2025-11-17T12:02:27-06:00 2024-12-31 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2024-01-01 521841165 ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE ACMG 3017182014 7101 WISCONSIN AVENUE 990 BETHESDA MD 20814 MELANIE WELLS CEO 3017182014 2025-11-17 1 0 RICHARD J LOCASTRO CPA P00288314 3019519090 2024 2025-03-06 01:10:19Z X MELANIE WELLS 7101 WISCONSIN AVENUE 990 BETHESDA MD 20814 622219 0 X WWW.ACMGFOUNDATION.ORG X 1992 IL SEE PART III, LINE 1. 14 14 50 14 0 0 1484501 493178 0 0 323758 116970 13649 12071 1821908 622219 477500 250500 0 0 104459 394647 0 0 278906 253627 890268 835586 1535415 986322 -913196 4410233 3524087 485271 265047 3924962 3259040 X SUPPORT THE AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS' (ACMG) EDUCATIONAL MISSION TO "TRANSLATE GENES INTO HEALTH" BY RAISING FUNDS TO ATTRACT THE NEXT GENERATION OF MEDICAL GENETICISTS AND GENETIC COUNSELORS, TO SPONSOR IMPORTANT RESEARCH AND TO PROMOTE INFORMATION ABOUT MEDICAL GENETICS. 0 0 286218 250500 SUMMER GENETICS SCHOLARS PROGRAM: IN 2024 THERE WERE 11 SUMMER SCHOLARS ENROLLED IN THE SUMMER GENETICS SCHOLARS PROGRAM. ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- SANOFI CORPORATION FELLOWSHIP- TAKEDA CORPORATION FELLOWSHIP 286218 1 1 0 0 0 0 0 0 0 1 1 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 1 18 0 1 50 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 MD X MELANIE WELLS 3017189603 7101 WISCONSIN AVENUE SUITE 990 BETHESDA MD 20814 NANCY MENDELSOHN PRESIDENT 3.00 3.00 X X 0 0 0 BRUCE KORF PAST PRESIDENT 3.00 3.00 X X 0 0 0 BRYNN LEVY PRESIDENT-ELECT 3.00 3.00 X X 0 0 0 SARAH ELSEA TREASURER 3.00 3.00 X X 0 0 0 MADHURI HEGDE SECRETARY 3.00 3.00 X X 0 0 0 SUCHETA BHATT DIRECTOR 1.00 0.00 X 0 0 0 KATIE JOHANSEN TABER DIRECTOR 1.00 0.00 X 0 0 0 MARILYN JONES DIRECTOR 1.00 0.00 X 0 0 0 JAMES LU DIRECTOR 1.00 0.00 X 0 0 0 RONG MAO DIRECTOR 1.00 0.00 X 0 0 0 HARRY OSTRER DIRECTOR 1.00 0.00 X 0 0 0 ALEKSANDAR RAJKOVIC DIRECTOR 1.00 0.00 X 0 0 0 LISA SHAFFER DIRECTOR 1.00 0.00 X 0 0 0 DAVID TILSTRA DIRECTOR 1.00 0.00 X 0 0 0 MELANIE WELLS CEO 3.75 33.25 X 330016 0 40423 CHRIS PITRO CFO 1.50 36.00 X 210362 0 9657 ALEXIS MORGAN COO 1.50 36.00 X 163083 0 24803 KARL MOELLER DIRECTOR OF DEVELOPMENT 35.00 0.00 X 180322 0 32441 AMY BROWER ASSOCIATE PROJECT DIRECTOR, NBS 0.00 37.50 X 183984 0 36236 KATHLEEN MORAN DIRECTOR OF COMMUNICATIONS 1.50 36.00 X 183490 0 35835 LYNN FLEISHER GENERAL COUNSEL 1.00 36.50 X 182000 0 1607 JANE DAHLROTH SNR DIRECTOR OF MEETINGS & EXHIBITS 0.00 35.00 X 148064 0 32253 MICHELLE MCCLURE DIRECTOR OF PUBLIC POLICY 0.00 35.00 X 149992 0 17566 1731313 0 230821 16 0 1 0 0 493178 493178 116970 116970 ACMG ADMIN. FEES 900099 12000 12000 MISCELLANEOUS 900099 71 71 12071 622219 0 0 129041 250500 250500 41779 3585 13024 25170 285582 24506 89026 172050 14916 1280 4650 8986 29283 2513 9129 17641 23087 17 10887 12183 622157 622157 32323 32323 21056 21056 100544 1 98587 1956 5340 4140 1200 15436 1 15435 12036 12036 8699 8699 27726 3815 23911 39720 39720 5231 5231 1535415 286218 970291 278906 925399 566378 232750 293188 1152 9 71448 51072 14811 20376 2671347 1951450 564774 692686 4410233 3524087 275271 265047 210000 485271 265047 X 1328033 631110 2596929 2627930 3924962 3259040 4410233 3524087 -913196 247274 0 X 0 1 X 1 0 X X 1 THE AMERICAN COLLEGE OF MEDICAL GENETICS 521774227 10 1 0 0 1 0 0 1 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 PART IV, SECTION A, LINE 3B: ANNUALLY, ACMG FOUNDATION COMPLETES THE PUBLIC SUPPORT TEST FOR ACMG UNDER SECTION 509(A)(2) TO ENSURE IT SATISFIES THE PUBLIC SUPPORT REQUIREMENTS. PART I, LINE 11G(III): ACMG IS A 501(C)(6). FOR PURPOSES OF THE SUPPORTING ORGANIZATION CALCULATIONS, IT IS TESTED PURSUANT TO THE 509(A)(2) PUBLIC SUPPORT TEST. PART IV, SECTION A, LINE 3C: ACMG FOUNDATION SUPPORT TO ACMG WAS USED EXCLUSIVELY FOR SECTION 170(C)(2)(B) PURPOSES. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1000 1000 11893 10893 1000 192488 -158055 22540 11893 85889 129139 22540 192488 2272 97261 13644 85889 1.00000 0 0 71448 51072 20376 20376 DUE FROM RELATED PARTY 692686 692686 848440 247277 247277 601163 21056 21056 622219 1514359 0 1514359 21056 21056 1535415 PART V, LINE 4: CONTRIBUTIONS ARE RESTRICTED BY DONORS TO BE INVESTED IN PERPETUITY. INTEREST EARNED ON THE INVESTED BALANCE, WHEN RELEASED, IS USED TO SUPPORT THE GENERAL OPERATIONS OF THE FOUNDATION. 1 GREENWOOD GENETIC CENTER FOUNDATION 101 GREGOR MENDEL CIRCLE GREENWOOD SC 29646 570604070 501(C)(3) 65000 0 MEDICAL FELLOWSHIP MASSACHUSETTS EYE & EAR INFIRMARY 399 RESOLUTION DRIVE SOMERVILLE MA 02145 042103591 501(C)(3) 37500 0 MEDICAL FELLOWSHIP UNIVERSITY OF COLORADO 1800 GRANT ST DENVER CO 80203 846000555 501(C)(3) 18750 0 MEDICAL FELLOWSHIP JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 501(C)(3) 16250 0 MEDICAL FELLOWSHIP OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97201 237083114 501(C)(3) 16250 0 MEDICAL FELLOWSHIP THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 311036370 501(C)(3) 16250 0 MEDICAL FELLOWSHIP UPMC CHILDREN'S HOSPITAL OF PITTSBURGH 600 GRANT ST 58TH FL PITTSBURGH PA 15219 250402510 501(C)(3) 16250 0 MEDICAL FELLOWSHIP BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON TX 77030 741613878 501(C)(3) 16250 0 MEDICAL FELLOWSHIP 8 0 SUMMER SCHOLAR STIPENDS 11 36176 PROFESSIONAL AWARDS 5 15000 PART I, LINE 2: GRANTS ARE REVIEWED ANNUALLY FOR FINANCIAL STATUS AND INCLUDED IN A GRANT SCHEDULE THAT RECONCILES INCOME VERSUS EXPENSES. GRANTEES FOR PFIZER AND GENZYME AWARDS HAVE TO SUBMIT REPORTS MIDWAY INTO THE REPORTING YEAR AND AT THE END OF EACH OF THE REPORTING YEARS. X X X X 0 0 0 0 0 0 0 0 0 MELANIE WELLS CEO 330016 0 0 0 0 0 19914 0 20509 0 370439 0 0 0 AMY BROWER ASSOCIATE PROJECT DIRECTOR, NBS 183984 0 0 0 0 0 16181 0 20055 0 220220 0 0 0 CHRIS PITRO CFO 210362 0 0 0 0 0 7654 0 2003 0 220019 0 0 0 KATHLEEN MORAN DIRECTOR OF COMMUNICATIONS 183490 0 0 0 0 0 18624 0 17211 0 219325 0 0 0 KARL MOELLER DIRECTOR OF DEVELOPMENT 180322 0 0 0 0 0 15703 0 16738 0 212763 0 0 0 ALEXIS MORGAN COO 163083 0 0 0 0 0 0 0 24803 0 187886 0 0 0 LYNN FLEISHER GENERAL COUNSEL 182000 0 0 0 0 0 0 0 1607 0 183607 0 0 0 JANE DAHLROTH SNR DIRECTOR OF MEETINGS & EXHIBITS 148064 0 0 0 0 0 15090 0 17163 0 180317 0 0 0 MICHELLE MCCLURE DIRECTOR OF PUBLIC POLICY 149992 0 0 0 0 0 9202 0 8364 0 167558 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE LEADERSHIP TEAM. A COPY OF THE FORM 990 WAS SENT TO THE BOARD OF DIRECTORS PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST FORMS ARE ANNUALLY COMPLETED BY ALL EMPLOYEES, DIRECTORS AND COMMITTEE MEMBERS. THE PRESIDENT AND COMMITTEE CHAIRS ASK FOR DISCLOSURES AT EACH MEETING. IF A DIRECTOR HAS A DISCLOSURE, S/HE IS ASKED TO LEAVE THE ROOM DURING DISCUSSION OF A CONFLICTED ISSUE. FORM 990, PART VI, SECTION B, LINE 15A THE CEO'S SALARY IS REVIEWED EACH YEAR BY THE PRESIDENT OF THE ACMG, THE PRESIDENT OF THE ACMG FOUNDATION, AND THE IMMEDIATE PAST PRESIDENT OF ACMG. THEY RECOMMEND SALARY INCREASES TO THE BOARD OF DIRECTORS FOR APPROVAL. THE COO'S SALARY IS RECOMMENDED BY THE CEO, APPROVED BY THE THREE PRESIDENTS AND SENT FOR BOARD APPROVAL. THE BOARD APPROVES THE ENTIRE SALARY POOL FOR ACMG/ACMG FOUNDATION DURING THE BUDGET APPROVAL PROCESS EACH YEAR. THE CEO HAS A WRITTEN EMPLOYMENT CONTRACT WHICH IS SIGNED EVERY THREE TO FIVE YEARS. IN THE SALARY REVIEW PROCESS, THE EXECUTIVE COMMITTEE COMPARES THE CEO'S SALARY TO THOSE IN THE GENETICS INDUSTRY AS WELL AS TO SALARIES IN SIMILAR ORGANIZATIONS THROUGH SALARY REPORTS AND 990S. THE THREE PRESIDENTS ARE CHAIRS OF THEIR DEPARTMENTS AND/OR DEANS AND HAVE COMPARABLE SALARY INFORMATION FROM THEIR UNIVERSITIES THAT ARE ALSO USED. CORRESPONDENCE IS SENT TO ACMG/ACMG FOUNDATION'S HUMAN RESOURCE DEPARTMENT FOR FILING IN SALARY RECORDS. THE LAST COMPENSATION REVIEW TOOK PLACE IN JANUARY 2022. FORM 990, PART VI, SECTION C, LINE 19 COPIES OF THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS 7101 WISCONSIN AVENUE SUITE 990 BETHESDA MD 20814 521774227 TO IMPROVE HEALTH THROUGH MEDICAL GENETICS IL 501(C)(6) N/A N/A 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS K 8699 ACTUAL AMOUNTS AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS O 4191079 ACTUAL AMOUNTS