2015-11-16T07:01:39-06:00 2015-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX ST SUITE 400 ALEXANDRIA VA 22314 990 2014-07-01 112779073 SJOGREN'S SYNDROME FOUNDATION INC SJOG 3015304420 6707 DEMOCRACY BLVD NO 325 BETHESDA MD 20817 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 3015304420 2015-11-12 1 ANDREW YOUNG CPA P01203950 7035351200 2014 2016-02-25 16:41:14Z STEVEN TAYLOR 6707 DEMOCRACY BLVD NO 325 BETHESDA MD 20817 2156860 0 X WWW.SJOGRENS.ORG X 1983 NY THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 17 17 10 350 117593 0 1273958 1391279 467926 456602 19711 22578 38903 49163 1800498 1919622 66250 125000 0 0 946883 1032275 0 0 190813 726942 695458 1740075 1852733 60423 66889 481395 509899 435995 410110 45400 99789 X THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 0 0 262109 125000 117084 RESEARCH GRANTS TO PROMOTE CONTINUED MEDICAL AND SCIENTIFIC RESEARCH IN THE AREA OF SJOGREN'S SYNDROME. FIVE GRANTS WERE AWARDED TO UNIVERSITY AFFILIATED RESEARCHERS DURING FYE 2015. TWO STUDENT FELLOWSHIPS WERE ALSO AWARDED FOR INTERNSHIPS IN A SJOGREN'S RESEARCH LABORATORY. 249151 117593 NEWSLETTER - THE SSF PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 383530 AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S SYNDROME AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO PROFESSIONALS. 673400 903313 ONE NATIONAL PATIENT CONFERNCE WAS HELD THIS PAST YEAR. THIS CONFERENCE WAS HELD FOR PATIENTS AND THEIR FAMILIES TO LEARN FROM HEALTHCARE PROFESSIONALS ABOUT TREATMENT AND MANAGEMENT OF SJOGRENS SYNDROME. OVER 400 INDIVIDUALS ATTENDED THESE CONFERENCES. IN ADDITION, THE FOUNDATION PERFORMED OTHER VARIOUS SERVICES BENEFITTING THE INDUSTRY AT LARGE. IT ALSO SELLS PRODUCTS AND MATERIALS THAT ARE RELEVANT TO THOSE WITH SJOGREN'S SYNDROME. 673400 903313 1568190 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 10 1 1 1 0 0 0 0 0 0 0 0 0 X 17 17 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AR AZ CO CT FL IL MD MA MI MN MS NH NY OH OR PA SC TN UT VA WA WI WV X X SJOGREN'S SYNDROME FOUNDATION 3015304420 6707 DEMOCRACY BLVD SUITE 325 BETHESDA MD 20817 KEN ECONOMOU CHAIRMAN 2.00 X X 0 0 0 STEPHEN COHEN OD CHAIRMAN-ELECT 2.00 X X 0 0 0 JANET E CHURCH SECRETARY 2.00 X X 0 0 0 VIDYA SANKAR DMD MHS TREASURER 2.00 X X 0 0 0 ESEN K AKPEK MD DIRECTOR 2.00 X 0 0 0 NANCY L CARTERON MD FACR DIRECTOR 2.00 X 0 0 0 PAMELA S BROWN DIRECTOR 2.00 X 0 0 0 S LANCE FORSTOT MD IMMEDIATE PAST CHAIRMAN 2.00 X 0 0 0 CYNTHIA LOPYNSKI DIRECTOR 2.00 X 0 0 0 MARY MCNEIL DIRECTOR 2.00 X 0 0 0 DENISE FAUSTMAN MD PHD MSAB CHAIRMAN 2.00 X 0 0 0 THERESA LAWRENCE FORD MD DIRECTOR 2.00 X 0 0 0 TRICIA GOODING DIRECTOR 2.00 X 0 0 0 JACK FARICELLI DIRECTOR 2.00 X 0 0 0 HERBERT BARAF MD FACP FACR DIRECTOR 2.00 X 0 0 0 CATHY INGELS DIRECTOR 2.00 X 0 0 0 KATHY L SIVILS PHD DIRECTOR 2.00 X 0 0 0 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 40.00 X 241851 0 19394 241851 0 19394 1 0 1 0 0 291042 1100237 17425 1391279 MEMBERSHIP DUES 541900 234327 234327 ADVERTISING 541800 117593 117593 CONFERENCE 541900 104682 64932 39750 456602 19008 19008 2561 2561 100573 5561 96460 6104 4113 -543 3570 3570 115127 291042 115127 0 51693 19547 32146 32146 MISCELLANEOUS INCOME 541900 14456 14456 14456 1919622 345861 117593 64889 125000 125000 283448 226758 28345 28345 604163 529871 16047 58245 9740 8587 216 937 77548 66958 3065 7525 57376 48976 2806 5594 22484 22484 3798 3798 42439 36123 315 6001 19755 16862 967 1926 121923 104074 5962 11887 70645 70645 2538 2538 13070 11157 639 1274 7858 6708 384 766 PRINTING, DUPLICATING, 104908 74602 613 29693 POSTAGE AND DELIVERY 94777 79116 2228 13433 FOOD AND BEVERAGE 60601 59992 609 MAINTENANCE AND REPAIRS 37474 31989 1832 3653 93188 70772 882 21534 1852733 1568190 93730 190813 39005 84480 1710 1710 81882 62468 3619 3961 8171 26167 187096 164370 33163 22726 306986 301528 6859 6859 481395 509899 157572 106253 111250 143750 113115 124982 54058 35125 435995 410110 X 45400 99789 45400 99789 481395 509899 66889 -12500 0 X X 0 1 X 1 0 X 1634110 1389185 1342705 1273958 1391279 7031237 230508 245379 140908 478681 457086 1552562 1864618 1634564 1483613 1752639 1848365 8583799 791836 687653 591090 638819 747325 3456723 0 791836 687653 591090 638819 747325 3456723 5127076 17154 14515 13931 11395 21569 78564 17154 14515 13931 11395 21569 78564 1557 14456 16013 1881772 1649079 1497544 1765591 1884390 8678376 0.59080 0.57040 0.00910 0.00780 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 126249 103523 22726 60847 60847 0 22726 CAPITAL LEASE PAYABLE 9888 DEFERRED RENT 25237 35125 X 1923414 -12500 -12500 1935914 3798 -20090 -16292 1919622 1869025 20090 20090 1848935 3798 3798 1852733 PART X, LINE 2: THE FOUNDATION'S FEDERAL EXEMPT ORGANIZATION BUSINESS INCOME TAX RETURNS (FORM 990 AND FORM 990-T) FOR 2012, 2013, AND 2014 ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE (IRS), GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. PART XI, LINE 4B - OTHER ADJUSTMENTS: COST OF GOODS SOLD REPORTED ON PART VIII -19,547. LOSS ON DISPOSAL OF PROPERTY -543. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD REPORTED ON PART VIII 19,547. LOSS ON DISPOSAL OF PROPERTY 543. WALKABOUTS AND SIPS EVENTS 395415 280288 115127 115127 PARTNER PROGRAMS 10754 10754 406169 291042 115127 115127 115127 0 1 THE FORSYTH INSTITUTE 245 FIRST STREET CAMBRIDGE MA 02142 104210423 SECTION 501(C)(3) 35000 0 FMV N/A RESEARCH GRANT UNIVERSITY OF ROCHESTER CENTER FOR ORAL BIOLOGY 601 ELMWOOD AVENUE ROCHESTER NY 14642 160743209 SECTION 501(C)(3) 25000 0 FMV N/A RESEARCH GRANT UNIVERSITY OF SOUTHERN CALIFORNIA 1985 ZONAL AVENUE LOS ANGELES CA 90089 951642394 SECTION 501(C)(3) 25000 0 FMV N/A RESEARCH GRANT JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE 5200 EASTERN AVENUE SUITE 400 MASON F LORD CENTER TOWER BALTIMORE MD 21224 520595110 SECTION 501(C)(3) 20000 0 FMV N/A RESEARCH GRANT UNIVERSITY OF MICHIGAN SCHOOL OF DENTISTRY 1011 N UNIVERSITY AVENUE ANN ARBOR MI 48109 138606309 SECTION 501(C)(3) 20000 0 FMV N/A RESEARCH GRANT 5 0 PART I, LINE 2: THE SJOGREN'S SYNDROME FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S SYNDROME BY OFFERING ANNUAL RESEARCH GRANT AND STUDENT FELLOWSHIPS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 170000 0 71851 0 0 0 5100 0 14294 0 261245 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BE CONTACTING MAIN OFFICE. FORM 990, PART XI, LINE 2C THE ORGANIZATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR.