2015-07-24T09:16:50-05:00 2014-09-30 131517563 LOEB & TROPER LLP 655 THIRD AVENUE 12TH FLOOR NEW YORK NY 10017 990 2013-10-01 362883000 AMERICAN LIVER FOUNDATION AMER 2126681000 39 BROADWAY SUITE 2700 NEW YORK NY 100063003 DAVID TICKER CHIEF FINANCIAL OFFICER 2126681000 2015-07-13 1 JOSEPH BLATT P01318980 2128674000 2013 2016-02-25 16:41:14Z DAVID TICKER 39 BROADWAY SUITE 2700 NEW YORK NY 100063003 9130162 0 X WWW.LIVERFOUNDATION.ORG X 1976 IL TO FACILITATE, ADVOCATE AND PROMOTE EDUCATION, SUPPORT AND RESEARCH FOR THE PREVENTION, TREATMENT AND CURE FOR LIVER DISEASE. 12 11 84 2000 0 0 7219308 8029381 0 0 225684 64690 120683 35879 7565675 8129950 312500 177500 0 0 4237357 4132564 122358 0 1180223 2363765 2869645 7035980 7179709 529695 950241 4031913 4497765 2872805 2286070 1159108 2211695 X TO FACILITATE, ADVOCATE AND PROMOTE EDUCATION, SUPPORT AND RESEARCH FOR THE PREVENTION, TREATMENT AND CURE FOR LIVER DISEASE. 0 0 1543042 PUBLIC EDUCATIONINFORMATION SPECIALISTS ARE AVAILABLE TO ANSWER QUESTIONS ABOUT LIVER DISEASE AND LIVER WELLNESS, INCLUDING RISK FACTORS, PREVENTION, SYMPTOMS, EARLY DETECTION, DIAGNOSIS AND TREATMENT OPTIONS. ALF CAN DIRECT CALLERS TO LOCAL SERVICES IN THEIR AREA, HELP THEM LEARN ABOUT CLINICAL TRIALS AND HELP THEM FIND A PHYSICIAN. INTERPRETATION SERVICES ARE AVAILABLE FOR NON-ENGLISH SPEAKERS. WE ALSO HOST A VIBRANT ONLINE COMMUNITY ACROSS NUMEROUS SOCIAL MEDIA PLATFORMS, AND THREE WEBSITES, INCLUDING 2 DISEASE SPECIFIC MICRO-SITES.IN FY 2014, OUR HELPLINE ANSWERED 5,452 REQUESTS FOR INFORMATION VIA PHONE, EMAIL, AND "SNAIL MAIL."IN FY 2014, ALF'S WEBSITES RECORDED A COMBINED TOTAL OF NEARLY 1.4 MILLION UNIQUE VISITORS. AT THE END OF THE FISCAL YEAR, WE HAD 55,000 FACEBOOK FANS AND 3,500 TWITTER FOLLOWERS. OUR SUPPORT COMMUNITY ON INSPIRE HAD OVER 5,300 MEMBERS.IN FY 2014, WE HELD A SERIES OF PATIENT EDUCATION WEBINARS, 4 ON HEPATIC ENCEPHALOPATHY AND 1 ON HEPATITIS C, WHICH REACHED A TOTAL OF 1,521 PATIENTS DURING THE LIVE BROADCAST, AND AN ADDITIONAL 1,663 VIA THE RECORDING POSTED ON OUR WEBSITES.IN FY 2014. ALF EXPANDED ITS EDUCATIONAL RESOURCE LIBRARY BY CREATING A NEW RESOURCE FOR PATIENTS WITH HEPATIC ENCEPHALOPATHY (HE) AND THEIR CAREGIVERS, WHICH INCLUDED AN UPDATED BROCHURE ON CIRRHOSIS, A BROCHURE ON HE, A BROCHURE PROVIDING A DESCRIPTION OF THE ALF, AND A "REMINDER" PAD FOR PATIENTS. 1345437 COMMUNITY SERVICEALF OFFERS SEVERAL COMMUNITY EDUCATION PROGRAMS ON LIVER HEALTH AND LIVER DISEASE THAT ARE INTERACTIVE AND AGE APPROPRIATE. THESE POPULAR PROGRAMS INCLUDE: LOVE YOUR LIVER; LIVER WELLNESS- WHAT EVERYBODY NEEDS TO KNOW (FORMERLY KNOWN AS LIVER MATTERS), AND TEENS TO TWENTIES- LIVER WELLNESS GUIDE.IN FY 2014, THESE PROGRAMS REACHED A COMBINED TOTAL OF 9,815 PEOPLE.ALF PARTICIPATES IN FEDERAL, STATE AND LOCAL ADVOCACY EFFORTS TO ADDRESS THE NEEDS OF PEOPLE AFFECTED BY LIVER DISEASE AND THAT FOCUS ON LARGER HEALTHCARE ISSUES TO IMPROVE LIVER HEALTH AND INCREASE RESEARCH FUNDING.IN FY 2014, ALF LENT ITS NAME TO COMMUNITY SIGN-ON LETTERS PROMOTING IMPROVEMENTS TO HEPATITIS TESTING POLICY AND ACCESS TO CARE; PARTICIPATED IN COALITIONS WITH VARIOUS OTHER PATIENT ADVOCACY GROUPS TO URGE INCREASED FUNDING FOR THE NIH, CDC, VA, AND DOD; RELEASED POSITION STATEMENTS ON THE COST OF TREATMENTS AND ACCESS TO CADAVER LIVERS FOR TRANSPLANT; DISTRIBUTED "CALLS TO ACTION" FOR OUR COMMUNITY TO CONTACT THEIR ELECTED OFFICIALS REGARDING A VARIETY OF ISSUES RELATING TO LIVER DISEASE; AND BROUGHT PATIENT ADVOCATES TO LIVER HILL DAY WITH THE AMERICAN ASSOCIATION FOR THE STUDY OF LIVER DISEASE. 1303987 PATIENT SUPPORTALF'S VIRAL HEPATITIS COMMUNITY EDUCATION PROGRAM PROVIDES COMPREHENSIVE AND ACCURATE INFORMATION ABOUT HEPATITIS (A, B, AND C), INCLUDING RISK FACTORS, TRANSMISSION AND PREVENTION, AND AN OVERVIEW OF TREATMENT OPTIONSIN FY 2014, ALF REACHED 5,815 THROUGH THIS IMPORTANT PROGRAM. 1249736 177500 RESEARCHSINCE 1979, OUR RESEARCH AWARDS PROGRAM HAS AWARDED NEARLY $25 MILLION FOR RESEARCH. OVER 800 SCIENTISTS AND PHYSICIANS HAVE BROADENED THE UNDERSTANDING OF THE LIVER, DISCOVERED NEW WAYS TO TREAT PATIENTS, PUBLISHED NEARLY 30,000 SCIENTIFIC JOURNAL ARTICLES AND SECURED OVER 200 PRESTIGIOUS NATIONAL INSTITUTES OF HEALTH GRANTS TO FURTHER ADVANCE THE SCIENTIFIC STUDY OF LIVER HEALTH AND LIVER DISEASE.IN FY 2014, ALF ANNOUNCED THE RECIPIENTS OF THE 2014 RESEARCH AWARDS PROGRAM, 1 LIVER SCHOLAR AND 10 POST DOCTORAL RESEARCH FELLOWSHIPS. THESE ELEVEN SCIENTISTS REPRESENT NINE MEDICAL AND RESEARCH INSTITUTIONS AND WERE AWARDED $350,000 TO SUPPORT THEIR RESEARCH IN THE AREAS OF HEPATITIS C, HEPATITIS B, LIVER CANCER, HEPATIC ENCEPHALOPATHY, NON-ALCOHOLIC FATTY LIVER DISEASE, BILIARY ATRESIA, LIVER FIBROSIS AND GENE THERAPY.PROFESSIONAL EDUCATIONALF PROVIDES EDUCATION TO HEALTHCARE PROFESSIONALS CONCERNING MEDICAL KNOWLEDGE AND PROCEDURES USED TO PREVENT, TREAT, AND CURE LIVER DISEASE THROUGH ANNUAL EVENTS INCLUDING THE ARIAS SYMPOSIUM IN BOSTON AND THE ACADEMIC DEBATES IN CHICAGO. 1249736 177500 5442202 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 1 0 1 0 0 1 1 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 255 0 84 1 0 0 0 0 0 1 1 0 0 0 0 X 12 11 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WI WY X X DAVID TICKER 2126681000 39 BROADWAY SUITE 2700 NEW YORK NY 100063003 THOMAS F NEALON III CHAIR, NATIONAL BOARD 0.30 X X 0 0 0 DANIEL E WEIL TREASURER 0.30 X X 0 0 0 CARLO P FRAPPOLLI SECRETARY 0.30 X X 0 0 0 A HAMILTON BAIDEN IV BOARD MEMBER 0.30 X 0 0 0 MIKE BRAUNSTEIN BOARD MEMBER 0.30 X 0 0 0 NICHOLAS J DEROMA BOARD MEMBER 0.30 X 0 0 0 ALLAN J DOERR BOARD MEMBER 0.30 X 0 0 0 HILDA FUENTES BOARD MEMBER 0.30 X 0 0 0 MICHAEL KERR BOARD MEMBER 0.30 X 0 0 0 ROHIT LOOMBA MD MHSC BOARD MEMBER 0.30 X 0 0 0 SUSAN SHERMAN STONE BOARD MEMBER 0.30 X 0 0 0 HILLEL TOBIAS MD PHD BOARD MEMBER 0.30 X 0 0 0 DAVID TICKER EXECUTIVE VICE PRESIDENT & CFO 35.00 X 151901 0 23060 LYNN SEIM EXECUTIVE VICE PRESIDENT & COO 35.00 X 23077 0 0 SAMANTHA MASTERSON EXECUTIVE DIRECTOR - NEW ENGLAND DIVISION 35.00 X 127360 0 1804 302338 0 24864 2 0 1 0 DEBRA ENTIN 225 E 70TH STREET 5D NEW YORK NY 10021 CREATED CONTENT DELIVERABLES FOR PROGRAM 102950 1 22246 5545477 2461658 8029381 47711 47711 46907 29928 16979 16979 16979 1003640 5545477 969284 34356 34356 2523 1000 1523 1523 8129950 0 0 100569 52500 52500 115625 115625 9375 9375 802591 686972 71022 44597 2754336 2139588 193024 421724 10474 8234 559 1681 282304 224309 17272 40723 282859 226286 19800 36773 4052 4052 64800 64800 7987 7987 8790 8790 493372 431672 13531 48169 259679 250121 163 9395 477157 185705 9446 282006 266473 211846 19453 35174 601401 478652 43772 78977 189746 151858 7446 30442 70509 70509 107741 91895 5643 10203 51190 40696 3737 6757 OTHER EVENT EXPENSE 183932 84702 336 98894 82816 44179 3929 34708 7179709 5442202 557284 1180223 492125 1173978 341896 397791 564929 244684 252546 234567 1620609 1273693 419372 346916 1961045 2099829 4031913 4497765 855862 723073 337939 150000 784280 553295 894724 859702 2872805 2286070 X -1296940 -142748 1464013 1362408 992035 992035 1159108 2211695 4031913 4497765 950241 102346 0 X X 0 1 X 1 0 X 7970124 8477266 7669940 7219308 8029381 39366019 7970124 8477266 7669940 7219308 8029381 39366019 833768 38532251 110807 95839 67225 74659 47711 396241 39762260 20885 0.96910 0.96560 X SCHEDULE A, PART II, SECTION B, LINE 10 SALE OF PRINTED BROCHURES RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 7987 0 0 7987 0 PART II-B, LINE 1: STAFF AND VOLUNTEERS GATHERED IN WASHINGTON, D.C. TO LOBBY CONGRESS TO INCREASE NIH FUNDING FOR LIVER RESEARCH. THE LOBBYING TOOK PLACE ON A SINGLE DAY THAT WE CALL HILL DAY. 1091429 84362 33339 1142452 1163404 -21441 50394 1091429 992035 225733 54364 1163404 992035 51960 51960 992035 992035 119915 119915 992035 0.87000 0.13000 0 0 456786 284995 171791 108331 83550 24781 620654 517688 102966 434838 387460 47378 346916 FUNDS HELD ON BEHALF OF OTHERS 859702 859702 X 8223506 102346 102346 8121160 8790 8790 8129950 7170919 0 7170919 8790 8790 7179709 PART V, LINE 4: INTENDED USE OF ENDOWMENT FUNDS HAS BEEN SPECIFIED BY THE DONOR. ALL FUNDS ON HAND ARE USED TO GENERATE INTEREST/DIVIDEND INCOME AND CAPITAL GAINS TO SUPPORT VARIOUS RESEARCH INITIATIVES. PART X, LINE 2: THE FOUNDATION HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PERIODS ENDING SEPTEMBER 30, 2011 AND SUBSEQUENT REMAIN SUBJECT TO REVIEW BY APPLICABLE TAXING AUTHORITIES. 1 0 0 0 0 0 0 0 0 0 POST DOCTORAL GRANT NORTH AMERICA 1 9375 CHECK 0 0 0 0 0 0 SCHEDULE F , PART 1, LINE 2 ALL RELEVANT DOCUMENTATION RELEVANT DOCUMENTATION RELATED TO THE GRANT IS CONTAINED IN A FILE FOR EACH RECIPIENT. DOCUMENTATION INCLUDE; TAX INFORMATION; SIGNED GUIDELINES NOTING TO WHOM THE FUNDS IS SENT; DOCUMENTATION SENT TO THE RECIPIENT; AND SCIENTIFIC REPORTS PRODUCED BY THE RECIPIENT. THE RECIPIENT MUST NOTIFY THE AMERICAN LIVER FOUNDATION REGARDING ANY CHANGE IN HER OR HER STATUS OR RECEIPT OF ADDITIONAL SALARY AND/OR RESEARCH SUPPORT DURING THE TERM OF THE AWARD. SCIENTIFIC REPORTS ARE DUE AT YEARLY INTERVALS DURING THE GRANT PERIOD, INCLUDING THE END OF THE GRANT TERM. NY GALA 366905 242505 124400 12156 83204 3250 2807 MARATHON 1765960 1765960 744 68140 1000 96909 57 4416252 3537012 879240 390929 128785 19379 161981 6549117 5545477 1003640 403829 280129 23629 261697 969284 34356 1 BRIGHAM & WOMEN'S HEALTH CARE INC 101 HUNTINGTON 3RD FL BOSTON MA 02215 042921338 501(C)(3) 37500 RESEARCH MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET GRJ7 BOSTON MA 02114 042697983 501(C)(3) 15000 RESEARCH 2 POSTDOCTORAL FELLOWSHIPS 10 115625 PART I, LINE 2: ALL RELEVANT DOCUMENTATION RELATED TO THE GRANT IS CONTAINED IN A FILE FOR EACH RECIPIENT. DOCUMENTATION INCLUDES; TAX INFORMATION; SIGNED GUIDELINES NOTING TO WHOM THE FUNDS IS SENT; DOCUMENTATION SENT TO THE RECIPIENT; AND SCIENTIFIC REPORTS PRODUCED BY THE RECIPIENT. THE RECIPIENT MUST NOTIFY THE AMERICAN LIVER FOUNDATION REGARDING ANY CHANGE IN HIS/HER STATUS OR RECEIPT OF ADDITIONAL SALARY AND/OR RESEARCH SUPPORT DURING THE TERM OF THE AWARD. SCIENTIFIC REPORTS ARE DUE AT YEARLY INTERVALS DURING THE GRANT PERIOD, INCLUDING THE END OF THE GRANT TERM. X X X 0 0 0 0 0 0 0 0 0 DAVID TICKER EXECUTIVE VICE PRESIDENT & CFO 151901 0 0 0 0 0 1601 0 21459 0 174961 0 0 0 MICHAEL KERR BOARD MEMBER RETIRE OUTSTANDING LINES OF CREDIT X 880000 553295 0 1 1 553295 FORM 990, PART VI, SECTION B, LINE 11 A DRAFT OF THE FORM 990 IS SENT TO THE FINANCE COMMITTEE FOR REVIEW AND COMMENTS IN THE MONTHLY MEETING PRIOR TO FILING. IN ADDITION, A DRAFT OF THE FORM 990 IS ALSO SENT TO EACH BOARD MEMBER FOR DISCUSSION. WHEN QUESTIONS AND COMMENTS ARE ADDRESSED AND THE FORM 990 IS APPROVED, IT IS READY FOR FILING. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, OUR CONFLICT OF INTEREST FORM IS COMPLETED BY OFFICERS AND DIRECTORS. THE FORM MUST INDICATE ANY POSSIBLE CONFLICTS OF INTEREST AND BE SIGNED BY ALL OFFICERS AND DIRECTORS. WHEN ANY SUCH CONFLICT OF INTEREST IS RELEVANT TO A MATTER REQUIRING ACTION BY THE BOARD, THE INTERESTED PERSON SHALL CALL IT TO THE ATTENTION OF THE BOARD AND SUCH PERSON SHALL NOT VOTE ON THE MATTER. MOREOVER, THE PERSON HAVING A CONFLICT SHALL RETIRE FROM THE ROOM IN WHICH THE BOARD IS MEETING AND SHALL NOT PARTICIPATE IN THE FINAL DELIBERATION OR DECISION REGARDING THE MATTER UNDER CONSIDERATION. HOWEVER, THAT PERSON SHALL PROVIDE THE BOARD WITH ANY AND ALL RELEVANT INFORMATION. THE MINUTES OF THE MEETING OF THE BOARD, SHALL REFLECT THAT THE CONFLICT OF INTEREST WAS DISCLOSED AND THAT THE INTERESTED PERSON WAS NOT PRESENT DURING THE FINAL DISCUSSION OR VOTE AND DID NOT VOTE. WHEN THERE IS A DOUBT AS TO WHETHER A CONFLICT OF INTEREST EXISTS, THE MATTER SHALL BE RESOLVED BY A VOTE OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 15 THE COMPENSATION COMMITTEE REVIEWED TWO EXTERNAL SALARY SURVEYS SPECIFIC TO THE NEW YORK MARKET. FROM TIME TO TIME, THE ALF PARTICIPATES IN EXTERNAL SURVEYS, THE TWO MOST RECENT (2010), THE FOUNDATION CENTER SALARY SURVEY AND PROFESSIONALS FOR NON PROFIT SALARY SURVEY. FORM 990, PART VI, SECTION C, LINE 19 ALL OF THE ITEMS DEXCRIBED ARE AVAIALBLE ON OUR MAIN WEBSITE AT WWW.LIVERFOUNDATION.ORG FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.