2016-11-15T14:43:41-06:00 2015-12-31 141624930 TEAL BECKER & CHIARAMONTE CPAS PC 7 WASHINGTON SQUARE ALBANY NY 12205 990 2015-01-01 450593226 HANNAH'S HOPE FOR GIANT AXONAL NEUROPATHY INC HANN 5182756040 19 BLUE JAY WAY REXFORD NY 12148 LORI SAMES EXECUTIVE DIRECTOR 5182756040 2016-08-15 1 PASQUALE M SCISCI CPA P00476898 5184566663 2016-10-05 2015 2017-02-10 21:41:12Z X LORI SAMES 19 BLUE JAY WAY REXFORD NY 12148 958806 0 X HANNAHSHOPEFUND.ORG X 2008 NY DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY. 10 8 1 75 0 0 710579 507886 0 0 945 400614 -62523 0 649001 908500 903584 844218 0 0 59832 58129 0 0 0 54971 102001 1018387 1004348 -369386 -95848 741550 645703 571434 0 170116 645703 DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEROPATHY. 0 0 932565 844218 GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSION. 932565 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 1 1 0 0 0 0 X 10 8 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 NY X LORI SAMES 5182755359 19 BLUE JAY WAY REXFORD NY 12148 CARRIE FAVARO PRESIDENT 0.00 0.00 X X 0 0 0 SANDY HARDING TREASURER 0.00 0.00 X X 0 0 0 BETH HAIG SECRETARY 0.00 0.00 X 0 0 0 MATT SAMES DIRECTOR 0.00 0.00 X 0 0 0 LAGENIA CLARK DIRECTOR 0.00 0.00 X 0 0 0 ALEX TRONCO DIRECTOR 0.00 0.00 X 0 0 0 TODD SILAIKA DIRECTOR 0.00 0.00 X 0 0 0 ERIKA LIGUORI DIRECTOR 0.00 0.00 X 0 0 0 JOSEPH KAKATY DIRECTOR 0.00 0.00 X 0 0 0 MIKE ELLIS DIRECTOR 0.00 0.00 X 0 0 0 LORI SAMES EXECUTIVE DIRECTOR 40.00 0.00 X 36036 0 18654 36036 0 18654 0 0 0 0 0 264192 243694 507886 614 614 400000 0 400000 400000 400000 50306 264192 50306 0 908500 0 0 400614 844218 844218 36036 36036 18654 18654 3439 3439 8895 7561 1334 8500 7225 1275 1424 1424 1001 851 150 2562 2178 384 34677 29475 5202 322 274 48 808 687 121 PATIENT TESTING 19036 19036 BUSINESS REGISTRATION F 13946 11854 2092 BANK FEES 5654 4806 848 MISCELLANEOUS 2801 2381 420 2375 2019 356 1004348 932565 71783 0 281419 355697 459324 289521 6356 5871 807 485 741550 645703 571434 571434 0 X 170116 645703 170116 645703 741550 645703 -95848 571435 0 X 0 1 X 0 0 X 405599 628350 1040917 710579 507884 3293329 405599 628350 1040917 710579 507884 3293329 0 0 0 3293329 3878 3182 4180 945 400614 412799 3878 3182 4180 945 400614 412799 205890 2317 208207 615367 633849 1045097 711524 908498 3914335 0.84140 0.95280 0.10550 0.00350 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 6356 5871 485 485 X 958804 0 958804 -50304 -50304 908500 1054654 50306 50306 1004348 0 1004348 PART X, LINE 2: THE ORGANIZATION FOLLOWS THE GUIDANCE FOR UNCERTAINTY IN INCOME TAXES. AS OF DECEMBER 31, 2015, THE ORGANIZATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR THE INCOME TAX POSITIONS TAKEN AND TO BE TAKEN ON ITS RETURNS BASED ON AN ASSESSMENT OF MANY FACTORS INCLUDING EXPERIENCE AND INTERPRETATIONS OF TAX LAWS APPLIED TO THE FACTS OF EACH MATTER. THE ORGANIZATION HAS CONCLUDED THAT THERE ARE NO SIGNIFICANT UNCERTAIN TAX POSITIONS REQUIRING DISCLOSURE, AND THERE ARE NO MATERIAL AMOUNTS OF UNRECOGNIZED TAX BENEFITS. PART XI, LINE 4B - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES -50,304. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 50,306. GALA 109978 92914 17064 17064 HOPE & LOVE BALL 80662 71259 9403 9403 17 123858 100019 23839 23839 314498 264192 50306 50306 50306 0 1 UNIVERSITY OF WASHINGTON 3917 UNIVERSITY WAY NE SEATTLE WA 98105 916001537 501 (C) (3) 307437 RESEARCH ALDEVRON 4837 AMBER VALLEY PKWY S FARGO ND 58104 450451327 99580 RESEARCH UNIVERSITY OF NORTH CAROLINA 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL NC 27599 566001393 501 (C) (3) 283268 RESEARCH MPI RESEARCH 54943 NORTH MAIN STREET MATTAWAN MI 49071 383400587 104000 RESEARCH REGENERATIVE RESEARCH FOUNDATION (NEURACELL) 1 DISCOVERY DRIVE RENSSELAER NY 12144 30754 RESEARCH CHARLES RIVER DISCOVERY RESEARCH MICROKATU 1 KUOPIO KUOPIO FI 70210 19179 RESEARCH 2 4 PART I, LINE 2: LORI SAMES RECEIVES PROGRESS REPORTS AND IS ABLE TO MONITOR PROGRESS THROUGH WEBSITES. LORI SAMES FAMILY 54690 WAGES AND HEALTH INSURANCE 0 SCH L, PART IV, BUSINESS TRANSACTIONS INVOLVING INTERESTED PERSONS: (A) NAME OF PERSON: LORI SAMES(D) DESCRIPTION OF TRANSACTION: THE ORGANIZATION PAYS WAGES AND HEALTH INSURANCE FOR PRESIDENT, LORI SAMES. FORM 990, PART VI, SECTION A, LINE 2 DIRECTOR MATT SAMES IS MARRIED TO EXECUTIVE DIRECTOR LORI SAMES. BOARD PRESIDENT CARRIE FAVARO IS SISTER TO EXECUTIVE DIRECTOR LORI SAMES. FORM 990, PART VI, SECTION B, LINE 11 FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR BEFORE IT IS ELECTRONICALLY FILED. FORM 990, PART VI, SECTION B, LINE 12C THE BY-LAWS CLEARLY STATE THAT ALL DIRECTORS AND OFFICERS MUST DISCLOSE ANY POTENTIAL CONFLICTS. THE BY-LAWS STATE THAT SUCH CONFLICTS DO NOT PRECLUDE THE ORGANIZATION FROM CONTRACTING WITH RELATED COMPANIES, BUT THAT CONFLICTED BOARD MEMBERS MUST RECUSE THEMSELVES FROM DISCUSSIONS INVOLVING THEIR INTERESTS. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE FROM THE ORGANIZATION UPON REQUEST.