2025-12-15T09:41:44-05:00 2025-07-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2024-08-01 593124673 Central Florida Down Syndrome Assoc Inc % Heather Barnes CENT 4074785621 204 N Wymore Rd Winter Park FL 32789 HEATHER BARNES Executive Director 4074785621 2025-12-11 true true JOHN MULLINS P01429307 2027706371 2025-12-15 2024 2025-03-06 01:10:19Z Heather Barnes 204 N Wymore Rd Winter Park FL 32789 770165 false X www.DSACF.org X 1992 FL To change what is possible for people with down syndrome through programs, resources, and advocacy 12 12 6 276 0 0 944456 667055 0 213506 80314 -145291 -82213 1012671 665156 390809 43350 0 268521 303099 0 205732 300645 331860 959975 678309 52696 -13153 2344542 2255026 558856 426601 1785686 1828425 To change what is possible for people with down syndrome through programs, resources, and advocacy false false 355809 43350 1) Programs 2) Resources 3) Advocacy & Outreach See Schedule O for details. 355809 true true false false false false false false false true true false false false true true true false false false false false false false true false false false true false false false false false false false false false false false false false false false false false false true 13 0 true 6 true false false false false false true true false false false false false false X 12 12 false false false false false false false true true false false true true true true true false true false false X X The Organization 4074785621 204 N Wymore Rd Winter Park FL 32789 Heather Barnes Executive Director 40.00 0.00 X 116000 0 0 Cory Aspelieter Director 5.00 0.00 X 0 0 0 Marc Miller Director 5.00 0.00 X 0 0 0 Christina Bock Director 5.00 0.00 X 0 0 0 Rebecca Samaan Director 5.00 0.00 X 0 0 0 Jeff Goodman Director 5.00 0.00 X 0 0 0 Ben Strombeck Director 5.00 0.00 X 0 0 0 Patricia Lewis Director 5.00 0.00 X 0 0 0 Candace Whiting Director 5.00 0.00 X 0 0 0 Chris McVay Director 5.00 0.00 X 0 0 0 Troy Culley Chair 10.00 0.00 X X 0 0 0 Mary Beth Eliason Secretary 10.00 0.00 X X 0 0 0 Zak Sultan Treasurer 10.00 0.00 X X 0 0 0 116000 0 0 1 false false false 9340 543332 114383 7046 667055 46957 46957 54860 21503 33357 33357 33357 543332 83506 -83506 -83506 Other Income 900099 1293 1293 1293 665156 1293 0 -3192 43350 43350 116000 69194 12648 34158 160961 96015 17549 47397 3524 2102 384 1038 1493 891 163 439 21121 12599 2303 6219 37740 37740 6956 6956 62244 62244 2446 1612 700 134 41436 23502 16737 1197 12569 5016 718 6835 6503 6503 7717 7436 281 70762 863 2751 67148 13586 9327 1383 2876 13319 9057 1332 2930 11923 11923 Bank & Merchant Fees 28173 52 28121 Dues & Subscriptions 2349 2299 50 Other Expenses 14137 3799 3098 7240 678309 355809 116768 205732 490221 356497 31000 25000 40550 32058 602799 207776 397867 395023 1365581 1425873 19323 20575 2344542 2255026 28394 26759 294662 281942 235800 117900 558856 426601 X 379642 387146 1406044 1441279 1785686 1828425 2344542 2255026 -13153 55892 0 X false true X true false X 363557 721121 640182 797828 667055 3189743 363557 721121 640182 797828 667055 3189743 62089 3127654 16853 21646 28340 213506 46957 327302 2202 9396 5770 1337 1293 19998 3537043 0.88430 0.89570 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1384904 61544 1446448 1188842 196062 1384904 971300 217542 1188842 990276 -18976 971300 888239 102037 990276 0.01000 0.99000 true false 83600 83600 519199 207776 311423 395023 Other Liabilities 117900 117900 X 714092 55892 55892 658200 6956 6956 665156 671353 671353 6956 6956 678309 Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) The Organization is exempt from federal income tax under provisions of section 501(c)(3) of the Internal Revenue Code. In addition, The Organization has been determined by the Internal Revenue Service not to be a private foundation within the meaning of Section 509(a) of the code. Consequently, no provision for income taxes has been included in the financial statements. The Organization evaluates its tax positions for uncertainties on a regular basis and has determined that it has no material uncertain tax positions as of July 31, 2024. The Organization recognizes the accrued interest penalties, if any, associated with uncertain tax positions in management and general expenses in the accompanything financial statements. The Organizations tax returns are subject to review and examination by federal and state authorities. The Organization is not aware of any activities that would jeopardize its tax-exempt status. The Organization is not aware of any activities that are subject to tax on unrelated business or excise taxes. Gala 308232 308232 9926 51168 Walk 235100 235100 19140 3272 543332 543332 29066 54440 83506 459826 true Scholarships 46 43350 Monitoring procedures (Part I, line 2) Procedures for monitoring the use of grant funds: DSACF offers several types of scholarships to families in need, including expenses traditional insurance may not cover, such as: swim lessons, therapies, special assessments, medical bills, adaptive equipment, etc. Additionally, DSACF offers emergency assistance for families that have an unplanned need. Funds for the scholarship program are included as part of the annual operating budget and are tracked via an internal form that captures all answers from the application. This form allows us to track all recipients, date of receipt, ect Form 990 governing body review Part VI line 11 The 990 will first be reviewed by the finance committee for accuracy and then the finance committee provides a recommendation to The Board of Directors to approve the 990. The Board of Directors will then review and approve the 990 prior to filing. Conflict of interest policy compliance Part VI line 12c All conflict of interest statements are reviewed and any possible conflicts are identified. Any potential conflict of interest would go to the governance committee for review and decision. All documentation and records of the decision would be retained for disclosure. CEO executive director top management comp Part VI line 15a If an existing or interim executive director is in place, that person would pull compensation for similar positions in central florida and provide this to The Board of Directors. If no interim or existing executive director is in place at the time of the search, a member of the hiring committee would pull this data for review by The Board of Directors. Board of Directors established an agreed upon salary range, however, salary is then negotiated at the time of a job offer and any subsequent raises, bonus, or annual increases are also approved by The Board of Directors. The Board deliberation is recorded in the minutes of meeting. Governing documents etc available to public Part VI line 19 The Organizations governing documents, conflict of interest policy, and financial statements are available to the public via Central Florida Foundation nonprofit search. Also, the audited financial statements are posted on The Organizations website. Part VI response or note to any other line in Part VI The Executive Committee shall be comprised of the chair, vice chair, secretary and treasurer. In the case of an emergency, the chair will first attempt to schedule a special meeting of The Board to address the situation. If the chair is unable to convene a quorum of The Board in the time reasonably necessary under the circumstances, he or she may convene the Executive Committee, which may act with the full authority of The Board to manage The Association, except as such authority is limited by the articles of incorporation, these bylaws, any resolution of The Board, of law. Any emergnecy actions taken by the Executive Committee shall be submitted to The Board at the next meeting for The Board for ratification. General explanation attachment Program Service Accomplishments:In fy25, DSACF offered 78 different programs, serving 3,282 individuals. Our services include programs, resources and advocacy.PROGRAMS: 1. Programs for ages 0 - 5 years old: new family celebration; new parent welcome kit and visits; baby basics group therapy; musical therapy; Polk County play group; baby playgroup; creative movement classes; sensory play hour for dual diagnosis; pre-k readiness summer camp; Orlando City Soccer Clinic2. Programs for 5-18 years old: buddy up tennis; karate; kickboxing; zumba; soccer; teen & adult dance class; Up Beat! jr musical theatre; school age playgroup; improvaneer method training; teen & adult art night; circles for tweens relationship and boundaries training; dating and relationships classes; Hola Amigos!; Friendsgiving; Camp Thunderbird Summer Camp; Orlando City Soccer Clinic3. Programs for adults: buddy up tennis; karate; kickboxing; zumba; soccer; teen & adult dance class; Up Beat! musical theatre; improvaneer method training; teen & adult art night; friendship club (community outings); adults night in social outings; circles relationships and boundaries training; adult life skills training; Hola Amigos!; Friendsgiving; Camp Thunderbird Summer Camp; Orlando City Soccer Clinic4. Programs for parents/caregivers/siblings: low down on law; march to independence advocacy day on capital hill; moms night out; mothers day brunch; dads night out; dads fishing trip; super siblings support group; aging child support group; dual diagnosis support group; grief support group; new family celebration; new family welcome basketsRESOURCES:1. Scholarships and emergency assistance: For fy25, DSACF provided over $41,000 in scholarships for a wide variety expenses that traditional insurance may not cover, including: swim lessons; therapies; special assessments; medical bills; adaptive equipment; summer camps; extracurricular activities; etc. Dsacf also offers emergency assistance to families that have an un-planned need that cannot be met.2. Educational trainings & seminars: IEP Webinar; Adult Health Webinar; Puberty Webinar; Pediatric Health Webinar; Pediatric ENT Webinar; social security; Employ U - supported employment webinar.3. Special events: Throughout the year, DSACF offers several opportunities for families to get together and celebrate, including: Walk Kick-off Party; Step Up for Down Syndrome Walk; Trunk of Treat; holiday party, 3 Kings Day celebration; World Down Syndrome Day celebration; summer movie; foam party; pirates dinner adventure show; Orlando City Soccer Night Out.ADVOCACY & OUTREACH:1. Low Down on Law: In partnership with Davey Law Group, DSACF is able to provide two low down on law day workshops each year. Expert lawyers, judges, and officials in the Central Florida Community come together to break down the legal complexities families with special needs must navigate for their loved ones. 2. UCF & UCF Medical School presentations: A session where DSACF brings multiple families to present to emerging medical students theImportance of how they deliver a down syndrome diagnosis affects families. 3. Step Up for Down Syndrome Walk: This day includes families, volunteers and members of the community who support our mission. Over 2,00 attendes participate in this day of celebration and comraderie. 4. Family fun days: In partnership with our local theme parks, DSACF is periodically able to provide complimentary tickets to theme parks so that families can enjoy a day of camaraderie and pampering, while celebrating their family members with down syndrome.