2015-08-13T10:39:17-05:00 2014-12-31 BDO USA LLP 8405 GREENSBORO DRIVE 7TH FLOOR MCLEAN VA 22102 990 2014-01-01 912059167 CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC % THE ORGANIZATION CYST 3019514422 6931 ARLINGTON ROAD Suite 200 BETHESDA MD 20814 ROBERT J BEALL PHD president and ceo 7038930600 2015-07-21 true Jeffrey J Schragg P00234543 7038930600 2014 2016-03-07 17:11:31Z ROBERT J BEALL PHD 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 3274880997 false X www.CFF.ORG/RESEARCH/CFFT/ X 2000 MD THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. 6 5 29 0 0 0 0 0 223471 3274846429 0 25502 257190808 9066 257414279 3274880997 210196981 3231024082 0 0 4951732 6801253 0 0 0 42265566 37055662 257414279 3274880997 0 55984395 63052423 55984395 63052423 0 0 The mission of the Cystic Fibrosis Foundation Therapeutics is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development and promoting individualized treatment. A life-shortening genetic disease, CF affects the lungs and digestive systems of nearly 30,000 children and young adults in the U.S. Currently, there is no cure. false false 39866688 0 3274431963 Investments by Cystic Fibrosis Foundation Therapeutics (CFFT) in state-of-the-art research have accelerated progress toward developing new CF treatments and finding a cure for the disease. By funding CF drug discovery and development research conducted by biotechnology companies and providing matching awards to CF drug developers for CF research, and with a specialized CF clinical trials network, CFFT has attracted significant industry involvement in the fight against CF. CFFT accomplishes its mission by funding life-saving research to develop effective therapies for people with CF. CFFT has funded hundreds of millions of dollars of research costs to help develop CF drugs and therapies. Through CFFT's efforts, the life expectancy of people with CF has doubled in the last 30 years, and research to find a cure is more promising than ever before. 3234094781 50652025 414466 CFFT supports a national clinical research network of nearly 80 Foundation-accredited care centers that collaborate to conduct clinical trials, allowing potential new CF therapies to move to larger, late-stage studies more quickly. Medical programs in 2014 consisted of costs to support scientific study and investigations. 205 grants were awarded in 2014. 3273961469 true false false false false false false false false true false false true false false false true false false true true false false false false false true false true false false false false false false false false false false false false false true false false false true 89 0 true 29 true false false false false false false false false false false X 6 5 false false false false false true false true true false false true true true true true true true true false MI X X THE ORGANIZATION 3019514422 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 JASON M ARYEH DIRECTOR 3.0 X 0 0 0 JONATHAN COHN MD DIRECTOR 3.0 X 0 0 0 CATHRINE C MCLOUD DIRECTOR 3.0 11.0 X 0 0 0 D PAUL FLESSNER DIRECTOR 3.0 X 0 0 0 STEVEN SHAK MD DIRECTOR 3.0 6.0 X 0 0 0 ROBERT J BEALL PHD PRESIDENT AND CEO 20.0 40.0 X X 323554 650137 224033 PRESTON W CAMPBELL MD EXEC VP OF MEDICAL AFFAIRS 20.0 40.0 X 213925 432875 174822 C RICHARD MATTINGLY EXEC VP AND COO 5.0 55.0 X 0 645755 189266 VERA H TWIGG EXEC VP & CFO 5.0 55.0 X 0 461903 85449 BRUCE MARSHALL MD SR. VP OF CLINICAL AFFAIRS 50.0 X 407821 0 32120 MARTIN MENSE PHD PRINCIPAL SCIENTIST DRUG DISC 50.0 X 209016 0 46258 THEODORE TORPHY PHD HEAD OF RESEARCH STRATEGY 16.0 X 228800 0 0 HERMANN BIHLER PHD SENIOR SCIENTIST 50.0 X 151229 0 13417 FENG LIANG PHD SENIOR SCIENTIST 50.0 X 137177 0 37936 1671522 2190670 803301 16 false true false MORGAN STANLEY CO LLC 1 PIERREPONT PLAZA 7TH FL BROOKLYN NY 11201 TRANSACTION ADVISORY 24773304 PFIZER INC 200 CAMBRIDGEPARK DR CAMBRIDGE MA 02140 contracted research 17637626 GENZYME CORPORATION FIVE THE MOUNTAIN RD FRAMINGHAM MA 01701 CONTRACTED RESEARCH 5250029 PARION SCIENCES INC 2525 MERIDIAN PARKWAY SUITE 260 DURHAM SC 27713 CONTRACTED RESEARCH 4703246 VERTEX PHARMACEUTICALS LLC 50 NORTHERN AVENUE BOSTON MA 02210 CONTRACTED RESEARCH 3928582 20 X 0 CLINICAL STUDY 541900 136293 136293 REFUNDED OR CANCELLED GRANTS 900099 278173 278173 PROCEEDS OF SALE OF INTANGIBLE 541700 3274431963 3274431963 3274846429 25502 25502 0 9066 9066 0 0 0 0 0 0 0 0 3274880997 3274846429 34568 3227374435 3227374435 0 3649647 3649647 0 537479 484813 52666 0 0 5184553 4676536 508017 0 371702 335280 36422 0 331237 298781 32456 0 376282 335658 40624 0 425730 425730 0 0 3850 0 3850 0 0 0 0 181207 181207 0 0 0 1173448 1084858 88590 0 817658 756099 61559 0 0 813699 758019 55680 0 236645 220818 15827 0 0 174600 164518 10082 0 0 0 422094 408339 13755 0 192740 192740 0 0 CONTRACTED RESEARCH 32071504 32071504 0 0 CHEMISTRY 110478 110478 0 0 MEDICAL ADVISORY FEES 349644 349644 0 0 MISCELLANEOUS 82365 82365 0 0 3274880997 3273961469 919528 0 0 0 4019774 2026003 0 0 412310 261700 0 0 0 0 0 0 0 0 278678 404036 1848914 914587 1053796 934327 0 0 0 0 0 0 0 0 50219837 59426357 55984395 63052423 1148106 1129462 54836289 61922961 0 0 0 0 0 0 0 0 0 0 0 0 0 0 55984395 63052423 X 0 0 0 0 0 0 0 0 55984395 63052423 0 X false true X true false X X 1 CYSTIC FIBROSIS FOUNDATION 131930701 07 true 3180372057 0 1 3180372057 true false false false false false false false false false false false false false false true false 4914 4914 0 1844000 909673 934327 934327 INTERCOMPANY RECEIVABLE 59426357 59426357 true North America Grantmaking NONE 860726 Europe (Including Iceland and Greenland) Grantmaking none 1320875 East Asia and the Pacific Grantmaking none 1236008 Middle East and North Africa Grantmaking none 232038 3649647 3649647 North America DRUG DISCOVERY 216000 CHECK North America DRUG DISCOVERY 262660 CHECK North America DRUG DISCOVERY 50000 CHECK North America CLINICAL RESEARCH 206488 CHECK North America CLINICAL RESEARCH 15660 CHECK North America CLINICAL RESEARCH 109918 CHECK Europe (Including Iceland and Greenland) DRUG DISCOVERY 193482 WIRE Europe (Including Iceland and Greenland) DRUG DISCOVERY 467602 WIRE Europe (Including Iceland and Greenland) DRUG DISCOVERY 116640 WIRE Europe (Including Iceland and Greenland) DRUG DISCOVERY 50286 WIRE Europe (Including Iceland and Greenland) DRUG DISCOVERY 109624 WIRE Europe (Including Iceland and Greenland) DRUG DISCOVERY 142689 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH 120552 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH 120000 WIRE East Asia and the Pacific CLINICAL RESEARCH 1128021 WIRE East Asia and the Pacific CLINICAL RESEARCH 107987 WIRE Middle East and North Africa DRUG DISCOVERY 149040 WIRE Middle East and North Africa DRUG DISCOVERY 82998 WIRE 17 0 false false false false false false Procedures for monitoring grant funds outside of the U.S. SCHEDULE F, PART 1, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANTS IN THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO BAR-ILAN UNIVERSITY AND HEBREW UNIVERSITY OF JERUSALEM, UNIVERSITIES IN ISRAEL. true Albany Medical College 47 New Scotland Ave Mail Code 88 Albany NY 12208 141338310 501c(3) 80395 CLINICAL RESEARCH CENTER All Children's Hospital Dept 9010 PO Box 31020 St Petersburg FL 33731 590683252 501c(3) 121921 CLINICAL RESEARCH CENTER Ann and Robert H Lurie Children's Hospital of Chi 2300 Childrens Plaza - Box 205 Chicago IL 60614 362170833 501c(3) 50658 CLINICAL RESEARCH Ann and Robert H Lurie Children's Hospital of Chi 2300 Childrens Plaza Chicago IL 60614 363357006 501c(3) 12350 ACADEMIC ADVISORY AWARD Ann and Robert H Lurie Children's Hospital of Chi 2300 Childrens Plaza Box 43 Chicago IL 60614 363357006 501c(3) 61697 CLINICAL RESEARCH CENTER Arizona Board of Regents University of Arizona Sponsored Projects Services Box 43 Tucson AZ 85722 742652689 IRC 115 27000 ADHERENCE Arizona Board of Regents University of Arizona Sponsored Projects Services 888 N Euclid Room 510 Tucson AZ 85722 742652689 IRC 115 184383 CLINICAL RESEARCH CENTER Arizona Board of Regents University of Arizona Sponsored Projects Services 888 N Euclid Room 510 Tucson AZ 85722 742652689 IRC 115 266463 CLINICAL RESEARCH STUDY Atlantic Health System 100 Madison Avenue 888 N Euclid Room 510 Morristown NJ 07962 521958352 501c(3) 72581 CLINICAL RESEARCH CENTER Baylor College of Medicine PO Box 1 Houston TX 77212 741613878 501c(3) 257664 CLINICAL RESEARCH CENTER Beth Israel Medical Center Office of Grants Contracts New York NY 10038 135564934 501c(3) 74768 CLINICAL RESEARCH CENTER Board of Regents of the University of Wisconsin Sy Research and Sponsored Programs 160 Water Street 24th Floor Madison WI 537151218 396006492 501c(3) 106389 CLINICAL RESEARCH CENTER Board of Regents of the University of Wisconsin Sy Research and Sponsored Programs 21 N Park St Suite 6401 Madison WI 537151218 396006492 501c(3) 129693 CLINICAL RESEARCH STUDY Board of Trustees of the Leland Stanford Junior Un Stanford University 21 N Park St Suite 6401 Stanford CA 943056215 941156365 501c(3) 27000 ADHERENCE Board of Trustees of the Leland Stanford Junior Un Stanford University 651 Serra Street Suite 220 Stanford CA 943056215 941156365 501c(3) 194399 DRUG DISCOVERY AWARD Board of Trustees of the Leland Stanford Junior Un Stanford University 651 Serra Street Suite 220 Stanford CA 943056215 941156365 501c(3) 218111 CLINICAL RESEARCH CENTER Board of Trustees of the Leland Stanford Junior Un Stanford University 651 Serra Street Suite 220 Stanford CA 943056215 941156365 501c(3) 38326 CLINICAL RESEARCH Board of Trustees of the Leland Stanford Junior Un Stanford University 651 Serra Street Suite 220 Stanford CA 943056215 941156365 501c(3) 28070 CLINICAL RESEARCH STUDY Case Western Reserve University 10900 Euclid Avenue 651 Serra Street Suite 220 Cleveland OH 441067015 341018992 501c(3) 35846 ACADEMIC ADVISORY AWARD Case Western Reserve University 10900 Euclid Avenue Cleveland OH 441067015 341018992 501c(3) 114156 DRUG DISCOVERY AWARD Case Western Reserve University 10900 Euclid Avenue Cleveland OH 441067015 341018992 501c(3) 441236 CLINICAL RESEARCH CENTER Case Western Reserve University 10900 Euclid Avenue Cleveland OH 441067015 341018992 501c(3) 68250 CLINICAL RESEARCH STUDY Central Florida Pulmonary Group 326 North Mills Avenue Orlando FL 32803 591760017 C CORP 5681 CLINICAL RESEARCH CENTER Children's & Women's Physicians of Westchester LL Pediatrics Department Valhalla NY 10595 133940462 LLP 192699 CLINICAL RESEARCH CENTER Children's Health Care 2525 Chicago Avenue South Munger Pavilion Room 123 Minneapolis MN 554041844 411754276 501c(3) 173404 CLINICAL RESEARCH CENTER Children's Health Care 2525 Chicago Avenue South Minneapolis MN 554041844 411754276 501c(3) 31315 CLINICAL RESEARCH Children's Hospital Corporation 300 Longwood Avenue Boston MA 02115 042774441 501c(3) 443273 ADHERENCE Children's Hospital Corporation 300 Longwood Avenue Boston MA 02115 042774441 501c(3) 53079 ACADEMIC ADVISORY AWARD Children's Hospital Corporation 300 Longwood Avenue Boston MA 02115 042774441 501c(3) 277019 CLINICAL RESEARCH CENTER Children's Hospital Corporation 300 Longwood Avenue Boston MA 02115 042774441 501c(3) 34907 CLINICAL RESEARCH Children's Hospital Medical Center Cincinnati Childrens Hospital Med Cincinnati OH 45229 310833936 501c(3) 27000 ADHERENCE Children's Hospital Medical Center Cincinnati Childrens Hospital Med 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 23232 ACADEMIC ADVISORY AWARD Children's Hospital Medical Center Cincinnati Childrens Hospital Med 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 325475 DRUG DISCOVERY AWARD Children's Hospital Medical Center Cincinnati Childrens Hospital Med 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 263586 CLINICAL RESEARCH CENTER Children's Hospital Medical Center Cincinnati Childrens Hospital Med 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 53067 CLINICAL RESEARCH Children's Hospital Medical Center Cincinnati Childrens Hospital Med 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 540058 CLINICAL RESEARCH STUDY Children's Hospital Medical Center of Akron 1 Perkins Square 3333 Burnet Avenue Akron OH 44308 340714357 501c(3) 79556 CLINICAL RESEARCH CENTER Children's Hospital Los Angeles 4650 Sunset Blvd Los Angeles CA 90027 951690977 501c(3) 151798 CLINICAL RESEARCH CENTER Children's Medical Center One Childrens Plaza Dayton OH 45404 310672132 501c(3) 157605 CLINICAL RESEARCH CENTER Connecticut Children's Medical Center 282 Washington Street Hartford CT 06106 060646755 501c(3) 63245 CLINICAL RESEARCH CENTER Cook Children's Medical Center 801 Seventh Avenue Ft Worth TX 76104 752051646 501c(3) 185399 CLINICAL RESEARCH CENTER Emory University 1784 N Decatur Road Atlanta GA 30322 580566256 501c(3) 236933 CLINICAL RESEARCH CENTER Emory University 1784 N Decatur Road Suite 510 Atlanta GA 30322 580566256 501c(3) 410521 CLINICAL RESEARCH STUDY Georgia Health Sciences University Research Instit 1120 15th Street Suite 510 Augusta GA 309124810 581418202 501c(3) 115888 CLINICAL RESEARCH STUDY Institute for Applied Gerontology Inc 39 Broadway Suite 1210 CJ 3301 New York NY 10006 113135751 C CORP 134035 CLINICAL RESEARCH STUDY Kaiser Foundation Research Institute 1800 Harrison Street Oakland CA 94612 941105628 501c(3) 166936 CLINICAL RESEARCH CENTER Maine Medical Center 22 Bramhall Street 16th Floor Portland ME 041023175 010238552 501c(3) 142457 CLINICAL RESEARCH CENTER Medical University of South Carolina PO Box 997 Charleston SC 29402 576000722 501c(3) 200340 CLINICAL RESEARCH CENTER Medical University of South Carolina PO Box 997 Charleston SC 29402 576000722 501c(3) 116783 CLINICAL RESEARCH STUDY Memorial Children's Hospital 2801 Atlantic Avenue Long Beach CA 90806 953527031 501c(3) 193342 CLINICAL RESEARCH CENTER Monmouth Medical Center Foundation 300 Second Avenue ATTN Childrens Administration Long Branch NJ 07740 222456079 501c(3) 65351 CLINICAL RESEARCH CENTER National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 27000 ADHERENCE National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 127741 CLINICAL RESEARCH CENTER National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 214886 CLINICAL RESEARCH STUDY Nemours Children's Clinic Orlando 10140 Centurion Parkway North Jacksonville FL 32256 590634433 501c(3) 177188 CLINICAL RESEARCH CENTER Northwestern University 633 Clark Street Evanston IL 60208 362167817 501c(3) 27000 ADHERENCE Northwestern University 633 Clark Street Crown G-547 Evanston IL 60208 362167817 501c(3) 177350 CLINICAL RESEARCH CENTER Oregon Health & Science University Sponsored Projects Administration O Crown G-547 Portland OR 97239 237083114 501c(3) 703051 DRUG DISCOVERY AWARD Oregon Health & Science University Sponsored Projects Administration O 0690 SW Bancroft Street Portland OR 97239 237083114 501c(3) 279048 CLINICAL RESEARCH CENTER Oregon Health & Science University Sponsored Projects Administration O 0690 SW Bancroft Street Portland OR 97239 237083114 501c(3) 32000 CLINICAL RESEARCH OSF Saint Francis Medical Center 420 NE Glen Oak Avenue 0690 SW Bancroft Street Peoria IL 61637 370662569 501c(3) 60901 CLINICAL RESEARCH CENTER Pennsylvania State University College of Medicine Hershey PA 17033 246000376 IRC 115 95008 CLINICAL RESEARCH CENTER Philadelphia Health & Education Corp (Drexel Unive 3201 Arch Street Office of Research Affairs H138 Philadelphia PA 19104 232979433 501c(3) 75574 CLINICAL RESEARCH CENTER Providence Alaska Medical Center 4045 Lake Otis Pkwy 209 Suite 420 Anchorage AK 99508 920016429 501c(3) 64282 CLINICAL RESEARCH CENTER Rainbow Babies & Children's Hospital 11100 Euclid Avenue Cleveland OH 441066006 341567805 501c(3) 35073 CLINICAL RESEARCH Regents of the University of Colorado at Denver Grants and Contracts Mail Stop F42 Aurora CO 80045 846000555 501c(3) 26002 ADHERENCE Regents of the University of Colorado at Denver Grants and Contracts Mail Stop F42 Anschutz Medical Campus Bldg 500 Aurora CO 80045 846000555 501c(3) 23201 ACADEMIC ADVISORY AWARD Regents of the University of Colorado at Denver Grants and Contracts Mail Stop F42 Anschutz Medical Campus Bldg 500 Aurora CO 80045 846000555 501c(3) 270879 CLINICAL RESEARCH CENTER Regents of the University of Colorado at Denver Grants and Contracts Mail Stop F42 Anschutz Medical Campus Bldg 500 Aurora CO 80045 846000555 501c(3) 550454 CLINICAL RESEARCH Regents of the University of Colorado at Denver Grants and Contracts Mail Stop F42 Anschutz Medical Campus Bldg 500 Aurora CO 80045 846000555 501c(3) 1436711 CLINICAL RESEARCH STUDY Research Foundation of SUNY on behalf of Univ at 402 Crofts Hall Anschutz Medical Campus Bldg 500 Buffalo NY 142607016 141368361 501c(3) 27000 ADHERENCE Research Foundation of SUNY on behalf of Univ at 402 Crofts Hall University at Buffalo Buffalo NY 142607016 141368361 501c(3) 116524 CLINICAL RESEARCH Research Foundation of SUNY on behalf of Upstate M PO Box 9 University at Buffalo Albany NY 122010009 141368361 501c(3) 288463 CLINICAL RESEARCH CENTER Rosalind Franklin University of Medicine and Scien Green Bay Road North Chicago IL 60064 362181973 501c(3) 398400 DRUG DISCOVERY AWARD Rutgers The State University of New Jersey 3 Rutgers Plaza New Brunswick NJ 08901 462354111 501c(3) 68974 CLINICAL RESEARCH CENTER Sanford Children's Specialty Clinic 1305 W 18th Street Sioux Falls SD 571175039 460447693 501c(3) 73759 CLINICAL RESEARCH CENTER Seattle Children's Hospital 4800 Sand Point Way NE Seattle WA 98105 910564748 501c(3) 4285469 CLINICAL RESEARCH CENTER Seattle Children's Hospital 4800 Sand Point Way NE Seattle WA 98105 910564748 501c(3) 7783869 CLINICAL RESEARCH Seattle Children's Hospital 4800 Sand Point Way NE Seattle WA 98105 910564748 501c(3) 1497699 CLINICAL RESEARCH STUDY Seton Healthcare Dell Children's 4900 Mueller Blvd Austin TX 78723 741109643 501c(3) 163188 CLINICAL RESEARCH CENTER Spectrum Health Foundation 100 Michigan Street NE MC004 DCMC Administration 3rd Floor Grand Rapids MI 49503 382752328 501c(3) 142872 CLINICAL RESEARCH CENTER St Louis University 3500 Lindell Blvd St Louis MO 63103 430654872 501c(3) 20143 ACADEMIC ADVISORY AWARD St Louis University 3500 Lindell Blvd St Louis MO 63103 430654872 501c(3) 170656 CLINICAL RESEARCH CENTER St Luke's Regional Medical Center 100 East Idaho Boise ID 83712 820161600 501c(3) 92092 CLINICAL RESEARCH CENTER Texas Tech University Health Sciences Center 3601 4th Street Stop 6540 Suite 200 Lubbock TX 79430 752668014 IRC 115 137265 DRUG DISCOVERY AWARD The Children's Hospital of Philadelphia 3516 Civic Center Blvd Philadelphia PA 191044318 231352166 501c(3) 228868 CLINICAL RESEARCH CENTER The Children's Hospital of Philadelphia 34th and Civic Center Boulevard Philadelphia PA 19104 231352166 501c(3) 296930 CLINICAL RESEARCH STUDY The Children's Mercy Hospital 2401 Gillham Road Kansas City MO 61408 440605373 501c(3) 190902 CLINICAL RESEARCH CENTER The Feinstein Institute for Medical Research 350 Community Drive Manhasset NY 11030 112673595 501c(3) 162227 CLINICAL RESEARCH CENTER The General Hospital Corporation (Massachusetts Ge PO Box 414876 Boston MA 022414876 042697983 501c(3) 170542 DRUG DISCOVERY AWARD The General Hospital Corporation (Massachusetts Ge PO Box 414876 Boston MA 022414876 042697983 501c(3) 93517 CLINICAL RESEARCH CENTER The General Hospital Corporation (Massachusetts Ge PO Box 414876 Boston MA 022414876 042697983 501c(3) 230250 CLINICAL RESEARCH STUDY The Hitchcock Foundation One Medical Center Drive Lebanon NH 03756 020222139 501c(3) 209644 CLINICAL RESEARCH CENTER The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 26549 ADHERENCE The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 23092 ACADEMIC ADVISORY AWARD The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 291600 DRUG DISCOVERY AWARD The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 520010 CLINICAL RESEARCH CENTER The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 115277 CLINICAL RESEARCH The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 1137963 CLINICAL RESEARCH STUDY The Medical College of Wisconsin 8701 Watertown Plk Rd Milwaukee WI 53226 390806261 501c(3) 165493 CLINICAL RESEARCH CENTER The Rector and Visitors of the University of Virgi Office of Sponsored Programs Charlottesville VA 229044195 546001796 501c(3) 171796 CLINICAL RESEARCH CENTER The Regents of the University of California San D 9500 Gilman Drive PO Box 400195 La Jolla CA 920930984 956006144 501c(3) 366735 DRUG DISCOVERY AWARD The Regents of the University of California San D 9500 Gilman Drive La Jolla CA 920930984 956006144 501c(3) 81729 CLINICAL RESEARCH CENTER The Regents of The University of Michigan 3003 South State Street Ann Arbor MI 481091274 386006309 501c(3) 25450 ADHERENCE The Regents of The University of Michigan 3003 South State Street Room 1044 Ann Arbor MI 481091274 386006309 501c(3) 199417 CLINICAL RESEARCH CENTER The Regents of The University of Michigan 3003 South State Street Room 1044 Ann Arbor MI 481091274 386006309 501c(3) 457074 CLINICAL RESEARCH STUDY The Regents of the University of Minnesota Sponsored Projects Administration Room 1044 Minneapolis MN 554552070 416007513 501c(3) 30460 ACADEMIC ADVISORY AWARD The Regents of the University of Minnesota Sponsored Projects Administration 200 Oak Street SE Suite 450 Minneapolis MN 554552070 416007513 501c(3) 221785 CLINICAL RESEARCH CENTER The Regents of the University of Minnesota Sponsored Projects Administration 200 Oak Street SE Suite 450 Minneapolis MN 554552070 416007513 501c(3) 49441 CLINICAL RESEARCH The Research Institute at Nationwide Children's Ho 700 Childrens Drive 200 Oak Street SE Suite 450 Columbus OH 43205 316056230 501c(3) 37594 DRUG DISCOVERY AWARD The Research Institute at Nationwide Children's Ho 700 Childrens Drive Columbus OH 43205 316056230 501c(3) 149792 CLINICAL RESEARCH CENTER The Research Institute at Nationwide Children's Ho 700 Childrens Drive Columbus OH 43205 316056230 501c(3) 43806 CLINICAL RESEARCH The Scripps Research Institute 10666 North Torrey Pines Road La Jolla CA 92037 330435954 501c(3) 318042 DRUG DISCOVERY AWARD The Toledo Hospital 2142 N Cove Blvd Toledo OH 43606 344428256 501c(3) 114507 CLINICAL RESEARCH CENTER The Trustees of Columbia University in the City of PO Box 29789 New York NY 100879789 135598093 501c(3) 123239 DRUG DISCOVERY AWARD The Trustees of Columbia University in the City of PO Box 29789 General Post Office New York NY 100879789 135598093 501c(3) 130075 CLINICAL RESEARCH CENTER The University of Alabama at Birmingham 1530 3rd Ave S THT422 General Post Office Birmingham AL 352940006 636005396 501c(3) 27000 ADHERENCE The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham AL 352940006 636005396 501c(3) 56760 ACADEMIC ADVISORY AWARD The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham AL 352940006 636005396 501c(3) 2127390 DRUG DISCOVERY AWARD The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham AL 352940006 636005396 501c(3) 361573 CLINICAL RESEARCH CENTER The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham AL 352940006 636005396 501c(3) 100769 CLINICAL RESEARCH The University of Chicago University Research Administration Chicago IL 60637 362177139 501c(3) 25772 ACADEMIC ADVISORY AWARD The University of Iowa Office of Vice President for Resear 970 E 58th Street Iowa City IA 52242 426004813 501c(3) 1199848 DRUG DISCOVERY AWARD The University of Iowa Office of Vice President for Resear Division of Sponsored Programs Iowa City IA 52242 426004813 501c(3) 218284 CLINICAL RESEARCH CENTER The University of Iowa Office of Vice President for Resear Division of Sponsored Programs Iowa City IA 52242 426004813 501c(3) 8592 CLINICAL RESEARCH The University of North Carolina at Chapel Hill 300 Bynum Hall Division of Sponsored Programs Chapel Hill NC 275994100 566001393 501c(3) 23929 ACADEMIC ADVISORY AWARD The University of North Carolina at Chapel Hill 300 Bynum Hall CB 4100 Chapel Hill NC 275994100 566001393 501c(3) 1844892 DRUG DISCOVERY AWARD The University of North Carolina at Chapel Hill 300 Bynum Hall CB 4100 Chapel Hill NC 275994100 566001393 501c(3) 411549 CLINICAL RESEARCH CENTER The University of North Carolina at Chapel Hill 300 Bynum Hall CB 4100 Chapel Hill NC 275994100 566001393 501c(3) 269128 CLINICAL RESEARCH The University of North Carolina at Chapel Hill 300 Bynum Hall CB 4100 Chapel Hill NC 275994100 566001393 501c(3) 111721 CLINICAL RESEARCH STUDY The University of Utah 201 S Presidents Circle CB 4100 Salt Lake City UT 84112 876000525 501c(3) 191981 CLINICAL RESEARCH CENTER The University of Utah 201 S Presidents Circle Room 406 Salt Lake City UT 84112 876000525 501c(3) 573237 CLINICAL RESEARCH STUDY The University of Vermont and State Agricultural C Grant and Contract Administrative S Room 406 Burlington VT 05405 030179440 501c(3) 154787 CLINICAL RESEARCH CENTER Trustees of Dartmouth College Dartmouth Medical School 223 Waterman Bldg Hanover NH 037551404 020222111 501c(3) 91000 CLINICAL RESEARCH STUDY Trustees of Indiana University Financial Management Services Dept of Microbiology and Immunolog Indianapolis IN 462666057 356001673 501c(3) 373377 CLINICAL RESEARCH CENTER Trustees of Indiana University Financial Management Services PO Box 66057 Indianapolis IN 462666057 356001673 501c(3) 33857 CLINICAL RESEARCH Trustees of the University of Pennsylvania 133 South 36th Street Mezzanine PO Box 66057 Philadelphia PA 191043246 231352685 501c(3) 59477 CLINICAL RESEARCH CENTER University at Buffalo Pediatric Associates 239 Bryant Street Buffalo NY 14222 161238821 501c(3) 27000 ADHERENCE University at Buffalo Pediatric Associates 239 Bryant Street 2nd Floor Buffalo NY 14222 161238821 501c(3) 213200 ACADEMIC ADVISORY AWARD University at Buffalo Pediatric Associates 239 Bryant Street 2nd Floor Buffalo NY 14222 161238821 501c(3) 10815 CLINICAL RESEARCH University Hospitals of Cleveland 2074 Abingdon Road 2nd Floor Cleveland OH 44106 340714775 501c(3) 54000 ADHERENCE University of Arkansas for Medical Sciences 4301 West Markham Street Little Rock AR 72205 716046242 501c(3) 87674 CLINICAL RESEARCH CENTER University of Florida 123 Grinter Hall Mail Slot 555 Gainesville FL 32611 596002052 IRC 115 138168 CLINICAL RESEARCH CENTER University of Kansas Medical Center Research Insti 3901 Rainbow Boulevard Kansas City KS 661607702 481108830 501c(3) 27000 ADHERENCE University of Kansas Medical Center Research Insti 3901 Rainbow Boulevard Kansas City KS 661607702 481108830 501c(3) 73953 CLINICAL RESEARCH CENTER University of Kentucky Research Foundation 337 Peterson Lexington KY 405060005 616033693 501c(3) 157518 CLINICAL RESEARCH CENTER University of Massachusetts Medical School 55 Lake Avenue North Worcester MA 01655 043167352 IRC 115 72598 CLINICAL RESEARCH CENTER University of Miami PO Box 025405 Miami FL 331025405 590624458 501c(3) 32400 ADHERENCE University of Miami PO Box 025405 Miami FL 331025405 590624458 501c(3) 166919 CLINICAL RESEARCH CENTER University of Nebraska Medical Center 985100 Nebraska Medical Center Omaha NE 681985190 470491233 501c(3) 101698 CLINICAL RESEARCH CENTER University of Oklahoma Health Sciences Center PO Box 26901 Oklahoma City OK 73190 736017987 501c(3) 90995 CLINICAL RESEARCH CENTER University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 391062 DRUG DISCOVERY AWARD University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 282751 CLINICAL RESEARCH CENTER University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 229288 CLINICAL RESEARCH University of Puerto Rico Medical Sciences Campus 201 Boulevard Del Valle San Juan PR 00901 660433762 N/A 94880 DRUG DISCOVERY AWARD University of Rochester Box 649 Rochester NY 14642 160743209 501c(3) 164456 CLINICAL RESEARCH CENTER University of Rochester- Department of Pediatrics 166 Washington Avenue 601 Elmwood Avenue Batavia NY 14020 160743209 501c(3) 40888 CLINICAL RESEARCH University of South Alabama Admin Bldg 362 Mobile AL 36688 630477348 501c(3) 108000 DRUG DISCOVERY AWARD University of Southern California Department of Contracts Grants Los Angeles CA 90033 951642394 501c(3) 44670 CLINICAL RESEARCH CENTER University of Tennessee 62 S Dunlap 1540 Alcazar Street CHP-100 Memphis TN 38163 626001636 IRC 115 131270 CLINICAL RESEARCH CENTER University of Washington Office of Sponsored Programs Seattle WA 981056692 916001537 IRC 115 89465 ACADEMIC ADVISORY AWARD University of Washington 4333 Brooklyn Avenue NE Box 359472 4333 Brooklyn Avenue NE Seattle WA 981959472 916001537 IRC 115 133549 DRUG DISCOVERY AWARD University of Washington Office of Sponsored Programs Seattle WA 981056692 916001537 IRC 115 184585 CLINICAL RESEARCH CENTER University of Washington Office of Sponsored Programs 4333 Brooklyn Avenue NE Seattle WA 981056692 916001537 IRC 115 38130 CLINICAL RESEARCH STUDY UT Southwestern Medical Center at Dallas 5323 Harry Hines Boulevard 4333 Brooklyn Avenue NE Dallas TX 753909105 756002868 IRC 115 620392 DRUG DISCOVERY AWARD UT Southwestern Medical Center at Dallas 5323 Harry Hines Boulevard Dallas TX 753909105 756002868 IRC 115 231735 CLINICAL RESEARCH CENTER Vanderbilt University PO Box 30195 Nashville TN 372410195 620476822 501c(3) 183591 CLINICAL RESEARCH CENTER Via Christi Regional Medical Center Inc 707 N Emporia Wichita KS 67214 481172106 501c(3) 58644 CLINICAL RESEARCH CENTER Virginia Commonwealth University Box 2506 - VCU Station Richmond VA 232842506 546001758 501c(3) 32400 ADHERENCE Virginia Commonwealth University Box 2506 - VCU Station Richmond VA 232842506 546001758 501c(3) 71950 CLINICAL RESEARCH CENTER Virginia Commonwealth University Box 2506 - VCU Station Richmond VA 232842506 546001758 501c(3) 37800 CLINICAL RESEARCH STUDY Wake Forest University Health Sciences Medical Center Blvd WinstonSalem NC 271571064 223849199 501c(3) 54000 CLINICAL RESEARCH CENTER Washington University 660 S Euclid Avenue St Louis MO 63110 430653611 501c(3) 274447 CLINICAL RESEARCH CENTER Washington University 660 S Euclid Avenue St Louis MO 63110 430653611 501c(3) 14407 CLINICAL RESEARCH Wayne State University Grants Contracts Office III Detroit MI 48201 383028425 501c(3) 190901 CLINICAL RESEARCH CENTER West Virginia University Research Corporation WVU Research and Sponsored Programs Morgantown WV 265066001 550665758 501c(3) 26987 ADHERENCE West Virginia University Research Corporation WVU One Waterfront Place Morgantown WV 265066001 550665758 501c(3) 151540 CLINICAL RESEARCH CENTER Yale University 47 College Street Suite 203 One Waterfront Place New Haven CT 065208047 060646973 501c(3) 62786 CLINICAL RESEARCH CENTER Cystic Fibrosis Foundation - Headquarters 6931 Arlington Road Suite 200 PO Box 208047 Bethesda MD 20814 131930701 501c(3) 3180372057 GENERAL SUPPORT 96 4 PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S. PART 1, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. X X X X X X false true false false false false false true false ROBERT J BEALL PHD PRESIDENT AND CEO 200570 399993 114924 233330 8060 16814 58825 145953 0 19255 382379 815345 32057 65086 PRESTON W CAMPBELL MD EXEC VP OF MEDICAL AFFAIRS 133626 261919 74524 151307 5775 19649 40216 108170 0 26436 254141 567481 23599 47912 C RICHARD MATTINGLY EXEC VP AND COO 0 399981 0 222762 0 23012 0 173105 0 16161 0 835021 0 72377 VERA H TWIGG EXEC VP & CFO 0 300886 0 139087 0 21930 0 59013 0 26436 0 547352 0 30185 BRUCE MARSHALL MD SR. VP OF CLINICAL AFFAIRS 321697 0 82560 0 3564 0 31520 0 600 0 439941 0 0 0 MARTIN MENSE PHD PRINCIPAL SCIENTIST DRUG DISC 175295 0 33165 0 556 0 21028 0 25230 0 255274 0 0 0 THEODORE TORPHY PHD HEAD OF RESEARCH STRATEGY 228800 0 0 0 0 0 0 0 0 0 228800 0 0 0 HERMANN BIHLER PHD SENIOR SCIENTIST 141837 0 8973 0 419 0 13417 0 0 0 164646 0 0 0 FENG LIANG PHD SENIOR SCIENTIST 125364 0 11433 0 380 0 12458 0 25478 0 175113 0 0 0 SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN Part I, Line 4b: Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to the designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. Part I, Line 7: Several individuals listed in Form 990, Part VII, Section A, line 1a, (who are identified in Part II, below) participated in an Incentive Compensation Plan, from which non-fixed payments not described in lines 5 and 6 were paid. The Plan is sponsored by CFF, a related organization. The individuals participate by virtue of being officers of CFF. However, if an individual also is an officer of CFFT and receives compensation from CFFT, a portion of the individual's award is paid by CFFT. The Incentive Compensation Plan pays non-fixed payments subject to, and based on, the achievement of annual performance objectives established in advance by the Compensation Committee. In addition, the Incentive Compensation Plan pays non-fixed payments that relate to a three-year performance period, subject to, and based on, the achievement of long-term performance objectives established in advance by the Compensation Committee. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. COMPENSATION Part II: Cystic Fibrosis Foundation Therapeutics, Inc. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $192,980, 401(k) bonus - $7,590; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $59,767, long-term incentive plan payment, which was previously reported (6) - $32,057, long-term incentive plan treatment award (3) - $23,100; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,559, automobile allowance - $2,376, other benefits - $4,125 (C) Deferred Compensation: long-term incentive plan benefit (6) - $26,485, SERP (4) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $384,583, 401(k) bonus - $15,410; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $121,344, long-term incentive plan payment, which was previously reported (6) - $65,086, long-term incentive plan treatment award (3) - $46,900; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,165, automobile allowance - $4,824, other benefits - $8,825; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $53,773, SERP (4) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $12,031, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $133,626; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $34,426, long-term incentive plan payment, which was previously reported (6) - $23,599, long-term incentive plan treatment award (3) - $16,500; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,775; (C) Deferred Compensation: long-term incentive plan benefit (6) - $19,258, SERP (4) - $20,958; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $261,919; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $69,894, long-term incentive plan payment, which was previously reported (6) - $47,912, long-term incentive plan treatment award (3) - $33,500; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $7,924, Section 457(b) Plan (5) - $11,725; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $39,099, SERP (4) - $42,551; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: R. Mattingly; (B)(i) Base Compensation: base salary - $399,981; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $100,385, long-term incentive plan payment, which was previously reported (6) - $72,377, long-term incentive plan treatment award (3) - $50,000; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,500; other benefits including taxable general organization group term life insurance premium - $5,512; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $58,531, SERP (4) - $88,054; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $10,760, employee contribution to flexible spending account benefit - $1,600, employee contribution to general organization health plan benefit - $3,801 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $300,886; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $73,902, long-term incentive plan payment, which was previously reported (6) - $30,185, long-term incentive plan treatment award (3) - $35,000; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $4,430, Section 457(b) Plan (5) - $17,500; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $27,386, SERP (4) - $5,107; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the CFF Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2014 Plan Year. (3) This is an award under a plan sponsored by CFF, a related organization, which pays a specified dollar amount only if and when the FDA approves certain pre-specified types of therapies. In the event the employee terminates employment prior to FDA approval of the specified therapy type and payment of the award, the employee will forfeit his or her right to receive payment, unless termination is due to retirement or disability. The plan will terminate on December 31, 2018 unless CFF determines to extend the plan. (4) The SERP is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. However, both CFFT and CFF make contributions on the executive's behalf if the executive receives compensation from CFFT (as an officer of CFFT) and from CFF (as an officer of CFF). A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining the vesting date designated by CFF (which is either a specified age or date, depending on the participant). C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (5) The 457(b) Plan is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. However, both CFFT and CFF make contributions on the executive's behalf if the executive receives compensation from CFFT (as an officer of CFFT) and from CFF (as an officer of CFF). A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the Board of Trustees of CFF, a related entity. The individuals participate by virtue of being officers of CFF. However, if an individual also is an officer of CFFT and receives compensation from CFFT, a portion of the individual's award is paid by CFFT. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other GOVERNING BODY APPOINTMENTS Part VI, Section A, Line 7a (Page 6 Core Form) The majority of the Organization's board members are designated by the Board of Trustees of the Cystic Fibrosis Foundation. The others are ex_officio, appointed to the Board by the Bylaws. REVIEW OF 990 BY GOVERNING BODY Part VI, Section B, Line 11b (Page 6 Core Form) The Organization's Board of Directors receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Organization's ERISA attorneys review the executive compensation sections of the Form 990 to ensure completeness and accuracy. The Audit Committee also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Therapeutics Board of Directors received a complete copy of the final Form 990 before it is filed. CONFLICT OF INTEREST MONITORING Part VI, Section B, Line 12c (Page 6 Core Form) A conflict of interest disclosure statement is completed annually by each Board member and officer. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Directors, the interested director or officer is required to retire from the room in which the Board is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2014 and had no conflicts of interest as defined by the policy. DETERMINING COMPENSATION Part VI - Section B - Line 15a and 15b The total compensation of executives at the Organization is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of curing cystic fibrosis and providing all people with the disease the opportunity to lead full, productive lives. Cystic Fibrosis Foundation Therapeutics, Inc. shares officers with Cystic Fibrosis Foundation, a related organization. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation for executives of the Organization. Specifically, the Committee: (1)Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the Organization or its executives. (2)Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the Organization's mission success. (3)Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the Organization competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4)Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5)Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6)Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following officers of the organization: President & CEO Executive Vice President, COO and Secretary Executive Vice President for Medical Affairs Executive Vice President & CFO The process was last undertaken in 2014. PUBLIC INSPECTION Part VI, Section C, Line 19 (Page 6 Core Form) The Form 1023 for the Organization was available on its website, CFF.org, and the Organization's website provides a direct link to its Form 990 on Guidestar.org. CFFT's governing documents (Bylaws and Articles of Incorporation) are available upon request by contacting the Organization in writing or by phone. Information on how to obtain the governing documents is available on the website, www.cff.org/Research/CFFT. The Board and Officer Conflict of Interest Policy and the audited consolidated financial statements are available on the website, www.cff.org/Research/CFFT/financialstatements. COMPENSATION OF OFFICERS, DIRECTORS, TRUSTEES, ETC PART VII, SECTION A NAME AND TITLE JASON M. ARYEH, DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE JONATHAN COHN, M.D., DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CATHERINE C. MCLOUD, DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 11 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE D. PAUL FLESSNER, DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE STEVEN SHAK, M.D., DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT J. BEALL, PH.D., PRES/CEO AVG HRS WORKED 20 HRS AVG HRS WORKED - RELATED 40 HRS POSITION INDIVIDUAL DIRECTOR & OFFICER REPORTABLE COMP FROM THE ORG 323,554 REPORTABLE COMP FROM RELATED ORG 650,137 EST. AMT OF OTHER COMP FROM THE ORG 224,033 NAME AND TITLE PRESTON W. CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 20 HRS AVG HRS WORKED - RELATED 40 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 213,925 REPORTABLE COMP FROM RELATED ORG 432,875 EST. AMT OF OTHER COMP FROM THE ORG 174,822 NAME AND TITLE C. RICHARD MATTINGLY EXEC VP, COO AND SECRETARY AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 645,755 EST. AMT OF OTHER COMP FROM THE ORG 189,266 NAME AND TITLE VERA H. TWIGG, EXEC VP & CFO AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 461,903 EST. AMT OF OTHER COMP FROM THE ORG 85,449 NAME AND TITLE BRUCE MARSHALL, M.D., SR. VP OF CLINICAL AFFAIRS AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 407,821 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 32,120 NAME AND TITLE MARTIN MENSE, PH.D., PRINCIPAL SCIENTIST DRUG DISCOVERY AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 209,016 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 46,258 NAME AND TITLE THEODORE TORPHY, PH.D. HEAD OF RESEARCH STRATEGY AVG HRS WORKED 16 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 228,800 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE HERMANN BIHLER, PH.D., SENIOR SCIENTIST AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 151,229 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 13,417 NAME AND TITLE FENG LIANG, PH.D., SR SCIENTIST AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 137,177 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 37,936 TOTAL REPORTABLE COMP FROM THE ORG 1,671,522 TOTAL REPORTABLE COMP FROM RELATED ORG 2,190,670 TOTAL EST. AMT OF OTHER COMP FROM THE ORG 803,301 PROCEEDS OF SALE OF INTANGIBLE RIGHTS UNDER DRUG DISCOVERY AGREEMENT PART VIII, LINE 2C In its research program, CFFT retains legal and beneficial rights to intellectual property developed under certain scientific grants and drug discovery agreements. Program revenues received under these agreements are recorded when earned. In addition, at times CFFT may transfer intangible rights under certain of these agreements in exchange for a lump sum. Amounts received under these agreements are recorded when rights are forfeited and proceeds are due to CFFT. In November 2014, CFFT entered into an agreement to transfer its intangible rights to future revenues under a drug discovery agreement. Net program revenue from the transaction was $3,274,431,963. CYSTIC FIBROSIS FOUNDATION-HEADQUARTERS 6931 ARLINGTON RD bethesda MD 20814 131930701 research DE 501(c)(3) 7 na false CYSTIC FIBROSIS FOUNDATION - GROUP 6931 ARLINGTON RD BETHESDA MD 20814 136161105 EDUCATION DE 501(c)(3) 7 CFF-HQ false false true false false false false false false false false false false false true true false false false false Cystic fibrosis foundation - headquarters B 3180372057 FMV Cystic fibrosis foundation - headquarters N 1330603 COST Cystic fibrosis foundation - headquarters O 3615373 COST