2025-11-13T10:39:13-06:00 2024-12-31 410746749 CLIFTONLARSONALLEN LLP 220 S 6TH STREET SUITE 300 MINNEAPOLIS MN 55402 990 2024-01-01 832016277 I AM ALS IAMA 3013377334 1200 PENNSYLVANIA AVE NW 14135 WASHINGTON DC 20044 PETER BOWEN CHAIR 3013377334 2025-11-10 1 1 LIZ COOK P01878112 6123764500 2025-11-10 2024 2025-03-06 01:10:19Z PETER BOWEN 1200 PENNSYLVANIA AVE NW 14135 WASHINGTON DC 20044 4128278 0 X WWW.IAMALS.ORG X 2018 IL I AM ALS EXISTS TO SUPPORT AND MOBILIZE THE ALS COMMUNITY FOR THE PURPOSES OF IMPROVING QUALITY OF LIFE, RAISING AWARENESS, INCREASING FUNDING FOR RESEARCH AND ACCESS, AND IDENTIFYING TREATMENTS AND CURES FOR ALS. 12 12 14 192 0 0 2290726 4027369 0 0 5295 64456 30757 26117 2326778 4117942 4000 5255 0 0 1415274 1732743 0 0 236472 755422 828632 2174696 2566630 152082 1551312 1851960 3413223 57081 57550 1794879 3355673 I AM ALS EXISTS TO SUPPORT AND MOBILIZE THE ALS COMMUNITY FOR THE PURPOSES OF IMPROVING QUALITY OF LIFE, RAISING AWARENESS, INCREASING FUNDING FOR RESEARCH AND ACCESS, AND IDENTIFYING TREATMENTS AND CURES FOR ALS. 0 0 548250 COMMUNITY SUPPORTTHE I AM ALS COMMUNITY SUPPORT TEAM PROVIDES DIRECT EMOTIONAL SUPPORT SERVICES, SUPPORT GROUPS, PEER MATCHING, AND INFORMATION AND RESOURCES TO INDIVIDUALS LIVING WITH ALS, LOVED ONES, AND CAREGIVERS. 416876 GOVERNMENT AFFAIRS, POLICY, AND REASEARCHI AM ALS ENABLES THE COMMUNITY ADVOCATES TO INFLUENCE CHANGES TO FEDERAL FUNDING AND TRANSFORM RESEARCH SYSTEMS, INSTITUTIONAL POLICY, AND REGULATORY PROCESSES WITH THE GOALS OF INCREASING RESEARCH FUNDING; IMPROVING PATIENT ACCESS TO TREATMENT; AND SPEEDING THE DEVELOPMENT AND ACCESS OF TREATMENTS AND CURES FOR PEOPLE LIVING WITH ALS. 455010 COMMUNITY ORGANIZING AND COMMUNICATIONI AM ALS MOBILIZES THE ALS COMMUNITY AND FACILITATES WEEKLY TOPIC-BASED, SELF-ORGANIZED TEAMS. INDIVIDUAL ADVOCATES ENGAGE IN VIRTUAL, DIGITAL, AND IN-PERSON ACTIONS TO CATALYZE POLICY CHANGE AND RESEARCH PROGRESS TO END ALS' INCREASE PUBLIC AND PROFESSIONAL AWARENESS AND COMPETENCY; CHANGE POLICY OUTCOMES; IMPROVE TRIALS AND TREATMENT ACCESS; AND MORE. 340736 5255 340736 5255 1760872 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 14 0 1 14 1 0 0 0 0 0 0 0 0 0 0 0 0 X 12 12 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR CA FL GA HI IL KS KY MD MI MN MS NH NJ NM NY OR PA RI SC TN UT VA WV WI MA NC X X ERIN ALRED 4043377350 1200 PENNSYLVANIA AVE NW 14135 WASHINGTON DC 20044 SANDRA ABREVAYA CO-FOUNDER 2.00 X 0 0 0 BRIAN WALLACH CO-FOUNDER 2.00 X X 0 0 0 PEGGY PLEWS-OGAN BOARD SECRETARY 2.00 X X 0 0 0 JENNIFER FORTNER BOARD TREASURER 2.00 X X 0 0 0 PETER BOWEN BOARD CHAIR 2.00 X X 0 0 0 JANO CABRERA BOARD MEMBER 2.00 X 0 0 0 LOUISE LANGHEIER BOARD MEMBER 2.00 X 0 0 0 MICHAEL O'NEIL BOARD MEMBER 2.00 X 0 0 0 NEEL PAREKH BOARD MEMBER 2.00 X 0 0 0 JUAN A REYES BOARD MEMBER 2.00 X 0 0 0 MICHAEL SLABY BOARD MEMBER 2.00 X 0 0 0 DAN TATE BOARD MEMBER 2.00 X 0 0 0 ANDREA GOODMAN CEO 40.00 X 258050 0 57712 ADITI NARAYAN MINKOFF VP OF COMMUNITY SUPPORT 40.00 X 153495 0 40971 MICHAEL LECKER VP OF COMMUNITY ORGANIZING 40.00 X 139867 0 34331 SONYA ELLING CHIEF GOVERNMENT AFFAIRS OFFICER 40.00 X 194838 0 61008 746250 0 194022 4 0 1 0 WINNING STRATEGIES WASHINGTON LLC 409 7TH STREET NW SUITE 450 WASHINGTON DC 20044 LOBBYING, GOVERNMENT AFFAIRS AND COUNSEL 120000 1 4027369 4027369 64456 64456 10336 10336 0 0 OTHER INCOME 455000 26117 26117 26117 4117942 26117 0 64456 1146 1146 4109 4109 273000 223860 27300 21840 1034595 863089 105653 65853 51017 6928 43686 403 281655 191935 67448 22272 92476 79557 6573 6346 101273 101273 68588 68588 247155 117969 77594 51592 29731 29731 169373 87529 60681 21163 65227 42157 14082 8988 34741 26162 8579 39439 16087 15068 8284 7454 6521 933 9592 9592 MISCELLANEOUS 55599 24775 30824 RECRUITMENT FEES 460 460 2566630 1760872 569286 236472 1300164 1069885 387004 1435252 151013 93501 12327 21521 791612 1452 1452 1851960 3413223 57081 43320 0 14230 57081 57550 X 1494879 3255673 300000 100000 1794879 3355673 1851960 3413223 1551312 9482 0 X 0 1 X 1 0 X 1631151 3338131 1609370 2290726 4027369 12896747 1631151 3338131 1609370 2290726 4027369 12896747 2218030 10678717 1326 162 1004 5295 64456 72243 470 225 695 12969685 26117 0.82340 0.90650 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2021 AMOUNT: $ 470. 2022 AMOUNT: $ 225. 2023 AMOUNT: $ 0. 2024 AMOUNT: $ 0. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 21130 47458 68588 2446630 2515218 275761 68940 0 0 275761 275761 413642 68588 68588 21130 21130 31695 21130 21130 0 ACCRUED EXPENSES 2493 PAYROLL LIABILITIES 11737 14230 4141732 9482 14308 23790 4117942 0 4117942 2580938 14308 14308 2566630 0 2566630 X X X X X 1 VICTORIA THREADGOULD 1224 FAIRFIELD AVE WINDSOR CO 80550 GRANTWRITING 0 69000 11060 57940 BERGER HIRSCHBERG STRATEGIES 1001 CONNECTICUT AVE NW STE 725 WASHINGTON DC 20036 IN-PERSON SOLICITATION, SPECIAL EVENT PLANNING 0 32377 20869 11508 101377 31929 69448 AL WI WY WV WA VA VT UT TX TN SD SC RI PR PA OR OK OH ND NH NJ NM NY NC NV NE MT MO MS MN MI MA MD KY LA ME KS IA IN IL ID HI GA FL DC DE CT CO CA AR AZ AK X 1 1 X X X X X 0 0 0 0 0 0 0 0 0 ANDREA GOODMAN CEO 258050 0 0 0 0 0 11750 0 45962 0 315762 0 0 0 SONYA ELLING CHIEF GOVERNMENT AFFAIRS OFFICER 194838 0 0 0 0 0 8935 0 52073 0 255846 0 0 0 ADITI NARAYAN MINKOFF VP OF COMMUNITY SUPPORT 153495 0 0 0 0 0 6757 0 34214 0 194466 0 0 0 MICHAEL LECKER VP OF COMMUNITY ORGANIZING 139867 0 0 0 0 0 6228 0 28103 0 174198 0 0 0 PART I, LINE 1A PER OUR BOARD REIMBURSEMENT POLICY, I AM ALS COVERS TRAVEL COSTS FOR CAREGIVERS OF BOARD MEMBERS WHO ARE LIVING WITH ALS WHEN TRAVEL IS REQUIRED FOR I AM ALS BOARD ACTIVITIES. FORM 990, PART VI, SECTION A, LINE 2 CO-FOUNDERS AND MEMBERS OF THE BOARD, SANDRA ABREVAYA AND BRIAN WALLACH, HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE ORGANIZATION'S AUDIT COMMITTEE. THE RETURN WAS THEN PROVIDED TO THE FULL BOARD, PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, KEY PERSON AND MEMBER OF A COMMITTEE ANNUALLY SIGNS A CONFLICT OF INTEREST STATEMENT, WHICH AFFIRMS THAT SUCH PERSON HAS RECEIVED, READ, UNDERSTANDS AND AGREES WITH THE POLICY. A CONFLICT OF INTEREST ARISES WHEN A PERSON HAS AN EXISTING OR POTENTIAL FINANCIAL INTEREST OR OTHER MATERIAL INTEREST THAT IMPAIRS, OR APPEARS TO IMPAIR, HIS OR HER INDEPENDENCE OR OBJECTIVITY IN THE DISCHARGE OF RESPONSIBILITIES AND DUTIES TO I AM ALS. IF A CONFLICT ARISES, EACH RELATED PARTY DISCLOSES ANY DIRECT OR INDIRECT FINANCIAL OR OTHER MATERIAL INTEREST WHICH HE OR SHE OR HIS OR HER RELATIVES HAS OR REASONABLY EXPECTS TO HAVE IN A RELATED PARTY TRANSACTION PRIOR TO OR AS SOON AS PRACTICABLE FOLLOWING THE START OF ANY NEGOTIATIONS WITH RESPECT TO SUCH MATTER. INTERESTS WILL BE DISCLOSED IN WRITING TO THE SECRETARY OF THE CORPORATION. THE SECRETARY OF THE CORPORATION PROVIDES A COPY OF ALL SUCH DISCLOSURES TO THE DIRECTORS OF THE CORPORATION. THE BOARD REVIEWS ALL TRANSACTIONS, AGREEMENTS OR ANY OTHER ARRANGEMENTS BETWEEN THE CORPORATION AND A RELATED PARTY, AND ANY OTHER TRANSACTIONS WHICH MAY INVOLVE A POTENTIAL CONFLICT OF INTEREST. NO RELATED PARTY VOTES ON ANY MATTER WITH RESPECT TO WHICH HE OR SHE HAS BEEN DETERMINED BY THE BOARD TO HAVE A FINANCIAL INTEREST. IF THE BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE THAT A MEMBER HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT INFORMS THE MEMBER OF THE BASIS FOR SUCH BELIEF AND AFFORDS THE MEMBER AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE MEMBER'S RESPONSE AND INVESTIGATING FURTHER, AS WARRANTED BY THE CIRCUMSTANCES, THE BOARD OR COMMITTEE DETERMINES THAT THE MEMBER HAS IN FACT FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, THE BOARD TAKES APPROPRIATE CORRECTIVE ACTION. FORM 990, PART VI, SECTION B, LINE 15 WHISTLEBLOWER POLICY: I AM ALS'S WHISTLEBLOWER POLICY REQUIRES ALL DIRECTORS, OFFICERS, AND EMPLOYEES TO REPORT ETHICS VIOLATIONS OR SUSPECTED VIOLATIONS, INITIALLY TO THEIR DIRECT SUPERVISOR UNLESS THE SUPERVISOR IS INVOLVED OR THE RESPONSE IS UNSATISFACTORY, IN WHICH CASE REPORTS ARE MADE DIRECTLY TO THE COMPLIANCE OFFICER USING THE EMPLOYEE COMPLAINT FORM. THE COMPLIANCE OFFICER INVESTIGATES AND RESOLVES CONCERNS, INFORMS THE BOARD CHAIR, ADVISES THE CEO, BOARD, AND/OR AUDIT COMMITTEE AS NEEDED, AND REPORTS ANNUALLY TO THE BOARD. ALL COMPLAINTS ARE ACKNOWLEDGED WITHIN FIVE BUSINESS DAYS, INVESTIGATED PROMPTLY, AND CORRECTIVE ACTION IS TAKEN WHEN WARRANTED. THE POLICY PROHIBITS RETALIATION AGAINST INDIVIDUALS WHO REPORT IN GOOD FAITH, WITH DISCIPLINARY ACTION FOR RETALIATORS UP TO TERMINATION, AND ALLOWS CONFIDENTIAL OR ANONYMOUS REPORTING. THE AUDIT COMMITTEE ADDRESSES COMPLAINTS RELATED TO ACCOUNTING, INTERNAL CONTROLS, OR AUDITING, WITH THE COMPLIANCE OFFICER ENGAGED UNTIL RESOLUTION, AND REPORTS MUST BE MADE IN GOOD FAITH, WITH FALSE OR MALICIOUS CLAIMS TREATED AS A SERIOUS OFFENSE. RECORD RETENTION POLICY: I AM ALS'S RECORD RETENTION POLICY PROVIDES GUIDELINES FOR IDENTIFYING, RETAINING, STORING, PROTECTING, AND DISPOSING OF ORGANIZATIONAL RECORDS IN COMPLIANCE WITH LEGAL AND BUSINESS REQUIREMENTS. THE POLICY REQUIRES MAINTAINING ACCURATE, COMPLETE, AND HIGH-QUALITY RECORDS FOR SPECIFIED RETENTION PERIODS, WITH PERMANENT RETENTION FOR CERTAIN DOCUMENTS (E.G., GOVERNING DOCUMENTS, TAX EXEMPTION LETTERS, DONOR RECORDS FOR RESTRICTED GIFTS), AND DESTRUCTION OF INACTIVE RECORDS IN AN APPROPRIATE MANNER ONCE RETENTION PERIODS EXPIRE. RECORDS RELEVANT TO ANY ACTUAL, PENDING, OR REASONABLY ANTICIPATED LEGAL PROCEEDING MUST BE PRESERVED FOR ITS DURATION. ALL STAFF, INCLUDING VOLUNTEERS UNDER SUPERVISION, ARE RESPONSIBLE FOR COMPLIANCE, WITH THE SECRETARY SERVING AS THE RECORD RETENTION COMPLIANCE OFFICER TO OVERSEE IMPLEMENTATION, REVIEW, AND PROPER DESTRUCTION. RETENTION TIMELINES VARY BY RECORD TYPE, RANGING FROM PERMANENT TO TWO YEARS, AND INCLUDE DETAILED CATEGORIES FOR ACCOUNTING, DONATIONS, LEGAL DOCUMENTS, PERSONNEL, PROGRAM/GRANT FILES, INSURANCE, AND TAX RECORDS. NONCOMPLIANCE MAY RESULT IN DISCIPLINARY ACTION UP TO TERMINATION, AND THE POLICY IS PERIODICALLY REVIEWED TO ENSURE ALIGNMENT WITH APPLICABLE LAWS. COMPENSATION PROCESS: TO SET THE CEO'S INITIAL SALARY, THE ORGANIZATION SOUGHT DATA FROM SEVERAL SOURCES TO ASSESS THE APPROPRIATE COMPENSATION RANGE, INCLUDING AN INDEPENDENT SEARCH FIRM, AND REVIEWED SEVERAL COMPENSATION STUDIES FROM PROFESSIONALS FOR NONPROFITS TO KOYA LEADERSHIP PARTNERS. WE DETERMINED THE KEY CRITERIA FOR OUR DECISION WERE: 1) COMPETITIVE DATA FROM THE SOURCES I AM ALS 83-2016277 LISTED ABOVE, 2) QUALIFICATIONS OF THE CANDIDATE INCLUDING EXPERIENCE TO DATE AND GRADUATE TRAINING, AND 3) OUR COMPENSATION PHILOSOPHY THAT WE SHOULD PAY COMPETITIVELY GIVEN THE DEMANDING AND URGENT TIMELINE OF THE JOB. THE SEARCH COMMITTEE OF THE BOARD DEVELOPED THE CRITERIA VIA PHONE CONVERSATIONS AND EMAIL IN PARTNERSHIP WITH THE INDEPENDENT SEARCH FIRM. THIS PROPOSAL WAS PRESENTED TO THE EXECUTIVE BOARD ON A WEEKLY CALL AND SENT IN WRITING TO THE FULL BOARD FOR DISCUSSION AT A BOARD MEETING. THE CEO'S MOST RECENT PERFORMANCE REVIEW WAS PRESENTED TO THE FULL BOARD AT THE MARCH 2023 BOARD MEETING. IN ADDITION TO THE CEO'S SALARY, THE BOARD APPROVES THE ANNUAL BUDGET, WHICH INCLUDES THE SALARIES OF ALL EMPLOYEES. THE PROCESS DESCRIBED HERE WAS LAST COMPLETED IN 2024. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC PER REQUEST.