2025-11-17T23:06:57-05:00 2024-12-31 203262367 THOMASSON FINANCIAL 881 NORTH DOUGLAS STREET EL SEGUNDO CA 90245 990 2024-01-01 462829156 CURE LBSL % LANCE STERN CURE 2024874235 3520 S WAKEFIELD ST ARLINGTON VA 22206 LANCE STERN DIRECTOR 2024874235 2025-11-17 false true ETHAN I THOMASSON EA P00247935 8772829489 2025-11-17 2024 2025-03-06 01:10:19Z 1052682 false X WWW.CURELBSL.ORG X 2013 VA PROVIDE FUNDING TO RARE DISEASE RESEARCH & SUPPORT AFFECTED FAMILIES 7 7 1 0 0 1850787 1052673 0 1765 9 0 1852552 1052682 1502459 636000 0 84131 92697 0 0 75075 116455 1661665 845152 190887 207530 739400 955625 0 739400 955625 PROVIDE FUNDING TO RARE DISEASE RESEARCH & SUPPORT AFFECTED FAMILIES false false 845152 636000 WE PROVIDED $636,000 TO A RESEARCH PROGRAM AT KENNEDY KRIEGER INSTITUTE IN BALTIMORE, MARYLAND. THE RESEARCH SEEKS TO CREATE A TREATMENT FOR THE RARE DISEASE, LEUKODYSTROPHY - LBSL. THIS YEARS RESEARCH CONTINUED BUILDING CELLS WITH DISEASE ATTRIBUTES, BUILDING ANIMAL MODELS, TESTING THERAPEUTICS, AND EXPANDED A NATURAL HISTORY STUDY WITH A SAMPLE OF KNOWN PATIENTS. 845152 true true false false false false false false false false false false true false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 true 1 true false false false false false false false false X 7 7 true false false false false false false true true false false true true true true false false false false false VA X X MORGAN STERN DIRECTOR 9494227175 35 PALAZZO NEWPORT BEACH CA 92660 X MORGAN STERN DIRECTOR 1.00 0.00 X 0 0 0 LANCE STERN DIRECTOR 1.00 0.00 X 0 0 0 MEGAN MITCHELL DIRECTOR 1.00 0.00 X 0 0 0 CHRIS GULUGIAN DIRECTOR 1.00 0.00 X 0 0 0 EDWARD BLAKELY DIRECTOR 1.00 0.00 X 0 0 0 MICHAEL MCGINN UNTIL 724 DIRECTOR 1.00 0.00 X 0 0 0 ELIZABETH A MCGINN DIRECTOR 15.00 0.00 X X 0 0 0 ELIZABETH GULUGIAN BOARD CHAIR 5.00 0.00 X X 0 0 0 0 0 0 0 false false false 1052673 1052673 9 9 0 1052682 9 0 0 636000 636000 68581 68581 24116 24116 10100 10100 4788 4788 8850 8850 18258 18258 10286 10286 24947 24947 1999 1999 2145 2145 PROGRAM SUPPLIES 34731 34731 DEVELOPMENT 351 351 845152 845152 0 0 734935 805547 3433 1032 78 150000 739400 955625 0 0 X 739400 955625 739400 955625 739400 955625 207530 8695 0 X false false X 659411 599293 1410137 1850787 1052673 5572301 659411 599293 1410137 1850787 1052673 5572301 345038 5227263 1765 1765 5574066 0.93780 0.44870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED DEOS THERAPEUTICS 150000 C 150000 true KENNEDY KRIEGER INSTITUTE 707 NORTH BROADWAY Baltimore MD 21205 521524965 501C 3 NA NA RESEARCH Officer directors etc family relationship Part VI line 2 THE BOARD HAS MEMBERS WITH FAMILY RELATIONSHIPS Form 990 governing body review Part VI line 11 THE FORM WILL BE EMAILED TO THE BOARD ONCE IT IS COMPLETE AND AVAILABLE FOR PRINT Conflict of interest policy compliance Part VI line 12c THERE IS LITTLE ROOM FOR A CONFLICT OF INTEREST WITHIN CURE LBSL BUT ALL POTENTIAL CONFLICTS ARE TO BE RAISED TO THE BOARD FOR REVIEW Form 990 availability to public Part VI line 18 THE 990 IS AVAILABLE ON GUIDESTAR WHICH IS ACCESSIBLE TO THE PUBLIC Governing documents etc available to public Part VI line 19 WE DO NOT MAKE OUR POLICIES PUBLICBUT THEY ARE AVAILABLE ON REQUEST