TUMOR SPACE. BY MOBILIZING THOUSANDS OF VOLUNTEERS TO ADVOCATE TO CONGRESS AND THE ADMINISTRATION, IT HAS SUCCEEDED IN INCREASING THE AMOUNT OF FEDERAL FUNDING DEVOTED TO BRAIN TUMOR RESEARCH, ADVANCED FEDERAL POLICY TO STRENGTHEN ADULT AND PEDIATRIC BRAIN TUMOR RESEARCH AND DRUG DEVELOPMENT AND IMPROVED REGULATORY AND FUNDING POLICIES DEVELOPED BY THE FDA AND NATIONAL CANCER INSTITUTE. NBTS CONTINUES TO SUCCESSFULLY PROVIDE AN OPPORTUNITY FOR PATIENTS, CAREGIVERS AND RESEARCHERS TO COME TO WASHINGTON AND EDUCATE CONGRESS AND FEDERAL AGENCIES. THROUGH ADVOCACY OUR COMMUNITY HAS A VOICE AND HAS POWER TO MAKE POSITIVE CHANGE. 6745472 1 0 0 1 0 0 0 0 0 1 1 0 0 0 0 1 0 1 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 27 0 1 65 1 0 0 0 0 0 1 1 0 0 0 0 X 16 16 1 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MA CA AZ X X STEPHEN DROWN DIRECTOR OF FINANCE 6173932816 55 CHAPEL STREET NEWTON MA 02458 MICHAEL CORKIN TREASURER 4.00 X X 0 0 0 KEN GREY BOARD MEMBER 2.00 X 0 0 0 SHEILA KILLEEN BOARD MEMBER 2.00 X 0 0 0 JEFFREY KOLODIN BOARD MEMBER 4.00 X 0 0 0 SUSAN PANNULLO MD BOARD MEMBER 2.00 X 0 0 0 ALISON ROSS ESQ BOARD MEMBER 2.00 X 0 0 0 RICHARD GENDERSON BOARD MEMBER 2.00 X 0 0 0 MICHAEL NATHANSON CHAIR 5.00 X X 0 0 0 ERIC B WISSNIA BOARD MEMBER 2.00 X 0 0 0 CORD SCHLOBOHM VICE CHAIR 4.00 X X 0 0 0 SARAH DURHAM CLERK 4.00 X X 0 0 0 KRISTEN CAMPANA BOARD MEMBER 2.00 X 0 0 0 MICHAEL DURBIN BOARD MEMBER 2.00 X 0 0 0 JOHN FRISHKOPF BOARD MEMBER 2.00 X 0 0 0 CHANDRI NAVARRO BOARD MEMBER 2.00 X 0 0 0 STEPHEN SADLER JD BOARD MEMBER 2.00 X 0 0 0 DAVID ARONS CEO (BEGAN DECEMBER) 40.00 X 116783 0 21193 JAMES CHARNLEY CHIEF FINANCE OFFICER (LEFT JUL 2015) 40.00 X 74728 0 2964 MARRYANN MORGAN CHIEF OPERATION OFFICER (LEFT DEC 2015) 40.00 X 84173 0 4862 SALLY DAVIS CEO (LEFT OCT 2015) 40.00 X 195920 0 19442 CARRIE TREADWELL CHIEF RESEARCH OFFICER 40.00 X 142445 0 143 SAMANTHA MASTERSON CHIEF ADVANCEMENT OFFICER 40.00 X 109000 0 2585 723049 0 51189 6 0 1 0 PRICEWATERHOUSECOOPERS LLP 4040 W BOY SCOUT BOULEVARD TAMPA FL 33607 CONSULTANT 300000 1 23865 7105815 1600383 51967 8730063 42956 42956 1951534 1855426 96108 96108 96108 0 7105815 1586911 -1586911 -1586911 7282216 0 0 -1447847 2072587 2072587 520115 295242 141982 82891 2700351 2039295 188976 472080 45385 20072 4867 20446 285604 181269 32159 72176 231255 152285 16156 62814 189452 185397 4055 29905 29905 7525 7525 692831 501936 138969 51926 59949 52871 7078 140180 57234 33726 49220 575837 463778 49913 62146 280743 201964 39520 39259 377538 235524 30043 111971 110833 80488 15280 15065 21943 15630 2903 3410 BAD DEBT 243400 97360 146040 SPECIAL EVENT COSTS 95027 0 95027 DUES AND SUBSCRIPTIONS 54235 51273 1437 1525 TRAINING & RECRUITING 49103 21020 10331 17752 39111 20247 18864 8822909 6745472 912651 1164786 1014436 833169 1007915 535015 4046 13308 59255 937258 882992 165099 54266 1640680 1181363 447596 50596 4293080 2713664 577691 617644 2313747 2736269 45396 40000 397000 3333834 3393913 X -328277 -2338117 990869 1361214 296654 296654 959246 -680249 4293080 2713664 -1540693 -98802 0 X X 0 1 X 1 0 X 2907695 8815314 9293204 9387870 8730063 39134146 2907695 8815314 9293204 9387870 8730063 39134146 39134146 126698 132366 114572 55033 42956 471625 39605771 0.98810 0.98020 X 187735 187735 8635174 8822909 591145 147786 0 0 617341 684881 699860 591145 2593227 3889841 52426 92331 102177 86536 333470 154335 171220 174965 101199 601719 902579 397000 397000 0 305010 1387 306397 300399 4611 305010 298412 1987 300399 307008 3404 12000 298412 306106 2071 1169 307008 0.00000 0.97260 0.02740 0 0 135666 112540 23126 195197 195203 -6 606395 575249 31146 54266 X 9165152 -98802 402352 1586911 1890461 7274691 7525 7525 7282216 10804647 402352 1586911 1989263 8815384 7525 7525 8822909 PART IV, LINE 2B: NBTS WAS HOLDING FUNDS AS OF 12/31/14 FOR ANOTHER NON PROFIT ORGANIZATION. THE FUNDS WERE FULLY DISBURSED DURING 2015 AND NBTS IS NO LONGER HOLDING ANY FUNDS FOR THE ORGANIZATION. PART V, LINE 4: THE SOCIETY HAS PERMANENTLY RESTRICTED NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2015 WAS INVESTED IN BOND FUNDS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2015. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. SCHEDULE D PART XI LINE 2D DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. ($ 1,586,911) WALK - RACE FOR HOPE - PA 837738 837738 138433 WALK - RACE FOR HOPE - DC 1181843 1181843 148017 28 4949326 4949326 1300462 6968907 6968907 1586912 1586912 -1586912 1 CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 501 (C) 3 15000 RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVENUE BOX 701 NEW YORK NY 10065 501 (C) 3 250000 RESEARCH LUDWIG INSTITUTE FOR CANCER RESEARCH 666 THIRD AVENUE 28TH FLOOR NEW YORK NY 10017 501 (C) 3 1000000 RESEARCH UC SANFRANCISCO 3333 CALIFORNIA STREET - SUITE 315 SAN FRANCISCO CA 94143 501 (C) 3 73765 RESEARCH MASS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 501 (C) 3 75000 RESEARCH UNIVERSITY OF TEXAS MD ANDERSON CENTER 1515 HOLCOMBE BOULEVARD HOUSTON TX 77030 375000 RESEARCH ARIZONA STATE UNIVERSITY 1151 S FOREST AVE TEMPE AZ 85281 501 (C) 3 75000 RESEARCH DUKE UNIVERSITY 2127 CAMPUS DRIVE DURHAM NC 27708 501 (C) 3 50000 RESEARCH MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 150000 RESEARCH WASHINGTON UNIVERSITY 660 SOUTH ECULID AVE ST LOUIS MO 631101010 501 (C) 3 75000 RESEARCH 8 2 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) AWARDS RESEARCH GRANTS THAT ALSO INCLUDE MILESTONE CHECK-INS AND REVIEWS, THROUGH PROGRAM INITIATIVES THAT HAVE A SPECIFICALLY DEFINED AREA OF FOCUS AND IN OPEN REQUESTS FOR APPLICATIONS (RFA). THE NATIONAL BRAIN TUMOR SOCIETY'S RESEARCH GRANT APPLICATION REVIEW FOR RFAS IS BUILT ON THE GOLD STANDARD SET BY THE NATIONAL INSTITUTES OF HEALTH. MEMBERS OF THE NBTS SCIENTIFIC ADVISORY COUNCIL (SAC), LED BY THE CHAIR AND VICE-CHAIR, OVERSEE THE REVIEW PROCESS. EXPERT REVIEWERS ARE ASSIGNED TO EACH APPLICATION AND RESPONSIBLE FOR RIGOROUS REVIEW AND SCORING OF EACH BASED ON SCIENTIFIC MERIT. STAFF AND BOARD DISCUSS WITH THE SAC HOW THE RESEARCH FITS INTO THE OVERALL GOALS OF THE PROGRAM AND FINAL PROJECT GRANT AWARD(S) ARE SELECTED. ONCE A TRADITIONAL RFA GRANT IS AWARDED, PROGRESS REPORTS ON DEFINED MILESTONES ARE SUBMITTED EVERY SIX MONTHS IN WRITING AND DISCUSSED IN PERSON WITH THE REVIEWERS TO BE SURE DELIVERABLES ARE BEING MET. GRANTS GIVEN THROUGH NATIONAL BRAIN TUMOR SOCIETY'S LARGER, INTEGRATED PROGRAM INITIATIVES LOOK AT THE BEST RESEARCH BEING DONE TO MEET THE NEEDS OF THE PROGRAM. CHOSEN RESEARCHERS SUBMIT THEIR PLANNED WORK WHICH THEN FOLLOWS THE PROCESS OUTLINE ABOVE FOR REVIEW. ONCE FULLY VETTED AND APPROVED IN THIS PROCESS, THEIR WORK AND MILESTONES ARE REVIEWED ANNUALLY WIH THE PROGRAM INITIATIVE'S SCIENTIFIC DIRECTOR AND WITH THE STRATEGIC SCIENTIFIC ADVISORY COUNCIL DEDICATED TO THE SPECIFIC INITIATIVE. X X X 1 0 0 0 0 0 0 0 0 SALLY DAVIS CEO (LEFT OCT 2015) 195920 0 0 0 0 0 3830 0 15612 0 215362 0 0 0 PART I, LINE 4A SALLY DAVIS RECEIVED A SEVERANCE PAYMENT OF $9,615 DURING 2015. X 23 17122 COST BASIS X SILENT AUCTION PRIZES 97 31145 COST VALUE X RAFFLE PRIZES 4 3700 COST VALUE 0 1 0 PART I, LINE 32B: BOTH THE CDO AND DDO REVIEW NON-STANDARD CONTRIBUTIONS. FORM 990, PART I, LINE B: NATIONAL BRAIN TUMOR SOCIETY, INC. IS FILING AN AMENDED RETURN DUE TO ADDITIONAL ADJUSTING ENTRIES THAT WERE POSTED, WHICH IMPACTED THE STATEMENT OF REVENUE, STATEMENT OF FUNCTIONAL EXPENSES, AND BALANCE SHEET. FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11 A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMIAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE SOCIETY'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C: THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITORS. CURE GBM 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC