2015-11-16T12:31:46-06:00 2014-12-31 042571780 ALEXANDER ARONSON FINNING & CO PC 21 EAST MAIN STREET WESTBORO MA 01581 990 2014-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET NO 200 NEWTON MA 02458 DAVID ARONS INTERIM CEO 6179249997 2015-11-16 1 JOHN BUCKLEY CPA P00830631 5083669100 2015-11-11 2014 2016-02-25 16:41:14Z DAVID ARONS 55 CHAPEL STREET NO 200 NEWTON MA 02458 15117840 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.WE HAVE A RIGOROUS AND THOUGHTFUL AGENDA, INTEGRATING RESEARCH AND PUBLIC POLICY TO BRIDGE CRITICAL GAPS. STARTING WITH DISCOVERY SCIENCE, TO CLINICAL TRIAL DESIGN AND THE DEVELOPMENT OF NEW THERAPIES, THERE ARE MANY OPPORTUNITIES TO MAKE IMPROVEMENTS AND SPEED THE MOMENTUM OF NEW FINDINGS. IT'S TIME TO BUILD ON PROGRESS AND TRANSFORM TOMORROW, TODAY. 16 16 72 1250 0 0 9293204 9387870 0 0 173742 136024 -1123216 -1442137 8343730 8081757 1672243 2451549 0 0 4103047 5072051 0 0 1246137 3755376 3473598 9530666 10997198 -1186936 -2915441 6921834 4293080 3031590 3333834 3890244 959246 X NATIONAL BRAIN TUMOR SOCIETY IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.WE HAVE A RIGOROUS AND THOUGHTFUL AGENDA, INTEGRATING RESEARCH AND PUBLIC POLICY TO BRIDGE CRITICAL GAPS. STARTING WITH DISCOVERY SCIENCE, TO CLINICAL TRIAL DESIGN AND THE DEVELOPMENT OF NEW THERAPIES, THERE ARE MANY OPPORTUNITIES TO MAKE IMPROVEMENTS AND SPEED THE MOMENTUM OF NEW FINDINGS. IT'S TIME TO BUILD ON PROGRESS AND TRANSFORM TOMORROW, TODAY. 0 0 6571678 2337405 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY, INC. (NBTS) FOCUSES ON FUNDING BOTH ADULT AND PEDIATRIC BRAIN TUMOR RESEARCH IN A STRATEGIC APPROACH THAT DRIVES THE GREATEST IMPACT, RESULTS, AND PROGRESS. OUR RESEARCH PROGRAM IS PATIENT-CENTRIC, COLLABORATIVE, AND STRUCTURED WITH A DISCIPLINED FOCUS ON DEVELOPING NEW, EFFECTIVE TREATMENTS FOR BRAIN TUMORS. WE DON'T FOCUS ON ONE SPECIFIC APPROACH TO RESEARCH, BUT DEVELOP PIONEERING INITIATIVES THAT COMBINE INNOVATIVE BUSINESS MODELS WITH CUTTING EDGE SCIENCE, TO ADDRESS KEY CHALLENGES AND ALLOW US TO ACCELERATE THE TRANSLATION SCIENCE INTO SURVIVAL. IN ITS HISTORY, NBTS HAS FUNDED MORE THAN $30 MILLION IN HIGH-IMPACT SCIENTIFIC RESEARCH AND SOME OF THE MOST IMPORTANT DEVELOPMENTS AND PROGRESS IN THE BRAIN TUMOR FIELD WERE INFLUENCED, DRIVEN, DISCOVERED AND ACCOMPLISHED AS A DIRECT RESULT OF NBTS'S WORK. THESE INCLUDE: (1) SERVING AS EARLY FUNDERS OF DR. HOWARD FINE, WHICH ALLOWED DR. FINE TO GET HIS RESEARCH LABORATORY OFF THE GROUND. HIS LAB EVENTUALLY MADE KEY FINDINGS RELATED TO THE USE OF BEVACIZUMAB (AVASTIN) IN GLIOMA. AVASTIN, ALONG WITH TEMOZOLOMIDE (TEMODAR), IS ONE OF THE ONLY DRUGS CURRENTLY APPROVED FOR USE IN HIGH-GRADE GLIOMAS;(2) SERVING AS EARLY FUNDERS OF RESEARCH THAT LED TO THE 1P19Q AND IDH BIOMARKER DISCOVERIES, TWO OF THE MOST IMPORTANT FINDINGS IN GLIOMAS TO-DATE;(3) NBTS PROVIDED EARLY FUNDING FOR THE GLIOGENE CONSORTIUM - WHICH IS LEADING TO FINDINGS THAT ARE IDENTIFYING POTENTIAL RISK FACTORS FOR GLIOMAS;(4) SERVING AS EARLY FUNDERS OF RESEARCH THAT HAS LED TO FOUR OF THE MOST PROMISING POTENTIAL NEW TREATMENTS CURRENTLY IN CLINICAL TRIALS FOR GLIOMA;(5) FUNDING RESEARCH THAT HAS HELPED SCIENTISTS AND CLINICIANS BETTER UNDERSTAND TREATMENT RESISTANCE IN GLIOBLASTOMA; AND,(6) FUNDING RESEARCH THAT IS HELPING TO FIND NEW THERAPEUTIC TARGETS FOR OLIGODENDROGLIOMA. 2519722 114144 PUBLIC POLICY & ADVOCACY: NATIONAL BRAIN TUMOR SOCIETY'S PUBLIC POLICY & ADVOCACY PROGRAM SEEKS TO STRENGTHEN AND ADVANCE RESEARCH, IMPROVE ACCESS TO ESSENTIAL HEALTH CARE SERVICES, ADVOCATE FOR BUDGETS AND POLICIES DEDICATED TOWARD THE RESEARCH AND TREATMENT OF BRAIN TUMORS, AND EXPEDITE THERAPY APPROVALS. NBTS' COMMUNITY OF MORE THAN 30,000 BRAIN TUMOR ADVOCATES CONTINUALLY SPEAK-UP TO LEGISLATORS, REGULATORY LEADERS, AND POLICY MAKERS ABOUT THE NEEDS OF THE BRAIN TUMOR COMMUNITY. NBTS' PUBLIC POLICY & ADVOCACY PROGRAM HAS SUCCESSFULLY HELPED DRAFT AND ADVOCATE FOR THE INTRODUCTION OF A NUMBER OF BILLS IN CONGRESS THAT SEEK TO EXPAND ACCESS TO INVESTIGATIONAL MEDICINE, AND INVEST IN MEDICAL RESEARCH. NBTS AND ITS VOLUNTEER ADVOCATES HAVE THEN, IN MANY CASES, SUCCESSFULLY LOBBIED MEMBERS OF CONGRESS TO SUPPORT THESE BILLS AND/OR SIGN-ON AS CO-SPONSORS. ADDITIONALLY, NBTS' ANNUAL LOBBY DAY, HEAD TO THE HILL, CONTINUES TO GROW EVERY YEAR WITH MORE AND MORE PARTICIPATES CONDUCTING AN EVER-INCREASING NUMBER OF MEETINGS WITH MEMBERS OF CONGRESS. 9091400 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 35 0 72 1 0 0 0 0 0 0 0 0 0 0 0 0 X 16 16 1 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MA CA AZ X X ANN BARRY CONTROLLER 6173932816 55 CHAPEL STREET NEWTON MA 02458 MICHAEL CORKIN TREASURER 4.00 X X 0 0 0 KEN GREY BOARD MEMBER 2.00 X 0 0 0 SHEILA KILLEEN BOARD MEMBER 2.00 X 0 0 0 JEFFREY KOLODIN BOARD MEMBER 4.00 X 0 0 0 SUSAN PANNULLO MD BOARD MEMBER 2.00 X 0 0 0 ALISON ROSS ESQ BOARD MEMBER 2.00 X 0 0 0 RICHARD GENDERSON BOARD MEMBER 2.00 X 0 0 0 MICHAEL NATHANSON CHAIR 5.00 X X 0 0 0 RABBI ERIC B WISNIA BOARD MEMBER 2.00 X 0 0 0 CORD SCHLOBOHM VICE CHAIR 4.00 X X 0 0 0 SARAH DURHAM CLERK 4.00 X X 0 0 0 KRISTEN CAMPANA BOARD MEMBER 2.00 X 0 0 0 MICHAEL DURBIN BOARD MEMBER 2.00 X 0 0 0 JOHN FRISHKOPF BOARD MEMBER 2.00 X 0 0 0 CHANDRI NAVARRO BOARD MEMBER 2.00 X 0 0 0 STEPHEN SADLER JD BOARD MEMBER 2.00 X 0 0 0 N PAUL TONTHAT LEFT 82014 FORMER CEO 40.00 X 263599 0 20382 JAMES CHARNLEY CFO 40.00 X 144313 0 17352 SALLY DAVIS STARTED 122014 CEO 40.00 X 8654 0 260 KEVIN COURTNEY CHIEF DEVELOPMENT OFFICER 40.00 X 172886 0 17876 CARRIE TREADWELL DIRECTOR OF RESEARCH 40.00 X 123660 0 3890 DAVID ARONS DIRECTOR OF PUBLIC POLICY 40.00 X 124287 0 15427 MICHAEL SACHLEBEN DIRECTOR OF INFORMATION TECHNOLOGY 40.00 X 139030 0 14726 ANDREA BROWN MAJOR GIFT OFFICER 40.00 X 107726 0 14714 KERRI LAI MAJOR GIFT OFFICER 40.00 X 108427 0 13402 1192582 0 118029 9 0 1 0 PRICEWATERHOUSECOOPERS LLC 4040 W BOY SCOUT BOULEVARD TAMPA FL 33607 CONSULTANT 635000 MORGAN LEWIS & BOCKIUS LLP 1111 PENNSYLVANIA AVE NW WASHINGTON DC 20004 LEGAL 115473 2 17426 6715728 2654716 130366 9387870 55033 55033 5674937 5593946 80991 80991 80991 0 6715728 1442137 -1442137 -1442137 8081757 0 0 -1306113 2451549 2451549 454560 310813 89199 54548 3708148 3220675 124990 362483 97356 86323 1548 9485 522970 443777 27406 51787 289017 249654 10461 28902 156532 133423 7105 16004 29211 29211 20769 20769 928348 702697 78702 146949 275357 155860 12443 107054 224057 142752 23716 57589 573701 369060 107269 97372 303416 228587 33200 41629 629769 353807 47317 228645 15152 15152 113755 88299 9994 15462 26831 20813 2241 3777 TRAINING & RECRUITING 134845 104562 11246 19037 DUES AND SUBSCRIPTIONS 37242 28749 3079 5414 MISCELLANEOUS 4613 4613 10997198 9091400 659661 1246137 2214006 1014436 50765 0 732784 1007915 6363 4046 71680 13308 937258 772159 280402 165099 3511073 1640680 54761 447596 6921834 4293080 679928 577691 2321630 2313747 30032 45396 0 397000 3031590 3333834 X 1842111 -328277 1751479 990869 296654 296654 3890244 959246 6921834 4293080 -2915441 -15557 0 X X 0 1 X 1 0 X 7626704 2907695 8815314 9293204 9387870 38030787 7626704 2907695 8815314 9293204 9387870 38030787 38030787 338285 126698 132366 114572 55033 766954 38797741 0.98020 0.97290 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 102177 102177 10895021 10997198 699860 174965 0 0 289399 617341 684881 699860 2291481 3437222 4170 52426 92331 102177 251104 72350 154335 171220 174965 572870 859305 300399 4611 305010 298412 1987 300399 307008 3404 12000 298412 306106 2071 1169 307008 302499 8283 4676 306106 0.00000 0.97260 0.02740 0 0 135666 97797 37869 195197 184295 10902 606395 490067 116328 165099 SECURITY DEPOSITS 50596 FUNDS HELD FOR OTHERS 397000 447596 FUNDS HELD FOR OTHERS 397000 397000 X 10037864 -15557 550296 1442137 1976876 8060988 20769 20769 8081757 12968862 550296 1442137 1992433 10976429 20769 20769 10997198 PART V, LINE 4: THE SOCIETY HAS PERMANENTLY RESTRICTED NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2014 WAS INVESTED IN BOND FUNDS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2014. THE ORGANIZATION'S INFORMATION RETURNS ARE SUBJECT TO EXAMINATION BY THE FEDERAL AND STATE JURISDICTIONS AND GENERALLY REMAIN OPEN FOR THE MOST RECENT THREE YEARS. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. SCHEDULE D PART XI LINE 2D DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. ($ 1,442,137) WALK - RACE FOR HOPE - PA 885853 885853 111637 WALK - RACE FOR HOPE - DC 1325755 1325755 88659 28 4504120 4504120 1241841 6715728 6715728 1442137 1442137 -1442137 1 AMERICAN ASSOC FOR CANCER RESEARCH 615 CHESTNUT ST 17TH FLOOR PHILADELPHIA PA 19106 501 (C) 3 75000 RESEARCH CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 501 (C) 3 214942 RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVENUE BOX 701 NEW YORK NY 10065 501 (C) 3 187500 RESEARCH SANFORD-BURNHAM MEDICAL RESEARCH INSTITUTE 10901 N TORREY PINES ROAD LA JOLLA CA 92037 501 (C) 3 187500 RESEARCH MASS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 501 (C) 3 150000 RESEARCH UC SANFRANCISCO 3333 CALIFORNIA STREET - SUITE 315 SAN FRANCISCO CA 94143 501 (C) 3 70302 RESEARCH WASHINGTON UNIVERSITY CB #8018 660 SOUTH EUCLID AVE ST LOUIS MO 631101010 501 (C) 3 75000 RESEARCH UNIVERSITY OF TEXAS MD ANDERSON CENTER 1515 HOLCOMBE BOULEVARD HOUSTON TX 77030 501 (C) 3 375000 RESEARCH LUDWIG INSTITUTE FOR CANCER RESEARCH 666 THIRD AVENUE 28TH FLOOR NEW YORK NY 10017 501 (C) 3 1000000 RESEARCH UC REGENTS 710 WESTWOOD PLAZARNRC STE 1-230 LOS ANGELES CA 90095 501 (C) 3 5000 RESEARCH INTERNATIONAL SOCIETY OF PAEDIATRIC ONCOLOGY 1-3 RUE DE CHANTEPOULET GENEVA GENEVA SZ 12070 RESEARCH CONQUER CANCER FOUNDATION 2318 MILL ROAD SUITE 800 ALEXANDRIA VA 22314 501 (C) 3 18000 RESEARCH SOCIETY FOR NEURO - ONCOLOGY 4617 BIRCH STREET BELLAIRE TX 772773296 501 (C) 3 70000 RESEARCH 12 1 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) AWARDS RESEARCH GRANTS THAT ALSO INCLUDE MILESTONE CHECK-INS AND REVIEWS, THROUGH PROGRAM INITIATIVES THAT HAVE A SPECIFICALLY DEFINED AREA OF FOCUS AND IN OPEN REQUESTS FOR APPLICATIONS (RFA). THE NATIONAL BRAIN TUMOR SOCIETY'S RESEARCH GRANT APPLICATION REVIEW FOR RFAS IS BUILT ON THE GOLD STANDARD SET BY THE NATIONAL INSTITUTES OF HEALTH. MEMBERS OF THE NBTS SCIENTIFIC ADVISORY COUNCIL (SAC), LED BY THE CHAIR AND VICE-CHAIR, OVERSEE THE REVIEW PROCESS. EXPERT REVIEWERS ARE ASSIGNED TO EACH APPLICATION AND RESPONSIBLE FOR RIGOROUS REVIEW AND SCORING OF EACH BASED ON SCIENTIFIC MERIT. STAFF AND BOARD DISCUSS WITH THE SAC HOW THE RESEARCH FITS INTO THE OVERALL GOALS OF THE PROGRAM AND FINAL PROJECT GRANT AWARD(S) ARE SELECTED. ONCE A TRADITIONAL RFA GRANT IS AWARDED, PROGRESS REPORTS ON DEFINED MILESTONES ARE SUBMITTED EVERY SIX MONTHS IN WRITING AND DISCUSSED IN PERSON WITH THE REVIEWERS TO BE SURE DELIVERABLES ARE BEING MET. GRANTS GIVEN THROUGH NATIONAL BRAIN TUMOR SOCIETY'S LARGER, INTEGRATED PROGRAM INITIATIVES LOOK AT THE BEST RESEARCH BEING DONE TO MEET THE NEEDS OF THE PROGRAM. CHOSEN RESEARCHERS SUBMIT THEIR PLANNED WORK WHICH THEN FOLLOWS THE PROCESS OUTLINE ABOVE FOR REVIEW. ONCE FULLY VETTED AND APPROVED IN THIS PROCESS, THEIR WORK AND MILESTONES ARE REVIEWED EVERY TWO MONTHS WITH THE PROGRAM INITIATIVE'S SCIENTIFIC DIRECTOR AND ONCE A YEAR WITH THE STRATEGIC SCIENTIFIC ADVISORY COUNCIL DEDICATED TO THE SPECIFIC INITIATIVE. X X X 1 0 0 0 0 0 0 0 0 N PAUL TONTHAT LEFT 82014 FORMER CEO 263599 0 0 0 0 0 7908 0 12474 0 283981 0 0 0 JAMES CHARNLEY CFO 144313 0 0 0 0 0 4329 0 13023 0 161665 0 0 0 KEVIN COURTNEY CHIEF DEVELOPMENT OFFICER 172886 0 0 0 0 0 5187 0 12689 0 190762 0 0 0 MICHAEL SACHLEBEN DIRECTOR OF INFORMATION TECHNOLOGY 139030 0 0 0 0 0 4171 0 10555 0 153756 0 0 0 PART I, LINE 4A N. PAUL TONTHAT, FORMER CEO (LEFT 8/2014) WAS COMPENSATED $68,307 UPON SEPARATION OF SERVICE. X 42 115016 COST BASIS X SILENT AUCTION PRIZES 42 13038 COST VALUE 0 1 0 PART I, LINE 32B: BOTH THE CDO AND DDO REVIEW NON-STANDARD CONTRIBUTIONS. FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11 A COPY OF THE FEDERAL FORM 990 AND MASSACHUSETTS FORM PC IS EMAILED TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVEIW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMIAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE SOCIETY'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C: THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITORS. CURE GBM 124 WATERTOWN STREET SUITE 2D WATERTOWN MA 02472 371703878 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 1220 N MARKET STREET SUITE 606 WILMINGTON MA 19801 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC