2016-04-14T11:41:20-07:00 2015-12-31 NAWROCKI SMITH LLP 290 BROADHOLLOW RD STE 115E MELVILLE NY 117474822 990EZ 2015-01-01 161569293 CARDIO-FACIO-CUTANEOUS INTERNATIONAL CARD 6077729666 183 BROWN ROAD VESTAL NY 13850 Kayla Stein Treasurer 2016-04-14 true Michael E Nawrocki P00165703 6317569500 2015 2016-09-27 15:27:22Z X X www.cfcsyndrome.org X X 185671 X 110423 1346 0 73902 21905 51997 0 163766 27458 4885 93016 125359 38407 459982 498389 X 463134 498874 214 214 463348 499088 3366 699 459982 498389 To improve the quality of life through family support, research, and education. We are a rare disease advocacy group that provides education and literature to families and agencies that assist children born with the rare Cardio-Facio-Cutaneous syndrome. We hosts a website, biennial International family conferences, and a private family computer listserv and closed Facebook page. We support research projects on CFC syndrome. Family Support and Education This past year we have produced and mailed out the new Guide to CFC Syndrome and brochure for parents, providers, and educators in the USA. The foreign families were provided a PDF copy via our website. We mailed out three copies of our newsletter and rebranded our look with a professional graphic designer. 82704 Research We financially supported The Million Dollar Bike Ride. This fundraising bike ride is hosted through the Center for Orphan Disease Research and Therapy (CODRT) at University of Pennsylvania. Your organization has to be chosen to participate and raise money that CODRT will then match for research projects. 82704 Brenda Conger Executive Dir. 25.00 0 Jenny Iacobelli President 2.00 0 Molly Santa Cruz Vice President 1.00 0 Shelley Greenhaw Secretary 2.00 0 Kayla Stein Treasurer 15.00 0 Cara Borian Board Member 1.00 0 Luba Djurdjnovic Board Member 1.00 0 Judy Doyle Board Member 1.00 0 Pilar Magoulas Board member 2.00 0 X false false false false false false false false 0 0 false false NY Kayla Stein 7053 Deerwood Trail West Bloomfield MI 483232084 2486818212 false false false false false false false false false false false false false NONE NONE true X 81632 76940 33580 58434 80339 330925 26867 32993 30084 89944 0 0 0 108499 76940 66573 58434 110423 420869 0 0 420869 4453 4300 2557 1450 1346 14106 0 4453 4300 2557 1450 1346 14106 0 0 112952 81240 69130 59884 111769 434975 0.96760 0.95350 0.03240 0.04650 X Kinley Klassic 53098 53098 17897 Doyle Chili Bowl 20300 20300 4008 73398 73398 21905 21905 51493 Other Expenses.1002 Office Expenses $331 Other Expenses.1012 Insurance $672 Other Expenses.1 Biennial Conference expense $72422 Other Expenses.3 Family Literature $3498 Other Expenses.4 web design $2910 Other Expenses.5 Licenses $2046 Other Expenses.6 PRINTING $1468 Other Expenses.7 Newsletter printing $1454 Other Expenses.8 Mobile Phone $1346 Other Expenses.9 Stationary and Brochure Design $1110 Other Expenses.10 POSTAGE AND SHIPPING $909 Other Expenses.11 TELEPHONE $877 Other Expenses.12 PayPal Fees $874 Other Expenses.13 Educational meetings $605 Other Expenses.14 Paychex Fee $582 Other Expenses.15 DUES AND MEMBERSHIP $404 Other Expenses.16 Bank and other service charges $394 Other Expenses.17 Banners and signs $240 Other Expenses.18 Charitable Contributions $220 Other Expenses.19 TAXES $205 Other Expenses.20 Computer repair $188 Other Expenses.21 FUNDRAISING $118 Other Expenses.22 CREDIT CARD EXPENSE $72 Other Expenses.23 PROMOTIONAL ITEMS $71 Other Assets.1003 Machinery and Equipment - Beginning $214 Machinery and Equipment - Ending $214 Total Liabilities.1001 Accounts Payable and Accrued Expenses - Beginning $3366 Accounts Payable and Accrued Expenses - Ending $699