2014-02-13T09:47:45-06:00 2013-06-30 541487262 MATTHEWS CARTER & BOYCE 11320 RANDOM HILLS ROAD SUITE 600 FAIRFAX VA 22030 990 2012-07-01 113485631 THE CHILDREN'S CAUSE FOR CANCER ADVOCACY INC CHIL 2023368374 750 FIRST STREET NE 7TH FLOOR WASHINGTON DC 20002 KATHLEEN FLAHERTY 2023368374 2014-02-12 1 KATHLEEN M FLAHERTY P00969957 7032183600 2012 2015-11-30 17:44:51Z MAUREEN LILLY 750 FIRST STREET NE 7TH FLOOR WASHINGTON DC 20002 560517 0 X WWW.CHILDRENSCAUSE.ORG X 1999 NY THE CHILDREN'S CAUSE FOR CANCER ADVOCACY, INC. (CCCA) WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS. 14 13 6 190 0 0 711274 559595 0 0 1154 922 490 0 712918 560517 0 0 0 0 293239 286449 0 0 42166 100075 113230 393314 399679 319604 160838 657618 824580 7470 13594 650148 810986 X THE CHILDREN'S CAUSE FOR CANCER ADVOCACY, INC. (CCCA) WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS. 0 0 274651 SEE SCHEDULE OEDUCATION: THE ORGANIZATION LEADS SEVERAL ACTIVITIES FOCUSED ON EDUCATING PATIENTS, SURVIVORS, AND THEIR FAMILIES ABOUT THE IMPACT OF FEDERAL HEALTH POLICY ON CHILDHOOD CANCER AND SURVIVORSHIP CARE. EDUCATIONAL PROGRAMS INCLUDE A MONTHLY E-NEWSLETTER, A VIRTUAL SURVIVOR TOOLKIT, AND A PARENT ADVOCATE TRAINING PROGRAM CALLED TRANSLATING OUR VOICES INTO ACTION. EACH MONTH THE ORGANIZATION ENGAGES IN A THOUGHTFUL ANALYTICAL PROCESS REVIEWING TIMELY AND RELEVANT POLICY ISSUES IMPACTING CHILDREN WITH CANCER. THIS INFORMATION IS DISTRIBUTED VIA THE E-NEWSLETTER AND SHARED THROUGH THE ORGANIZATION'S SOCIAL MEDIA NETWORKS TO PATIENTS, SURVIVORS AND FAMILIES. THE WEBSITE ALSO FEATURES A VIRTUAL SURVIVOR TOOLKIT THAT EVOLVED FROM SURVIVOR RISE TO ACTION CONFERENCES. THE TOOLKIT IS UPDATED REGULARLY WITH EDUCATIONAL INFORMATION, HELPFUL RESOURCES, AND RELEVANT NEWS ARTICLES ON A RANGE OF TOPICS RELATED TO CHILDHOOD CANCER SURVIVORSHIP. THE VIRTUAL PORTAL ALSO INCLUDES SLIDESHOW VIDEOS WITH AUDIO OF MANY PRESENTATIONS GIVEN BY LEADING ONCOLOGISTS AND SURVIVORSHIP EXPERTS FROM AROUND THE COUNTRY.CHILDREN'S CANCER AWARENESS AND ADVOCACY DAY: THIS DAY BRINGS TOGETHER PEDIATRIC PATIENTS, YOUNG ADULT SURVIVORS, AND FAMILIES FOR A DAY OF MOBILIZING AGAINST CHILDHOOD CANCER. THE ORGANIZATION PARTNERS WITH OTHER ORGANIZATIONS TO OFFER A TRAINING WORKSHOP FOR THE LOBBY DAY WHICH FAMILIARIZES SURVIVORS WITH THE FEDERAL LEGISLATIVE AND APPROPRIATIONS PROCESS AND INSTRUCTS ATTENDEES ON EFFECTIVE MESSAGING STRATEGIES FOR VISITS WITH CONGRESSIONAL MEMBERS AND STAFF.PUBLIC POLICY ADVOCACY: THROUGH PRESENTATIONS TO GOVERNMENT AGENCIES, POLICY MAKERS, COALITIONS, AND STAKEHOLDERS, THIS PROGRAM PROVIDES INFORMATION ON THE IMPACT OF FEDERAL POLICY ON CHILDREN WITH CANCER AND SURVIVORS. THE PURPOSE IS TO FACILITATE THE DEVELOPMENT AND APPROVAL OF MORE EFFECTIVE AND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER AND ENSURES APPROPRIATE CARE FOR SURVIVORS THROUGH EDUCATION ON THE BARRIERS TO DRUG DEVELOPMENT AND THE CONSEQUENCES OF CURRENT TREATMENTS.THE ORGANIZATION ALSO UTILIZES WEBSITE EDUCATION AND MONTHLY NEWSLETTERS TO FACILITATE THEIR CAUSE. 274651 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 4 0 1 6 1 0 0 0 0 0 0 0 0 0 0 X 14 13 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 1 0 MD NY X X THE ORGANIZATION 2023368374 750 FIRST STREET NE 7TH FLOOR WASHINGTON DC 20002 LYNN BAYARD 5.00 X X 0 0 0 SUSAN SCHERR 3.00 X X 0 0 0 ELIZABETH GOSS 5.00 X X 0 0 0 JENNIFER NIEDERMEYER 3.00 X 0 0 0 LEONARD ROSEN 3.00 X 0 0 0 BETH SILBER 3.00 X 0 0 0 STEVEN SHAK MD 3.00 X 0 0 0 ROBYN STERLING ECKERLING 3.00 X 0 0 0 JOHN STEWART 3.00 X X 0 0 0 SUSAN L WEINER 5.00 X X 0 0 0 WYLIE D CHEN 3.00 X 0 0 0 ZELDA D TETENBAUM 3.00 X 0 0 0 DAVID G POPLACK MD 3.00 X 0 0 0 MAUREEN LILLY 40.00 X 125000 0 8530 125000 0 8530 1 0 0 0 0 559595 559595 922 922 560517 0 0 922 133298 90731 28423 14144 121894 82968 25992 12934 2827 1924 603 300 9277 6315 1978 984 19153 13037 4084 2032 9790 9790 7814 7814 12667 10026 2599 42 19429 13225 4143 2061 7570 6426 660 484 2100 1429 448 223 1900 1900 HOTEL AND CATERING 20916 20916 COGS-PROGRAMS/EVENTS 10350 9975 375 0 CONTRACT LABOR 7785 7785 DUES AND SUBSCRIPTIONS 4154 3934 220 8755 5960 1867 928 399679 274651 82862 42166 21445 41221 606552 767262 26744 7428 0 5912 18488 15731 2877 2757 657618 824580 7170 9594 300 4000 7470 13594 X 606398 792333 43750 18653 650148 810986 657618 824580 160838 0 X 0 1 X 0 0 X 375366 542794 500302 711274 559595 2689331 375366 542794 500302 711274 559595 2689331 262186 2427145 249 11 397 1154 922 2733 123 610 490 1223 2693287 0.90120 0.90580 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 6150 0 0 6150 0 18488 15731 2757 2757 X 560517 0 560517 0 560517 399679 0 399679 0 399679 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE ORGANIZATION HAS ADOPTED FINANCIAL ACCOUNTING STANDARDS BOARD INTERPRETATION NO. 48, ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, (FIN 48), AS PERMITTED BY FASB STAFF POSITION (FSP) FIN 48-3, WHICH IS CODIFIED AS FASB ASC 740. FASB ASC 740 REQUIRES CHANGES IN RECOGNITION AND MEASUREMENT FOR UNCERTAIN TAX POSITIONS. THE ORGANIZATION HAS ANALYZED ITS TAX POSITIONS, AND HAS CONCLUDED THAT NO LIABILITY SHOULD BE RECORDED RELATED TO ANY UNCERTAIN TAX POSITIONS. THE ORGANIZATION IS NOT AWARE OF ANY TAX POSITIONS WHICH IT BELIEVES WILL CHANGE MATERIALLY IN THE NEXT TWELVE MONTHS. IF THIS POSITION CHANGES, THE ORGANIZATION WILL ASSESS THE IMPACT OF ANY SUCH MATTERS ON ITS FINANCIAL POSITION AND RESULTS OF OPERATIONS. FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11 THE ORGANIZATION WILL PROVIDE A COPY OF THIS FORM 990 TO MEMBERS OF THE GOVERNING BODY BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C THE PROCEDURES SECTION OF THE CONFLICTS OF INTEREST POLICY PROVIDES A DUTY TO DISCLOSE REQUIRING THAT UPON FIRST KNOWLEDGE BY AN INTERESTED PERSON THAT THE BOARD OR A COMMITTEE THEREOF IS CONSIDERING OR HAS CONSIDERED A TRANSACTION OR ARRANGEMENT WITH AN ENTITY OR INDIVIDUAL WITH WHICH THE INTERESTED PERSON HAS AN INTEREST, THE INTERESTED PERSON MUST DISCLOSE THE EXISTENCE AND NATURE OF HIS OR HER INTEREST TO THE BOARD OR THE COMMITTEE OF THE BOARD CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. FURTHER, THE POLICY PROVIDES FOR PERIODIC REVIEWS TO ENSURE THAT THE CORPORATION OPERATES IN A MANNER CONSISTENT WITH ITS CHARITABLE PURPOSES AND THAT IT DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS STATUS AS AN ORGANIZATION EXEMPT FROM FEDERAL TAX, PERIODIC REVIEWS SHALL BE CONDUCTED THAT SHALL, AT A MINIMUM, CONSIDER WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE AND ARE THE RESULT OF ARM'S-LENGTH BARGAINING. IN ADDITION, OUTSIDE EXPERTS MAY BE USED IN CONDUCTING PERIODIC REVIEWS, BUT THEIR USE SHALL NOT RELIEVE THE BOARD OF ITS RESPONSIBILITY FOR ENSURING THAT PERIODIC REVIEWS ARE CONDUCTED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR THE ORGANIZATION'S EXECUTIVE DIRECTOR IS DETERMINED BY THE ORGANIZATION'S BOARD OF DIRECTORS. THE BOARD SETS THE EXECUTIVE DIRECTOR'S COMPENSATION AND REVIEWS COMPENSATION PLANS, POLICIES, AND PROGRAMS OF THE ORGANIZATION. THE ORGANIZATION'S COMPENSATION PACKAGES ARE SET AND GOVERNED BY ITS BOARD, WHICH INITIALLY APPROVES THEM AND HAS DISCRETION TO CHANGE THEM. THE BOARD DOES UTILIZE INDEPENDENT SOURCES AND OTHER TIMELY AND COMPARABLE DATA TO REACH ITS RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC.