2025-10-28T09:57:29-05:00 2024-12-31 871353108 EISNER ADVISORY GROUP LLC 733 THIRD AVENUE NEW YORK NY 100172703 990 2024-01-01 133349872 HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC HUNT 2122421968 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 AMY GRAY PRESIDENT AND CEO 2122421968 2025-10-27 1 0 WILLIAM EPSTEIN P01307171 2129498700 2024 2025-03-06 01:10:19Z AMY GRAY 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 11321563 0 9201 X WWW.HDSA.ORG X 1986 NY DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 17 17 36 500 0 0 9341469 9823331 0 0 148302 204685 344165 146072 9833936 10174088 3678844 3372058 0 0 4204759 4295537 0 0 1985579 3273845 3718078 11157448 11385673 -1323512 -1211585 18147360 17255243 4277717 4612999 13869643 12642244 X HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A NATIONAL VOLUNTARY HEALTH AND WELFARE ORGAIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 0 0 2499993 1124976 RESEARCH - SUPPORTS RESEARCH AS ADVISED BY ITS SCIENTIFIC ADVISORY BOARD. THE RESEARCH PROJECTS ARE INVOLVED IN FINDING CURES AND TREATMENTS FOR HUNTINGTON'S DISEASE. 3237387 2111861 PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 826428 COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES. 1943580 135221 EDUCATION PROVIDES INFORMATION AND EDUCATION THROUGH PUBLICATION AND DISTRIBUTION OF NEWSLETTERS, BROCHURES AND SCIENCE UPDATES 1943580 135221 8507388 1 1 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 X 90 0 36 1 0 0 0 0 0 1 1 0 0 0 1 0 0 0 X 17 17 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X AMY GRAY 2122421968 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 VICTOR SUNG MD PAST CHAIR 6.00 3.00 X X 0 0 0 TERESA SRAJER CHAIR 6.00 3.00 X X 0 0 0 ANGELA ALLEN TREASURER 6.00 3.00 X X 0 0 0 JENNE COLER-DARK CHAIR ELECT 6.00 3.00 X X 0 0 0 JAY HUGHES SECRETARY 6.00 3.00 X X 0 0 0 KAMRAN ALAM TRUSTEE 6.00 3.00 X 0 0 0 JEFFREY BROWN TRUSTEE 6.00 3.00 X 0 0 0 JEFF CARROLL TRUSTEE 6.00 3.00 X 0 0 0 MARK COE TRUSTEE 6.00 3.00 X 0 0 0 ERIN FURR-STIMMING MD TRUSTEE 6.00 3.00 X 0 0 0 BETH HOFFMAN TRUSTEE 6.00 3.00 X 0 0 0 JONATHAN KLEIN ESQ TRUSTEE 6.00 3.00 X 0 0 0 KELSEY PORTER TRUSTEE (THRU 6/2024) 6.00 3.00 X 0 0 0 DOMINIQUE THOMAS TRUSTEE 6.00 3.00 X 0 0 0 LESLIE M THOMPSON PHD TRUSTEE 6.00 3.00 X 0 0 0 VICKI WHEELOCK MD TRUSTEE 6.00 3.00 X 0 0 0 AMBER SOUTHWELL PHD TRUSTEE 6.00 3.00 X 0 0 0 CHRISTOPHER DECESARIS TRUSTEE 6.00 3.00 X 0 0 0 LOUISE VETTER CHIEF EXECUTIVE OFF (THRU 7/12/2024) 35.00 3.00 X 281981 0 34155 ROSEMARY COLUCCIO CHIEF OPERATIONS OFFICER 35.00 3.00 X 286482 0 31727 ARIK JOHNSON CHIEF MISSION OFFICER 35.00 3.00 X 218271 0 14571 JAMISON SKALA DIRECTOR, NATIONAL DEVELOPMENT 35.00 3.00 X 190938 0 13229 DEBORAH BOYD REGIONAL DEVELOPMENT DIRECTOR 35.00 3.00 X 120084 0 22631 REBECCA CHAN CONTROLLER 35.00 3.00 X 120050 0 44507 JESSICA MARSOLEK ASSISTANT DIRECTOR, MISSION PROGRAMS 35.00 3.00 X 111772 0 19744 NICHOLE MENDOZA REGIONAL DEVELOPMENT OFFICER PACIFIC WEST 35.00 3.00 X 102612 0 21541 1432190 0 202105 8 0 1 0 GLOBAL GENES 28 ARGONAUT ALISO VIEJO CA 92656 ONLINE DATA COLLECTION & ANALYTICS PLATF 655000 LIBSHAP REALTY CORPORATION 125 PARK AVENUE 11TH FLOOR NEW YORK NY 10017 REALTY 302407 J&R GRAPHICS 56 ELIZABETH AVENUE ELMWOOD PARK NJ 07407 GRAPHIC DESIGN 171478 THORN RUN PARTNERS LLC 100 M ST SE WASHINGTON DC 20003 GOVERNMENT AFFAIRS FIRM 120450 T-FORMATION 864 COMMERCE BLVD MIDWAY FL 32343 GRAPHIC DESIGN 113636 7 123105 1405407 2693053 5601766 315327 9823331 149434 149434 1019849 964598 55251 55251 55251 182877 1405407 182877 0 RETURNED GRANTS 900099 113657 113657 OTHER INCOME 900099 32415 32415 146072 10174088 32415 0 318342 3211258 3211258 160800 160800 634344 341189 72022 221133 2747015 1477512 311889 957614 116060 62425 13177 40458 498799 268282 56633 173884 299319 160992 33984 104343 24140 24140 72591 72591 20810 20810 651769 509677 134119 7973 728180 647837 39118 41225 287595 179646 52531 55418 797483 719287 19296 58900 312466 301812 2610 8044 75853 46648 14605 14600 PRINTING AND PUBLICATIO 244867 171214 2352 71301 POSTAGE AND SHIPPING 83502 24035 2258 57209 EQUIPMENT RENTAL 64291 54431 2484 7376 TELEPHONE 63480 44877 4557 14046 291051 125466 13530 152055 11385673 8507388 892706 1985579 7731455 6828582 899428 1562741 362270 227146 342005 179825 190263 162180 5742903 5503140 3221041 2971454 18147360 17255243 444992 380905 1152674 1747581 31050 21342 2649001 2463171 4277717 4612999 X 9971933 9322635 3897710 3319609 13869643 12642244 18147360 17255243 X -1211585 14983 -30797 X 0 1 X 1 0 X 8480494 12104482 10502410 9341469 9823331 50252186 8480494 12104482 10502410 9341469 9823331 50252186 2660018 47592168 23523 7224 29874 148456 149434 358511 81919 87558 210357 344165 146072 870071 51480768 0.92450 0.93980 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2020 AMOUNT: $ 81,919. 2021 AMOUNT: $ 87,558. 2022 AMOUNT: $ 88,549. 2023 AMOUNT: $ 94,300. 2024 AMOUNT: $ 32,415. RETURNED GRANTS - 2022 AMOUNT: $ 121,808. 2023 AMOUNT: $ 48,944. 2024 AMOUNT: $ 113,657. PRIOR YEAR RESCINDED GRANT - 2023 AMOUNT: $ 140,000. GAIN ON LEASE MODIFICATION - 2023 AMOUNT: $ 60,921. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 283413 4723 288136 271737 11676 283413 268745 2992 271737 268866 -121 268745 268961 -95 268866 0.86765 0.13235 0 0 152305 74375 77930 189700 105450 84250 162180 RIGHT-OF-USE ASSET 2425693 WEBSITE COSTS 545761 2971454 LEASE LIABILITY 2463171 2463171 X 10686999 14983 6140 3205651 3226774 7460225 20810 2693053 2713863 10174088 12186426 6140 3508476 3514616 8671810 20810 2693053 2713863 11385673 PART V, LINE 4: THE SOCIETY'S ENDOWMENT CONSISTS OF ONE DONOR-RESTRICTED FUND, ESTABLISHED BY THE DONOR FOR THE PURPOSE OF FUNDING MEDICAL RESEARCH IN THE FIELD OF HUNTINGTON'S DISEASE. PART X, LINE 2: THE SOCIETY FOLLOWS THE PROVISIONS OF THE FINANCIAL ACCOUNTING STANDARDS BOARD'S (THE "FASB") ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, INCOME TAXES, AS IT RELATES TO ACCOUNTING AND REPORTING FOR UNCERTAINTY IN INCOME TAXES. BECAUSE OF THE SOCIETY'S GENERAL TAX-EXEMPT STATUS, MANAGEMENT BELIEVES ASC TOPIC 740 HAS NOT HAD, AND IS NOT ANTICIPATED TO HAVE, A MATERIAL IMPACT ON THE SOCIETY'S FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: REVENUE FROM HDSA CHAPTERS 3,205,651. PART XI, LINE 4B - OTHER ADJUSTMENTS: TOTAL PAYMENTS FROM HDSA CHAPTERS 2,693,053. PART XII, LINE 2D - OTHER ADJUSTMENTS: TOTAL EXPENSES FROM HDSA CHAPTERS 3,477,679. LOSS ON UNCOLLECTIBLE AMOUNTS 30,797. PART XII, LINE 4B - OTHER ADJUSTMENTS: TOTAL PAYMENTS FROM HDSA CHAPTERS 2,693,053. 1 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 GRANT MAKING 160800 0 0 0 0 0 0 160800 0 160800 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES MEDICAL RESEARCH 160800 WIRE 0 1 0 0 0 0 0 0 PART I, LINE 2: THE SOCIETY REQUESTS SEMI-ANNUAL FINANCIAL REPORTS FROM GRANTEES' OFFICES. PART I, LINE 3: AMOUNTS ARE REPORTED USING THE ACCRUAL METHOD OF ACCOUNTING. WALKS 746055 701126 44929 27815 10624 1621 1445 3424 GALAS 304237 251501 52736 941 2780 33490 5200 10324 16 537992 452780 85212 1066 32016 22747 1150 28234 1588284 1405407 182877 29822 45420 57858 7795 41982 182877 0 1 ADVENTHEALTH FOUNDATION CENTRAL FLORIDA 550 E ROLLINS STREET 6TH FLOOR ORLANDO FL 32803 592219301 501(C)(3) 7500 0 COMMUNITY SERVICES ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVENUE ALBANY NY 122083479 141338310 501(C)(3) 40000 0 COMMUNITY SERVICES BARROW NEUROLOGICAL INSTITUTE 240 WEST THOMAS ROAD STE 301 PHOENIX AZ 85013 941196203 501(C)(3) 33000 0 COMMUNITY SERVICES BETH ISRAEL DEACONESS MEDICAL CENTER 109 BROOKLINE AVENUE RM 215 BOSTON MA 022155491 042103881 501(C)(3) 45000 0 COMMUNITY SERVICES CLEVELAND CLINIC FOUNDATION CENTER FOR NEUROLOGICAL RESTORATION SLEEP CTR 9500 EUCLID AVE S-31 CLEVELAND OH 44195 340714553 501(C)(3) 33000 0 COMMUNITY SERVICES COLE NEUROSCIENCE CLINIC 2200 SUTHERLAND AVENUE KNOXVILLE TN 37919 311626179 501(C)(3) 10000 0 COMMUNITY SERVICES DUKE UNIVERSITY MEDICAL CENTER DEPT OF NEUROLOGY DUMC BOX 2900 DURHAM NC 27710 560532129 501(C)(3) 37000 0 COMMUNITY SERVICES EMORY UNIVERSITY 1599 CLIFTON ROD 4TH FLOOR MAILSTOP 1599-001BH ATLANTA GA 30322 580566256 501(C)(3) 33000 0 COMMUNITY SERVICES ERLANGER HEALTH SYSTEM 979 E THIRD STREET SUITE C830 CHATTANOOGA TN 37373 626000101 501(C)(3) 10000 0 COMMUNITY SERVICES GEORGETOWN UNIVERSITY HD CERC 2115 WISCONSIN AVENUE NW STE 200 WASHINGTON DC 20007 530196603 501(C)(3) 40000 0 COMMUNITY SERVICES HENNEPIN HEALTHCARE RESEARCH INSTITUTE 825 8TH STREET SOUTH MINNEAPOLIS MN 55404 411677920 501(C)(3) 35000 0 COMMUNITY SERVICES HENRY FORD HEALTH SYSTEM 2799 WEST GRAND BLVD CFP-463 DETROIT MI 48202 381357020 501(C)(3) 20000 0 COMMUNITY SERVICES INDIANA UNIVERSITY OFFICE OF RESEARCH ADMIN DEPT 78867 PO BOX 78000 DETROIT MI 482780867 356001673 501(C)(3) 28000 0 COMMUNITY SERVICES JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET CMSC 8-121 BALTIMORE MD 21287 520595110 501(C)(3) 43000 0 COMMUNITY SERVICES KANSAS UNIVERSITY ENDOWMENT 3901 RAINBOW BLVD MS3012 KANSAS CITY KS 66160 480547734 501(C)(3) 20623 0 COMMUNITY SERVICES MASSACHUSETTS GENERAL HOSPITAL 149 13TH STREET RM 10126 CHARLESTOWN MA 02129 042697983 501(C)(3) 33000 0 COMMUNITY SERVICES MEDICAL UNIVERSITY OF SOUTH CAROLINA 135 RUTLEDGE AVENUE CHARLESTON SC 29425 576000722 STATE GOVERNMENT 19500 0 COMMUNITY SERVICES MOVEMENT DISORDERS FOUNDATION PO BOX 886 ENGLEWOOD CO 80151 271618835 501(C)(3) 43000 0 COMMUNITY SERVICES NEW YORK UNIVERSITY GROSSMAN SCHOOL OF MEDICINE 450 E 29TH ST 9TH FL NEW YORK NY 10016 135562309 501(C)(3) 180000 0 COMMUNITY SERVICES NORTHWESTERN UNIVERSITY 710 N LAKE SHORE DRIVE CHICAGO IL 60611 362167817 501(C)(3) 42000 0 COMMUNITY SERVICES OCHSNER HEALTH SYSTEM 1515 JEFFERSON HWY 7TH FL CLINIC TOWER NEW ORLEANS LA 70121 720502505 501(C)(3) 32000 0 COMMUNITY SERVICES OHIO STATE UNIVERSITY WEXNER MEDICAL CENTER 395 W 12TH AVENUE 7TH FLOOR COLUMBUS OH 43210 311145986 501(C)(3) 50000 0 COMMUNITY SERVICES OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 931176109 GOVERNMENT 19995 0 COMMUNITY SERVICES PRISMA HEALTH - MIDLAND TAYLOR AT MARION STREET COLUMBIA SC 29220 582296052 501(C)(3) 26000 0 COMMUNITY SERVICES REGENTS OF THE UNIVERSITY OF CA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA CA 920930934 956006144 501(C)(3) 275507 0 COMMUNITY SERVICES REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH 4860 Y STREET SUITE 3700 SACRAMENTO CA 95817 946036494 501(C)(3) 73000 0 COMMUNITY SERVICES REGENTS UNIVERSITY OF CA LOS ANGELES PAYMENT AND SOLUTIONS COMPLIANCE BOX 957089 1125 MURPHY HALL LOS ANGELES CA 90095 956006143 S-CORPORATION 49000 0 COMMUNITY SERVICES ROWAN UNIVERSITY - SCHOOL OF OSTEOPATHIC MEDICINE 42 E LAUREL ROAD STRATFORD NJ 08084 222764819 501(C)(3) 19140 0 COMMUNITY SERVICES RUSH UNIVERSITY MEDICAL CENTER 1201 W HARRISON STREET STE 300 CHICAGO IL 60607 362174823 501(C)(3) 49000 0 COMMUNITY SERVICES SANFORD HEALTH 2301 E 60TH STREET N ROUTE 5031 FARGO ND 57104 450226909 501(C)(3) 20000 0 COMMUNITY SERVICES SELKIRK NEUROLOGY PLLC 610 SOUTH SHERMAN STREET STE 201 SPOKANE WA 99202 824852913 LIMITED LIABILITY CO 10000 0 COMMUNITY SERVICES STANFORD UNIVERSITY 300 PASTEUR DRIVE A343 STANFORD CA 94308 946174066 501(C)(3) 20000 0 COMMUNITY SERVICES THE GENERAL HOSPITAL CORPORATION MASSACHUSETTS GENERAL HOSPITAL SOMERVILLE MA 02145 042697983 501(C)(3) 180000 0 COMMUNITY SERVICES THE RECTOR & VISITORS OF THE UNIVERSITY OF VIRGINIA 1221 LEE STREET PRIMARY CARE CTR 4TH FL CHARLOTTESVILLE VA 22908 546001796 501(C)(3) 46000 0 COMMUNITY SERVICES THE REGENT OF THE UNIVERSITY OF CALIFORNIA-SAN FRANCISCO 2706 MEDIA CENTER DRIVE LOS ANGELES CA 90065 946036493 501(C)(3) 32000 0 COMMUNITY SERVICES THE REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE 228 ALDRICH HALL IRVINE CA 926971050 952226406 501(C)(3) 300000 0 COMMUNITY SERVICES THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY OF NEW YORK STONY BROOK UNIVERSITY W5510 MELVILLE LIBRARY STONY BROOK NY 117943366 141368361 501(C)(3) 19793 0 COMMUNITY SERVICES THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 622 WEST 168TH STREET PH-19 ROOM 316 NEW YORK NY 10032 135598093 501(C)(3) 47860 0 COMMUNITY SERVICES TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA OFFICE OF RESEARCH SERVICES 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501(C)(3) 55500 0 COMMUNITY SERVICES UCI MOVEMENT DISORDERS PROGRAM 150 MEDICAL SURGE 1 IRVINE CA 92697 952226406 501(C)(3) 20000 0 COMMUNITY SERVICES UNIV OF WASHINGTON HSB RR650 BOX 356465 1959 NE PACIFIC STREET SEATTLE WA 98195 916001537 501(C)(3) 60000 0 COMMUNITY SERVICES UNIVERSITY NEUROLOGY INC UNIVERSITY OF BUFFALO 77 GOODELL STREET SUITE 310 BUFFALO NY 14203 161359213 501(C)(3) 26000 0 COMMUNITY SERVICES UNIVERSITY OF ALABAMA BIRMINGHAM 1720 7TH AVENUE S SC 460A1 BIRMINGHAM AL 35294 636005396 501(C)(3) 50767 0 COMMUNITY SERVICES UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES 4301 WEST MARKHAM STREET LITTLE ROCK AR 72205 716046242 501(C)(3) 19978 0 COMMUNITY SERVICES UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA CA 920930041 956006144 501(C)(3) 49000 0 COMMUNITY SERVICES UNIVERSITY OF CENTRAL FLORIDA BOARD OF TRUSTEES UNIVERSITY OF CENTRAL FLORIDA 12201 RESEARCH PARKWAY STE 501 ORLANDO FL 32826 592924021 501(C)(3) 7500 0 COMMUNITY SERVICES UNIVERSITY OF CINCINNATI 3113 BELLEVUE AVENUE STE 3400 CINCINNATI OH 45219 273850988 501(C)(3) 38000 0 COMMUNITY SERVICES UNIVERSITY OF COLORADO DENVER GRANT CONTRACT 202016-LS PO BOX 910238 DENVER CO 802910238 846000555 501(C)(3) 34000 0 COMMUNITY SERVICES UNIVERSITY OF CONNECTICUT HEALTH CENTER 263 FARMINGTON AVENUE FARMINGTON CT 06030 521725543 501(C)(3) 25000 0 COMMUNITY SERVICES UNIVERSITY OF FLORIDA CONTRACTS GRANTS 33 TIGERT HALL PO BOX 113001 GAINESVILLE FL 326113001 596002052 501(C)(3) 32000 0 COMMUNITY SERVICES UNIVERSITY OF IOWA DEPARTMENT OF NEUROLOGY UNIV OF IOWA HOSPITAL CLINIC 200 HAWKINS DR 8820-12JPP IOWA CITY IA 52242 426004813 STATE GOVERNMENT 43000 0 COMMUNITY SERVICES UNIVERSITY OF LOUISVILLE 500 SOUTH PRESTON STREET SUITE 113 LOUISVILLE KY 40202 611029626 501(C)(3) 32000 0 COMMUNITY SERVICES UNIVERSITY OF MASSACHUSETTS UMASS CHAN MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01605 043167352 IRC SECTION 115 STAT 17000 0 COMMUNITY SERVICES UNIVERSITY OF MIAMI OFFICE OF RESEARCH ADMINISTRATION PO BOX 405803 ATLANTA GA 303845803 590624458 501(C)(3) 28000 0 COMMUNITY SERVICES UNIVERSITY OF MISSISSIPPI MEDICAL CENTER 2500 N STATE STREET JACKSON MS 392164505 646008520 501(C)(3) 19997 0 COMMUNITY SERVICES UNIVERSITY OF NEBRASKA MEDICAL CENTER DEPT OF NEUROLOGICAL SERVICE 988440 NEBRASKA MEDICAL CENTER OMAHA NE 68198 470049123 501(C)(3) 20000 0 COMMUNITY SERVICES UNIVERSITY OF PITTSBURGH PHYSICIANS 3600 FORBES AVENUE 9TH FLOOR CUBICAL 9 PITTSBURGH PA 15213 232919472 501(C)(3) 41000 0 COMMUNITY SERVICES UNIVERSITY OF ROCHESTER MEDICAL CENTER 601 ELMWOOD AVENUE BOX 673 ROCHESTER NY 146428673 160743209 501(C)(3) 48000 0 COMMUNITY SERVICES UNIVERSITY OF SOUTH ALABAMA HEALTH SYSTEM GRANT CONTRACT ACCOUNTING 307 UNIVERSITY BLVD AD 362 MOBILE AL 36688 630477348 501(C)(3) 17000 0 COMMUNITY SERVICES UNIVERSITY OF SOUTH FLORIDA 13220 USF LAUREL DRIVE ROOM 4105 TAMPA FL 33612 593102112 501(C)(3) 50000 0 COMMUNITY SERVICES UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER MCGOVERN MEDICAL SCHOOL 6431 FANNIN SUITE 7044 HOUSTON TX 77030 741761309 501(C)(3) 56000 0 COMMUNITY SERVICES UNIVERSITY OF UTAH 650 KOMAS DRIVE 106A SALT LAKE CITY UT 84108 876000525 501(C)(3) 33000 0 COMMUNITY SERVICES UNIVERSITY OF VERMONT HEALTH NETWORK 111 COLCHESTER AVENUE BURLINGTON VT 05401 452880726 501(C)(3) 26500 0 COMMUNITY SERVICES UNIVERSITY OF WISCONSIN - MADISON RESEARCH SPONSORED PROGRAMS 21 N PARK STREET STE 6401 MADISON WI 537151218 396006492 501(C)(3) 20000 0 COMMUNITY SERVICES VANDERBILT UNIVERSITY MEDICAL CENTER MEDICAL CENTER NORTH A-0118 NASHVILLE TN 37232 352528741 501(C)(3) 53999 0 COMMUNITY SERVICES VIRGINIA COMMONWEALTH UNIVERSITY GRANTS CONTRACT BIO TECH ONE BLDG 800 EAST LEIGH ST SUITE 3100 POB 84 RICHMOND VA 23284 546001758 501(C)(3) 27000 0 COMMUNITY SERVICES WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE CAMPUS BOX 1034 ST LOUIS MO 63112 430653611 STATE GOVERNMENT 44000 0 COMMUNITY SERVICES 67 PART I, LINE 2: MAINTAINING RECORDS FOR GRANT ACTIVITIES: THE ORGANIZATION REQUESTS SEMI-ANNUAL FINANCIAL REPORTS FROM RECIPIENTS. X X X X 0 0 0 0 0 0 0 0 0 ROSEMARY COLUCCIO CHIEF OPERATIONS OFFICER 286482 0 0 0 0 0 14479 0 17248 0 318209 0 0 0 LOUISE VETTER CHIEF EXECUTIVE OFF (THRU 7/12/2024) 281981 0 0 0 0 0 11931 0 22224 0 316136 0 0 0 ARIK JOHNSON CHIEF MISSION OFFICER 218271 0 0 0 0 0 10913 0 3658 0 232842 0 0 0 JAMISON SKALA DIRECTOR, NATIONAL DEVELOPMENT 190938 0 0 0 0 0 9734 0 3495 0 204167 0 0 0 REBECCA CHAN CONTROLLER 120050 0 0 0 0 0 6742 0 37765 0 164557 0 0 0 PART I, LINE 3 COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION BY THE BOARD. X 0 SEE SUPP INFO X 17 258875 COMPARABLE SALES X DONATED GOODS 448 56452 COMPARABLE SALES 0 1 1 PART I, COLUMN (B): THE NUMER OF CONTRIBUTIONS ARE BASED ON THE NUMBER OF ITEMS RECEIVED. PART I, LINE 32B: THE SOCIETY IS THE RECIPIENT OF PROCEEDS FROM THE SALES OF VEHICLES THROUGH AN UNRELATED INTERMEDIARY ORGANIZATION. FORM 990, PART VI, SECTION B, LINE 11B MANAGEMENT THOROUGHLY REVIEWS AND SUBSEQUENTLY PROVIDES AN ELECTRONIC DRAFT COPY OF FORM 990 TO THE GOVERNING BODY FOR REVIEW BEFORE FILING WITH THE IRS. FORM 990, STATEMENTS REGARDING OTHER IRS FILINGS AND TAX COMPLIANCE PART 1, QUESTION 5 AND PART V, QUESTION 2A: THE SOCIETY CURRENTLY EMPLOYS 36 INDIVIDUALS. PAYROLL AND BENEFITS ARE PROCESSED THROUGH A PROFESSIONAL EMPLOYER ORGANIZATION (PEO) WHICH FILES THE FORM W-3 ON THE SOCIETY'S BEHALF UNDER THE PEO'S FEDERAL EIN#. THEREFORE THE SOCIETY DOES NOT FILE A FORM W-3. FORM 990, PART VI, SECTION B, LINE 12C OFFICERS AND TRUSTEES ARE REQUESTED TO ANNUALLY SIGN DOCUMENTATION. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION OF THE BOARD. FORM 990, PART VI, SECTION C, LINE 19 THE SOCIETY MAKES ITS BY-LAWS, ARTICLES OF INCORPORATION, IRS FORM 1023, ANNUAL REPORTS, AUDITED FINANCIAL STATEMENTS, IRS FORM 990 DOCUMENTS, CONFLICT OF INTEREST POLICY AND PRIVACY POLICY AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9: LOSS ON UNCOLLECTIBLE AMOUNTS -30,797. HUNTINGTON'S DISEASE SOCIETY OF AMERICA 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 900658125 PROGRAM SRVC NY 501(C)(3) LINE 7 HDSA NAT'L 0 0 1 1 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 0