2016-08-25T08:58:24-05:00 2016-02-29 113518842 MARKS PANETH LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2015-03-01 237191992 TOURETTE ASSOCIATION OF AMERICA INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 11361 JULIE NOULAS VICE PRESIDENT, FINANCE 7182242999 2016-08-24 1 ROBERT R LYONS CPA P00227472 2125038800 2016-08-24 2015 2016-12-15 16:53:06Z JULIE NOULAS 42-40 BELL BOULEVARD BAYSIDE NY 11361 10699308 0 X TOURETTE.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 16 16 39 35 0 0 3219382 2929098 143823 169185 1341071 484554 32121 0 4736397 3582837 934200 875157 0 0 2954093 3097093 0 0 897432 2382581 2697974 6270874 6670224 -1534477 -3087387 17096713 12790097 1444092 1148052 15652621 11642045 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. 0 0 2366310 875157 RESEARCH - IDENTIFY THE CAUSES OF TOURETTE SYNDROME, IMPROVE PATIENT CARE AND ULTIMATELY FIND A CURE FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES AND CLINICAL CARE. 1277897 169185 PUBLIC EDUCATION - PROVIDES FOR EDUCATION AND AWARENESS TO THE PUBLIC ON TOURETTE SYNDROME, AMONG OTHER THINGS, MAILING OF TOURETTE SYNDROME PAMPHLETS, BROCHURES, VIDEOS AND FILMS. 678614 CENTER FOR DISEASE CONTROL PROGRAM - THE ASSOCIATION AND CENTERS FOR DISEASE CONTROL PREVENTION (CDC) MEDICAL EDUCATION PARTNERSHIP IS PART OF A LARGER APPROPRIATION FROM THE US CONGRESS TO PROMOTE EXPERT MEDICAL EDUCATION ON TOURETTE SYNDROME (TS). THE GOALS OF THE MEDICAL EDUCATION PROGRAM ARE TO PROVIDE EXPERT EDUCATION IN TS TO PHYSICIANS AND TO ALLIED PROFESSIONALS, AND TO ENCOURAGE PHYSICIANS APPLICATION TO THE ASSOCIATION'S REFERRAL LISTS. NEW YORK COUNSELING PROGRAM - PROVIDES CASE MANAGEMENT, ADVOCACY, COUNSELING AND GROUP SESSION SERVICES TO PERSONS WITH TOURETTE SYNDROME WHO RESIDE IN NEW YORK CITY. 86224 PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 86224 4409045 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 27 0 39 1 0 0 0 0 0 1 1 0 0 0 0 X 16 16 0 0 0 0 1 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X JULIE NOULAS 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612820 ROVENA SCHIRLING CHAIR 3.00 X X 0 0 0 MONTE REDMAN FIRST VICE CHAIR 2.00 X X 0 0 0 BRUCE D OCHSMAN SECOND VICE CHAIR 2.00 X X 0 0 0 ALICE KANE THIRD VICE CHAIR 2.00 X X 0 0 0 CINDY KURTZ FOURTH VICE CHAIR 2.00 X X 0 0 0 MARCIE KIRKPATRICK SECRETARY 2.00 X X 0 0 0 FRED COOK FINANCE COMMITTEE CHAIR 2.00 X X 0 0 0 STEPHEN BARRON DIRECTOR 2.00 X 0 0 0 REID ASHINOFF DIRECTOR 2.00 X 0 0 0 PAUL S DEVORE DIRECTOR 2.00 X 0 0 0 KENNETH D MOELIS DIRECTOR 2.00 X 0 0 0 ROBIN SMALL DIRECTOR 2.00 X 0 0 0 RANDI ZEMSKY DIRECTOR 2.00 X 0 0 0 NANCY KRAMER DIRECTOR 2.00 X 0 0 0 JEFFREY KRAMER DIRECTOR 2.00 X 0 0 0 CHRIS OVITZ DIRECTOR 2.00 X 0 0 0 MICHAEL WOLFF CHAIR (FORMER) 2.00 X X 0 0 0 ANNETTA HEWKO PRESIDENT 35.00 X 200374 0 20475 GARY FRANK EXECUTIVE VICE PRESIDENT 35.00 X 104878 0 16757 JULIE NOULAS VICE PRESIDENT, FINANCE 35.00 X 129915 0 10302 KEVIN MCNAUGHT VICE PRESIDENT, MED/SCI PR 35.00 X 137426 0 10817 JOSEPH MARK LEVINE VICE PRESIDENT, DEVELOPMEN 35.00 X 107121 0 19448 ELRIDGE PROCTOR VICE PRESIDENT, PUBLIC POL 35.00 X 114397 0 9118 JENNIFER DAVIS VICE PRESIDENT, CHAPTER NETWORKS & SUPPORT 35.00 X 89113 0 13773 883224 0 100690 6 0 1 0 0 39802 72849 1141112 694108 981227 2929098 CONFERENCE INCOME 900099 162538 162538 SALE OF INFO MATERIAL 900099 6647 6647 169185 244479 244479 6730066 6489991 240075 240075 240075 626480 1141112 626480 0 3582837 169185 0 484554 875157 875157 1097259 580269 414653 102337 1555782 869944 347262 338576 67459 33819 17264 16376 145989 94005 26514 25470 230604 134161 52572 43871 33000 33000 61391 61391 183357 84086 96402 2869 89777 88845 932 114940 73515 15729 25696 146846 31085 4326 111435 196870 106943 51921 38006 189831 127421 26485 35925 624474 624474 25817 13869 6920 5028 45184 34566 9037 1581 GENETIC ANALYSIS & LAB 307012 307012 RECRUITMENT & TRAINING 253172 58138 169232 25802 PRINTING AND PUBS. 160568 101375 827 58366 POSTAGE 108255 66776 8260 33219 157480 42194 83343 31943 6670224 4409045 1363747 897432 590088 505031 8885622 7401090 66240 39009 526351 403272 296622 243582 256986 223938 41292 33048 6690498 4165065 17096713 12790097 362411 339058 1011937 757646 69744 51348 1444092 1148052 X 14776799 10835229 549822 480816 326000 326000 15652621 11642045 17096713 12790097 -3087387 -923189 0 X X 0 1 X 1 0 X 6586765 4301410 4750321 3219382 2929098 21786976 6586765 4301410 4750321 3219382 2929098 21786976 346118 21440858 467734 413354 345085 480555 244479 1951207 40000 443 36281 32121 108845 23847028 516832 0.89910 0.91130 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 33343 0 0 1 28048 0 0 61391 0 326000 4604 4604 326000 326000 1560 1560 326000 326000 1953 1953 326000 326000 3417 3417 326000 326000 5841 5841 326000 1.00000 0 0 256986 223938 33048 33048 X 2967592 -923189 307944 -615245 3582837 0 3582837 6978168 307944 307944 6670224 0 6670224 PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. PART X, LINE 2: THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 29, 2016 AND FEBRUARY 28, 2015 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. 0 ARGENTINA 0 0 GRANT RECIPIENT RESEARCH 120000 TORONTO 0 0 GRANT RECIPIENT RESEARCH 75000 0 0 0 0 0 0 195000 0 195000 ARGENTINA RESEARCH GRANT 120000 WIRE TRANSFER TORONTO RESEARCH GRANT 75000 CHECK 0 0 0 0 0 0 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. GALA 679596 601196 78400 92196 GOLF TOURNAMENTS 655386 435666 219720 326068 2 432610 104250 328360 208216 1767592 1141112 626480 626480 626480 0 1 DUKE UNIVERSITY ACCOUNTS RECEIVABLE LOCKBOX PO BOX 602651 CHARLOTTE NC 282260265 560532129 501(C)(3) 40000 RESEARCH JOHNS HOPKINS UNIVERSITY CENTRAL LOCKBOX BANK OF AMERICA 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 501(C)(3) 50000 RESEARCH MARQUETTE UNIVERSITY PO BOX 1881 MILWAUKEE WI 532011881 390806251 501(C)(3) 50000 RESEARCH REGENTS OF THE UNIVERSITY OF CALIFORNIA PAYMENT SOLUTIONS AND COMPLIANCE BOX 951432 1125 MURPHY HALL 405 HIL LOS ANGELES CA 90095 956006143 501(C)(3) 50000 RESEARCH REGENTS OF THE UNIVERSITY OF CALIFORNIA PAYMENT SOLUTIONS AND COMPLIANCE BOX 951432 1125 MURPHY HALL 405 HIL LOS ANGELES CA 90095 956006143 501(C)(3) 40000 RESEARCH UNIVERSITY OF FLORIDA BOARD OF TRUSTEES 125 GRINTER HALL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)(3) 150000 RESEARCH WASHINGTON UNIVERSITY CAMPUS BOX 1054 ONE BROOKINGS DRIVE ST LOUIS MO 631304862 430653611 501(C)(3) 150000 RESEARCH WASHINGTON UNIVERSITY CAMPUS BOX 1054 ONE BROOKINGS DRIVE ST LOUIS MO 631304862 430653611 501(C)(3) 150000 RESEARCH PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X X 1 0 0 0 0 0 0 0 0 ANNETTA HEWKO PRESIDENT 88707 0 0 0 111667 0 20475 0 0 0 220849 0 0 0 PART I, LINE 4A ANNETTA HEWKO RECEIVED SEVERANCE FOR 4 MONTHS PAID BETWEEN MAY AND AUGUST 2015 AMOUNTING TO $111,667. FORM 990, PART VI, SECTION A, LINE 1 THIS IS A MEMBERSHIP ORGANIZATION FORM 990, PART VI, SECTION A, LINE 6 THIS IS A MEMBERSHIP ORGANIZATION FORM 990, PART VI, SECTION B, LINE 11 THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE 990. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 15 THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE. THE CHAIRMAN TAKES THE AMOUNTS TO THE FULL BOARD FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 FINANCIAL STATEMENTS AND ANNUAL REPORT ARE ON THE WEB. ALL OTHER POLICIES ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF INDEPENDENT ACCOUNTANT HAS NOT BEEN CHANGED FROM PRIOR YEAR.