2016-09-26T10:52:05-05:00 2015-12-31 362239746 Sassetti LLC 6611 North Avenue Oak Park IL 60302 990 2015-01-01 364378232 FOUNDATION FOR SARCOIDOSIS RESEARCH FOUN 3123410500 1820 W WEBSTER No 304 CHICAGO IL 60614 GINGER SPITZER EXECUTIVE DIRECTOR 7733288156 2016-09-14 1 James Robbs P01266623 7083861433 2015 2017-02-10 21:41:12Z GINGER SPITZER 1820 W WEBSTER No 304 CHICAGO IL 60614 1853770 0 X www.stopsarcoidosis.org X 2000 IL DEDICATED TO IMPROVING CARE FOR SARCOIDOSIS PATIENTS AND TO FINDING A CURE FOR THIS DISEASE. 12 12 5 5 0 0 514963 773178 0 0 67104 137647 0 0 582067 910825 3191 495191 0 0 246660 257334 0 0 153857 173237 299241 423088 1051766 158979 -140941 1676192 1737866 4862 377741 1671330 1360125 X The Foundation for Sarcoidosis Research ("FSR") is the nation's leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since its establishment in 2000, FSR has funded numerous domestic and international research efforts and has worked diligently to provide resources to thousands. Our model provides a dual-focused approach for strategic movement. 0 0 161988 EDUCATION AND AWARENESS - Patients can be KEY elements in progress toward better treatments and a cure! FSR educates and connects patients with opportunities to become involved by becoming knowledgeable about sarcoidosis research. This includes participating in clinical trials, tissue donation programs, patient registries and shared data for research. FSR also offers annual conferences, webinars and comprehensive educational materials for people across the globe living with sarcoidosis, and connects patients to each other for support and enabling a larger impact. More than 14,000 members from all 50 states and nearly 80 countries have joined our free Stop Sarcoidosis Online Support Community. Thousands more are helped through in-person support groups under the umbrella of FSR. We are committed to informing the public about the disease and the dire need for increased funding, as this will in turn advance research and an understanding of the disease. 635167 495191 RESEARCH - FSR provides funding and collaborations for research and initiatives which focus on the understanding of sarcoidosis, addresses the causes of the disease, counters the suffering of patients, and advances the potential for a cure. Through collaborations and partnerships with the pharmaceutical industry, biotech companies, medical institutes and professionals, academic institutes, researchers, and patients from across the globe, FSR is producing game-changing initiatives toward a cure. To date, FSR has fostered more than $1 million in sarcoidosis-specific research. In the years ahead, the Foundation looks forward to increasing our investment to find innovative breakthroughs which will provide treatments, therapies and a cure for the disease. 797155 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 5 1 0 0 0 0 0 0 0 0 0 0 X 12 12 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 1 1 1 0 IL X READING WILSON 3123410500 1820 W WEBSTER SUITE 304 CHICAGO IL 60614 Andrea Wilson CHAIRWOMAN 10.00 X X 0 0 0 Reading Wilson President 10.00 X X 0 0 0 Leslie Serchuck Vice President 5.00 X 0 0 0 Louie Hondros Treasurer 5.00 X 0 0 0 Kirk Allen Director 1.00 X 0 0 0 Daniel Culver Director 1.00 X 0 0 0 Yvonne James Director 1.00 X 0 0 0 Karen Lambros Director 1.00 X 0 0 0 Craig Lipset Director 1.00 X 0 0 0 Azmi Nabulsi Director 1.00 X 0 0 0 Louise M Perkins Director 1.00 X 0 0 0 Denise Wool Director 1.00 X 0 0 0 Ginger Spitzer Executive Director 40.00 X 120960 0 4200 120960 0 4200 1 0 0 0 0 773178 773178 42960 42960 1037632 942945 94687 94687 94687 910825 0 0 137647 495191 495191 257334 180134 38600 38600 6084 2068 2008 2008 23516 7996 7760 7760 12292 9096 369 2827 1872 1872 4152 2906 623 623 SPECIAL EVENTS 58532 5853 5853 46826 Meetings and Conference 55454 18854 18300 18300 Fees and licenses 36778 25744 5517 5517 PROFESSIONAL FEES 35194 16190 9502 9502 65367 33123 10350 21894 1051766 797155 100754 153857 216879 131870 841348 6223 8234 9360 5616 5616 3744 602139 1587031 3987 6987 1676192 1737866 4862 17741 360000 4862 377741 X 1671330 1360125 1671330 1360125 1676192 1737866 -140941 -170264 0 X 0 1 X 0 0 X 320969 344952 863349 497842 773178 2800290 320969 344952 863349 497842 773178 2800290 85159 25208 41130 45335 65000 261832 540308 60000 90892 691200 85159 25208 581438 105335 155892 953032 1847258 10918 65896 92916 99696 137647 407073 10918 65896 92916 99696 137647 407073 4606 4606 331887 415454 956265 597538 910825 3211969 0.57510 0.77820 0.12670 0.10440 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 9360 5616 3744 3744 COMMON STOCK 9243 F EQUITY MUTUAL FUNDS 490816 F FIXED INCOME MUTUAL FUNDS 485369 F EXCHANGE-TRADED FUNDS 601603 F 1587031 740561 -170264 -170264 910825 0 910825 1051766 0 1051766 0 1051766 1 0 0 0 0 0 0 0 0 0 Europe (Including Iceland & Greenland) RESEARCH 60000 check Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, Belgium RESEARCH 60000 check Europe (Including Iceland & Greenland) RESEARCH 5000 wire 3 0 0 0 0 0 0 Part I, Line 2: THE FOUNDATION REQUIRES ONGOING REPORTING PROGRESS OF RECRUITMENT/ENROLLMENT IN RESEARCH STUDIES. 1 university of cincinnati 222 PIEDMONT AVENUE SUITE 4000 CINCINNATI OH 45267 316000989 115 60000 RESEARCH john hopkins medicine 5501 HOPKINS BAYVIEW CIR BALTIMORE MD 21224 520595110 501c3 60000 RESEARCH cleveland clinic CLEVELAND CLINIC MAIN CAMPUS MAIL CODE A90 CLEVELAND OH 44195 340714585 501c3 60000 RESEARCH national jewish health 1400 JACKSON ST DENVER CO 80206 742044647 501c3 60000 RESEARCH albany medical center 47 NEW SCOTLAND AVENUE ALBANY NY 12208 141338310 501c3 60000 RESEARCH university of illinois college of medicine chicago 840 S WOOD STREET MC 733 CHICAGO IL 60612 376000511 n/a 60000 RESEARCH 4 2 Part I, Line 2: THE FOUNDATION REQUIRES ONGOING REPORTING PROGRESS OF RECRUITMENT/ENROLLMENT IN RESEARCH STUDIES. Form 990, Part VI, Section A, line 2 The President and Treasurer are spouses. Form 990, Part VI, Section A, line 8b In the future, the Organization intends to keep formal minutes of their Scientific Advisory Committee. Form 990, Part VI, Section B, line 11 The 990 is distributed to the Board before being filed. Form 990, Part VI, Section B, line 15 The Board of Directors shall annually review in writing, the performance of the Executive Director against performance criteria that are linked to the organization's long-term plan. The Executive Director shall participate in the evaluation process and reviews, signs and responds to the evaluation before it is entered into his or her record. The Board of Directors shall also review the fairness of the Executive Director's compensation and benefits in relationship to industry practices and federal requirements. Form 990, Part VI, Section C, line 18 ALL FORMS ARE AVAILABLE UPON REQUEST. Form 990, Part VI, Section C, line 19 The organization's governing documents, conflict of interest statement and financial statements are available to the public upon request.