2015-10-29T14:10:50-05:00 2015-06-30 521511275 RAFFA PC 1899 L STREET NW SUITE 900 WASHINGTON DC 20036 990 2014-07-01 237135845 THE FOUNDATION FIGHTING BLINDNESS INC FOUN 4104230600 7168 COLUMBIA GATEWAY DRIVE NO 100 COLUMBIA MD 21046 ANNETTE HINKLE CPA CHIEF FINANCIAL OFFICER 4104230600 2015-10-29 1 FRANK H SMITH P00639053 2028225000 2015-10-28 2014 2016-02-25 16:41:14Z ANNETTE HINKLE CPA 7168 COLUMBIA GATEWAY DRIVE NO 100 COLUMBIA MD 21046 74604724 0 X WWW.FIGHTBLINDNESS.ORG X 1971 MD FFB FUNDS RESEARCH TO DISCOVER CAUSES AND CURES FOR RETINAL DISEASES LEADING TO BLINDNESS. 23 23 89 2500 0 0 37077623 56098521 408658 228814 1625426 712591 -765444 -613429 38346263 56426497 12720767 14759499 0 0 6704696 6353597 421331 593637 7165051 5981599 6115344 25828393 27822077 12517870 28604420 82788523 111781122 12524827 11120038 70263696 100661084 X THE MISSION OF THE FOUNDATION FIGHTING BLINDNESS, INC. (FFB) IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, MACULAR DEGENERATION, USHER SYNDROME, AND THE SPECTRUM OF RETINAL DEGENERATIVE DISEASES. 0 0 16327133 14759499 37500 RESEARCH - FFB FUNDED RESEARCHERS ARE ACHIEVING REMARKABLE SUCCESS WITH A WIDE RANGE OF PROMISING THERAPIES FOR SAVING AND RESTORING SIGHT. THE FOUNDATION, AND ITS SUBSIDIARY FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE (FFB CRI), HAVE FUNDED TRANSLATIONAL RESEARCH AND CLINICAL TRIALS OF GENE THERAPY THAT HAVE RESTORED VISION IN PATIENTS WHO WERE VIRTUALLY BLIND FROM A CHILDHOOD FORM OF RETINITIS PIGMENTOSA. THANKS TO THE THERAPY, THEY CAN NOW ENJOY SOME OF LIFE'S SIMPLE JOYS, LIKE READING AND PLAYING BASEBALL. THE FOUNDATION, AND ITS SUBSIDIARY FFB CRI, HAVE FUNDED CROSS CUTTING DRUG TREATMENT THERAPIES, SHOWING POTENTIAL FOR SLOWING VISION LOSS CAUSED BY RETINAL DISEASES. (CONTINUED ON PAGE 58)FFB CRI HAS LAUNCHED A HUMAN TRIAL TO TEST A DRUG THAT MAY PRESERVE VISION IN PEOPLE WITH A SPECIFIC FORM OF RETINITIS PIGMENTOSA. FFB FUNDED RESEARCHERS ARE USING STEM CELLS DERIVED FROM A VARIETY OF SOURCES, INCLUDING A PERSON'S OWN SKIN, TO CREATE HEALTHY RETINAL CELLS THAT CAN POTENTIALLY RESTORE VISION. STEM CELL TREATMENTS HOLD GREAT PROMISE FOR PEOPLE WITH ADVANCED VISION LOSS. IN ADDITION, FFB HAS COMMITTED $39 MILLION TO EXISTING RESEARCH PROJECTS BASED ON FUTURE MILESTONES AND HAS SET ASIDE MORE THAN $70 MILLION FOR FUTURE INNOVATIVE OPPORTUNITIES. THIS GIVES FFB THE FLEXIBILITY AND OPPORTUNITY TO INVEST IN UPCOMING LARGE-SCALE STUDIES AND CLINICAL TRIALS WHEN THEY BECOME AVAILABLE. 2106783 191314 PUBLIC HEALTH EDUCATION - FFB FUNDED HEALTH EDUCATION PROGRAMS REACH OVER 250,000 PEOPLE THROUGH EDUCATIONAL SEMINARS, NEWSLETTERS, WEB BASED INFORMATION, AND COMMUNITY OUTREACH THROUGH FFB'S APPROXIMATELY 50 CHAPTERS AROUND THE U.S. AND THROUGH PARTNERSHIPS WITH NUMEROUS RETINAL SPECIALISTS. 18433916 1 1 0 0 0 0 0 0 0 1 1 1 0 0 1 1 0 1 0 0 1 1 0 1 1 1 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 203 0 1 89 1 0 0 0 0 0 1 1 1 1 0 0 0 X 23 23 1 0 1 0 1 1 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT FL GA HI KS IL IN MA ME MD MI MN MS NH NJ NM NY NC OH OK OR PA SC TN UT VA WA WV X X ANNETTE HINKLE CPA 4104230600 7168 COLUMBIA GATEWAY DRIVE 100 COLUMBIA MD 21046 X GORDON GUND CHAIRMAN 10.00 1.00 X X 0 0 0 DAVID BRINT VICE CHAIRMAN 1.00 1.00 X X 0 0 0 JOEL P DAVIS VICE CHAIRMAN 1.00 X X 0 0 0 JEREMIAH H SHAW VICE CHAIRMAN 1.00 X X 0 0 0 EDWARD H GOLLOB PRESIDENT 1.00 1.00 X X 0 0 0 HAYNES LEA TREASURER 1.00 X X 0 0 0 YVONNE E CHESTER SECRETARY 1.00 X X 0 0 0 STEVE ALPER DIRECTOR 1.00 X 0 0 0 EDWARD G BABIN DIRECTOR 1.00 X 0 0 0 JASON FERREIRA DIRECTOR 1.00 X 0 0 0 MARILYN GREEN DIRECTOR 1.00 X 0 0 0 SHERRI KROONENBERG DIRECTOR 1.00 X 0 0 0 JANNI LEHRER-STEIN DIRECTOR 1.00 X 0 0 0 NANCY MENDELOW DIRECTOR 1.00 X 0 0 0 EVAN MITTMAN DIRECTOR 1.00 X 0 0 0 KAREN PETROU DIRECTOR 1.00 X 0 0 0 EDWARD RUSSNOW DIRECTOR 1.00 X 0 0 0 BRUCE SAWYER DIRECTOR 1.00 X 0 0 0 MOIRA SHEA DIRECTOR 1.00 X 0 0 0 IRIS SPEIGEL DIRECTOR 1.00 X 0 0 0 JONATHAN S STEINBERG MD DIRECTOR 1.00 X 0 0 0 MARYROSE SYLVESTER DIRECTOR 1.00 X 0 0 0 WARREN THALER DIRECTOR 1.00 X 0 0 0 WILLIAM T SCHMIDT CHIEF EXECUTIVE OFFICER 40.00 1.00 X 327745 0 11794 JAMES MINOW CHIEF DEV. OFFICER - UNTIL 09/2014 40.00 X 202207 0 11318 PATRICIA ZILLIOX PHD CHIEF DRUG DEVELOPMENT OFFICER 1.00 40.00 X 0 222782 9248 STEPHEN M ROSE PHD CHIEF RESEARCH OFFICER 40.00 X 215768 0 26915 ANNETTE HINKLE CPA CHIEF FINANCIAL OFFICER 40.00 1.00 X 193681 0 13919 PATRICIA A DUDLEY CHIEF HUMAN RESOURCE OFFICER 40.00 X 139829 0 24060 SUSAN BRUMLEY SR. NAT. DIR. MAJOR - UNTIL 05/2014 40.00 X 159574 0 19220 BRIAN MANSFIELD PHD DEPUTY CHIEF RESEARCH OFFICER 40.00 X 158569 0 24781 LORRAINE HIRSCH CPA DEPUTY CHIEF FINANCIAL OFFICER 40.00 X 124132 0 5277 MICHELE MERCER SR. DIRECTOR DATABASE 40.00 X 105467 0 17002 1626972 222782 163534 9 0 1 0 PRODUCTION ADVANTAGE 13873 PARK CENTER ROAD SUITE 15 OAK HILL VA 20171 PRINTING/MAIL HOUSE SERVICES 260292 CHARITY DYNAMICS INC 3721 EXECUTIVE CENTER DRIVE SUITE AUSTIN TX 78731 FUNDRAISING COUNSEL 227787 DP SOLUTIONS 9160 RED BRANCH ROAD SUITE W-1 COLUMBIA MD 21045 IT SERVICES 222170 CONCORD LITHO GROUP 92 OLD TURNPIKE ROAD CONCORD NH 03301 PRINTING/MAIL HOUSE SERVICES 202615 BLACKBAUD PO BOX 930256 ATLANTA GA 31193 ON-LINE TRANSACTION FEES 187233 12 231029 8867936 46999556 3028419 56098521 CONFERENCE FEES & SPONSORSHIPS 900099 191314 191314 CONTRACT REVENUE 900099 37500 37500 228814 2721358 2721358 14863104 16871871 -2008767 -2008767 -2008767 542885 8867936 1296537 -753652 -753652 15275 9819 5456 5456 FFB CRI SERVICE FEES 900099 100000 100000 SUBLEASE INCOME 900099 32473 32473 OTHER REVENUE 900099 2294 2294 134767 56426497 228814 0 99162 12854476 12854476 1905023 1905023 1263772 616601 384585 262586 3957925 822435 588123 2547367 80450 16962 11568 51920 674271 170830 109298 394143 377179 93851 64624 218704 9884 7920 1964 74025 69250 4775 593637 593637 201378 186249 15129 1023789 575866 96148 351775 1273734 142389 355516 775829 292252 17838 55829 218585 669040 69205 108419 491416 337173 67410 20302 249461 818486 620774 78580 119132 430085 253984 26153 149948 200446 41872 30206 128368 PRINTING & PRODUCTION 785052 164400 30340 590312 27822077 18433916 2223110 7165051 4904426 841942 6619 7159 6702848 23470594 2184396 471517 566089 479458 6046159 4047860 2348728 1998299 59037542 76842983 6823376 7375467 214499 293703 82788523 111781122 2685111 2518493 8285742 6930316 265937 188869 1288037 1482360 12524827 11120038 X 8992654 15895596 60771042 84265488 500000 500000 70263696 100661084 82788523 111781122 X 28604420 1775374 17594 X 0 1 X 1 0 X 36268303 38553517 40828587 37077623 56098521 208826551 36268303 38553517 40828587 37077623 56098521 208826551 82064361 126762190 717281 1671104 2360118 2787360 2753831 10289694 155990 162804 112380 107417 102294 640885 219757130 5448590 0.57680 0.61250 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: FFB CRI SERVICE FEES - 2010 AMOUNT: $ 99,900. 2011 AMOUNT: $ 99,900. 2012 AMOUNT: $ 99,900. 2013 AMOUNT: $ 99,900. 2014 AMOUNT: $ 100,000. MISCELLANEOUS - 2010 AMOUNT: $ 50,717. 2011 AMOUNT: $ 60,384. RESEARCH PATENT - 2010 AMOUNT: $ 5,373. 2011 AMOUNT: $ 2,520. 2012 AMOUNT: $ 12,480. 2013 AMOUNT: $ 7,517. OTHER INCOME - 2014 AMOUNT: $ 2,294. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 500000 30311 28140 2171 500000 500000 21205 19117 2088 500000 500000 14507 12469 2038 500000 500000 19092 17076 2016 500000 500000 32633 29953 2680 500000 0.00000 1.00000 0.00000 0 0 897717 384148 513569 1571012 1377456 193556 3577430 2286256 1291174 1998299 CHARITABLE GIFT ANNUITY FUNDS 773404 F POOLED INCOME FUNDS 40410 F BENEFICIAL INTERESTS IN REMAINDER TRUSTS 6561653 F 7375467 POOLED INCOME FUND OBLIGATION 5296 CHARITABLE GIFT ANNUITY OBLIGATION 804945 DEFERRED COMPENSATION OBLIGATION 672119 1482360 X 59152155 1775374 128031 4672253 6575658 52576497 3850000 3850000 56426497 28688829 128031 4606315 4734346 23954483 3867594 3867594 27822077 PART V, LINE 4: THE INCOME EARNED ON THESE NET ASSETS IS RESTRICTED BY THE DONORS FOR RESEARCH. INVESTMENT EARNINGS ON ENDOWMENT FUNDS ARE EXPENDED FOR THE RESTRICTED PURPOSE REQUIRED IN THE YEAR EARNED. PART X, LINE 2: FFB HAS PERFORMED AN EVALUATION OF ITS UNCERTAIN TAX POSITIONS FOR THE YEAR ENDED JUNE 30, 2015, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. PART XI, LINE 2D - OTHER ADJUSTMENTS: SUBSIDIARY REVENUE INCLUDED IN CONSOLIDATED FINANCIAL STATEMENTS 4,672,253. PART XI, LINE 4B - OTHER ADJUSTMENTS: INTERCOMPANY GRANTS AND MANAGEMENT FEE 3,850,000. PART XII, LINE 2D - OTHER ADJUSTMENTS: SUBSIDIARY EXPENSES INCLUDED IN CONSOLIDATED FINANCIAL STATEMENTS 4,606,315. PART XII, LINE 4B - OTHER ADJUSTMENTS: INTERCOMPANY GRANTS AND MANAGEMENT FEE 3,850,000. GRANT REFUNDS FROM DOMESTIC ORGANIZATIONS 17,594. 1 EUROPE (INCLUDING ICELAND AND GREENLAND) 0 0 GRANTMAKING 1605023 MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT, 0 0 GRANTMAKING 200000 SOUTH ASIA - AFGHANISTAN, BANGLADESH, BHUTAN, INDIA, MALDIVES, NEPAL, 0 0 GRANTMAKING 100000 0 0 0 0 0 0 1905023 0 1905023 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 392164 CHECK 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 361300 CHECK 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 260378 CHECK 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 195000 CHECK 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 100000 CHECK 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 99681 CHECK 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 75000 CHECK 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 70000 CHECK 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 51500 CHECK 0 MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT, RESEARCH 200000 CHECK 0 SOUTH ASIA - AFGHANISTAN, BANGLADESH, BHUTAN, INDIA, MALDIVES, NEPAL, RESEARCH 100000 CHECK 0 0 6 0 0 0 0 0 0 PART I, LINE 2: EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS. X X X X X X 1 DINA BEAUMONT 9720 OWEN BROWN ROAD COLUMBIA MD 21045 SPECIAL EVENT FUNDRAISING COUNSEL 0 322500 49626 272874 STRATEGIC FUNDRAISING 7591 9TH STREET N ST PAUL MN 55128 TELEMARKETING FUNDRAISING COUNSEL 0 130280 100244 30036 CHARITY DYNAMICS 3420 EXECUTIVE CENTER DRIVE G-100 AUSTIN TX 78731 FUNDRAISING COUNSEL 0 0 282176 -282176 NNE MARKETING 724 MASSACHUSETTS AVENUE ARLINGTON MA 02476 FUNDRAISING COUNSEL 0 0 127591 -127591 IMPACT COMMUNICATIONS 906 PENNSYLVANIA AVENUE SE SUITE 2 WASHINGTON DC 20003 PLANNED GIVING FUNDRAISING COUNSEL 0 0 34000 -34000 452780 593637 -140857 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DINNER - NY 827847 664247 163600 0 0 16200 133938 3500 12239 DINNER - CHICAGO 853806 785706 68100 0 0 50 81799 35800 13504 72 7729168 7417983 311185 0 0 297303 480001 50253 171950 9410821 8867936 542885 313553 695738 89553 197693 1296537 -753652 15275 9819 0 15275 9819 9819 5456 DC FL IL MN MD 1 0 0 0 1.00000 ANNETTE HINKLE 7168 COLUMBIA GATEWAY DRIVE 100 COLUMBIA MD 21046 0 ANNETTE HINKLE X 0 1 FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE 7168 COLUMBIA GATEWAY DRIVE COLUMBIA MD 21046 450524687 501(C)(3) 3750000 RESEARCH UNIVERSITY OF IOWA 2 GILMORE HALL IOWA CITY IA 52242 237436761 501(C)(3) 519440 RESEARCH MASSACHUSETTS EYE AND EAR INFIRMARY 243 CHARLES STREET BOSTON MA 02114 042103591 501(C)(3) 500000 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 500000 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 400000 RESEARCH OREGON HEALTH AND SCIENCE UNIVERSITY 3375 TERWILLIGER BOULEVARD SW PORTLAND OR 97201 237083114 501(C)(3) 336985 RESEARCH THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 332877 RESEARCH UNIVERSITY OF IOWA 200 HAWKINS DRIVE IOWA CITY IA 52242 237436761 501(C)(3) 329000 RESEARCH UNIVERSITY CALIFORNIA SAN FRANCISCO 100 STEIN PLAZA LOS ANGELES CA 90095 956006143 501(C)(3) 298738 RESEARCH UNIVERSITY OF WISCONSIN 21 NORTH PARK STREET MADISON WI 53715 390743975 501(C)(3) 279259 RESEARCH UNIVERSITY OF WISCONSIN 21 NORTH PARK STREET MADISON WI 53715 390743975 501(C)(3) 268008 RESEARCH MASSACHUSETTS EYE AND EAR INFIRMARY 243 CHARLES STREET BOSTON MA 02114 042103591 501(C)(3) 237593 RESEARCH UNIVERSITY OF MICHIGAN 100 WALL STREET ANN ARBOR MI 48105 386006309 501(C)(3) 217461 RESEARCH COLUMBIA UNIVERSITY 635 WEST 165TH STREET NEW YORK NY 10032 135598093 501(C)(3) 211303 RESEARCH RETINA FOUNDATION OF THE SOUTHWEST 9900 NORTH CENTRAL EXPRESSWAY DALLAS TX 75231 510151514 501(C)(3) 197100 RESEARCH UNIVERSITY OF PENNSYLVANIA 422 CURIE BOULEVARD PHILADELPHIA PA 19104 232810852 501(C)(3) 178100 RESEARCH LOUISIANA STATE UNIVERSITY 2020 GRAVIER STREET NEW ORLEANS LA 70803 721304948 501(C)(3) 165414 RESEARCH UNIVERSITY OF WISCONSIN 21 NORTH PARK STREET MADISON WI 53715 390743975 501(C)(3) 156000 RESEARCH UNIVERSITY OF OKLAHOMA HEALTH SCIENCES 608 STANTON L YOUNG BOULEVARD OKLAHOMA CITY OK 73104 730762267 501(C)(3) 152087 RESEARCH UNIVERSITY OF IOWA 200 HAWKINS DRIVE IOWA CITY IA 52242 237436761 501(C)(3) 151560 RESEARCH JOHNS HOPKINS UNIVERSITY 600 NORTH WOLFE STREET BALTIMORE MD 21287 520595110 501(C)(3) 143844 RESEARCH OREGON HEALTH AND SCIENCE UNIVERSITY 3375 TERWILLIGER BOULEVARD SW PORTLAND OR 97201 237083114 501(C)(3) 140015 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 140000 RESEARCH BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON TX 77030 741613878 501(C)(3) 100000 RESEARCH DUKE UNIVERSITY MEDICAL CENTER 2200 W MAINE STREET DURHAM NC 27705 560532129 501(C)(3) 100000 RESEARCH THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010221513 501(C)(3) 100000 RESEARCH UNIVERSITY OF MIAMI 1638 NW 10TH AVENUE MIAMI FL 33136 590624458 501(C)(3) 100000 RESEARCH UNIVERSITY OF CALIFORNIA SAN DEIGO 9500 GILMAN DRIVE LA JOLLA CA 92037 956006144 501(C)(3) 100000 RESEARCH UNIVERSITY OF CHICAGO 5801 S ELLIS AVENUE CHICAGO IL 60637 362177139 501(C)(3) 100000 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 100000 RESEARCH UNIVERSITY OF MINNESOTA 200 OAK STREET MINNEAPOLIS MN 55455 416007513 501(C)(3) 100000 RESEARCH FLORIDA STATE UNIVERSITY 600 W COLLEGE AVENUE TALLAHASSEE FL 32306 596152180 501(C)(3) 99997 RESEARCH UNIVERSITY CALIFORNIA SAN FRANCISCO 100 STEIN PLAZA LOS ANGELES CA 90095 956006143 501(C)(3) 99754 RESEARCH SHILEY EYE CENTER 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 956006144 501(C)(3) 99446 RESEARCH UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER PO BOX 20036 HOUSTON TX 77225 741761309 501(C)(3) 98004 RESEARCH MICHIGAN STATE 426 AUDITORIUM ROAD EAST LANSING MI 48824 386005984 501(C)(3) 97390 RESEARCH UNIVERSITY OF WASHINGTON 1100 45TH ST NE SEATTLE WA 98105 943079432 501(C)(3) 97251 RESEARCH UNIVERSITY OF TEXAS HEALTH SCIENCE 1200 HERMAN PRESSLER DRIVE HOUSTON TX 77030 741761309 501(C)(3) 94708 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 94530 RESEARCH UNIVERSITY OF KENTUCKY 109 KINKEAD HALL LEXINGTON KY 40506 616033693 501(C)(3) 90738 RESEARCH UNIVERSITY OF OKLAHOMA HEALTH SCIENCES 608 STANTON L YOUNG BOULEVARD OKLAHOMA CITY OK 73104 730762267 501(C)(3) 90000 RESEARCH MEDICAL UNIVERSITY OF SOUTH CAROLINA 167 ASHLEY AVENUE CHARLESTON SC 29425 576028985 501(C)(3) 89440 RESEARCH UNIVERSITY OF FLORIDA 1600 SW ARCHER ROAD GAINESVILLE FL 32610 592729133 501(C)(3) 87551 RESEARCH APPLIED GENETIC TECHNOLOGIES 11801 RESEARCH DRIVE SUITE D ALACHUA FL 32615 593533710 501(C)(3) 81564 RESEARCH STANFORD UNIVERSITY SCHOOL OF MEDICINE SUMC RM L-331 STANFORD CA 94305 941156365 501(C)(3) 78107 RESEARCH OREGON HEALTH AND SCIENCE UNIVERSITY 3375 TERWILLIGER BOULEVARD SW PORTLAND OR 97201 237083114 501(C)(3) 75000 RESEARCH UNIV OF N TX HEALTH AND SCIENCE CENTER 3500 CAMP BOWIE BOULEVARD FORT WORTH TX 76107 756064033 501(C)(3) 75000 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 75000 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 75000 RESEARCH UNIVERSITY OF KENTUCKY 109 KINKEAD HALL LEXINGTON KY 40506 616033693 501(C)(3) 75000 RESEARCH HELEN WILLS NEUROSCIENCE INSTITUTE 112 BARKER HALL BERKELEY CA 94720 946090626 501(C)(3) 74836 RESEARCH FOUNDATION OF UMDNJ 90 BERGEN STREET NEWARK NJ 07103 237313160 501(C)(3) 70137 RESEARCH UNIVERSITY OF PENNSYLVANIA 422 CURIE BOULEVARD PHILADELPHIA PA 19104 232810852 501(C)(3) 70000 RESEARCH MASSACHUSETTS EYE AND EAR INFIRMARY 243 CHARLES STREET BOSTON MA 02114 042103591 501(C)(3) 65000 RESEARCH INDIANA UNIVERSITY 509 EAST THIRD STREET BLOOMINGTON IN 47401 356001673 501(C)(3) 60559 RESEARCH MASSACHUSETTS EYE AND EAR INFIRMARY 243 CHARLES STREET BOSTON MA 02114 042103591 501(C)(3) 53289 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 50000 RESEARCH UNIVERSITY OF MASSACHUSSETS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCHESTER MA 01655 043167352 501(C)(3) 45261 RESEARCH HARVARD UNIVERSITY 243 CHARLES STREET BOSTON MA 02114 042103580 501(C)(3) 41000 RESEARCH JOHNS HOPKINS UNIVERSITY 600 NORTH WOLFE STREET BALTIMORE MD 21287 520595110 501(C)(3) 39000 RESEARCH CASE WESTERN RESERVE UNIVESITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)(3) 35000 RESEARCH JOHNS HOPKINS UNIVERSITY 600 NORTH WOLFE STREET BALTIMORE MD 21287 520595110 501(C)(3) 34930 RESEARCH DMEI RETINAL DEGENERATIVE SYMPOIA 608 STANTON L YOUNG BOULEVARD OKLAHOMA CITY OK 73104 736109395 501(C)(3) 30000 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 28800 RESEARCH CHOROIDEREMIA RESEARCH FOUNDATION 25 EAST BRUNDRETH STREET SPRINGFIELD MA 01109 043511754 501(C)(3) 25000 RESEARCH UNIVERSITY OF CALIFORNIA BERKELEY 2150 SHATTUCK AVENUE BERKELEY CA 94720 946002123 501(C)(3) 19300 RESEARCH HELEN WILLS NEUROSCIENCE INSTITUTE 112 BARKER HALL BERKELEY CA 94720 946090626 501(C)(3) 13100 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 13000 RESEARCH MITOCHEM THERAPEUTIC INC 2 FRANKLIN STREET CHARLESTON SC 29401 433845208 8000 RESEARCH 39 2 PART I, LINE 2: EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS. X X X X X 0 0 0 0 0 0 0 0 0 WILLIAM T SCHMIDT CHIEF EXECUTIVE OFFICER 327745 0 0 0 0 0 9877 0 1917 0 339539 0 0 0 JAMES MINOW CHIEF DEV. OFFICER - UNTIL 09/2014 202207 0 0 0 0 0 5171 0 6147 0 213525 0 0 0 PATRICIA ZILLIOX PHD CHIEF DRUG DEVELOPMENT OFFICER 0 222782 0 0 0 0 0 6666 0 2582 0 232030 0 0 STEPHEN M ROSE PHD CHIEF RESEARCH OFFICER 215768 0 0 0 0 0 6683 0 20232 0 242683 0 0 0 ANNETTE HINKLE CPA CHIEF FINANCIAL OFFICER 193681 0 0 0 0 0 5839 0 8080 0 207600 0 0 0 PATRICIA A DUDLEY CHIEF HUMAN RESOURCE OFFICER 139829 0 0 0 0 0 4388 0 19672 0 163889 0 0 0 SUSAN BRUMLEY SR. NAT. DIR. MAJOR - UNTIL 05/2014 159574 0 0 0 0 0 4959 0 14261 0 178794 0 0 0 BRIAN MANSFIELD PHD DEPUTY CHIEF RESEARCH OFFICER 158569 0 0 0 0 0 4991 0 19790 0 183350 0 0 0 X 54 2443152 FAIR MARKET VALUE X AUCTION ITEMS 1 522791 FAIR MARKET VALUE X EVENT ITEMS 1 62476 FAIR MARKET VALUE 0 1 1 PART I, LINE 32B: WHEN DONATED STOCK IS RECEIVED, OUR BROKER MERRILL LYNCH IMMEDIATELY CONVERTS THESE CONTRIBUTIONS INTO CASH. FORM 990, PART VI, SECTION A, LINE 2 EDWARD RUSSNOW, DIRECTOR, HAS A FAMILY RELATIONSHIP WITH EDWARD GOLLOB, PRESIDENT. FORM 990, PART VI, SECTION A, LINE 4 DURING THE YEAR ENDED JUNE 30, 2015, FFB MADE CHANGES TO THE COMPOSITION OF THE GOVERNING BODY, SPECIFICALLY TO REMOVE SOME OF OUR LIFE NATIONAL TRUSTEES, AND THE SENIOR VICE PRESIDENT. FORM 990, PART VI, SECTION A, LINE 6 MEMBERS OF FFB ARE KNOWN AS NATIONAL TRUSTEES. THE QUALIFICATIONS AND ELIGIBILITY FOR MEMBERSHIP AND THE MANNER OF ADMISSION INTO MEMBERSHIP IS PRESCRIBED BY RESOLUTION OF THE BOARD OF DIRECTORS. THE NATIONAL TRUSTEES ARE ENTITLED TO VOTE ON ELECTION OF DIRECTORS. FORM 990, PART VI, SECTION A, LINE 7A DURING THE ANNUAL MEETING OF THE NATIONAL TRUSTEES, MEMBERS OF THE BOARD OF DIRECTORS ARE ELECTED. FORM 990, PART VI, SECTION B, LINE 11 DATA TO PREPARE THE FEDERAL FORM 990 IS PROVIDED TO OUR OUTSIDE ACCOUNTING FIRM FOR PREPARATION AND GUIDANCE. AFTER IT HAS BEEN COMPLETED, A DRAFT OF THE FEDERAL FORM 990 IS REVIEWED BY THE CHIEF FINANCIAL OFFICER. WITH THE CFO'S APPROVAL THE DRAFT FEDERAL FORM 990 IS THEN MADE AVAILABLE TO ALL BOARD MEMBERS. ALL BOARD MEMBERS ARE INVITED TO ATTEND A SPECIAL MEETING OF THE FINANCE COMMITTEE TO REVIEW THE FEDERAL FORM 990. A FINAL DRAFT IS MADE AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICY FORMS ARE OBTAINED UPON BOARD ELECTION AND HIRING. NEW FORMS ARE OBTAINED AT THE BEGINNING OF EVERY FISCAL YEAR. SENIOR MANAGEMENT AND BOARD MEMBERS ARE AWARE THAT CONFLICT OF INTERESTS MUST BE DOCUMENTED AND DISCLOSED TO THE BOARD OF DIRECTORS. FINANCE STAFF REVIEW ACTIVITY THROUGHOUT THE YEAR FOR PROPER DISCLOSURE. FORM 990, PART VI, SECTION B, LINE 15 THE COMPENSATION COMMITTEE AND THE BOARD OF DIRECTORS APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER. THE COMPENSATION COMMITTEE APPROVES THE COMPENSATION OF THE OTHER CHIEF OFFICERS. ON A ROUTINE BASIS, EXTERNAL DATA PROVIDED BY OUTSIDE EXPERT COMPENSATION CONSULTANTS IS USED TO MEASURE REASONABLENESS OF SALARIES TO THE MARKET PLACE AND RESULTS ARE COMMUNICATED BY OUTSIDE CONSULTANTS TO THE BOARD CHAIR/COMPENSATION COMMITTEE. FORM 990, PART VI, SECTION C, LINE 19 FFB'S FEDERAL FORM 990 AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE AVAILABLE AT WWW.FIGHTBLINDNESS.ORG. OTHER PUBLIC GOVERNING DOCUMENTS INCLUDING THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST THROUGH THE CONTACT INFORMATION DISCLOSED ON FFB'S WEB SITE. FORM 990, PART VII, SECTION A: FFB ACTS AS THE COMMON PAYMASTER FOR THE FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE, A RELATED ORGANIZATION. FORM 990, PART XI, LINE 9: GRANT REFUNDS FROM DOMESTIC ORGANIZATIONS 17,594. FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE 7168 COLUMBIA GATEWAY DRIVE SUITE 1 COLUMBIA MD 21046 450524687 RESEARCH DE 501(C)(3) LINE 11A FOUNDATION FIGHTING BLINDNESS 1 MACULAR DEGENERATION INTERNATIONAL INC 7168 COLUMBIA GATEWAY DRIVE SUITE 1 COLUMBIA MD 21046 363923922 FUNDRAISING IL 501(C)(3) LINE 7 FOUNDATION FIGHTING BLINDNESS 1 NATIONAL RETINITIS PIGMENTOSA FOUNDATION INC 7168 COLUMBIA GATEWAY DRIVE SUITE 1 COLUMBIA MD 21046 522072391 FUNDRAISING MD 501(C)(3) LINE 11A FOUNDATION FIGHTING BLINDNESS 1 0 1 0 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 0 FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE B 3750000 FMV FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE L 100000 FMV FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE O 355488 FMV